Shelter in Place Resources for Parents

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We are in a rapidly-changing, unprecedented time in our world as this global health crisis spreads throughout our country. As more drastic measures are taken each day to slow the spread of COVID-19 (Coronaviurs), to “flatten the curve”, we all are scrambling to figure out this new normal. Kids are out of school, many are people working remotely, or have been temporarily laid off. And in our case, our clients are not receiving therapy until we can roll out some support to our families through telehealth services.

So what are we to do as parents, caregivers and professionals? We’ve compiled a list of resources for parents to help you navigate this extraordinary reality we are now in.

Talking with Your Kids About Coronavirus

First, some of your kids may be asking specifically about coronavirus, or the results of it – why they are not in school or going to therapies? Here are several resources to help.

  • PBS Kids has tools to help you talk with your children about this novel virus.
  • This Psychology Today article provides some great resources and tips for explaining this global health crisis to children with autism.
  • This Washington Post article is written by a Mom of with an autistic 8 year old son.
  • And for those who may be experiencing anxiety, here is some help for addressing that too!

Creating New Routines

We all know how important routines are for kids with autism, Down syndrome, and even typical kids! And now those routines are turned upside down. So here is a free downloadable routine schedule that you can customize for your child and situation. And here are some timely activities from the same resource – A Next Comes L – with activities to do at home in the month of April.

Homeschooling

One of the biggest changes the Coronavirus has brought on us is the closing down of schools. Parents are now tasked with continuing the education of their kids! For some that may come easy, but for most, it’s a whole new world, especially if your child has an IEP! So, in addition to whatever your child’s school is providing, we’ve compiled a list of resources that address this new educational reality facing parents. (*Note: Full disclosure, I have a daughter in 3rd grade. She also has Down syndrome. We already tried a few of these resources. I highly recommend you check them out!) If you’re wondering how to structure their day, or need worksheets to keep them busy, or want some interactive online lessons, and more, take a look at these tools.

Educational Tools:

And here are some fun entertaining, while educational resources – watching webcams of animals at the National Zoo, or of sea life at the Georgia Aquarium.

Therapy Resources

If your child is not receiving their typical therapies like OT and PT, definitely check out The OT Toolbox. From fine motor activities to sensory processing resources, they have some amazing supports in their Parent Toolbox! And OT/picky eater expert and blogger at Your Kids Table provides some survival tips for parents during this social distancing time.

Get Moving

Being cooped up inside all day every day will make anyone go stir crazy. So you definitely will need to work in some time to get moving. Whether you go for a walk or play in the backyard, or use one of these online resources, these are great tools to keep kids moving during this self quarantine period. Stretch, move and bring a sense of calm through yoga from Cosmic Kids. A favorite “brain break” in many schools, GoNoodle, can help get the wiggles out to focus on their next task. And Fluency and Fitness combines academics with movement, reinforcing learning, while getting up and moving!

Specific to Autism

In addition to the social story linked above, here’s a list of activities to keep a teenager with autism busy while they are out of school. And above we included resources from A Next Comes L. Sign up for her newsletter to get lots of great resources during this Coronavirus shelter-in-place!

We have some additional resources we will be providing our client families in the coming weeks, too. We are developing a stress management webinar to equip parents during this understandably stressful time. Additionally, we’re planning on a companion stress management blog post. So stay tuned for that!

We are in this together and are developing unique ways to support our community and network during this unique and trying time.

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2019 Gift Guide for Kids with Autism

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As we enter the holiday season, we want to take some of the stress out of gift-giving, especially when it comes to kids and teens with autism. Last year we wrote a post with a variety of gift ideas from our team of BCBA’s and Occupational Therapists. So, this year we are expanding on that list and going back to our expert staff for more of their top picks. We also had a parent submit her own child-tested gift ideas! Read on for some great ideas if your holiday shopping list includes a child/teen with autism or other developmental disability.

Sensory Input

Textured sensory balls provide a variety of benefits for sensory seeking kiddos. Recommended by one of our BCBAs, textured sensory balls are great for fidgeting, tactile input, stress and anxiety relief and more!

A big favorite with the kids in our clinics – water beads! These are great fun for sensory input, fine motor, sorting, colors and more! 

This Pin Art Game is awesome for sensory seekers. It encourages creativity, while providing tactile input. And the bonus is there is no mess to clean up!

Giant Exercise Balls are great for kids who have trouble sitting still. Using these balls not only can help kids focus, but also works their core at the same time. They are available many places, but this one from National Autism Resources is guaranteed not to burst and is a popular one with OTs and therapists.

Get Moving

Called “River Stones”, these varying sizes of plastic stepping stones help children work on balance and coordination. They are a great get moving gift for indoor fun during our cold winter months here in Michigan!

Fine Motor

Our team highly recommends Magna Tiles. They are popular among many of our clients and work on fine motor, spatial and problem solving skills.

Social Skill Development

For older kids and teens who could use help in developing social skills, another one of our BCBAs recommends some social games available from National Autism Resources.  And for preschool and elementary age, Hoot Owl Hoot is an award-winning cooperative game. It’s fun while teaching colors, turn-taking, strategy, shared decision making and more!

Encouraging Academics

If you’re looking to help your child with academic skills, our team recommends the “I Can Read” books to support readers at their individual level. With a variety of subjects/character themes at various reading levels, there are plenty of options to find something your child will enjoy, while encouraging them to practice their reading skills.

Stocking Stuffers

Another one of our therapists recommends any kind of slime for great sensory input. And if your child loves playing with bubble wrap and fidgets, this Dimpl is a fun cause-and-effect, sensory toy for all ages.

The holidays are also a great time to restock the sensory bin with fidgets. If your child likes a variety of different items for sensory play, this Fidget Set gives you lots of options – and will definitely fill out their stocking!

Don’t Forget the Parents!

If you’re a grandparent, aunt, uncle or friend of family impacted by autism, let’s not forget the parents! They juggle so much with their child’s diagnosis and are often under additional stress. Consider a gift that encourages self-care, like a mani/pedi or a massage. Many parents of autistic children and teens could use the gift of your time for a night out without the kids.

We hope these ideas help you find not only a gift that is helpful for your child, grandchild, niece or nephew, but also something they will have fun with! For our local Metro Detroit families who want to “buy local”, a great option for many of these toys and games listed above, is Toyolgy Toys. They have several locations as well as website ordering available!

If you have a gift idea for someone with autism, please share it in the comments below!

If you found this information helpful, we’d love it if you’d share it with your network!

Autism Testing and Evaluation Services

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With the increasing demand for autism testing and evaluation services, we are expanding to include this in our range of services. Our new Psychometrician can administer a variety of evaluations that support families in search of answers. These testing services also fulfill insurance company requirements for diagnostic evaluations as it pertains to autism and approving therapies.

So What is a Psychometrician?

Psychometrician? You may be wondering, “What is that?”
Psychometrician – psy·​cho·​me·​tri·​cian | \ ˌsī-kə-mə-ˈtri-shən  \, as defined by Merriam-Webster is:
1: a person (such as a clinical psychologist) who is skilled in the administration and interpretation of objective psychological tests
2: a psychologist who devises, constructs, and standardizes psychometric tests

Get to know our new Psychometrician

Kristofer Picano MA, TLLP, BCBA joined our team back in August 2018 as an ABA Therapist while pursuing his Master’s Degree. Kris received his Bachelor of Science, majoring in psychology from Rochester College (now known as Rochester University). In July 2019 he received his Master of Arts in Clinical Psychology and certificate in Applied Behavioral Analysis from the Michigan School of Psychology. Kris’ breadth of education and experience are the perfect fit for expanding our services to include autism testing and evaluations.

HH: Why did you want to work with kids with autism / special needs?

KP: After years of working in related fields I always saw a need for better diagnostic and therapeutic services. Vulnerable populations can easily be taken advantage of, purposefully or even accidentally. As a result, I felt I could take my experiences and resources to create a more effective way to serve these populations. Using data gathered to generate an objective course of action minimizes trial and error and enables the potential for more effective treatment. In addition, being able to implement this to a young population greatly increases the potential for significant gains in the developmental process.

Additionally, I don’t want to overlook the parental figures and the role they take on when they have a child with special needs. The drastic changes in lifestyle, social pressures, anxiety, stress, among other things can greatly strain a relationship and/or household.

“Utilizing my experiences and education to the fullest enables me the privilege to collaborate with all levels of the family system. It provides a space to discuss worries and concerns, minimize anxiety and stress, and foster courage and hope.”

HH: Describe your career background and other experiences you have that are a benefit to the work you do here at Healing Haven.

KP: My background is diverse; however, I believe the breadth of experiences have prepared me for the work I am doing here at Healing Haven. I previously worked at a rehabilitation and treatment center for adults with acquired traumatic brain injuries. Additionally, I spent some time working at Henry Ford Hospital in their emergency psychiatric facility. I assisted in the overall care for individuals with severe mental illnesses. I also volunteered as a neuroscience researcher at the John Dingell Veterans Medical Center in Detroit. My work experience also includes a private practice setting performing neuropsychological testing and assessments with populations of all ages. Clients concerns ranged from developmental and cognitive impairments to ADHD, traumatic brain injuries, Alzheimer’s, and severe mental illnesses.

HH: What motivates you to come to work every day?

KP: Making a difference. Whether it’s the progress of the child or support I can offer for the family, it all motivates me. Knowing that I have the room and ability here at Healing Haven to create something that can be of such a benefit to all individuals of the family system.

HH: Describe the kind of work you do with clients at Healing Haven.

KP: My work at Healing Haven ranges from discussions with parents and family to actual activities with the children. But primarily I provide tests and assessments for comparative and progress reports, educational placement, intervention guidance, and diagnostics.

HH: What is a favorite memory of working with a client?

KP: It’s hard to pick just one specific memory as a favorite. But I can say that anytime I was with a client and they mastered a new skill was the greatest! Witnesses these accomplishments always gets me so excited for them!

And here are some fun things to know about Kris:

  • Favorite food: It’s a tossup between tacos and pizza too tough to pick
  • What radio station is on in your car? Or music on your iPod? I listen mostly to podcasts when I drive. I found it makes sitting in traffic a little more bearable than music. But when I do listen to music its mostly country or electronic. Depends what I am doing.
  • Favorite movie: Wedding Crashers or Step Brothers
  • How do you relax / de-stress outside of work? Exercise, hang out with friends, or I’m rebuilding a motorcycle so that keeps me busy and I enjoy it.
  • Coffee, tea or soda? I’ve been on a coffee kick lately, but mostly water.
  • Favorite book (either fiction or non-fiction): 12 Rules for Life: An Antidote to Chaos by Jordan Peterson

Next Steps

So if you are in search of help for your child, wondering if they may be on the autism spectrum. Or maybe you’re on the waiting list for one of Michigan’s 15 Approved Autism Evaluation Centers. The wait can be long… 6-12 months, but you want to start therapy for your child. We can help by providing autism testing and evaluations that complete a Bridge Authorization. Fill out the Contact Us form and we will get back with you on next steps to having your child evaluated.

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Academic Instruction: Supporting Struggling Learners

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Healing Haven’s Academic Instruction Program

Do you have a child who struggles with learning foundational academics like reading or math? Whether they have autism, Down syndrome or other learning challenges, you probably look for ways to supplement their academic learning – especially as we get back into the school grove after summer break.

Several of our BCBA’s were previously a Special Education Teacher. Inspired by our clients, we developed a program to help address this need. In January of 2019 we launched our Academic Instruction program, affectionately call “AI”, and it is growing rapidly.

We use Direct Instruction to teach academic skills in a one-on-one setting using scientifically proven methods and curriculum. Our academic instruction services all children, pre-K to 12th grade, who struggle with learning. 

In our pilot program, 17 students ranging from 7 to 14 years old received academic instruction services. They worked on either reading (decoding and comprehension) or mathematics, or a combination of both. In addition, one participant worked on reading, expressive writing and math.

Promising Results

Eighty-eight percent of the students received one hour of instruction per week in reading and/or math. The remaining 12% received 2 or more hours of instruction per week. We also custom tailored our program to students that are not yet verbal, with 41% of them using a speech generating device to communicate.

In only three months 15% of students increased one grade level in reading and/or math. And based on their first three months of progress, we project 35% will increase by two grade levels in one year. Additionally, it’s worthy to note that 40% of the students projected to make this progress use a speech generating device. In total, all students made gains, with the remaining surpassing their baseline levels.

academic instruction
academic instruction

What does this data show us?

First, we can’t assume that non-verbal communicators can’t learn in the same way that their verbal peers can. Second, when provided with an instruction method specifically designed to support struggling learners, some children who are behind their typically developing peers can make significant progress.

What is Direct Instruction (DI)?

Direct Instruction (DI) is a model for teaching that emphasizes well-developed and carefully planned lessons. The lessons provide small learning increments and clearly defined and prescribed teaching tasks. It is based on the theory that clear instruction eliminates misinterpretations, and as a result can greatly improve and accelerate learning.

Direct Instruction operates on 5 key philosophical principles:

  • All children can be taught.
  • All children can improve academically and in terms of self-image.
  • Every teacher can succeed if provided with adequate training and materials.
  • Low performers and disadvantaged learners must be taught at a faster rate than typically occurs if they are to catch up to their higher-performing peers.
  • All details of instruction must be controlled to minimize the chance of students’ misinterpreting the information being taught and to maximize the reinforcing effect of instruction.

Why Does DI Work?

The main features of DI ensure children learn faster and more efficiently than any other program or technique available:

  • Instruction is at the student’s individual skill level
  • Instruction can be modified to match the child’s rate of learning
  • The design of the program is to ensure mastery of the content
  • The curriculum is field tested with actual students before publication

Next Steps

Parents interested in this program for their child should fill out the Contact Us Form, or call us at 248-965-3916.

You will initially meet with our Program Director to discuss academic goals, specifics about the curriculum and program. Additionally, you will learn about the important role you have, including overseeing homework. We encourage parent involvement for optimal results. Children are then placed into a level and assigned specific curriculum based on parent information, school reports and academic assessments.

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Supporting Autism Families: Meet Our New Social Worker

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One of the unique services we provide here at Healing Haven is counseling for a variety of people impacted by an autism diagnosis. Our counselors support autism families through working directly with individuals with autism, as well as their parents and siblings.

Navigating an autism diagnosis can be complex for parents, as well as for some children and teens who feel different compared to their peers. Some may also struggle with social skills and interacting with others, or need help in understanding and controlling their emotions. We did a previous post on counseling and autism, featuring our onsite therapist Danielle. And now we are excited to announce the newest addition to our team, Mallory Meter. Mallory is a social worker who started providing counseling services for autism families here at Healing Haven in September 2019.

Mallory worked in the Chicago area for the past four years. She has a Bachelors of Arts from the University of Notre Dame where she majored in psychology. She then received her Masters of Social Work from The School of Social Service and Administration at University of Chicago. 

In preparation for her transition here to Healing Haven, we sat down with Mallory to get to know her better. Learn about her experience and approach to therapy, and how she might support you and/or your child:

HH:  Why did you want to work with kids with autism / special needs?

MM: I have always been passionate about working with children. I am a strong believer that children can teach us so much about ourselves and how to be better human beings. This is especially the case when it comes to children impacted by autism and developmental differences. While these children can face a number of challenges, they also carry so much creativity, potential, and strength. Being able to face challenges alongside these children, to learn from their resilience, and to witness their growth and change is endlessly exciting and a true honor for me.

HH: Describe your career background and other experiences you have that are a benefit to the work you will do here at Healing Haven.

MM: My first job out of graduate school was at a Chicago-area therapeutic day school for children with autism called Giant Steps. This role provided me with extensive exposure to interventions aimed at promoting social-emotional development in this population. Additionally, I learned how to navigate the world of public schools and IEPs. As a result of working closely with a multidisciplinary team made up of speech and language pathologists, occupational therapists, BCBAs and special education teachers, this role provided indispensable opportunities to learn new and creative ways to intervene with and support children impacted by autism spectrum disorder.

Following this role, I worked as a social worker on the inpatient psychiatry unit at Ann & Robert H. Lurie Children’s Hospital of Chicago where I also completed my training practicum in graduate school. Here I was able to further develop my understanding of a range of psychiatric diagnoses and strengthen my skills in providing evidence-based treatments at an individual, family, and group therapy level. Most recently, I had moved into a new position within the Division of Child and Adolescent Psychiatry and the Division of Developmental and Behavioral Pediatrics where I provided case management, parent training, and therapeutic/educational support to families and children impacted by ASD, Down Syndrome, Intellectual Disability, and a range of additional learning differences. More than anything, my time at Lurie Children’s Hospital confirmed my passion for working with children and adolescents impacted by developmental differences, especially those impacted by comorbid mental health concerns.

HH: What motivates you coming to work every day?

MM: My favorite part of this work is partnering with children and families. I love helping them feel understood, accepted, and supported in a way they haven’t before. The moments when a caregiver or child communicates in some way these feelings of being seen, accepted, and supported are what motivates me to come to work everyday. Coffee is always helpful too…

HH: Describe the types of counseling you will do with clients at Healing Haven. Skills you will work on, tools you will incorporate to help clients grow, etc.

MM: I hope to promote a wide range of skills and areas of growth in my work at Healing Haven. These include emotional identification and regulation skills, perspective taking and social skills, and coping/distress tolerance skills. I would describe my therapeutic lens as trauma-informed, strengths-based, relational and family systems-informed. Attachment therapy is also a guiding framework in my work. Within this broader stance, I pull from a number of evidence-based treatments including: Cognitive Behavioral Therapy, Dialectical Behavioral Therapy, Acceptance and Commitment Therapy, and Brief Solutions Focused Therapy to name a new. Additionally, a few specific tools I love to utilize in my work with autism families and children include mindfulness, Collaborative and Proactive Solutions, and Social Thinking strategies.

HH: What is a favorite memory of working with a client?

MM: My favorite memory was being staffed with a little guy on my caseload at Giant Steps. We had a field trip to a pool. He had previously been extremely scared (emphasis on extremely) of water. After a ton of work he was able to get in the pool and even go on the water slide! As a result, I’ll never forget his smile that day.

And here some fun things to know about Mallory 😊

  • Favorite food: Bread, bread, bread
  • Radio Station/Music on iPod: NPR or my own music
  • Favorite movie: Wild
  • How do you relax/de-stress outside of work: Spending time with family, yoga, reading (I’m a huge bookworm!)
  • Drink: Coffee
  • Favorite book: I don’t think I can pick just one!

As you can see, Mallory is a great asset to have on our team. We are excited to have her here helping autism families! If you are a parent in need of help for yourself, or your child is struggling with things related to their autism, ADHD, depression or anxiety, we are here to help! Simply fill out the Contact Us form and we will get back with you!

Autism Parenting: Help for Stressed Relationships

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Having a child with autism, Down syndrome or any other type of special needs brings all kinds of new realities into your life. Some can be amazing – like gaining a whole new community of people you may have never met before. But other things can definitely add stress to the lives of autism parents. From more doctor appointments to navigating special education and IEPs, to scheduling therapies – all of these new realities can put stress on your relationships with your spouse, your family members and your friends.

With the help of Allie Young-Rivard, LLPC, we’ve compiled some information and resources to help autism parents with relationships that may be under stress.

Marriage – The odds are NOT stacked against you

There’s an often-quoted statistic that the divorce rate among parents who have a child with autism is around 80%. Or it’s at least quoted as being higher than the general population. This outdated figure was based on older, smaller studies, which can often lead to inaccurate data.

The Interactive Autism Network, which connects the autism community and researchers, breaks down the updated research findings in their article Under a Looking Glass: What’s the Truth About Autism and Marriage?:

“Researchers in Baltimore investigated the supposed 80 percent divorce rate for parents of a child with autism spectrum disorder (ASD). Unlike other studies, this one was particularly large – using data from almost 78,000 parents, 913 of whom had a child with autism – and included families from across the United States. The bigger the study, the less likely the results are due to chance or something unique about the pool of people studied. The researchers, from Kennedy Krieger Institute and Johns Hopkins University, found no evidence of an 80 percent divorce rate.9 In fact, parents of children with autism split up as often as parents of children who don’t have autism, according to their research.”

We hope this new information encourages you that even though you may face some stress in your marriage due to your child’s diagnosis, it doesn’t automatically mean your marriage is doomed because of autism. If your marriage is struggling, ask for help before it’s too late.

When Divorce Does Happen

Even with this hopeful news for couples who have an autistic child, there are still a lot of marriages under stress. Deciding to divorce is complex and difficult. This life-altering course can cause intense anxiety. It can also cause worry about how the decision to separate will affect your children. For parents of children with special needs, the choice to separate and/or divorce is particularly difficult because of the added needs and responsibilities.

Support for Your Child

Many children on the autism spectrum have difficulty adapting to change. So naturally it is common for parents to worry how their child will acclimate to their new reality, routine and living situation. It is important to prepare your child for the changes that are going to happen.  Providing your child with a visual schedule that outlines the custody arrangements will help them know what to expect. Having consistency at both houses will also be helpful. Work together to have a similar calendar at both locations that shows your child’s daily routines and notes what house he or she will be at. By using tools that prepare them you can help them understand their new routine and hopefully reduce some anxiety. Additionally, talking about the schedule ahead of time to avoid surprises is beneficial for everyone involved.

Another helpful idea is to create a social story explaining the changes and what to expect. If your child receives ABA therapy, talk with their BCBA about creating a personalized social story to prepare them for their new routine and the changes in their family situation.

Lastly, depending on the age of the child and their communication ability, seeking a therapist who specializes in adjustment could be helpful. We have counselors on our team who work with children and teens on the autism spectrum. Seeing an experienced therapist can help children process their new family dynamics and adjust to the changes. Please contact us if you would like to pursue counseling for your child.

Co-parenting

It is important for a divorced couple to remember that is it about the child (or children). The definition of co-parenting is:

Verb; (especially of a separated or unmarried couple) share the duties of parenting (a child).

Keeping your focus on doing what is best for your child can help both parents stay on track and follow through on maintaining routines. Establishing and upholding proper communication with your former spouse will ensure support and success for your child. If communication with your ex is difficult, seek out family counseling and/or individual therapy if your former spouse is unwilling to join you. Counseling can help you learn how best to work together for the common interest of your child.

Family or Friends Who Don’t Understand Your Child’s Unique Needs

When your child is diagnosed with a disability it can often feel like you’re alone. Those close to you may not understand what you’re going through as you navigate therapies, doctors, support at school and situations that are difficult for your child. Some may spend less time with you and your family. This often stems from not really understanding the diagnosis. When a family member or close friend expresses criticism of your child’s behavior, or of you as a parent, it’s important to address it.

You can first try to explain what your child’s diagnosis means, how it impacts them medically, emotionally, behaviorally, etc. Explain the therapies and medical treatments they are receiving and why. Talk about what their education situation is like and how it benefits them. If your child has sensory issues, repetitive behaviors or stimming, difficulty with change, etc, it’s good to take time to explain them to your family. Being open and honest can help your loved ones understand and hopefully lead to support from them. 

Is It Time To Set Boundaries?

If, however, after explaining all of these things, they isolate you or stop talking with you, first know that it’s not you or your child. It is their inability to be sensitive and understanding of differences and supportive of those with unique needs. If you are facing criticism or lack of understanding toward your child, you may need to establish boundaries. This may mean limiting time spent at family gatherings, or not taking your kids to their grandparents’ house.

Whatever the situation you are facing, it’s important to remove yourself from unsupportive relationships and find support from others in similar situations. Setting boundaries with unsupportive family members can be tough, but putting your mental health and the child’s well being first is beneficial for everyone. Additionally, a professional counselor can help you develop coping skills to navigate strained relationships, as well as help you process your own feelings regarding your child’s diagnosis.

We hope you’ve found this information and ideas for autism parents helpful as you encounter stress in various relationships. And if you find you need some outside help and perspective, please reach out to us!

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The Benefits of a MiABLE Account for Your Child with a Disability

Raising and caring for a child with a disability oftentimes comes with added expenses. Things like extra medical costs, therapies, academic tutoring, assistive technology and much more come into play. Getting help to cover these additional expenses can be difficult. This is especially so when you have an average income and don’t qualify to receive government support for your child with a disability. When thinking about your child’s future and whether they will be able to support themselves, it can become overwhelming for parents to plan for, let alone manage the here and now.

The state an individual lives in and the disability they have largely determines the financial rules and restrictions they must follow. A bill was passed in certain states that requires employees to pay disabled workers at least minimum wage. Still, many disabled people must follow intricate rules to receive the benefits they need to successfully care for themselves.

So how can a person with a disability pay for all their daily living expenses like housing, food, education, transportation, ect., if they can’t earn a living wage, or are unable to? And on top of that, they risk losing any government benefits if they have “too much” money in their name.

Enter the ABLE Act

Thankfully, Congress passed the ABLE (Achieving a Better Life Experience) Act in 2014. The ABLE Act amends Section 529 of the Internal Revenue Service Code of 1986 to create tax-free savings accounts for individuals with disabilities. Here is the official description of the intent of the ABLE Act from the ABLE National Resource Center:

“By making tax-free savings accounts available to cover qualified disability-related expenses (including education, housing and transportation), this law aims to ease financial strains faced by individuals with disabilities. Additionally, the funds contributed into these accounts will not negatively impact the person’s eligibility for public benefits, such as Medicaid. The funds in these accounts don’t replace benefits provided through private insurances, the Medicaid program, the Supplemental Security Income program, the beneficiary’s employment and other sources. Instead, the funds supplement these benefits.”

A Powerful Tool for Michigan Families

Michigan established our MiABLE program back in 2016. We had the representative from the Michigan Department of Treasury here in our clinics to familiarize families on the benefits of having a MiABLE account for their child with a disability. Scott de Varona shared all the specifics of how the program works, how to set up an account and answered a plethora of questions from parents.

Here are a few of the highlights:

  • To be eligible, individuals must become disabled before the age of 26. They can prove their eligibility one of three ways: eligible for SSI or SSDI because of a disability (but do not have to be drawing on those benefits), have a condition listed on SSA Compassionate Allowances List, or self-certification with a physician diagnosis and documentation.
  • Qualified Disability Expenses (QDE) include much more than the original 529 College Savings Plans. MiABLE accounts can be used to pay for the expenses of everyday living for the person with the disability. QDE’s include: education, housing, transportation, employment training programs, assistive technology, personal support services, healthcare and medical costs, financial management services, legal fees, and end-of-life expenses.
  • The maximum contribution per year is $17,000. And account holders can have up to $100,000 in an ABLE account before their SSI benefits may be suspended. Once the account falls back below the $100,000, SSI benefits can resume.
  • ABLE assets are excluded for Medicaid eligibility. There is no asset threshold as there is for SSI benefits.
  • Investment options include a range of conservative to aggressive stock. Additionally, for those who want easy access to use their account now, there is a money market savings account with a debit card option.
  • If you have a Financial Advisor, you can allow them to manage your investment options. They need to complete the Agent Assisted Enrollment Form.
  • A MiABLE account doesn’t replace a Special Needs Trust. It’s another “tool in the toolbelt” to provide for an adult or child with a disability.

Tax Benefits

  • ABLE accounts are funded with after-tax contributions and can grow tax-free when used for qualifying disability expenses.
  • In addition, the State of Michigan features one of the largest tax deductions for contributions to an ABLE account. Single filers can receive a $5,000 tax deduction and a married couple filing jointly can receive a $10,000 tax deduction.
  • Many parents may have already set up a 529 College Savings Plan for their child before they were diagnosed with a disability. Those funds can be transferred to an ABLE account without penalty, and then can be used for a broad range of expenses!
  • Others can contribute to an individual’s MiABLE account to help it grow. Family members and friends can make contributions through the online portal or by mailing in a check. And if they are Michigan residents, they can take advantage of the tax deduction, too. Additionally, some states offer a deduction to ABLE account contributions in other states.

The Greatest Benefit

There are so many benefits to creating a MiABLE account for a child or young adult with a disability. But the greatest benefit has to be empowering disabled individuals to save for their future and creating a way for them to truly achieve a better life experience!

For more information, visit the MiABLE website or call them to have your questions answered: 844-656-7225. And the ABLE National Resource Center has a lot of helpful information too.

And for more information about Healing Haven and the services we provide families of children with autism and other special needs, visit Our Services page.

Follow Your Dreams Day

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Celebrating A Special Day

May 5 is a very special day in Healing Haven history. It was on this day in 2014 that Healing Haven became a full-time, packed to capacity holistic ABA clinic serving the entire family.

The origins of Healing Haven began during our founder Jamie McGillivary’s years running the HOPE Center through Beaumont Hospital. For nearly 13 years she dedicated her life to the families that came to the clinic in search of help and hope for their children. Jamie and her team created a state-of-the-art program that helped families learn how to help their children in a climate and time that was not as accepting of autism and the challenges families face. Many of our leadership team also started their careers alongside Jamie.

Through this time, Jamie recognized the need for stress management for families and other services to help support them and their unique needs navigating the world of autism. While the hospital was supportive of Jamie’s ideas, they were not able to provide the tangible support to make it happen. However, in 2010 they gave Jamie the go-ahead to figure it out on her own, outside of her time at Beaumont. It was then that the Healing Haven was born, operating in the evenings. For four years Jamie and her small team worked endlessly long hours running two clinics. Though it was not easy, with dedication, hard work and perseverance, Jamie’s dream slowly came into vision.

The First Follow Your Dreams Day

When the hospital made changes to their program, she knew it was time to follow the calling, be brave and take a leap of faith. On May 3, 2014 Jamie and a handful of other Healing Haven leaders followed their guts, took a breath and jumped into something terrifying and wonderful. The first step was resigning their positions at Beaumont. The next Monday, May 5th, the Healing Haven became a full-time, packed to capacity holistic ABA clinic serving the entire family, thus living out the first “Follow Your Dreams Day”! 

Holistic ABA Clinic

Jamie remains forever grateful to the families and staff that saw the vision with her and made the jump to give us a chance. This year celebrates our 5th year anniversary of becoming a full-time ABA clinic. What started off as a 1 employee business in a 10 by 10 room rented with money scraped together every month, has become what you know today, two ABA clinics totaling 25,000 square feet, with over 100 employees and growing! We continue to grow in size, quality programs and love.

“I am always in awe at the spectacular people that have been sent to walk the path with us,” explains Jamie. “I believe each one of you were sent here with a distinct purpose. Whether it is to help us further our mission, or to build you up in some way to help you fulfill yours. I am forever grateful for the dedication and love each of you show daily for our mission.”

https://thehealinghaven.wistia.com/medias/wrhuoz8zad

Helping Make Dreams Come True

If there’s one message that this day reminds us of, it is that dreams do come true! And if you are working from a place of love and integrity you can change the world. We remember this day to encourage our team members to think about their own dreams, set their intentions and thoughtfully set out to make them happen.

Follow Your Dreams 2019

This year we wrote our wishes on flying wish paper and celebrated with a Taco Bar.

staff follow your dreams
staff follow your dreams
staff follow your dreams
staff follow your dreams
Jamie sharing the history of Follow Your Dreams Day

“From the bottom of my heart thank you for all you do and helping make my dream a reality every day!” – Jamie McGillivary

If you’re interested in joining our team, where you and your dreams are supported – fill out the Join Our Team form and we will get back with you!

Autism Resources in Michigan

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Autism Resources in Michigan: Autism Alliance of Michigan

The annual Autism Alliance of Michigan Navigating Autism Today Conference is always important for us to be a part of. It’s a wonderful event that provides valuable autism resources. It also offers encouragement for families and caregivers. Consequently, we are regularly reminded of what a wonderful organization we have here in Michigan advocating for individuals and families impacted by autism.

The Navigating Autism Today Conference is free for caregivers – a unique benefit not often offered by conferences. Presentation topics range from financial / life planning and explanations of the MiABLE act, to mental health issues. There are also sessions on communication, behavior, learning and more. If you have not attended, definitely plan to check it out next year. The breadth of autism resources is invaluable.

Celebrating their 10th anniversary this year, the AAOM continues to provide “help, hope, and answers”. They do this through raising community expectations, standards of care, and access to essential services. They tirelessly advocate for important legislation, safe and inclusive environments and system reform throughout the state of Michigan.

Here are just a few of the programs and services offered by the Autism Alliance of Michigan:

MiNavigator

“MiNavigator was created to provide a professional case management service to Michigan families affected by autism. It is staffed by a team of autism specialists with expertise in many fields, including clinical, educational, insurance, vocational, public safety, policy, and legal. Our autism specialists work one-on-one with each family to help them navigate and overcome the many barriers they face when trying to access care and support for their loved one affected by autism.”

A Call to Action

The MiNavigator program has served over 5,000 families across the state of Michigan and is at risk of losing critical state funding. You can help by letting your state representative and senator know you want funding approved for this important program. Here is more information provided by the Autism Alliance of Michigan.

Ask an Expert

Website visitors are able to ask one of the AAOM experts a question you or a loved one is facing in any one of four categories: legal, advocacy, clinical and education. Additionally, you can also review answers to previously submitted questions.

Employment

Advocating for better employment opportunities for individuals with autism, the AAOM provides resources for employers to better understand autism. With the unemployment rate for individuals with disabilities so high, the AAOM educates employers on the value and benefits of hiring autistic workers. The AAOM’s philosophy regarding employment of individuals with autism is: “All citizens have the right to work. No perceived obstacle, prejudice or lack of awareness should deny any person that opportunity.” So whether you are an employer or a job seeker with autism, there are resources for you.

Events

From the annual Navigating Autism Today conference to the Michigan Shines for Autism Gala, to the Hero Walk at the Detroit Zoo, there are plenty of opportunities to get involved and connect with others through AAOM’s events.

Neighborhood Directory

The Neighborhood Directory is an online portal to search by category and location for a variety of autism resources, therapy providers, autism friendly businesses, adult services and more. As a result, you can quickly find a lot of helpful information and providers easily and quickly.

In addition to the above, there are many more resources available on the AAOM website for both caregivers and professionals. It’s easy to see why it’s our go-to resource for all things autism in Michigan!

If you found this information helpful, we’d love it if you’d share it with your network!

Counseling and Autism

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The Value of Counseling for Families Impacted by Autism

Receiving an autism diagnosis can result in a lot of uncertainty, anxiety and stress for parents, as well as for the child diagnosed and their siblings. So appropriately, counseling and autism go together like macaroni and cheese. When Healing Haven started in 2010, our foundational programs were ABA therapy and stress management services. We later added more programs, expanding the ages we provide ABA for, and providing additional supports like Speech Therapy, Counseling, Occupational Therapy and Academic Instruction.

Stress management for parents of children with special needs is critical, as “parent well-being increases child well-being”. Research tells us that parents can be effective agents of change for their children’s behaviors. Additionally, children and teens with autism often need help addressing their emotional needs, anxiety, and social challenges.

Our counseling services cover a wide range of needs. For parents we help them navigate this autism diagnosis, manage stress, and learn behavioral modification skills. For the child with autism we help them learn skills to manage their emotions and interact in the world around them. Additionally, we help siblings process the emotions that come from having a brother or sister on the spectrum and provide them with strategies to cope.

Meet Our Counselor

Our onsite therapist, Danielle Harrison, MA, LPC, has been working with families impacted by autism and other special needs since 2012. She started as an ABA therapist while in her undergraduate psychology program. After receiving her master’s in counseling she transitioned to the role of Counselor. Her experience in ABA therapy is a valuable tool that Danielle uses often in her counseling sessions, whether it’s with children, or while providing Parent Training.

Danielle working with her
Social Skills Group

Danielle uses techniques of applied behavior analysis to shape behaviors in children with autism. She uses Cognitive Behavior Therapy as well as Acceptance and Commitment Therapy to help them work through the emotions that may be causing them trouble. She also provides Parent Training to help families understand the concepts of reinforcement and discipline in an effort to help them set up reinforcement systems at home.

Some clients may not have an official autism diagnosis, but struggle with anxiety, depression, ADHD or other issues. She is not only able to work with the child, but also able to equip parents to manage emotions and reduce disruptive behaviors.

Navigating the Diagnosis

Danielle enjoys helping parents work through their emotions to help them accept their child’s diagnosis. Once a parent is able to come to terms with their child’s deficits and appreciates their strengths, their stress often lessens and their relationship with their child strengthens.

Another aspect of Danielle’s work is helping teens with autism who struggle with belonging, finding friends at school, and relating with their peers.

The Role of Advocate

Danielle says the most fulfilling aspect of her job is being an advocate for her children and teens. She enjoys using her skill set to collaborate with families and schools to help her clients reach their maximum potential.

A Front Seat to Growth

We have observed first hand the growth in so many of Danielle’s clients. For example, she has a client for which she has worked with over the past seven years. When she started, the child was only 3 years old and unable to communicate her emotions, often leading to meltdowns. Now at the age of 10 she is able to effectively communicate her wants and needs. If she becomes upset, she now has the skills to calm down in under 10 minutes verses two to three hours. Witnessing that kind of growth is so motivating for Danielle.

Another incubator for personal growth is the social skills group Danielle leads. The group of elementary age clients has been together for two years. When they first started they worked on basic social skills. Now they have formed real friendships. They support each other when one of them is upset. The skills they have learned here have helped them in their everyday environments at home and at school. Danielle hopes to see this group stay together as they move into their teen years.

In Need of Help?

As you can see, counseling has broad benefits in the autism world. If you are a parent in need of help for yourself, or your child is struggling with autism, ADHD, depression or anxiety, we are here to help! Just fill out the Contact Us form and we will get back with you!