Supporting Autism Families: Meet Our New Social Worker

counseling-mallory

One of the unique services we provide here at Healing Haven is counseling for a variety of people impacted by an autism diagnosis. Our counselors support autism families through working directly with individuals with autism, as well as their parents and siblings.

Navigating an autism diagnosis can be complex for parents, as well as for some children and teens who feel different compared to their peers. Some may also struggle with social skills and interacting with others, or need help in understanding and controlling their emotions. We did a previous post on counseling and autism, featuring our onsite therapist Danielle. And now we are excited to announce the newest addition to our team, Mallory Meter. Mallory is a social worker who started providing counseling services for autism families here at Healing Haven in September 2019.

Mallory worked in the Chicago area for the past four years. She has a Bachelors of Arts from the University of Notre Dame where she majored in psychology. She then received her Masters of Social Work from The School of Social Service and Administration at University of Chicago. 

In preparation for her transition here to Healing Haven, we sat down with Mallory to get to know her better. Learn about her experience and approach to therapy, and how she might support you and/or your child:

HH:  Why did you want to work with kids with autism / special needs?

MM: I have always been passionate about working with children. I am a strong believer that children can teach us so much about ourselves and how to be better human beings. This is especially the case when it comes to children impacted by autism and developmental differences. While these children can face a number of challenges, they also carry so much creativity, potential, and strength. Being able to face challenges alongside these children, to learn from their resilience, and to witness their growth and change is endlessly exciting and a true honor for me.

HH: Describe your career background and other experiences you have that are a benefit to the work you will do here at Healing Haven.

MM: My first job out of graduate school was at a Chicago-area therapeutic day school for children with autism called Giant Steps. This role provided me with extensive exposure to interventions aimed at promoting social-emotional development in this population. Additionally, I learned how to navigate the world of public schools and IEPs. As a result of working closely with a multidisciplinary team made up of speech and language pathologists, occupational therapists, BCBAs and special education teachers, this role provided indispensable opportunities to learn new and creative ways to intervene with and support children impacted by autism spectrum disorder.

Following this role, I worked as a social worker on the inpatient psychiatry unit at Ann & Robert H. Lurie Children’s Hospital of Chicago where I also completed my training practicum in graduate school. Here I was able to further develop my understanding of a range of psychiatric diagnoses and strengthen my skills in providing evidence-based treatments at an individual, family, and group therapy level. Most recently, I had moved into a new position within the Division of Child and Adolescent Psychiatry and the Division of Developmental and Behavioral Pediatrics where I provided case management, parent training, and therapeutic/educational support to families and children impacted by ASD, Down Syndrome, Intellectual Disability, and a range of additional learning differences. More than anything, my time at Lurie Children’s Hospital confirmed my passion for working with children and adolescents impacted by developmental differences, especially those impacted by comorbid mental health concerns.

HH: What motivates you coming to work every day?

MM: My favorite part of this work is partnering with children and families. I love helping them feel understood, accepted, and supported in a way they haven’t before. The moments when a caregiver or child communicates in some way these feelings of being seen, accepted, and supported are what motivates me to come to work everyday. Coffee is always helpful too…

HH: Describe the types of counseling you will do with clients at Healing Haven. Skills you will work on, tools you will incorporate to help clients grow, etc.

MM: I hope to promote a wide range of skills and areas of growth in my work at Healing Haven. These include emotional identification and regulation skills, perspective taking and social skills, and coping/distress tolerance skills. I would describe my therapeutic lens as trauma-informed, strengths-based, relational and family systems-informed. Attachment therapy is also a guiding framework in my work. Within this broader stance, I pull from a number of evidence-based treatments including: Cognitive Behavioral Therapy, Dialectical Behavioral Therapy, Acceptance and Commitment Therapy, and Brief Solutions Focused Therapy to name a new. Additionally, a few specific tools I love to utilize in my work with autism families and children include mindfulness, Collaborative and Proactive Solutions, and Social Thinking strategies.

HH: What is a favorite memory of working with a client?

MM: My favorite memory was being staffed with a little guy on my caseload at Giant Steps. We had a field trip to a pool. He had previously been extremely scared (emphasis on extremely) of water. After a ton of work he was able to get in the pool and even go on the water slide! As a result, I’ll never forget his smile that day.

And here some fun things to know about Mallory 😊

  • Favorite food: Bread, bread, bread
  • Radio Station/Music on iPod: NPR or my own music
  • Favorite movie: Wild
  • How do you relax/de-stress outside of work: Spending time with family, yoga, reading (I’m a huge bookworm!)
  • Drink: Coffee
  • Favorite book: I don’t think I can pick just one!

As you can see, Mallory is a great asset to have on our team. We are excited to have her here helping autism families! If you are a parent in need of help for yourself, or your child is struggling with things related to their autism, ADHD, depression or anxiety, we are here to help! Simply fill out the Contact Us form and we will get back with you!

Autism Parenting: Help for Stressed Relationships

Autism-parenting

Having a child with autism, Down syndrome or any other type of special needs brings all kinds of new realities into your life. Some can be amazing – like gaining a whole new community of people you may have never met before. But other things can definitely add stress to the lives of autism parents. From more doctor appointments to navigating special education and IEPs, to scheduling therapies – all of these new realities can put stress on your relationships with your spouse, your family members and your friends.

With the help of Allie Young-Rivard, LLPC, we’ve compiled some information and resources to help autism parents with relationships that may be under stress.

Marriage – The odds are NOT stacked against you

There’s an often-quoted statistic that the divorce rate among parents who have a child with autism is around 80%. Or it’s at least quoted as being higher than the general population. This outdated figure was based on older, smaller studies, which can often lead to inaccurate data.

The Interactive Autism Network, which connects the autism community and researchers, breaks down the updated research findings in their article Under a Looking Glass: What’s the Truth About Autism and Marriage?:

“Researchers in Baltimore investigated the supposed 80 percent divorce rate for parents of a child with autism spectrum disorder (ASD). Unlike other studies, this one was particularly large – using data from almost 78,000 parents, 913 of whom had a child with autism – and included families from across the United States. The bigger the study, the less likely the results are due to chance or something unique about the pool of people studied. The researchers, from Kennedy Krieger Institute and Johns Hopkins University, found no evidence of an 80 percent divorce rate.9 In fact, parents of children with autism split up as often as parents of children who don’t have autism, according to their research.”

We hope this new information encourages you that even though you may face some stress in your marriage due to your child’s diagnosis, it doesn’t automatically mean your marriage is doomed because of autism. If your marriage is struggling, ask for help before it’s too late.

When Divorce Does Happen

Even with this hopeful news for couples who have an autistic child, there are still a lot of marriages under stress. Deciding to divorce is complex and difficult. This life-altering course can cause intense anxiety. It can also cause worry about how the decision to separate will affect your children. For parents of children with special needs, the choice to separate and/or divorce is particularly difficult because of the added needs and responsibilities.

Support for Your Child

Many children on the autism spectrum have difficulty adapting to change. So naturally it is common for parents to worry how their child will acclimate to their new reality, routine and living situation. It is important to prepare your child for the changes that are going to happen.  Providing your child with a visual schedule that outlines the custody arrangements will help them know what to expect. Having consistency at both houses will also be helpful. Work together to have a similar calendar at both locations that shows your child’s daily routines and notes what house he or she will be at. By using tools that prepare them you can help them understand their new routine and hopefully reduce some anxiety. Additionally, talking about the schedule ahead of time to avoid surprises is beneficial for everyone involved.

Another helpful idea is to create a social story explaining the changes and what to expect. If your child receives ABA therapy, talk with their BCBA about creating a personalized social story to prepare them for their new routine and the changes in their family situation.

Lastly, depending on the age of the child and their communication ability, seeking a therapist who specializes in adjustment could be helpful. We have counselors on our team who work with children and teens on the autism spectrum. Seeing an experienced therapist can help children process their new family dynamics and adjust to the changes. Please contact us if you would like to pursue counseling for your child.

Co-parenting

It is important for a divorced couple to remember that is it about the child (or children). The definition of co-parenting is:

Verb; (especially of a separated or unmarried couple) share the duties of parenting (a child).

Keeping your focus on doing what is best for your child can help both parents stay on track and follow through on maintaining routines. Establishing and upholding proper communication with your former spouse will ensure support and success for your child. If communication with your ex is difficult, seek out family counseling and/or individual therapy if your former spouse is unwilling to join you. Counseling can help you learn how best to work together for the common interest of your child.

Family or Friends Who Don’t Understand Your Child’s Unique Needs

When your child is diagnosed with a disability it can often feel like you’re alone. Those close to you may not understand what you’re going through as you navigate therapies, doctors, support at school and situations that are difficult for your child. Some may spend less time with you and your family. This often stems from not really understanding the diagnosis. When a family member or close friend expresses criticism of your child’s behavior, or of you as a parent, it’s important to address it.

You can first try to explain what your child’s diagnosis means, how it impacts them medically, emotionally, behaviorally, etc. Explain the therapies and medical treatments they are receiving and why. Talk about what their education situation is like and how it benefits them. If your child has sensory issues, repetitive behaviors or stimming, difficulty with change, etc, it’s good to take time to explain them to your family. Being open and honest can help your loved ones understand and hopefully lead to support from them. 

Is It Time To Set Boundaries?

If, however, after explaining all of these things, they isolate you or stop talking with you, first know that it’s not you or your child. It is their inability to be sensitive and understanding of differences and supportive of those with unique needs. If you are facing criticism or lack of understanding toward your child, you may need to establish boundaries. This may mean limiting time spent at family gatherings, or not taking your kids to their grandparents’ house.

Whatever the situation you are facing, it’s important to remove yourself from unsupportive relationships and find support from others in similar situations. Setting boundaries with unsupportive family members can be tough, but putting your mental health and the child’s well being first is beneficial for everyone. Additionally, a professional counselor can help you develop coping skills to navigate strained relationships, as well as help you process your own feelings regarding your child’s diagnosis.

We hope you’ve found this information and ideas for autism parents helpful as you encounter stress in various relationships. And if you find you need some outside help and perspective, please reach out to us!

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Preparing For Your Child’s IEP

Preparing For Your Child’s IEP

There are a ton of resources out there if you do a Google search for “IEP tools” or “preparing for an IEP”. It can be overwhelming. We want to provide some information to help you sift through all the content so that you can walk into your child’s next IEP more confident than you did the last one.

One thing is for sure: when you have a child with autism, ADHD, Down syndrome, dyslexia, or any other condition that impacts their learning, becoming an expert in the IEP (Individualized Education Plan) process is necessary for parents. Read on for some tips and resources to help you in preparing for your child’s IEP.

Remember the law is on your side

First, there is the Individuals with Disabilities Education Act establishing the framework for what students with disabilities are entitled to in school – a Free and Appropriate Public Education (FAPE), in the Least Restrictive Environment (LRE).

And more recently there is the Endrew F. Decision in which the Supreme Court ruled in March 2017 that Individual Education Programs must give kids with disabilities more than a de minimis, or minimal, educational benefit. The Supreme Court ruled on the meaning of a free appropriate public education (FAPE). The case involved a boy with autism and ADHD, who made almost no progress on his IEP goals because his behavioral and academic needs weren’t addressed. Understood.org created this helpful resource as a result of this decision.

You are your child’s best advocate

Even with the law being on your side, the reality is, not all school districts are created equal. Whether it’s in the arts programming they provide or the special education services they offer, philosophies and services can vary widely from district to district and state to state. Know your rights as an equal member of the IEP team and be ready to step out of your comfort zone to advocate for what your child needs.

Walk in with the mindset that this is your child’s meeting, not a district meeting or a special education department meeting. Remember, you are the expert on your child. Come to the meeting with your own data – video of your child doing things, copies of their “’work”. They may not demonstrate their full potential during a standardized assessment, so compiling your own data can reinforce what you are advocating for!

Don’t forget the Parent Concerns Letter

Most IEP forms have a very small box for “Parent Concerns”. Know that you are not limited to how many words can fit in that box. You can draft an entire letter outlining your child’s needs and the concerns you have for their progress and learning. Here’s a great resource from A Day In Our Shoes specifically about the Parent Concerns Letter. Communicate your vision for your child and don’t allow anyone to change YOUR vision.

Framing the conversation

It’s important to tailor the conversation when it comes to preparing your child’s IEP. It is difficult to hear how your child stacks up to their typical peers. That’s the reality of the standardized assessments and evaluations presented by the IEP team. You know your child struggles with communication, fine motor, reading, math, or whatever it is. But to have that data in black and white can be quite sobering. Help set the tone by flipping weakness statements into strengths and needs statements. As this Brooke’s Publishing blog post states, by changing “can’t do” statements into “the student needs…” you will end up with an effective IEP that not only establishes high expectations, but also will meet your child’s needs.

What if you don’t agree with the IEP and/or others on IEP team

It’s OK to not finish within the first meeting. You can reconvene for a second (or third, or fourth) IEP meeting if necessary. And consulting with a special education advocate can be very helpful if your emotions are running high and you’re not feeling heard by the district. An advocate can help you with talking points, legality issues, and even attend the IEP with you to assist with communication between you and the school district representatives. Additionally, a free local resource for parents is Michigan Alliance for Families.

Additional Resources

There really is a TON of information out there to help you with your child’s IEP. Instead of making this post any longer, here are a few additional resources for you to check out:

We hope these tips and resources for preparing for your child’s IEP prove to be helpful for you. And if you have any tips that you find especially helpful, please share them in the comments!

The Benefits of a MiABLE Account for Your Child with a Disability

Raising and caring for a child with a disability oftentimes comes with added expenses. Things like extra medical costs, therapies, academic tutoring, assistive technology and much more come into play. Getting help to cover these additional expenses can be difficult. This is especially so when you have an average income and don’t qualify to receive government support for your child with a disability. When thinking about your child’s future and whether they will be able to support themselves, it can become overwhelming for parents to plan for, let alone manage the here and now.

The state an individual lives in and the disability they have largely determines the financial rules and restrictions they must follow. A bill was passed in certain states that requires employees to pay disabled workers at least minimum wage. Still, many disabled people must follow intricate rules to receive the benefits they need to successfully care for themselves.

So how can a person with a disability pay for all their daily living expenses like housing, food, education, transportation, ect., if they can’t earn a living wage, or are unable to? And on top of that, they risk losing any government benefits if they have “too much” money in their name.

Enter the ABLE Act

Thankfully, Congress passed the ABLE (Achieving a Better Life Experience) Act in 2014. The ABLE Act amends Section 529 of the Internal Revenue Service Code of 1986 to create tax-free savings accounts for individuals with disabilities. Here is the official description of the intent of the ABLE Act from the ABLE National Resource Center:

“By making tax-free savings accounts available to cover qualified disability-related expenses (including education, housing and transportation), this law aims to ease financial strains faced by individuals with disabilities. Additionally, the funds contributed into these accounts will not negatively impact the person’s eligibility for public benefits, such as Medicaid. The funds in these accounts don’t replace benefits provided through private insurances, the Medicaid program, the Supplemental Security Income program, the beneficiary’s employment and other sources. Instead, the funds supplement these benefits.”

A Powerful Tool for Michigan Families

Michigan established our MiABLE program back in 2016. We had the representative from the Michigan Department of Treasury here in our clinics to familiarize families on the benefits of having a MiABLE account for their child with a disability. Scott de Varona shared all the specifics of how the program works, how to set up an account and answered a plethora of questions from parents.

Here are a few of the highlights:

  • To be eligible, individuals must become disabled before the age of 26. They can prove their eligibility one of three ways: eligible for SSI or SSDI because of a disability (but do not have to be drawing on those benefits), have a condition listed on SSA Compassionate Allowances List, or self-certification with a physician diagnosis and documentation.
  • Qualified Disability Expenses (QDE) include much more than the original 529 College Savings Plans. MiABLE accounts can be used to pay for the expenses of everyday living for the person with the disability. QDE’s include: education, housing, transportation, employment training programs, assistive technology, personal support services, healthcare and medical costs, financial management services, legal fees, and end-of-life expenses.
  • The maximum contribution per year is $17,000. And account holders can have up to $100,000 in an ABLE account before their SSI benefits may be suspended. Once the account falls back below the $100,000, SSI benefits can resume.
  • ABLE assets are excluded for Medicaid eligibility. There is no asset threshold as there is for SSI benefits.
  • Investment options include a range of conservative to aggressive stock. Additionally, for those who want easy access to use their account now, there is a money market savings account with a debit card option.
  • If you have a Financial Advisor, you can allow them to manage your investment options. They need to complete the Agent Assisted Enrollment Form.
  • A MiABLE account doesn’t replace a Special Needs Trust. It’s another “tool in the toolbelt” to provide for an adult or child with a disability.

Tax Benefits

  • ABLE accounts are funded with after-tax contributions and can grow tax-free when used for qualifying disability expenses.
  • In addition, the State of Michigan features one of the largest tax deductions for contributions to an ABLE account. Single filers can receive a $5,000 tax deduction and a married couple filing jointly can receive a $10,000 tax deduction.
  • Many parents may have already set up a 529 College Savings Plan for their child before they were diagnosed with a disability. Those funds can be transferred to an ABLE account without penalty, and then can be used for a broad range of expenses!
  • Others can contribute to an individual’s MiABLE account to help it grow. Family members and friends can make contributions through the online portal or by mailing in a check. And if they are Michigan residents, they can take advantage of the tax deduction, too. Additionally, some states offer a deduction to ABLE account contributions in other states.

The Greatest Benefit

There are so many benefits to creating a MiABLE account for a child or young adult with a disability. But the greatest benefit has to be empowering disabled individuals to save for their future and creating a way for them to truly achieve a better life experience!

For more information, visit the MiABLE website or call them to have your questions answered: 844-656-7225. And the ABLE National Resource Center has a lot of helpful information too.

And for more information about Healing Haven and the services we provide families of children with autism and other special needs, visit Our Services page.

Follow Your Dreams Day

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Celebrating A Special Day

May 5 is a very special day in Healing Haven history. It was on this day in 2014 that Healing Haven became a full-time, packed to capacity holistic ABA clinic serving the entire family.

The origins of Healing Haven began during our founder Jamie McGillivary’s years running the HOPE Center through Beaumont Hospital. For nearly 13 years she dedicated her life to the families that came to the clinic in search of help and hope for their children. Jamie and her team created a state-of-the-art program that helped families learn how to help their children in a climate and time that was not as accepting of autism and the challenges families face. Many of our leadership team also started their careers alongside Jamie.

Through this time, Jamie recognized the need for stress management for families and other services to help support them and their unique needs navigating the world of autism. While the hospital was supportive of Jamie’s ideas, they were not able to provide the tangible support to make it happen. However, in 2010 they gave Jamie the go-ahead to figure it out on her own, outside of her time at Beaumont. It was then that the Healing Haven was born, operating in the evenings. For four years Jamie and her small team worked endlessly long hours running two clinics. Though it was not easy, with dedication, hard work and perseverance, Jamie’s dream slowly came into vision.

The First Follow Your Dreams Day

When the hospital made changes to their program, she knew it was time to follow the calling, be brave and take a leap of faith. On May 3, 2014 Jamie and a handful of other Healing Haven leaders followed their guts, took a breath and jumped into something terrifying and wonderful. The first step was resigning their positions at Beaumont. The next Monday, May 5th, the Healing Haven became a full-time, packed to capacity holistic ABA clinic serving the entire family, thus living out the first “Follow Your Dreams Day”! 

Holistic ABA Clinic

Jamie remains forever grateful to the families and staff that saw the vision with her and made the jump to give us a chance. This year celebrates our 5th year anniversary of becoming a full-time ABA clinic. What started off as a 1 employee business in a 10 by 10 room rented with money scraped together every month, has become what you know today, two ABA clinics totaling 25,000 square feet, with over 100 employees and growing! We continue to grow in size, quality programs and love.

“I am always in awe at the spectacular people that have been sent to walk the path with us,” explains Jamie. “I believe each one of you were sent here with a distinct purpose. Whether it is to help us further our mission, or to build you up in some way to help you fulfill yours. I am forever grateful for the dedication and love each of you show daily for our mission.”

https://thehealinghaven.wistia.com/medias/wrhuoz8zad

Helping Make Dreams Come True

If there’s one message that this day reminds us of, it is that dreams do come true! And if you are working from a place of love and integrity you can change the world. We remember this day to encourage our team members to think about their own dreams, set their intentions and thoughtfully set out to make them happen.

Follow Your Dreams 2019

This year we wrote our wishes on flying wish paper and celebrated with a Taco Bar.

  • Jamie sharing the history of Follow Your Dreams Day

“From the bottom of my heart thank you for all you do and helping make my dream a reality every day!” – Jamie McGillivary

If you’re interested in joining our team, where you and your dreams are supported – fill out the Join Our Team form and we will get back with you!

Autism Resources in Michigan

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Autism Resources in Michigan: Autism Alliance of Michigan

The annual Autism Alliance of Michigan Navigating Autism Today Conference is always important for us to be a part of. It’s a wonderful event that provides valuable autism resources. It also offers encouragement for families and caregivers. Consequently, we are regularly reminded of what a wonderful organization we have here in Michigan advocating for individuals and families impacted by autism.

The Navigating Autism Today Conference is free for caregivers – a unique benefit not often offered by conferences. Presentation topics range from financial / life planning and explanations of the MiABLE act, to mental health issues. There are also sessions on communication, behavior, learning and more. If you have not attended, definitely plan to check it out next year. The breadth of autism resources is invaluable.

Celebrating their 10th anniversary this year, the AAOM continues to provide “help, hope, and answers”. They do this through raising community expectations, standards of care, and access to essential services. They tirelessly advocate for important legislation, safe and inclusive environments and system reform throughout the state of Michigan.

Here are just a few of the programs and services offered by the Autism Alliance of Michigan:

MiNavigator

“MiNavigator was created to provide a professional case management service to Michigan families affected by autism. It is staffed by a team of autism specialists with expertise in many fields, including clinical, educational, insurance, vocational, public safety, policy, and legal. Our autism specialists work one-on-one with each family to help them navigate and overcome the many barriers they face when trying to access care and support for their loved one affected by autism.”

A Call to Action

The MiNavigator program has served over 5,000 families across the state of Michigan and is at risk of losing critical state funding. You can help by letting your state representative and senator know you want funding approved for this important program. Here is more information provided by the Autism Alliance of Michigan.

Ask an Expert

Website visitors are able to ask one of the AAOM experts a question you or a loved one is facing in any one of four categories: legal, advocacy, clinical and education. Additionally, you can also review answers to previously submitted questions.

Employment

Advocating for better employment opportunities for individuals with autism, the AAOM provides resources for employers to better understand autism. With the unemployment rate for individuals with disabilities so high, the AAOM educates employers on the value and benefits of hiring autistic workers. The AAOM’s philosophy regarding employment of individuals with autism is: “All citizens have the right to work. No perceived obstacle, prejudice or lack of awareness should deny any person that opportunity.” So whether you are an employer or a job seeker with autism, there are resources for you.

Events

From the annual Navigating Autism Today conference to the Michigan Shines for Autism Gala, to the Hero Walk at the Detroit Zoo, there are plenty of opportunities to get involved and connect with others through AAOM’s events.

Neighborhood Directory

The Neighborhood Directory is an online portal to search by category and location for a variety of autism resources, therapy providers, autism friendly businesses, adult services and more. As a result, you can quickly find a lot of helpful information and providers easily and quickly.

In addition to the above, there are many more resources available on the AAOM website for both caregivers and professionals. It’s easy to see why it’s our go-to resource for all things autism in Michigan!

If you found this information helpful, we’d love it if you’d share it with your network!

Autism and Co-occurring Health Conditions 

Conditions that Co-occur with Autism

When a child receives a diagnosis of autism it can be overwhelming for parents. They must learn how autism spectrum disorder is manifesting in their child and then how to best support them. Do they have communication challenges, or are they completely non-verbal? Do they experience sensory overload? Are they struggling with learning? Is it impacting their motor skills?

On top of these questions, parents may also have to navigate some common health conditions that can accompany autism. Just like there are many known health conditions that cooccur with Down syndrome (congenital heart defects, thyroid issues, hearing loss, celiac disease, etc.), many additional health issues can also arise in individuals with autism. And a December 2018 study indicates that children with autism are four times as likely to have their additional health needs go untreated, compared to the general population.

We are going to break down some of autism’s common co-occurring health conditions. Please note, this information is to only provide helpful insight for parents and caregivers and is by no means an attempt to diagnose any of these conditions in someone who has autism.

Epilepsy

The overlap between autism and epilepsy has a wide range – estimated somewhere between 5-46%. But a recent January 2019 study indicated 44% of patients with ASD also have epilepsy, while only 1-2% of the general population have epilepsy. One reason for the variability in identifying epilepsy in individuals with autism is if they have mild seizures. Mild seizure symptoms include blank stares, inattention and tics, which individuals with autism not having a seizure may also demonstrate. Additionally, those who have both autism and epilepsy are more likely to also have intellectual disability. The seizures could be interrupting brain development and as a result causing cognitive impairment. There is research indicating that a genetic component – the deletion of chromosome 15q13.3 is the most common risk factor for epilepsy. Additionally, the deletion of this same chromosome is also linked to autism.

GI Issues

A variety of gastrointestinal conditions can co-occur in individuals with autism – from abdominal pain, reflux, constipation or diarrhea. Diet is often thought to be the underlying cause of these issues. However, a 2017 study indicated that stress is more likely the cause of gastrointestinal trouble in people with autism, rather than their diet. But in contrast a recent 2019 study revealed “increasing evidence suggested that gut microbiota plays a critical role in gastrointestinal symptoms and behavioral impairment in ASD patients.” Whatever the underlying cause, it’s helpful to be aware of the commonality of GI issues in individuals with autism so that possible treatments can be found.

Depression

Depression is more common in children and adults with autism than in the general population. The rates of depression increase with age and intellectual ability. A 2018 study indicated 20% of young adults with autism experience depression, compared to only 6% in the general population. Those individuals without an intellectual disability are more prone to depression, most likely because they are more aware of their struggles that come with their autism diagnosis. Signs to look for include: loss of interest in favorite activities, chronic feelings of sadness, hopelessness, irritability, and noticeable change in hygiene habits.

Anxiety

Up to 42% of individuals with autism also experience anxiety, while only 3% of children and 15% of adults in the general population have anxiety issues. Social anxiety is especially common in people with autism. Social anxiety includes extreme fear of new people, crowds and social situations. Anxiety can also have physical symptoms like a increased heart rate, stomach aches, muscle tightness and the inability to move. Some individuals with autism struggle to communicate and may not be able to express how they feel. As a result, observing their behavior may be the best way to determine if they are experiencing anxiety. Treatment for anxiety can include behavioral interventions, cognitive behavior therapy, and in some cases anti-anxiety medication may also help.

OCD

Obsessive compulsive disorder (OCD) is related to anxiety and has a strong connection with autism. People with autism are twice as likely to have OCD compared to the general population. And those diagnosed with OCD are four times more likely to also have autism. Repetitive behaviors and restricted interest are a common factors with both OCD and autism. However, those with OCD are often bothered by their repetitive behaviors, while those with autism are usually not. Treatments for OCD in individuals with autism typically are medication and behavior therapy.

Editor’s note: A new article published days after this post goes into great detail regarding OCD and autism, so we want to provide a link to it: Untangling the ties between autism and obsessive-compulsive disorder.

ADHD

An estimated 6-7% of the general population have an ADHD (attention deficit hyperactivity disorder) diagnosis, while a staggering 30-60% of individuals with autism also have ADHD. Symptoms of ADHD include struggling to remember things, a noticeable pattern of inattention, difficulty managing time, hyperactivity and/or impulsivity. Autism and ADHD often have symptoms that overlap. A 2015 study revealed children with both conditions who were diagnosed with ADHD first weren’t diagnosed with autism until three years later. This delay in diagnosis is missing critical treatment time for these children. Because of this, it’s important to find a specialist experienced in working with both conditions to ensure nothing is missed.

Sleep Issues

Ask any parent of a child with autism and you’ll likely hear about sleep issues. A recent article in US News and World Report highlights the large percentage of children with autism who also struggle with sleep. Some research indicates 4 out of 5 children with autism have at least one sleep disorder! Whether it’s trouble falling asleep, not being able to stay asleep, or waking up way too early, not getting enough sleep can exacerbate behavior and functioning during the day. As a result, it’s important to come up with solutions to help improve the quality of sleep. This post about addressing sleep issues in children with autism provides a breakdown of how sleep impacts those with autism and some possible ways to help alleviate sleep issues.

Thyroid Issues

Research several years ago identified the connection between a hypothyroid in pregnant women and their child being four times more likely to be diagnosed with autism. So what about a child with autism and their thyroid function? The thyroid gland secretes hormones that are critical for the body. Problems with the thyroid can impact cognitive development, behavior and the functioning of the nervous system.  Dr. Raffael Kellman, MD identified 75% of children with autism have undiagnosed thyroid issues. However, because the thyroid impacts so many areas of development, getting it working properly can have a positive impact on language, cognition, motor development, GI issues and more.

Knowledge is power

We hope this information-packed post has helped you understand some of the more common co-occurring conditions associated with autism. So whether you want to ask questions of your child’s health care provider, or you can be a resource for other parents also navigating this journey, knowledge is power.

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Counseling and Autism

counseling

The Value of Counseling for Families Impacted by Autism

Receiving an autism diagnosis can result in a lot of uncertainty, anxiety and stress for parents, as well as for the child diagnosed and their siblings. So appropriately, counseling and autism go together like macaroni and cheese. When Healing Haven started in 2010, our foundational programs were ABA therapy and stress management services. We later added more programs, expanding the ages we provide ABA for, and providing additional supports like Speech Therapy, Counseling, Occupational Therapy and Academic Instruction.

Stress management for parents of children with special needs is critical, as “parent well-being increases child well-being”. Research tells us that parents can be effective agents of change for their children’s behaviors. Additionally, children and teens with autism often need help addressing their emotional needs, anxiety, and social challenges.

Our counseling services cover a wide range of needs. For parents we help them navigate this autism diagnosis, manage stress, and learn behavioral modification skills. For the child with autism we help them learn skills to manage their emotions and interact in the world around them. Additionally, we help siblings process the emotions that come from having a brother or sister on the spectrum and provide them with strategies to cope.

Meet Our Counselor

Our onsite therapist, Danielle Harrison, MA, LPC, has been working with families impacted by autism and other special needs since 2012. She started as an ABA therapist while in her undergraduate psychology program. After receiving her master’s in counseling she transitioned to the role of Counselor. Her experience in ABA therapy is a valuable tool that Danielle uses often in her counseling sessions, whether it’s with children, or while providing Parent Training.

Danielle working with her
Social Skills Group

Danielle uses techniques of applied behavior analysis to shape behaviors in children with autism. She uses Cognitive Behavior Therapy as well as Acceptance and Commitment Therapy to help them work through the emotions that may be causing them trouble. She also provides Parent Training to help families understand the concepts of reinforcement and discipline in an effort to help them set up reinforcement systems at home.

Some clients may not have an official autism diagnosis, but struggle with anxiety, depression, ADHD or other issues. She is not only able to work with the child, but also able to equip parents to manage emotions and reduce disruptive behaviors.

Navigating the Diagnosis

Danielle enjoys helping parents work through their emotions to help them accept their child’s diagnosis. Once a parent is able to come to terms with their child’s deficits and appreciates their strengths, their stress often lessens and their relationship with their child strengthens.

Another aspect of Danielle’s work is helping teens with autism who struggle with belonging, finding friends at school, and relating with their peers.

The Role of Advocate

Danielle says the most fulfilling aspect of her job is being an advocate for her children and teens. She enjoys using her skill set to collaborate with families and schools to help her clients reach their maximum potential.

A Front Seat to Growth

We have observed first hand the growth in so many of Danielle’s clients. For example, she has a client for which she has worked with over the past seven years. When she started, the child was only 3 years old and unable to communicate her emotions, often leading to meltdowns. Now at the age of 10 she is able to effectively communicate her wants and needs. If she becomes upset, she now has the skills to calm down in under 10 minutes verses two to three hours. Witnessing that kind of growth is so motivating for Danielle.

Another incubator for personal growth is the social skills group Danielle leads. The group of elementary age clients has been together for two years. When they first started they worked on basic social skills. Now they have formed real friendships. They support each other when one of them is upset. The skills they have learned here have helped them in their everyday environments at home and at school. Danielle hopes to see this group stay together as they move into their teen years.

In Need of Help?

As you can see, counseling has broad benefits in the autism world. If you are a parent in need of help for yourself, or your child is struggling with autism, ADHD, depression or anxiety, we are here to help! Just fill out the Contact Us form and we will get back with you!

How To Explain Autism to Neurotypical Children

explaining-autism

Explaining Autism To Neurotypical Children

As the rate of autism diagnoses increases, children and teens undoubtedly know, or have encountered, someone with autism in their schools, in their neighborhoods, or in their own family. As a result, kids most likely have noticed some differences. They may have wondered: “Why is he covering his ears?” “Why won’t he talk to me?” “Why does she move her hands like that?”

Autism Spectrum Disorder is a complex condition that many adults have difficulty understanding. So how can children learn to comprehend the many facets of this condition when they see it in their siblings or peers? We have put together some helpful tips and resources to aid you in explaining autism to neurotypical children in your family, your classroom and your community.

Be Honest

If your child, neighbor or student in your classroom asks some of these questions, it’s important to answer them. When questions go unanswered or they are told not to ask things like that, not only do we squelch their innate curiosity of the world around them, but it can lead to inaccurate or negative assumptions. They may think their friend is crazy or their sister doesn’t like them. By answering their questions you pave the way to understanding autism instead of allowing misconceptions or fear to take root in the unknown.

What is Autism?

As explained by Mary L Gavin, MD on KidsHealth.org, “Autism spectrum disorder is a difference in the way a kid’s brain develops. Kids with autism may have trouble understanding the world around them.” One of the most common questions from kids is “Can I catch autism?” So it’s important to explain that autism can’t be caught like the flu.

Use simple terminology to describe autism to neurotypical children. A classmate or friend with autism might have trouble talking and learning the meaning of words. They may struggle making friends or fitting in. They may not handle changes easily, like trying new foods or having a substitute teacher. Additionally, they may have trouble dealing with loud noises, bright lights, or busy hallways.

Some kids with autism might move in an unusual way (like flapping their hands, or rocking back and forth) or do the same thing over and over (like saying the same word).

And because autism is a spectrum or range, some autistic kids may have a few struggles, or they may have a lot of these struggles. As a result, some kids need a little bit of help, and others might need a lot of help with learning and doing everyday activities.

Important Reminders

When you have conversations with students or siblings, here are a few recommendations to keep in mind.

Focus on the positive

Talk about the child’s strengths, abilities and interests, not just on their struggles. Using people-first language puts the focus on the individual and not their diagnosis. This also helps them view autism through a more positive lens. If possible, identify a common interest to demonstrate ways they can connect with their classmate or sibling.

Encourage questions

A child’s curiosity and questions are not rude. When you answer a child’s questions in a straightforward manner, they will learn from your example to be open and accepting. Also be sure to communicate that autism is not something to fear and it doesn’t need to be kept a secret.

We all are unique

Every one of us looks different and has our own unique strengths and weaknesses. And with autism being a spectrum, there are no two kids with autism that are alike. So it’s important to not lump them all together. Rather, get to know the individual, and as mentioned above, find things you may have common with them.

The Gaming System Analogy

A mom spoke with her son’s 3rd grade class about autism and used an analogy that has become quite popular over the years since. Essentially, she talked about how video game devices have different operating systems. You can’t play an Xbox game on a Nintendo because it can’t process the information. So just like video game systems, people with autism can’t process information in the same way a neurotypical person does. It’s not bad, just different. You can read the full account on her blog here.

Explaining a Sensory Meltdown to a Child

Witnessing a sensory meltdown can be confusing and even upsetting for adults, let alone kids. So explaining what a sensory meltdown is can help a child process what they’ve seen. It’s not a temper tantrum when they aren’t getting their way. A sensory meltdown is a feeling of being overwhelmed – by sounds, smells, lights, spaces. There is too much happening around them and their brain can’t process it. Sometimes our brains need a break from what’s going on around us. But as the sibling or friend gets to know what stimuli the person with autism reacts too, they can become an ally in helping them if they become overwhelmed.  

Using Stories to Explain Autism

A story can be a powerful way to communicate ideas and messages to children. Thankfully, there are many books created to explain autism and help kids understand it. Here are just a few:

Professional Help

Even after you explain autism to siblings of autistic children, they can benefit from being able to process their emotions with a professional. We have programs that serve the entire family including counseling for siblings of autistic children. For more information, fill out the Contact Us form and a member of our team will get back with you.

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Healing Haven Open House 2019

open-house

Get an Inside Look at Our Innovative ABA Therapy Clinics

Whether you’re a parent of a child with autism, a professional working with the autism community, or are interested in a career in ABA therapy, we invite you to tour our innovative clinics in Madison Heights. Join us at our Open House Friday, February 1, from 7-8:30 PM. You’ll experience firsthand the well-appointed therapy rooms that are the backdrop for the depth of the services we offer.

What sets Healing Haven apart among ABA therapy providers?

We’ve been providing ABA therapy for 8 years. And we continue to expand our services as the needs of our clients change. In addition to ABA therapy, we also provide Speech Therapy, Occupational Therapy, Counseling, Stress Management, and Parent Training. We also just launched our Academic Instruction Program that supports students who are struggling in their current learning environments.

In May 2018 we opened our second clinic designed to serve individuals up to 16 years old. In addition to building social & communication skills through one-on-one and group therapy, we also provide pre-vocational skill development.

HH open house
HH open house
sensory room
HH open house

Additionally, in December 2018 we expanded our Speech Therapy rooms to better service our clients and the demand for speech therapy services.

As the need grows for autism therapy services, we are committed to helping families impacted through our high-quality services – all in one location.

Careers that make a difference every day

If you are considering a career working with individuals with autism, this Open House is a great opportunity for you. Come learn about our current open positions, tour our work environment, learn about the one-on-one training we provide, and meet members of our leadership team.

We’d love for you to join us Friday, February 1! Enjoy some refreshments, take a tour and meet members of our team. We’ll also have a special guest sharing her journey living with autism. Katie was our founder Jamie McGillivary’s first client she ever worked with. Jamie’s experience with Katie is what set the path for her academic studies and her career in ABA Therapy. Katie’s story will inspire guests to not underestimate individuals with autism and realize the part we all play in helping them achieve their dreams!

This may be the night that changes the direction of your child’s life…and yours!

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