Water Safety Tips for Children with Autism

It’s summertime, which usually equates to a lot of time outside. And with pools open and all the lakes here in Michigan, that often means time in and around water. While swimming and playing in water are fun and great exercise, it can also be very dangerous. In fact, the Michigan Department of Natural Resources has a new flag warning level for the Great Lakes. Because of the increased danger lakes and pools have, water safety for children with autism, or any child, is extremely critical. 

Why water safety is so important for children with autism

Children with autism, as well as Down syndrome, often wander, which can obviously be very unsafe if they get close to water unsupervised. Additionally, drowning can occur without making any sound. Children may also be unaware of things such as water depth, water temperature, water currents, or slippery surfaces. Not every child likes to be in the water, especially children that struggle with sensory issues. However, all children should still be aware of water safety in case of accidental slips or falls into a pool or lake. 

This statistic is scary and sobering, but every parent of an autistic child needs to know – drowning is a leading cause of death for children with autism. We’ve compiled some tips and ideas to teach water safety to your child with autism to help you prepare for this season. 

Get your child in swimming lessons 

Every child should learn to swim, and for children with special needs, it’s important the skill is taught in a way that resonates with them. Make sure the teaching environment is not too distracting or overwhelming for your child. 

There are many programs that provide adaptive swimming lessons for children with special needs. You can start by contacting your local YMCA. And the National Autism Association’s Big Red Safety Toolkit for caregivers provides an excellent guide and resources for managing wandering, as well as how to find swim lessons in your area. 

Provide reinforcers

Have reinforcers and preferred items available when your child performs important or difficult tasks related to water safety. This could include tolerating getting into the water, using appropriate safety gear, getting out when a whistle is blown for “adult swim time,” or leaving the pool when instructed. 

Visual learning of water safety

Use video narratives, social stories, or visual routines to teach water safety. The Swim Angelfish channel on YouTube, for example, is a great resource which provides a variety of videos that can be utilized to teach water safety to kids with disabilities. 

Many children with autism spectrum disorder are rules-driven, so use that to your advantage. Set specific rules for how they are to behave around water. Then practice those rules in real world situations. And if you have a pool at home, or live on/near a lake, consider placing “STOP” or “DO NOT ENTER” signs on doors that open to the outside, or gates to the pool. 

Use appropriate swim gear

Even if your child knows how to swim, it’s still a great precaution to use a life jacket or flotation device around water, whether they are planning on swimming or not. It can also offer reassurance when attempting a new skill and teaching independence. The especialneeds website is a great place to purchase special needs and sensory-friendly water gear, if needed.  

Teach key information

Because of the high percentage of wandering in kids with autism – nearly 50% – make sure your child knows his or her name, address, and phone number in the event he or she is separated from you. If your child does not speak, make sure they wear a bracelet, tag, tattoo, etc. with their name and your name and phone number. 

Set up your environment vigilantly 

Even if you feel confident that your child thoroughly understands the rules of water safety, accidents can still happen. It’s important to prepare for the worst so that nothing slips through the cracks. When preparing your environment near water, consider installing fences or gates with alarms around the body of water, if applicable. Additionally, you should also think about placing alarms or chimes on doors that open to bodies of water and keep toys of interest away from the water when not in use. Taking these measures will ensure that life-threatening wandering doesn’t take place.  

Communicate with others

Talk with your neighbors, whether at home or on vacation. Ask them to contact you immediately if they see your child wandering alone outside your home or property. Even if you don’t own a pool, but your neighbors do, ask them to be particularly aware of your child wandering near their property. 

We hope these ideas help you implement water safety for your child with autism. And for more general recommendations for pools, beaches, lakes, etc., check out this swimming safety guide. We want everyone to have a less stressful and more enjoyable summer! 

If you found this information helpful, we’d love it if you’d share it with others!

Strategies for Managing Challenging Behaviors for Children with Autism

“Challenging behaviors” are defined as “behaviors that can be disruptive and/or difficult to manage.” Challenging behaviors may manifest in several different forms including avoidance, aggression, self-harm, destruction, eating inedible items (otherwise known as Pica), elopement, tantrums, screaming, and more. These behaviors can happen in any setting, whether it’s in a public place or in the home. But depending on the cause (or “function”) of the behavior, there are ways to lessen the likelihood of behaviors happening. Likewise, there are ways to respond when they do occur. We have gathered strategies for managing challenging behaviors for children with autism from our Director of Clinical Standards, Dr. Jennifer Thomas, Ph.D., BCBA-D, LBA. 

Why Challenging Behaviors Happen 

While behaviors often have a driving reason for their occurrence, they can sometimes be dangerous. If your child is engaging in behaviors that put them or someone else at risk, we strongly recommend you seek professional help.  When it comes to managing challenging behaviors in children with autism, it is important to remember that behavior is communication.

There is always a reason for a child’s behavior. For example, the behavior may be the result of the child wanting to get something or to get away from something. This, in simple terms, could be a person, place, activity, or type of internal/external stimulation. Dr. Thomas says that challenging behaviors “often have more than one cause,” making it difficult to pinpoint why they occurred. A Board Certified Behavior Analyst (BCBA) has the expertise to help parents. Through careful observation and data collection, BCBAs can determine why a behavior is occurring. Based on this, they can craft an individualized plan to help teach parents how to respond in a way that will minimize behaviors and maximize success. 

How to Prevent the Likelihood of Challenging Behaviors Occurring 

While specific expertise is needed to craft a plan to decrease severe challenging behaviors, there are some tips that can help parents plan ahead to decrease the likelihood of these behaviors occurring in the first place. It is important to remember that having good communication between yourself and your child is a great starting point! While this is no easy task, there are ways you can prepare your environment(s), and your child, so that these behaviors are less likely to occur. 

“Set your child up for success,” says Dr. Thomas, by recognizing the components that are likely to cause behaviors. This can be done by being observant. Look for patterns such as similarities in context or environment that a behavior happens, similarities in reactions to certain events, and changes in setting and mood before, during, and after a behavior occurs. Physically make note of these patterns, if possible, to reference and help yourself to make mental connections. Doing so can help you identify and plan ahead to possibly prevent a behavior. This is also great information to provide to your BCBA. 

The following are some tools to help prevent challenging behaviors: 
  • Having a consistent communication method (AAC device, PECS, signs, gestures, vocal language). 
  • Carrying sensory toys or snacks with you.  
  • Having headphones or sunglasses available in public places to reduce sensory irritations. 
  • Prepare your child’s expectations before doing something difficult or novel. 
  • Bring fun activities or snacks to make undesired activities or outings a bit more fun. 
  • Make trips short, if possible. 
  • Avoid areas that you know may trigger your child, if possible. 
  • Use timers and countdowns. 
  • More ideas are available through the Autism Research Institute. 

How to Respond When Challenging Behaviors Occur 

How you respond to your child’s challenging behaviors depends on the behavior that is occurring and what the trigger is. The cause of behaviors, Dr. Thomas emphasizes, oftentimes lies at the root of a communication struggle, impulsive behaviors, or issues with emotional regulation. Dr. Thomas says it is helpful to think about what the child is trying to communicate and to be observational. This is the first step in figuring out how to respond when a behavior occurs. As every child’s situation is unique, professional expertise is necessary when formulating a specific way to respond. It is also helpful to teach your child calming strategies, in addition to focusing on some of the other areas of struggle.

Some coping strategies may include:  
  • Squeezing hands 
  • Stomping feet 
  • Counting 
  • Taking deep breaths 

Some children are easily redirected if you can draw their attention elsewhere during a behavioral episode. This may be effective in the moment but is not a long-term solution. The most important thing to remember when trying to manage a challenging behavioral scenario with your child is to “get safely through that moment and know there is another learning opportunity to come,” says Dr. Thomas. Also, remember to have compassion for your child and yourself as you’re going through this tough and often stressful situation.   

Where to Get Help with Managing Challenging Behaviors 

ABA Therapy is a very effective resource for addressing challenging behaviors. In ABA Therapy, we focus on teaching ways to communicate and behave. “Children should always have a functional way to get their needs met,” Dr. Thomas says. This is where Functional Communication Training, or FCT, comes in. Functional communication can be as small as the child pointing to something they want, as a means of asking for it, or handing over a picture icon of an item. 

“We begin by teaching a communication task that children find easy, this varies based on skill level. The idea is to give children another, more appropriate skill to use to communicate in lieu of using a challenging behavior.” If your child is already in ABA Therapy, their Board Certified Behavior Analyst, or BCBA, is a great resource.  For children enrolled in a school program, an Individualized Educational Program, or IEP, can be a great resource to reference. If your child has not had a developmental evaluation, and is exhibiting challenging behaviors, it may be time to seek out a pediatric or developmental psychologist. From there, a psychologist would be able to perform assessments that could determine if there is anything underlying the child’s behaviors. Healing Haven’s Testing & Assessments services can help with this process, as well as contacting your child’s pediatrician.  

In addition to these resources, there are several organizations that can help, such as: Autism Alliance of Michigan, Autism Support of Michigan, Michigan Alliance for Families, National Autism Association. 

Challenging Behaviors: Finding Community 

The behaviors you encounter from your children can sometimes be difficult to manage, but keep in mind that you are not alone. In addition to the professional resources we have shared, there are other parents who understand. Finding community is important in helping share ideas and reducing your own stress.   

If you’re thinking you need more help in how to manage your child’s challenging behaviors, please contact us for information about our ABA Therapy for kids with autism. And our testing and assessments services can empower you with information on how to best support your child.  

We hope that throughout this article you were able to find useful information that can be utilized going forward. Don’t hesitate to share this piece with others, as well as comment, if you found it helpful! 

The Benefits of Organized Space For Individuals With Autism

Have you ever tried working in a cluttered area? Or been distracted by noises or lighting while trying to focus? Most of us would not feel very successful if we were attempting to be productive in such an environment. For individuals with autism, distracting, messy work and play spaces can only magnify the struggle of focus when gaining new skills. Whether it’s your home or your child’s play area, keeping an organized space for individuals with autism reaps many benefits.

Why Organized Spaces for Individuals with Autism

A clean environment is an important element to the success of individuals with autism. In fact, it influenced the design of our clinics.  Our Executive Director Jamie McGillivary intentionally chose the colors of the walls, the use of natural light and artificial natural light, simple layout and organized spaces. And these principles can carry over into the home environment too.

Less Distraction

Many individuals on the autism spectrum experience excessive sensory input. Consequently, distraction is common. Too much unnecessary clutter and detail can derail a child’s focus. Even minor messes that may be easy for a neurotypical child to ignore could cause attention issues for those on the spectrum. Minimizing unhelpful sensory experiences aids in their ability to focus for individuals with autism.

Specifically, consider visual and auditory senses when designing a distraction-free space:

Visual

Keep walls simple in decoration to prevent overwhelm. Many kids with ASD notice minute details in the area around them. Tucking away supplies and toys in bins or cabinets out of sight reduces temptation to interact with them while also reducing distractions. For colors, utilize solid, soft tones such as green, blue and pink and avoid yellow as it can be overstimulating.

Auditory

Sensitivity to noise is a common symptom for kids with ASD. While neurotypical children may function easily with sounds considered background noise, those sounds may be incredibly distracting for children on the spectrum. Keep your child’s space as free as possible from traffic noises, humming machines, loud ticking clocks, and other potential “noise clutter.”

Enhances Organizational Skills

Organizational tasks that we deem simple may require more effort and practice for individuals with autism. A clean work environment promotes organization and productivity, which in turn helps a child acquire new skills. Designating organized areas helps individuals with autism predict what will take place in their workspace. Labeling areas such as drawers and cupboards can help kids practice putting their supplies and toys away when finished. This also helps reduce long-term clutter and ensures smoother transitions to new activities. Color coding is another fantastic way to make organizing easier for kids on the spectrum, as different colors represent different purposes for an area.

Reinforces Routine and Expectations

Organization helps an individual’s success and independence in following instructions. If a space is cluttered and messy, they will likely get more confused when trying to learn skills and complete routine tasks. According to research, organized and structured learning spaces aid kids in staying on-task and performing well academically. Structure helps you as a parent as well, as it can reduce the need for your assistance.

children's workspace

If you believe your child could benefit from some decluttering and organization at home, here are a few ideas to get started with over the summer. And remember, you don’t have to try all of these things at once!

  • Organize toys, art supplies, school materials, etc. into labeled areas and bins
  • Paint your child’s room a new, calming color
  • Tackle one room at a time and identify items you can remove or put away for a simplified and, hopefully, less stressful setting.

These ideas may not only benefit you, but your whole family may begin to feel some stress lift as a result of creating organized spaces for your child with autism.

The Importance of Early Intervention for Autism

child working on fine motor activity in early intervention
child working on fine motor activity in early intervention

In recent years we’ve experienced a noticeable increase in parents of younger children – 2-3 years old – contacting us for services. This means they are getting evaluations and receiving an autism diagnosis at younger ages than the national average. Data from the CDC indicates that the average age to receive an autism diagnosis is over 4 years old. Receiving an autism diagnosis before the age of 3 provides great opportunity for early intervention for autism to begin.

Early Intervention for Autism

But once parents receive that diagnosis, choosing the right treatment for their child can be as complex as the diagnosis. There are no miracle cures for the varied challenges that can come with an autism diagnosis. However, behavioral therapy, or Applied Behavioral Analysis therapy, is evidenced-based and the most frequently recommended treatment for helping a child diagnosed with autism.    

“Research very clearly states that early intervention for children with autism and other developmental disabilities is vital,” explains Jamie McGillivary, MS, LLP, BCBA, Director of Healing Haven. “When children start therapies like ABA early on, they receive strategic learning opportunities that support them in the areas they need.” 

Whether it’s communication, social and play skills, or activities for daily living (brushing teeth, eating with utensils, potty training), children who struggle with these skills can make great strides when provided early intervention support. Additionally, the likelihood of negative behaviors decreases because they learn appropriate behaviors from the beginning. 

ABA Therapy

early intervention for autism

A child’s individual early intervention plan will address their unique areas of need. For instance, if it’s developing language and communication skills, the ABA therapist will work on helping the child learn to label items and appropriately request things they want or need. And the mode of communication will vary. It may be pointing to a picture, or handing a picture of what they want (Picture Exchange Communication System). And some may use a communication device (tablet), or verbal expressions.  

In addition, if the child has negative behaviors their ABA therapy plan will address them. Some common negative behaviors include: damaging toys or property, non-functional crying and screaming, resisting transitions by falling to the ground or running away, aggression or self-injurious behaviors.

The behavior plan developed by the child’s BCBA will include strategies to address the types of behaviors listed above. They will work to pinpoint the reason for these behaviors and teach them skills or replacement behaviors to reduce them. 

“For example, some children flop to the ground when transitioning to a new activity. Their ABA Therapist may address functional ways to communicate that the child may need a break,” Jamie explains. “Or they may introduce proactive strategies to warn the child that a transition is about to occur. Giving warnings and visual information about what is to come helps decrease the anxiety surrounding transitions.”  

Generalizing New Skills

As a child makes progress on and eventually achieves their goals, we can work on scaling back one-on-one support. The ultimate goal is for the child to generalize the skills they’ve learned into their natural environments. We provide additional programs to support the child and family in this goal. 

“We place a significant emphasis on parent training and involvement,” says Jamie. “When parents participate, we increase the likelihood that what children learn in the clinic will carry over to their natural environments.”  

As a result of early intervention services, young children with autism receive a strong foundation to learn, develop and grow. It’s good to remember that autism is a spectrum and each child is unique. Some children need more support, while some need less. Some will need ongoing ABA therapy, while others will move on to their school environment with varying levels of support.  

You can learn more about all our early intervention services for autism here. And contact us to get your child started with therapy services.

If you found this information helpful, we’d love it if you’d share it with your network!

How to Explain Death to a Child with Autism

image of grave headstone, explaining death to a child with autism

Losing a loved one, whether it is expected or not, is hard for anyone to navigate. It’s a process that involves accepting reality, seeking support if necessary, and allowing yourself time to feel natural emotions. So it’s not surprising that explaining the death of a loved one to a child with autism may bring some additional challenges.   

Death is a difficult concept for any child to understand, let alone those who may have a hard time grasping abstract concepts. But death and loss are also unavoidable. That’s why we put together some tips to help your child with autism or special needs understand and deal with the process of losing a loved one.  

Be literal and thorough when explaining the loss 

When explaining the death of a loved to your child with autism, use literal terms. This may help the death make more sense to them.  Avoid using terms such as “passed away”, “gone to sleep”, or “gone to another place”. Using these terms risks your child taking them literally and becoming frustrated when their loved one doesn’t wake up or come back.  

Be direct when you are explaining the passing of a loved one to your child. The more direct you are, the easier it will be for them to understand. Allowing room for questions is key here and answering them honestly to the best of your ability should take priority.  

Keep routines as unchanged as possible 

Change in routines can be particularly challenging for individuals on the spectrum. The death of a loved one is a major life changing event. That’s why it is best to keep everything else within their routine as consistent as possible. People with autism find comfort with routine, and comfort is something we all strive for while grieving. Bedtime routines, playdates with friends, school and therapy may be part of daily routines. You should try your best to maintain these activities if they bring your child peace. 

Involve them  

When helping a child (with or without autism) through loss and grief, it may seem best to exclude them from certain parts of the process, like attending a funeral with an open casket. While it largely depends on your child’s level of cognitive understanding, as well as your expertise in making the best-informed decision for your child, many professional sources suggest that shielding a child with autism from the complexities that come with loss will likely confuse them more. These sources suggest being transparent and asking your child if they would like to be part of a certain aspect (like the funeral, wake, or burial). With this, allow them to ask any questions they might have.   

Another good option, as Alicia says in The Mom Kind, is “to have a celebration of life that they can attend instead of the funeral”. Doing this, Alicia says, “allows involvement without having to see all the grief”.  

Prepare them, if possible  

If you know that a family member or loved one is terminally ill, try and familiarize your child with all the places they will be during this time. This could be places like the hospital, funeral home, or cemetery. Remember to talk about the emotions they will see from others throughout the process. A great way to do this could be through pre-made “social stories”. Social stories use photographs to help explain and show the child what will happen before it happens in real-time. These photographs and descriptions of the photographs can include emotions that they will observe of others. More information on constructing a social story can be found here.  

As we know, children who are on the spectrum can have an especially difficult time dealing with the unexpected, so it is a good idea to make the loss as “expected” as possible. Of course, this may not always be possible and sometimes a loss can be sudden. In this case, you can still do your best to show and tell your child what to expect. Use any photos you have available or pictures online to do this. More ways to prepare your child for loss and help them understand it can be found in this article from Child Bereavement UK. 

Utilize books that help explain loss 

When it comes to bereavement and children with autism, a lot can be gained from books that are specifically made for this life event.  

The 2017 book, I Have a Question about Death: Clear Answers for All Kids, including Children with Autism Spectrum Disorder, is a straight-forward, color-filled read that addresses the questions that concrete thinkers might have surrounding death. It answers them in a simplistic manner. This book has an abundance of good reviews from parents who have had to explain this topic to their children. We recommend it as well!  

Another book that is a good choice for the topic of grief is the interactive workbook, Finding Your Own Way to Grieve by Karla Helbert. This book is unique in that it encourages expressive techniques and exercises to help your child identify and process the feelings that accompany loss. This book is perfect for children and teens to work through on their own. They can also use it with the help of a parent or professional. Find this book here. 

Lastly, How People With Autism Grieve, and How to Help: An Insider Handbook, is best suited for teens and young adults who need security and affirmation after losing a loved one. Though the book only bases suggestions off one person’s unique experience, it can prove helpful in relating to what your child might be feeling emotionally. Find out more about it here. 

Takeaway

We all have different ways of dealing with loss. It’s important to make it known to your child with autism that there is no “right” or “wrong” way to respond to the death of a loved one. The most vital thing, though, is to ensure that your child knows there is support around them and that they have people to talk about it with when they feel sad or confused.  

What is ABA Therapy: Your Questions Answered

child doing therapy explaining ABA Therapy
child doing therapy explaining ABA Therapy

Following an autism diagnosis, many professionals recommend ABA Therapy as the first form of support. But many parents often leave those meetings wondering what is ABA Therapy? It’s common to have lots of questions. It’s important to feel informed and clear on treatment options as you seek support for your child. Not to mention, choosing a therapy provider can be overwhelming and can take a lot of time. We’ll break down some commonly asked questions about what ABA Therapy is so you can feel prepared to help your child.  

What is ABA Therapy? 

Considered the “gold standard” in autism treatment, ABA (Applied Behavior Analysis) Therapy is a scientific approach to understanding behavior. It’s a method of therapy used to improve specific behaviors, decrease interfering behaviors and help a child gain new skills such as communication, play, social, and daily living skills. ABA Therapy is evidenced-based and the most frequently recommended option for the treatment of autism.  

Is ABA Therapy effective? 

ABA Therapy proves to be highly effective, based on over 50 years of research. Medical professionals and institutions such as the American Psychiatric Association, the American Psychological Association, and the U.S. General Surgeon approve ABA as a valid treatment for autism.  

ABA Therapists and BCBAs (Board Certified Behavior Analysts) create and implement plans for the client to meet specific goals tailored to the client’s needs. They set the client up for success by breaking down the steps to each goal. If an approach isn’t working, the ABA Therapist and BCBA will find another one. For example, a child may be working on regulating their emotions during tantrums. The ABA Therapist and BCBA might implement tactics such as deep breathing, sensory input, and physical relaxation. But if sensory input seems to further aggravate the child, that tactic will be removed and replaced with a helpful one. 

Is ABA Therapy a fit for my family? 

Parents love their children and want what is best for them, no matter their diagnosis. You may be asking, ”How can ABA Therapy help my child?” All children have the right to learn important skills in order to be independent and to maximize their happiness later in life. For children with autism, learning some skills can be harder. ABA Therapy can build on your child’s strengths while also supporting their learning in the areas they need it most.  

In deciding if ABA Therapy is a fit for your family, it’s important to understand the provider’s approach to ABA. ABA Therapy should be customizable to your child’s needs, with an emphasis on generalization to make sure skills transfer to the natural environment.  

Additionally, it’s important to know the credentials of the BCBA and understand the center’s training program for their ABA Therapists. This is to ensure they are qualified for the work they are providing. Another factor is to make sure they have a positive and comfortable relationship that allows room for learning. There should also be frequent and open communication between you as the parents and the child’s BCBA in order to build goals that are appropriate and sensible to you. Remember, you know your child best and it’s important to find professionals that align with your specific values.  

What do ABA Therapists do? 

ABA Therapists are trained behavioral professionals that work closely with and under the supervision of BCBAs. They help implement behavioral goals set for the client. As a team with the child and BCBA, the Therapist will help teach functional skills, address problem behaviors that interfere with learning. They also help the child gain skills that will allow them to better participate in school and the community. 

What is a BCBA? 

According to the Behavior Analyst Certification Board, “A Board Certified Behavior Analyst, or BCBA, has a graduate-level certification in behavior analysis. Professionals certified at the BCBA level are independent practitioners who provide behavior-analytic services. BCBAs may supervise the work of Board Certified Assistant Behavior Analysts – (BCaBAs), Registered Behavior Technicians (RBTs), and other professionals who implement behavior analytic interventions.” 

At Healing Haven, BCBAs also provide parent training and can work with school professionals to help therapy translate efficiently across all situations and settings the client is in. To become a BCBA, an individual must undergo a 5-step process that includes: earning a relevant Master’s Degree, completing required behavior-analytic graduate coursework, completing required supervised fieldwork, apply for, take, and pass the BCBA exam, and then apply for state licensure.  

What happens during an ABA session? 

An ABA session typically begins with specific goals established for the child, which are discussed prior to starting therapy sessions. Throughout the session, the Therapist works one-on-one with the child. Their job is to ensure the child is learning and understanding the skills that are being taught. ABA Therapists utilize encouragement, praise and other motivational tactics tailored to the specific child and programs being worked on. Therapy is delivered both with and without supervision by the BCBA. 

Kate Fritz, MA, BCBA, LBA, is the Clinical Manager of our Early Intervention Clinic. She describes a typical ABA session at Healing Haven this way: 

In ABA sessions, we work hard and play hard! How an ABA session looks can greatly vary depending on the client’s age and skillset – programming is individualized to the client. In general, you can expect to see the use of play to work on communication and social skills, building up independence with daily living skills (e.g., working on putting on a winter coat), and both individual and group times to work on behavioral goals related to school-readiness. In action, this may look like a kid sitting in circle time imitating song motions, then reading a story with their therapist and pointing to animals and colors throughout the story, sitting and eating snack with peers, going to the restroom to work on washing hands independently, then heading to the playroom and pointing to toys up on a high shelf to communicate what they want to play with.  

When should my child start ABA? 

A child should start ABA Therapy if deemed appropriate, after receiving a medical diagnosis of autism spectrum disorder. Autism, for example, can be detected and tested for as early as 18 months old and by age 2 can be considered a reliable diagnosis as a means for therapy intervention.  

Early intervention is key. “Research very clearly states that early intervention for children with autism and other developmental disabilities is vital,” explains Jamie McGillivary, MS, LLP, BCBA, Founder and President of Healing Haven. “When children start therapies like ABA early on, they receive strategic learning opportunities that support them in the areas they need.”  

However, ABA Therapy is also beneficial for older children and teenagers. Even if a child is diagnosed later, ABA therapy could be worth looking into to learn and improve in areas that may be challenging for them. It is also important to remember that ABA Therapy isn’t automatically a lifelong commitment. Many children transition to lesser levels of therapy as they master skills.  

Is ABA Therapy covered by insurance? 

Because it is considered a behavioral health service, ABA Therapy is covered by most insurance policies. However, this can vary by plan and from state to state. In Michigan, it can vary by employer insurance plans, so it is important to call your insurance provider. It is important to discuss the specifics of what is and what is not covered by your plan as it pertains to ABA Therapy services in your location. More information about this can be found when you search “Autism Spectrum Disorder Health Coverage” on your state government website. For example, Michigan’s explanation of autism health coverage is found here. The Autism Alliance of Michigan is also a great resource for parents navigating insurance coverage. 

We hope this information is helpful as you navigate therapy options for your child. To learn more about Healing Haven’s ABA Therapy programs for children and teens up, contact us today. 

Back to School Tips for Parents of Different Learners

A few years ago we created a pretty extensive list of back to school tips for kids with autism. At first it seemed there wasn’t much more we could add to it. But upon further thought and research, we want to share more in-depth back to school tips and resources. Many of these ideas can benefit typical kids in addition to those with special needs or a learning disability. In this post we also connect you with some great resources to help you as you get ready for the new school year.

So why is preparing for the transition back to school so important, especially for different learners? By doing some preplanning, you can help reduce anxiety in your child about a new school year. You can also make sure your child has the proper support they need in their new classroom or new school. And with some advance preparation, you can create some important routines that we know many children rely on. Read on for helpful back to school tips that you can start on now.

Use a Back to School Countdown

Let’s face it, there is so much going on in the rush before school starts. You want to squeeze in the last free days of summer, while shopping for school supplies, new clothes and scheduling any needed doctor appointments. How can you cram anything else in? This Back to School Countdown from Understood.org offers some great ideas to get your child ready to go back to school. Not all of the tips may apply, but there are sure to be some that will help you, as well as your child, prepare for that first day back in the classroom.

In addition to the practical back to school tips for you, an actual countdown calendar can be helpful for your child. Create a calendar of the few weeks before school. With your child, cross off each day leading up to the first day of school. Doing so provides a visual for them to see when school starts and may help reduce some anxiety they may have.  

Use Social Stories

Social stories are a great way communicate to your child what they can expect in a new situation, teach appropriate behavior, and much more. And thankfully there are a ton of free resources out there to help you so you don’t have to start from scratch. By creating a print social story, or using a topical video social story, you can help reduce anxiety your child may have about the new school year, new teacher, new classmates, new routine, etc.

Dyan from “And Next Comes L” has an extensive list of free back to school social stories you can download and print. She also includes some topical stories for times that may cause more stress and anxiety, like changing classes for gym, art or music. Additionally, she has a few video social stories about High School, riding the bus, listening to the teacher, how to greet people at school, and more!

Communicate With Their Teacher

Create a “get to know me” document or write a letter to your child’s teacher. By sharing your child’s diagnoses, strengths and weaknesses, dietary restrictions, sensory needs, things that interest them, and strategies that work for them, you are empowering your child’s teacher with important information for their success at school. There are a few templates available for introduction letters and “get to know me” documents.

  • This Card to Help Teachers Get to Know Your Child is from Understood.org. Older kids who are able to write and communicate could complete it on their own, which will help them develop self-advocacy skills.
  • Understood.org also has two different Back-to-School Introduction Letters for elementary and middle school students. They are fairly basic, but may be just what you need to communicate important information with your child’s teacher.
  • For younger students, or those starting at a new school, a more robust document may be warranted. The Autism Alliance of Michigan has a free download called “The Big Book All About Me”. You can print it out and fill in a variety of important pieces of information like your contact info, family member details, photos, your dreams for your child, their learning style and so much more!
  • You can always just type up a letter detailing the above things for the teacher and email it to them before school starts – if you know who your child’s teacher is.

And don’t forget to make or send copies of whichever version you choose to your child’s aides, the school therapists, principal, “specials” teachers, basically anyone who will be working with your child.

Using Technology

If your child uses an AAC to communicate – an Alternative and Augmentative Communication device, ask if your child’s teacher(s) and aides are familiar with using them. There are several different programs available, so some training may be needed. Work with your child’s speech therapist to help ensure those working with your child day in and day out know how to utilize this tool to facilitate communication with your child.

In addition to communication, there are apps that can help students with a variety of learning and back to school challenges. Here’s a list of different apps to look through from supporting academics, executive functioning skills, managing anxiety and more. One of the apps that stood out to us is Tiny Tap. “TinyTap helps grade-schoolers and middle-schoolers work on specific academic or social skills. Families and kids can create lessons, games, or quizzes on any topic. Kids can also access dozens of lessons and games created by other people. There are a bunch of popular ones made by teachers to help kids learn to make inferences and understand social situations. It has reading and math lessons, too.

A few more reminders….

If your child has gotten used to sleeping in, be sure to start easing them back into the earlier wake up schedule a few weeks before school starts. Getting them to bed a little earlier each day and waking up a bit earlier each day will help them get the rest they need, and hopefully help reduce the stress that comes with rushing out the door because they slept too late.

If your child seeks sensory input or is upset by loud sounds, prepare a sensory kit for school with their favorite fidgets, chewy necklaces, noise-reducing headphones, etc.

Do you have some other back to school tips or routines that have helped you prepare? If so, share them in the comments. We wish you a smooth and successful new school year!

And if you found this post helpful, please share it with your friends.

More Autism Friendly Vacation Ideas

autism friendly vacation

Our blog post – Top 5 Autism Friendly Vacation Spots – was one of our highest trafficked posts for that year. So with more hotels, resorts and theme parks making efforts to provide an enjoyable and safe experience for families impacted by autism, we decided to do a follow-up post with even more autism friendly vacation ideas.

That previous post included Sesame Place®, LEGOLAND Florida, Surfside Beach, South Carolina, Dollywood and Tradewinds Resort. We also did an addendum to share about VillaKey, provider of autism friendly vacation rentals in Florida.

Thankfully we are seeing lots of places becoming “autism friendly” – and when they make these efforts they are creating inclusive places for everyone to enjoy. Hotels, resorts and theme parks are providing training for their staff about autism. They are creating quiet rooms and sensory rooms for individuals who get overwhelmed and need a place to relax. They are adding safety measures for kids who are prone to wander. All of these thoughtful efforts benefit families with an autistic child, but also kids with Down syndrome and even typical kids. By doing so, they are opening up vacation opportunities for families who never dreamed of going to some of these places.

So here are a few more autism friendly vacation ideas to add to your list.

Heading to Florida

Disney World – Orlando 

Disney World is a destination for many families with young children. For those with an autistic child, Disney has some accommodations to help make your time there more enjoyable. If you are considering a vacation there, look into their Disability Access Service Pass that allows pass holders to avoid lines at rides. They also have Disney’s Strollers as Wheelchairs program, which is a special safety measure for kids who wander, or who need a familiar seat to feel safe and secure. For qualifying children, this program allows kids to remain in their strollers while on a ride or visiting an attraction. Disney also offers a visual guide of the park for individuals with disabilities that you can download before you go. There are a number of additional accommodations for individuals with autism, like Rider Switch, Break Areas and Companion Restrooms.

Discovery Cove – Orlando 

Earlier this year Discovery Cove, Orlando became a Certified Autism Center. Discovery Cove is SeaWorld’s all-inclusive family resort. They have created accommodations and supports for individuals with autism and other sensory needs. As explained on their website – staff receive specialized training to ensure all guests have an enjoyable experience. Training focuses on: sensory awareness, motor skills, autism overview, program development, social skills, communication, environment, and emotional awareness. They offer a Sensory Guide that provides details on their attractions and how a person with sensory issues may respond to each experience so that families can plan accordingly. Another benefit Discovery Cove offers is they limit the number of daily attendance of 1,000 guests. So crowd control is built into how they operate.

Kennedy Space Center Visitor Complex – Merritt Island

In 2023, Kennedy Space Center Visitor Complex became an IBCCES Certified Autism Center. Located just East of Orlando, this unique NASA experience provides a comprehensive Sensory Guide to help plan your visit with sensory-sensitive individuals or children. It also offers complimentary noise-reduction headphones on a first-come, first-served basis to those with hearing sensitivities. Explore the various adventures this attraction presents, guaranteed to pique the interest of every family member.

Closer to Home

Cedar Point

At just over 2 hours away from Metro Detroit, Cedar Point’s autism accommodations can provide for a great get-away for families. Known as the Roller Coaster Capital of the World, they also provide some great services for families with an autistic child or other disabilities. They offer a Parent Swap ride program and KidTrack is a wristband program if your child is known to wander. There is a Family Care Center and other places for a quiet place to take a break and cool down. Additionally, there are several Family Restroom facilities for those who need support. You can download the Cedar Point mobile app to check on ride wait times, attraction accessibility, events and more. And for overnight stays there is Cedar Point’s Hotel Breakers that provides many features to make it a fun get-away.

Hersheypark

For a little bit longer trip but still a doable drive for a long weekend, Hersheypark is about 7 hours from Metro Detroit. They partnered with Parent to Parent of Pennsylvania to make sure their park and attractions are accessible to individuals with disabilities. One feature is their Ride Accessibility Questionnaire – families can answer some questions to receive a detailed list of the rides and attractions suited for your personal family situation. They have several Quiet Areas throughout the park to provide a private place for those who may become over stimulated. Additionally, guests can download a Rider Safety & Accessibility Guide ahead of their visit. And if you have dietary restrictions, you can learn about their allergen information and dining options.

Going Above and Beyond

Morgan’s Wonderland

A park designed to cater almost exclusively to children with special needs? That’s Morgan’s Wonderland, in San Antonio, Texas! It is the world’s first “Ultra Accessible Theme Park”. The park offers an impressive number of traditional and adaptive rides, swings, and activities to suit all ages. Additionally, they have a Sensory Village, and entertainment that teaches messages of inclusion and kindness. And most importantly, children with special needs, including autism, receive free admission! It may be time to start planning a Texas vacation.

International Adventure

Beaches® Resorts

Beaches® is the first IBCCES (International Board of Credentialing and Continuing Studies) and Autism Certified resort company. Their resort locations in Jamaica and the Turks and Caicos islands offer specialized service to families with children with autism and other special needs. These services include mealtime accommodations such as custom dietary needs, kids camps for children of all abilities, and staff trained in autism needs, sensory awareness, motor skills, and more. Additionally, Beaches® partners with Sesame Street® and Autism and offers activities with Julia, the first Sesame Street® character with autism.

Shannon Airport, Ireland

If you’re thinking of traveling through Ireland, be sure to consider Shannon Airport as a thoroughfare! Ireland’s Shannon Airport provides an awareness program for kids with special needs, ensuring a smooth airport experience. Through this program, kids and those with special needs can access a 24-hour sensory room.

In conclusion, many resorts, theme parks and hotels are understanding the needs of autistic individuals. So we hope these autism friendly vacation ideas help spark your imagination to plan a get-away for your family that everyone will enjoy! And let us know if you’ve found another vacation spot that was perfect for your family.

If you found this information helpful, we’d love it if you’d share it with your network!

Building Skills For Your Autistic Teen’s Future

building skills autistic teens

ABA therapy programs often focus on younger children through establishing communication and social skills, as well as managing behavior. While early intervention is incredibly important for young kids with autism, not many ABA providers serve tweens and teens with autism. However, it’s critical to provide environments where teens with autism can build skills for their future. Moreover, so many individuals with autism are often underestimated in professional and social settings when in fact, they have amazing gifts that positively impact companies and our world.

As a result, we at Healing Haven believe in teaching our middle and high school age clients valuable life skills. We want to empower them to contribute to society and share all they have to offer. To do this, we’ve re-launched some foundational skill-building programs in our Life Skills clinic and are expanding on new opportunities.  

Life Skills Clinic Programs

Café and Grocery Store

Before the pandemic, we operated an internal Café where our clients learned how to bake cookies and brownies and make coffee. The program involved  learning how to take orders from parents and staff, operate a cash register, practicing taking money and making change. This program was paused over the past two years, and we are excited to bring it back.

In addition to the Café return, we are creating a mock grocery store, coming later in the summer. Some clients will have the chance to operate the cash register to practice job skills. Other clients might use the grocery store to learn how to independently shop for groceries. After practicing paying  for their groceries, clients can make a tasty treat by following a recipe in the Life Skills kitchen. To further acquire social and vocational skills, clients can also serve the treats to peers, staff and parents at the Café.

Motor Room

Our Motor Room will feature crafting projects, such as building different toys from scratch or by following instructions from a kit. Clients will have the opportunity to create bird houses, garden boxes and more. We plan to eventually establish a room where the items made in the Motor Room can be jazzed up through painting and decorating.

Computer Lab

We are creating a computer lab where teens with autism can learn technology skills. They’ll practice checking and writing emails, creating documents and slideshows, entering data into Excel, etc.

We also want our clients to have an active role in stock management of building and grocery store materials. Computer use comes in handy for this as well!

Gardening Room             

In the Gardening Room, clients can practice planting, arranging, and caring for their own flowers and vegetables. We will expand our current outdoor garden as well.              

Classroom

Another feature of our Life Skills clinic is our Classroom. It’s set up like a school classroom with desks, a whiteboard, and a smart board. Clients socialize and interact with their peers and learn to take instructions from the group leader. The group leader plans and implements activities for the clients that incorporate social and living skills. It’s a blast in the Classroom! Teens and tweens participate in chat time, games to practice turn taking, crafts to work on following instructions, and even karaoke as a self-expression and performance opportunity. The Classroom serves as a place for teens with autism to practice the skills they need in school, jobs, and life altogether.

We are beyond excited to re-open these Life Skills building programs and continue to develop new ones. It’s incredible to watch our older kids thrive in an environment that helps set them up for success. And if you are interested in your teen or tween receiving therapy services, please reach out to us here.

Communication and Autism: 4 Resources to Help

Communication and speech are common struggles for some individuals with autism. Those who do not speak or who have great difficulty speaking may be considered “nonverbal,” while those who do speak are considered “verbal.” However, “non-verbal” is not an entirely accurate term. Those who do have challenges speaking may still understand words spoken to them, or use other forms of communication. On the other hand, those who can speak verbally may still benefit from additional communication methods.

ABA teaches functional communication in a variety of ways. It’s crucial that those with autism learn to communicate their wants and needs. Through learning effective communication, individuals receive the help they need to live their best life.

Communication and Autism

In ABA therapy, BCBAs (Board Certified Behavior Analysts), RBTs (Registered Behavior Technicians) and ABA Therapists teach communication skills based on the behavioral and learning needs of the client. Additionally, Speech Language Pathologists target more specific communication goals and skills. BCBAs closely collaborate with speech and language pathologists to choose what will best help the client. BCBAs provide input on the client’s behaviors which determines the final decision on which communication method will be best. Additionally, BCBAs help parents learn what they can do at home to assist their child in communicating.

Building a Foundation for Communication

A common concern of parents who have a child who struggles with speech is how to teach them to communicate their wants and needs. This is typically one of the first skills that BCBAs work on for a client who is new to ABA Therapy.

We asked one of our fantastic BCBAs for input on this subject. Batoul Dekmak, M.Ed, BCBA, LBA, stresses the importance of working on communication with kids. “All kids that walk through our doors are fairly communicative. However, a lot of time they communicate more with their behavior.” For example, children often get frustrated and engage in problem behavior due to difficulties in appropriately communicating with others. BCBAs take data on this behavior and apply it to the language and communication process. “As soon as a child begins therapy with us,” Batoul explains, “BCBAs, RBTs, and Speech Pathologists immediately start working on multi-modal communication including vocal language, gestures, AAC devices, and PECS® books. We want the child to express themselves as much as they can to navigate their world more independently.”

BCBAs and Speech Pathologists simultaneously model language to promote development of robust communication skills. An example of this is when a child uses an AAC device when playing with toys. The BCBA may comment on the child’s play using their device, such as “play dinosaur,” stating what the child is doing. This shows the child that the BCBA can also communicate using the device and how to comment on something. The goal for communication is to meet a child’s needs and wants, as well as the child gaining the ability to socialize with others.

Tools for Communication

Here are several common methods used to help children with autism communicate.

PECS®

PECS® stands for Picture Exchange Communication System®. In this system, the child gives a picture or word icon to someone in exchange for what they are requesting. Consider this example within the ABA setting. If a child wants a snack, they hand an icon of a preferred food to their RBT or BCBA who would then give them the item. PECS® icons are often stored in a three-ring binder with pages of laminated icons attached with Velcro. If you stepped inside our clinics, you would see several clients walking around with these binders, often attached to a strap for easy transport.

The goal of PECS® is for non-verbal children and those who are learning to speak to communicate their needs to caregivers in a simple way. To address changing stages of communication development, PECS® consists of six phases starting with exchanging icons through constructing sentences.

Augmentative and Alternative Communication (AAC) device

An AAC device is a tablet or laptop that contains words and images. When a child selects a word or image, the device “speaks” the input requested. Kids with autism who use AACs gradually build skills for how to use the device. They might begin with simple one-word requests then moving to more complex sentences. Kids work on these skills in ABA therapy under supervision of BCBAs and speech pathologists. There are multiple AAC software such as LAMP™ or TouchChat, offering different layouts and ways of selecting words to meet the user’s needs.

Sign Language

Sign language uses hands and facial expressions to communicate, a common form being American Sign Language or ASL. Along with PECS®, ASL stands as one of the most frequently used methods of communication for non-verbal children on the autism spectrum.

Speech therapy

Licensed Speech Pathologists lead speech therapy. Speech Pathologists work with parents, teachers, and BCBAs to determine the best methods of communication for the child. In speech therapy sessions, the pathologist will work with the client on skills such as conversation, articulation, social cues and how to respond. If a client has an AAC device or PECS® book, the pathologist will help them use their device or icons effectively. At our clinics, our speech therapists often utilize games, toys, and fun activities to engage clients in the speech therapy process.

After reading through all this information on communication and autism, you may feel unsure of which  method is best for your child. If you are interested in any of the mentioned tools, talk with your child’s BCBA. If you want more information on our ABA Therapy and speech therapy services, please contact us here.