How to Explain Death to a Child with Autism

image of grave headstone, explaining death to a child with autism

Losing a loved one, whether it is expected or not, is hard for anyone to navigate. It’s a process that involves accepting reality, seeking support if necessary, and allowing yourself time to feel natural emotions. So it’s not surprising that explaining the death of a loved one to a child with autism may bring some additional challenges.   

Death is a difficult concept for any child to understand, let alone those who may have a hard time grasping abstract concepts. But death and loss are also unavoidable. That’s why we put together some tips to help your child with autism or special needs understand and deal with the process of losing a loved one.  

Be literal and thorough when explaining the loss 

When explaining the death of a loved to your child with autism, use literal terms. This may help the death make more sense to them.  Avoid using terms such as “passed away”, “gone to sleep”, or “gone to another place”. Using these terms risks your child taking them literally and becoming frustrated when their loved one doesn’t wake up or come back.  

Be direct when you are explaining the passing of a loved one to your child. The more direct you are, the easier it will be for them to understand. Allowing room for questions is key here and answering them honestly to the best of your ability should take priority.  

Keep routines as unchanged as possible 

Change in routines can be particularly challenging for individuals on the spectrum. The death of a loved one is a major life changing event. That’s why it is best to keep everything else within their routine as consistent as possible. People with autism find comfort with routine, and comfort is something we all strive for while grieving. Bedtime routines, playdates with friends, school and therapy may be part of daily routines. You should try your best to maintain these activities if they bring your child peace. 

Involve them  

When helping a child (with or without autism) through loss and grief, it may seem best to exclude them from certain parts of the process, like attending a funeral with an open casket. While it largely depends on your child’s level of cognitive understanding, as well as your expertise in making the best-informed decision for your child, many professional sources suggest that shielding a child with autism from the complexities that come with loss will likely confuse them more. These sources suggest being transparent and asking your child if they would like to be part of a certain aspect (like the funeral, wake, or burial). With this, allow them to ask any questions they might have.   

Another good option, as Alicia says in The Mom Kind, is “to have a celebration of life that they can attend instead of the funeral”. Doing this, Alicia says, “allows involvement without having to see all the grief”.  

Prepare them, if possible  

If you know that a family member or loved one is terminally ill, try and familiarize your child with all the places they will be during this time. This could be places like the hospital, funeral home, or cemetery. Remember to talk about the emotions they will see from others throughout the process. A great way to do this could be through pre-made “social stories”. Social stories use photographs to help explain and show the child what will happen before it happens in real-time. These photographs and descriptions of the photographs can include emotions that they will observe of others. More information on constructing a social story can be found here.  

As we know, children who are on the spectrum can have an especially difficult time dealing with the unexpected, so it is a good idea to make the loss as “expected” as possible. Of course, this may not always be possible and sometimes a loss can be sudden. In this case, you can still do your best to show and tell your child what to expect. Use any photos you have available or pictures online to do this. More ways to prepare your child for loss and help them understand it can be found in this article from Child Bereavement UK. 

Utilize books that help explain loss 

When it comes to bereavement and children with autism, a lot can be gained from books that are specifically made for this life event.  

The 2017 book, I Have a Question about Death: Clear Answers for All Kids, including Children with Autism Spectrum Disorder, is a straight-forward, color-filled read that addresses the questions that concrete thinkers might have surrounding death. It answers them in a simplistic manner. This book has an abundance of good reviews from parents who have had to explain this topic to their children. We recommend it as well!  

Another book that is a good choice for the topic of grief is the interactive workbook, Finding Your Own Way to Grieve by Karla Helbert. This book is unique in that it encourages expressive techniques and exercises to help your child identify and process the feelings that accompany loss. This book is perfect for children and teens to work through on their own. They can also use it with the help of a parent or professional. Find this book here. 

Lastly, How People With Autism Grieve, and How to Help: An Insider Handbook, is best suited for teens and young adults who need security and affirmation after losing a loved one. Though the book only bases suggestions off one person’s unique experience, it can prove helpful in relating to what your child might be feeling emotionally. Find out more about it here. 

Takeaway

We all have different ways of dealing with loss. It’s important to make it known to your child with autism that there is no “right” or “wrong” way to respond to the death of a loved one. The most vital thing, though, is to ensure that your child knows there is support around them and that they have people to talk about it with when they feel sad or confused.  

Great Gift Ideas for Autistic Children

With holiday season fast approaching, it’s time to scheme gift ideas! But finding useful and entertaining gifts for kids with autism can be tricky. For the past few years, we’ve compiled lists of gift ideas for autistic children. These categorized suggestions come from experts at our clinics as well as popular preferences from our clients.

A few things to note: Remember to consider the child’s interests and developmental stage. If they love a certain character or sport for example, find something that includes that. Or if they are intrigued by a certain sensory experience, such as fluffy or smooth items, gift from those categories. Their developmental stage also might not match age-appropriate toys and activities, so keep in mind what they might enjoy based on their abilities and interests.

Here is your guide with great gift ideas for an autistic child (or teen)!

Gifts that encourage movement

Many kids with autism often need to incorporate lots of movement into their day to counteract sensory issues. Try an anti-burst peanut exercise ball for core strength development and calming deep pressure, or a balance board for balance and coordination.

Additionally, according to one of our Occupational Therapists, jumping is an excellent way for kids to get sensory input. She suggests a monkey jump, where small children can engage in a game of Five Little Monkeys. A mini trampoline is another fantastic go-to option for kids who need to get energy out.

Sensory gift ideas

Water beads are a huge favorite of our clients. After expanding in water, put them in a bin and let kids run their hands through them for some mesmerizing sensory fun.

Sometimes a child with autism finds solace with alone time. Make a peaceful haven in a tent that you can fill with pillows, stuffed animals, or any other objects that help your child experience calm.

Poke-A-Dot books offer interactive sensory input while enjoying a story. Children can pop the dots on each page, which is a great opportunity for fine motor skills.

If your child often gets overstimulated and likes body pressure, try a weighted vest, blanket, or neck wrap. The added weight can aid in focus and help kids feel safe and secure.

Toys that support fine motor skills

Kinetic sand is a perfect gift for kids that like to squish, mold, and create—another favorite of our clients. As opposed to real sand, kinetic sand prevents big messes as it sticks together. Scoop into molds or build little creatures and sandcastles for fine motor practice.

Do you have a child who loves taking things apart and putting back together? Check out this take-apart car, complete with a drill. Our OTs utilize these cars during sessions to encourage fine motor skills. The car can also go for a drive when construction is completed, offering an enticing reward at the end of a task.

Do.A.Dot markers help kids work on fine motor skills through learning to hold and control something in their hand. With a sponge tip applicator, they are also mess-free! These markers are a great option for quick art projects.

Gifts for tweens and teens

Many of these gifts work for younger children, but may not satisfy needs of older kids and teens with autism. Finding gifts for teens can be difficult, but we suggest fidget-friendly items than can ease stress. As kids get older, they need to concentrate longer on tasks. Gifting a fidget spinner, a Kinekt gear ring, or finger fidget pencils can therapeutically relieve extra energy and stress when trying to focus.

Stocking stuffers

Try these smaller items to stick in a stocking. “Pop-its” are all the rage right now, for both neurotypical and autistic children—we see many around our clinics! Therapy putty often comes in a small container for easy transport to pull out and squish when needed. Our clients also enjoy stretchy tubes that pop and bend. For kiddos who like to mouth items, try packs of fun-shaped chewies such as these shark teeth. An anti-stress toy like this cool fidget or a liquid timer can simultaneously entertain and ease sensory induced anxiety.

Gift ideas to treat parents

If you’re planning to give to a child with autism, it’s a nice gesture to gift their parents as well. Parents of kids with special needs often endure a lot of stress. Self-care and fun experiences are excellent options, such as a manicure/pedicure, a massage, restaurant gift cards, or movie gift certificates. A relaxing night out is often a wonderful gift for parents, given all they balance!

We hope we’ve helped take some of the stress out of your holiday shopping this year with these great gift ideas for autistic children. For even more gift suggestions, be sure to check out all our holiday gift guides.

Eating Issues and Autism: 5 Tips to Help

eating issues and autism

Parents of children with autism know eating issues all too well. From mealtime tantrums to picky food preferences, dealing with the eating issues that come with ASD can be a major stressor. However, rest assured that these issues can be addressed by seeking support, establishing routine, and lots of patience.

Food selectivity

Children with autism often have selective food preferences. According to our Director of Clinical Standards, Jennifer Thomas, Ph.D., BCBA-D, LBA, these preferences can occur due to learning, tactile, and/or olfactory sensitivities. Children might prefer soft foods like yogurt or soup, or crunchy textures like snack crackers. Another common preference of children on the spectrum are foods with high starch and sugar content such as snack foods. “Sometimes, the way a food tastes or feels in the mouth, or the way it smells is aversive to kids and therefore physically challenging to try new things,” Dr. Thomas explains.  

Not eating enough

Sitting through a meal and finishing food can be a challenge for kids with autism. As a result, kids may not receive the calories and nutrients they need to maintain health. Chronic malnutrition can lead to physical, emotional and cognitive decline.

Inflexibility in trying new foods

Autistic children may avoid entire food groups such as fruits and vegetables. When parents attempt to introduce non-preferred foods, challenging behaviors often occur. This can make mealtimes difficult for the whole family and eating out undesirable.

From these eating issues come behavioral and health issues such as:

Challenging behaviors

Parents often experience behaviors at mealtimes, such as their child consistently getting up from the table, crying, or throwing food or utensils.

Nutrient deficiencies

Lack of nutrients can cause several health issues, such as difficulties in cognition, iron deficiency, constricted physical growth, and an increased probability of obesity and heart disease. Dr. Thomas also points out that kids are more likely to get sick and take longer to recover because the immune system isn’t as strong without nutrients.

GI issues such as constipation

The struggle to help your child eat well is hard enough. In addition, parents may try to accommodate to their child’s eating issues, such as packing preferred food during restaurant outings or gatherings. Accommodating to eating issues may cause increased stress and relationship strain in parents.

Parents often find it easier to simply give their child preferred foods rather than battling behaviors to change eating habits. But it’s important to know that the longer these issues become ingrained the harder they are to address in the long term.

5 Tips to Address Eating Issues

1. Make mealtimes routine

Kids with autism often thrive with routine. Help them know what to expect by serving meals at the same daily time. You could give your child reminders 30 minutes to 5 minutes before meals to prepare for the transition. It’s great to involve your child in meal preparation, such as having them set the table or help cook if they enjoy it. Give your child choices during mealtimes by letting them select a food to serve or choose where they sit at the table.

2. Keep introducing non-preferred foods

Continue to offer non-preferred foods in small amounts. It’s tempting to simply remove them altogether in order to avoid behaviors. But it’s important to continually give your child opportunities to try the new foods. Shape behaviors by starting small. For example, have your child try one grape or half a carrot. Give lots of praise for their effort of trying and remember it’s ok if they don’t like it right away. “It’s also okay if they don’t eat the new food right away,” Dr. Thomas adds. “Even if they touch the food, or smell it, it’s a step closer to the goal. It’s important to be gentle about the process so food avoidance doesn’t increase.” For example, the novel food can be placed on a separate plate near your child throughout the meal, though they do not need to eat it. Having a special reward for trying something new, or even just tolerating something new nearby, can help move things along faster.

3. Keep reasonable expectations for mealtime

Changing behaviors and your child’s food preferences will take time and patience. Try not to expect big changes all at once. In the meantime, model your expectations for your child. Perhaps you’d like them to sit at the table for a minimum length of time and gradually increase that time. Keep phones and toys away from the table to demonstrate focus at mealtimes. Ignore non-desired behaviors as long as they are safe.

4. Give LOTS of specific praise!

Praise your child consistently for anything they are doing (or not doing) to increase desired behavior. Give specific praise such as “I love how you are sitting so calmly at the table,” “Way to go trying that bite of food!”, or “I’m proud of you for eating those two more bites.” There is most likely always something for which to praise your child!

5. Consult your child’s pediatrician

Eating issues and autism aren’t always preference based. Medical issues are often a culprit, such as acid reflux or allergies. Be sure to consult your child’s pediatrician if you suspect health issues.

Though navigating eating issues in children with autism can be tricky, you are not alone in the journey. And it doesn’t have to be so difficult—the trajectory can change! Seek out resources and support for not only your child but for yourself as well.

Never Underestimate Individuals with Autism

The Changing Landscape of Autism

In 1995 the rate of autism was about 1 in 500 individuals. However, in 2021 that number changed to 1 in 44* individuals diagnosed with autism spectrum disorder. ABA therapy was not a readily available treatment for autism back in 1995 in Michigan. But it is considered the “gold standard” today for improving language, play and social skills, while reducing negative behaviors in individuals with autism.

Our founder Jamie McGillivary was studying psychology at Eastern Michigan University in 1995. One of her professors saw something in Jamie and encouraged her to work with children with special needs. Shortly after that Jamie met Katie, a bubbly 3-year-old girl in Saline, Michigan. Katie’s mother hired Jamie to work with her daughter to support her communication, play and social skill development.

ABA therapy was not a common course of study back in 1995. However, as soon as Jamie met Katie, she knew the direction she wanted to take her career. They developed a very special bond in those early years that has continued to today. For example, Katie was in Jamie’s wedding 18 years ago, went on vacations with them and is like a member of the family.

Having High Expectations

After living in four other states over the past decade, Katie moved back to Michigan. She worked as an Office Assistant here at Healing Haven from 2019 to 2020. When she was 3 years old, Katie worked so hard to learn to put words together, but now she loves to talk! Katie received a certificate in Office Administration from Nashville State Community College. As a result, she is proficient in Microsoft Excel. She was a whiz at organizing the mountains of files we have here at Healing Haven. Katie was eager to help in any way around the clinics and is also a natural with children.

After years of hard work and support from her mom, Jamie and others, Katie is motivated to share her story to encourage parents of individuals with autism, or any disability. Because she speaks from experience, her words are so meaningful.

“Do not underestimate your child with autism. It’s important to know your child can do anything they can put their mind to,” Katie said. “People should give kids with disabilities a chance. They have a future ahead of them,” she added.

Katie’s Inspiring Message

Katie joined the staff of Healing Haven as an Administrative Assistant in January 2019. One of her dreams is to become a public speaker. She had her debut at the Open House we held in 2019, inspiring guests with her confidence!

To learn more about ABA therapy and how it supports the development of children and teens with autism, visit our What is ABA Therapy page.

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*The original post from 2019 has been updated with 2022 figures

Communication and Autism: 4 Resources to Help

Communication and speech are common struggles for some individuals with autism. Those who do not speak or who have great difficulty speaking may be considered “nonverbal,” while those who do speak are considered “verbal.” However, “non-verbal” is not an entirely accurate term. Those who do have challenges speaking may still understand words spoken to them, or use other forms of communication. On the other hand, those who can speak verbally may still benefit from additional communication methods.

ABA teaches functional communication in a variety of ways. It’s crucial that those with autism learn to communicate their wants and needs. Through learning effective communication, individuals receive the help they need to live their best life.

Communication and Autism

In ABA therapy, BCBAs (Board Certified Behavior Analysts), RBTs (Registered Behavior Technicians) and ABA Therapists teach communication skills based on the behavioral and learning needs of the client. Additionally, Speech Language Pathologists target more specific communication goals and skills. BCBAs closely collaborate with speech and language pathologists to choose what will best help the client. BCBAs provide input on the client’s behaviors which determines the final decision on which communication method will be best. Additionally, BCBAs help parents learn what they can do at home to assist their child in communicating.

Building a Foundation for Communication

A common concern of parents who have a child who struggles with speech is how to teach them to communicate their wants and needs. This is typically one of the first skills that BCBAs work on for a client who is new to ABA Therapy.

We asked one of our fantastic BCBAs for input on this subject. Batoul Dekmak, M.Ed, BCBA, LBA, stresses the importance of working on communication with kids. “All kids that walk through our doors are fairly communicative. However, a lot of time they communicate more with their behavior.” For example, children often get frustrated and engage in problem behavior due to difficulties in appropriately communicating with others. BCBAs take data on this behavior and apply it to the language and communication process. “As soon as a child begins therapy with us,” Batoul explains, “BCBAs, RBTs, and Speech Pathologists immediately start working on multi-modal communication including vocal language, gestures, AAC devices, and PECS® books. We want the child to express themselves as much as they can to navigate their world more independently.”

BCBAs and Speech Pathologists simultaneously model language to promote development of robust communication skills. An example of this is when a child uses an AAC device when playing with toys. The BCBA may comment on the child’s play using their device, such as “play dinosaur,” stating what the child is doing. This shows the child that the BCBA can also communicate using the device and how to comment on something. The goal for communication is to meet a child’s needs and wants, as well as the child gaining the ability to socialize with others.

Tools for Communication

Here are several common methods used to help children with autism communicate.

PECS®

PECS® stands for Picture Exchange Communication System®. In this system, the child gives a picture or word icon to someone in exchange for what they are requesting. Consider this example within the ABA setting. If a child wants a snack, they hand an icon of a preferred food to their RBT or BCBA who would then give them the item. PECS® icons are often stored in a three-ring binder with pages of laminated icons attached with Velcro. If you stepped inside our clinics, you would see several clients walking around with these binders, often attached to a strap for easy transport.

The goal of PECS® is for non-verbal children and those who are learning to speak to communicate their needs to caregivers in a simple way. To address changing stages of communication development, PECS® consists of six phases starting with exchanging icons through constructing sentences.

Augmentative and Alternative Communication (AAC) device

An AAC device is a tablet or laptop that contains words and images. When a child selects a word or image, the device “speaks” the input requested. Kids with autism who use AACs gradually build skills for how to use the device. They might begin with simple one-word requests then moving to more complex sentences. Kids work on these skills in ABA therapy under supervision of BCBAs and speech pathologists. There are multiple AAC software such as LAMP™ or TouchChat, offering different layouts and ways of selecting words to meet the user’s needs.

Sign Language

Sign language uses hands and facial expressions to communicate, a common form being American Sign Language or ASL. Along with PECS®, ASL stands as one of the most frequently used methods of communication for non-verbal children on the autism spectrum.

Speech therapy

Licensed Speech Pathologists lead speech therapy. Speech Pathologists work with parents, teachers, and BCBAs to determine the best methods of communication for the child. In speech therapy sessions, the pathologist will work with the client on skills such as conversation, articulation, social cues and how to respond. If a client has an AAC device or PECS® book, the pathologist will help them use their device or icons effectively. At our clinics, our speech therapists often utilize games, toys, and fun activities to engage clients in the speech therapy process.

After reading through all this information on communication and autism, you may feel unsure of which  method is best for your child. If you are interested in any of the mentioned tools, talk with your child’s BCBA. If you want more information on our ABA Therapy and speech therapy services, please contact us here.

Shelter in Place Resources for Parents

resources-for-shelter-in-place

We are in a rapidly-changing, unprecedented time in our world as this global health crisis spreads throughout our country. As more drastic measures are taken each day to slow the spread of COVID-19 (Coronaviurs), to “flatten the curve”, we all are scrambling to figure out this new normal. Kids are out of school, many are people working remotely, or have been temporarily laid off. And in our case, our clients are not receiving therapy until we can roll out some support to our families through telehealth services.

So what are we to do as parents, caregivers and professionals? We’ve compiled a list of resources for parents to help you navigate this extraordinary reality we are now in.

Talking with Your Kids About Coronavirus

First, some of your kids may be asking specifically about coronavirus, or the results of it – why they are not in school or going to therapies? Here are several resources to help.

  • PBS Kids has tools to help you talk with your children about this novel virus.
  • This Psychology Today article provides some great resources and tips for explaining this global health crisis to children with autism.
  • This Washington Post article is written by a Mom of with an autistic 8 year old son.
  • And for those who may be experiencing anxiety, here is some help for addressing that too!

Creating New Routines

We all know how important routines are for kids with autism, Down syndrome, and even typical kids! And now those routines are turned upside down. So here is a free downloadable routine schedule that you can customize for your child and situation. And here are some timely activities from the same resource – A Next Comes L – with activities to do at home in the month of April.

Homeschooling

One of the biggest changes the Coronavirus has brought on us is the closing down of schools. Parents are now tasked with continuing the education of their kids! For some that may come easy, but for most, it’s a whole new world, especially if your child has an IEP! So, in addition to whatever your child’s school is providing, we’ve compiled a list of resources that address this new educational reality facing parents. (*Note: Full disclosure, I have a daughter in 3rd grade. She also has Down syndrome. We already tried a few of these resources. I highly recommend you check them out!) If you’re wondering how to structure their day, or need worksheets to keep them busy, or want some interactive online lessons, and more, take a look at these tools.

Educational Tools:

And here are some fun entertaining, while educational resources – watching webcams of animals at the National Zoo, or of sea life at the Georgia Aquarium.

Therapy Resources

If your child is not receiving their typical therapies like OT and PT, definitely check out The OT Toolbox. From fine motor activities to sensory processing resources, they have some amazing supports in their Parent Toolbox! And OT/picky eater expert and blogger at Your Kids Table provides some survival tips for parents during this social distancing time.

Get Moving

Being cooped up inside all day every day will make anyone go stir crazy. So you definitely will need to work in some time to get moving. Whether you go for a walk or play in the backyard, or use one of these online resources, these are great tools to keep kids moving during this self quarantine period. Stretch, move and bring a sense of calm through yoga from Cosmic Kids. A favorite “brain break” in many schools, GoNoodle, can help get the wiggles out to focus on their next task. And Fluency and Fitness combines academics with movement, reinforcing learning, while getting up and moving!

Specific to Autism

In addition to the social story linked above, here’s a list of activities to keep a teenager with autism busy while they are out of school. And above we included resources from A Next Comes L. Sign up for her newsletter to get lots of great resources during this Coronavirus shelter-in-place!

We have some additional resources we will be providing our client families in the coming weeks, too. We are developing a stress management webinar to equip parents during this understandably stressful time. Additionally, we’re planning on a companion stress management blog post. So stay tuned for that!

We are in this together and are developing unique ways to support our community and network during this unique and trying time.

If you found this information helpful, we’d love it if you’d share it with your friends and family!

How to Explain Autism to Neurotypical Children

explaining-autism

Explaining Autism to Neurotypical Children

As the rate of autism diagnoses increases, children and teens undoubtedly know, or have encountered, someone with autism in their schools, in their neighborhoods, or in their own family. As a result, kids most likely have noticed some differences. They may have wondered: “Why is he covering his ears?” “Why won’t he talk to me?” “Why does she move her hands like that?”

Autism Spectrum Disorder is a complex condition that many adults have difficulty understanding. So how can children learn to comprehend the many facets of this condition when they see it in their siblings or peers? We have put together some helpful tips and resources to aid you in explaining autism to neurotypical children in your family, your classroom and your community.

Be Honest

If your child, neighbor or student in your classroom asks some of these questions, it’s important to answer them. When questions go unanswered or they are told not to ask things like that, not only do we squelch their innate curiosity of the world around them, but it can lead to inaccurate or negative assumptions. They may think their friend is crazy or their sister doesn’t like them. By answering their questions you pave the way to understanding autism instead of allowing misconceptions or fear to take root in the unknown.

What is Autism?

As explained by Mary L Gavin, MD on KidsHealth.org, “Autism spectrum disorder is a difference in the way a kid’s brain develops. Kids with autism may have trouble understanding the world around them.” One of the most common questions from kids is “Can I catch autism?” So it’s important to explain that autism can’t be caught like the flu.

Use simple terminology to describe autism to neurotypical children. A classmate or friend with autism might have trouble talking and learning the meaning of words. They may struggle making friends or fitting in. They may not handle changes easily, like trying new foods or having a substitute teacher. Additionally, they may have trouble dealing with loud noises, bright lights, or busy hallways.

Some kids with autism might move in an unusual way (like flapping their hands, or rocking back and forth) or do the same thing over and over (like saying the same word).

And because autism is a spectrum or range, some autistic kids may have a few struggles, or they may have a lot of these struggles. As a result, some kids need a little bit of help, and others might need a lot of help with learning and doing everyday activities.

Important Reminders

When you have conversations with students or siblings, here are a few recommendations to keep in mind.

Focus on the positive

Talk about the child’s strengths, abilities and interests, not just on their struggles. Using people-first language puts the focus on the individual and not their diagnosis. This also helps them view autism through a more positive lens. If possible, identify a common interest to demonstrate ways they can connect with their classmate or sibling.

Encourage questions

A child’s curiosity and questions are not rude. When you answer a child’s questions in a straightforward manner, they will learn from your example to be open and accepting. Also be sure to communicate that autism is not something to fear and it doesn’t need to be kept a secret.

We all are unique

Every one of us looks different and has our own unique strengths and weaknesses. And with autism being a spectrum, there are no two kids with autism that are alike. So it’s important to not lump them all together. Rather, get to know the individual, and as mentioned above, find things you may have common with them.

The Gaming System Analogy

A mom spoke with her son’s 3rd grade class about autism and used an analogy that has become quite popular over the years since. Essentially, she talked about how video game devices have different operating systems. You can’t play an Xbox game on a Nintendo because it can’t process the information. So just like video game systems, people with autism can’t process information in the same way a neurotypical person does. It’s not bad, just different. You can read the full account on her blog here.

Explaining a Sensory Meltdown to a Child

Witnessing a sensory meltdown can be confusing and even upsetting for adults, let alone kids. So explaining what a sensory meltdown is can help a child process what they’ve seen. It’s not a temper tantrum when they aren’t getting their way. A sensory meltdown is a feeling of being overwhelmed – by sounds, smells, lights, spaces. There is too much happening around them and their brain can’t process it. Sometimes our brains need a break from what’s going on around us. But as the sibling or friend gets to know what stimuli the person with autism reacts too, they can become an ally in helping them if they become overwhelmed.  

Using Stories to Explain Autism

A story can be a powerful way to communicate ideas and messages to children. Thankfully, there are many books created to explain autism and help kids understand it. Here are just a few:

Professional Help

Even after you explain autism to siblings of autistic children, they can benefit from being able to process their emotions with a professional. We have programs that serve the entire family including counseling for siblings of autistic children. For more information, fill out the Contact Us form and a member of our team will get back with you.

If you found this information helpful, we’d love it if you’d share it with your network!

Gift Ideas for Kids with Autism

The holiday season also means gift-giving season for many. And for families who have someone with autism, finding a great gift may seem daunting. So we’ve asked our expert staff for their top picks of gift ideas for kids and teens with autism. We’ve compiled quite a varied list, so hopefully there’s at least one item that will fit your loved one!

Get Moving Gifts

A mini-trampoline with a handlebar is on our Occupational Therapist’s list because it provides a great way to improve your child’s motor skills, coordination and sensory processing. The repetitive bouncing motion helps children learn over time how to read impulses from their different sensory systems. It can be used inside during the cold winter months and outside during the summer.

One of our BCBA’s picks for a great holiday gift is a body sock. Often used by Occupational Therapists, they can also be a wonderful toy and tool at home. A body sock provides resistance and calming deep pressure input to the proprioceptive and tactile systems. They are used for sensory regulation, calming kids who may be overwhelmed or overstimulated. It’s also great for helping kids with spatial awareness – where their body is in space. Check out this blog post from The Inspired Tree House for some ideas on how you can use a body sock with your child.

A lightweight tunnel for kids to crawl through helps develop arm and leg muscles and gross motor skills. It also collapses down for easy storage at home.

Calming/Sensory Gifts

Weighted blankets have become quite popular in recent years. One of our OT’s recommends them because of the deep touch pressure they provide. Weighted blankets can help kids with anxiety, autism, sensory processing disorder, stress and poor sleep. Choose a blanket weight corresponding with your child’s weight – 8-12% of total body weight. So a 5lb. blanket is recommended for a 42-63lb child. And this example is easily machine washable while providing soft, tactile input.

One of our former ABA Therapists turned counselor recommends this 3D printed moon design light for the calming light it provides for your child’s bedroom.

Clothes are always a useful and practical gift. When shopping for kids and teens with autism, another one of our BCBA’s recommends choosing cotton clothes that have no tags. And some companies, like Target and Tommy Hilfiger, are coming out with adaptive clothing lines designed for those with sensory and fine motor needs.

Fine Motor

A great way to help your child work independently at home, while also working on fine motor and visual integration are jigsaw puzzles. One of our BCBAs recommends choosing puzzles with a favorite character to keep their interest – like this Marvel Comics puzzle, or this Disney set. And puzzles are also a great way to encourage social interaction when they work with a peer.

Kinetic sand (or moon sand) sticks to itself, but not to your hands or other things. Recommended by one of our Occupational Therapists, this is a great tactile activity – kids can squeeze it, shape it and create things without making a huge mess. And unlike Playdough, this Kinetic sand is gluten free, which is helpful for the many individuals with autism who adhere to specific diets.

Stocking Stuffers

  • The ultimate fidget spinner – this Atesson spinner has stainless steel bearings and can spin for 4-10 minutes!
  • Therapy putty is a go-to choice for occupational and behavior therapists for the fine motor building and tactile input it provides.
  • Many kids with autism seek oral motor input. These chew brick necklaces are both popular and functional.

We hope these ideas help you find not only a gift that is helpful for your child, grandchild, niece or nephew, but also something they will have fun with! And if you have a gift idea for someone with autism, please share it in the comments below!

Six Great Books for Parents of Autistic Children

Books-for-Parents
books for parents

We meet with families every week who just received a diagnosis of autism for their child. We also work with parents of autistic children who are further along in their journey of raising their child. But no matter where you’re at, we see the need for new and helpful resources. So we’ve compiled this list of diverse books that can help parents at various stages with their kids. And three of the books feature authors who happen to have autism. How cool is that?!

Six Great Books for Parents of Autistic Children

10 Things Every Child With Autism Wishes You Knew by Ellen Notbohm

This award-winning book is often one of the first resources recommended to read after your child receives an autism diagnosis. As Ellen is the parent of a children with autism and ADHD, she understands. In the latest edition of this book, she expands upon topics of communication behavior issues, as well as social processing skills. This book helps readers understand the needs and the potential of every autistic child. It is available on Amazon in several formats.

Autism: How to raise a happy autistic child by Jessie Hewitson

Written by a personal finance writer for The Times and mother of an autistic son, this guide provides powerful information for anyone raising a child with autism. With many great reviews from parents and publications alike, it is unique in that it utilizes information and tips from various perspectives, such as other parents, autistic adults, professionals, and academics. This book is everything you need and more – especially if you’re a parent new to the world of raising an autistic child and aren’t sure where to start. The Kindle or Paperback copy can be found on Amazon.

Wrightslaw: From Emotions to Advocacy: The Special Education Survival Guide by Pam & Pete Wright

In addition to navigating your child’s autism diagnosis, you will also be entering the world of special education and IEP’s. But where do you start to learn in the ins-and-outs of special ed law?  What do FAPE (Free and Appropriate Public Education) and LRE (Least Restrictive Environment) actually mean? This book, from the founders of Wrightslaw, will help empower you to enter meetings with your child’s school ready to advocate for what they need, as well as what they are legally entitled to.

Autistic Authors

The Reason I Jump by Naoki Higashida

Named one of the best books of the year by NPR, The Wall Street Journal and Bloomberg Business, The Reason I Jump is written by a thirteen-year-old boy with autism. Naoki shares with honesty his unique point of view on autism  and life itself. As a result, the book provides an incredible lens into how an autistic mind thinks, feels, perceives and responds to the world around him. The Reason I Jump is available on Amazon.

Six-Word Lessons On Growing Up Autistic by Trevor Pacelli

Trevor is a young adult who was diagnosed with autism at the age of 5. He is aware that “growing up autistic” was challenging for himself and his family. For that reason he wrote a book to help others. Trevor provides 100 short, practical tips to help understand the autistic person in your life. He addresses 5 topics: sensitivity, loneliness, sudden changes, disciplining and not underestimating capabilities. You can learn more about Trevor through his website growingupautistic.com, as well as purchase his book from Amazon.

A Full Life with Autism: From Learning to Forming Relationships to Achieving Independence by Chantal Sicile-Kira and Jeremy Sicile-Kira

Parents of an autistic child often wonder: Will my child have friends? How will my child communicate? Will my child be able to work? And is living independently an option when they grow up? This book by a mother-son duo shares what it takes to raise your child and transition them to adulthood. Most noteworthy is the authors have lived this, as co-author Jeremy is on the autism spectrum. Copies are available from Amazon.

We hope you found this list of books helpful as you navigate raising your autistic child. If you have any other books you recommend, please let us know in the comments!

And here some more resources you may find helpful.