Strategies for Managing Challenging Behaviors for Children with Autism

“Challenging behaviors” are defined as “behaviors that can be disruptive and/or difficult to manage.” Challenging behaviors may manifest in several different forms including avoidance, aggression, self-harm, destruction, eating inedible items (otherwise known as Pica), elopement, tantrums, screaming, and more. These behaviors can happen in any setting, whether it’s in a public place or in the home. But depending on the cause (or “function”) of the behavior, there are ways to lessen the likelihood of behaviors happening. Likewise, there are ways to respond when they do occur. We have gathered strategies for managing challenging behaviors for children with autism from our Director of Clinical Standards, Dr. Jennifer Thomas, Ph.D., BCBA-D, LBA. 

Why Challenging Behaviors Happen 

While behaviors often have a driving reason for their occurrence, they can sometimes be dangerous. If your child is engaging in behaviors that put them or someone else at risk, we strongly recommend you seek professional help.  When it comes to managing challenging behaviors in children with autism, it is important to remember that behavior is communication.

There is always a reason for a child’s behavior. For example, the behavior may be the result of the child wanting to get something or to get away from something. This, in simple terms, could be a person, place, activity, or type of internal/external stimulation. Dr. Thomas says that challenging behaviors “often have more than one cause,” making it difficult to pinpoint why they occurred. A Board Certified Behavior Analyst (BCBA) has the expertise to help parents. Through careful observation and data collection, BCBAs can determine why a behavior is occurring. Based on this, they can craft an individualized plan to help teach parents how to respond in a way that will minimize behaviors and maximize success. 

How to Prevent the Likelihood of Challenging Behaviors Occurring 

While specific expertise is needed to craft a plan to decrease severe challenging behaviors, there are some tips that can help parents plan ahead to decrease the likelihood of these behaviors occurring in the first place. It is important to remember that having good communication between yourself and your child is a great starting point! While this is no easy task, there are ways you can prepare your environment(s), and your child, so that these behaviors are less likely to occur. 

“Set your child up for success,” says Dr. Thomas, by recognizing the components that are likely to cause behaviors. This can be done by being observant. Look for patterns such as similarities in context or environment that a behavior happens, similarities in reactions to certain events, and changes in setting and mood before, during, and after a behavior occurs. Physically make note of these patterns, if possible, to reference and help yourself to make mental connections. Doing so can help you identify and plan ahead to possibly prevent a behavior. This is also great information to provide to your BCBA. 

The following are some tools to help prevent challenging behaviors: 
  • Having a consistent communication method (AAC device, PECS, signs, gestures, vocal language). 
  • Carrying sensory toys or snacks with you.  
  • Having headphones or sunglasses available in public places to reduce sensory irritations. 
  • Prepare your child’s expectations before doing something difficult or novel. 
  • Bring fun activities or snacks to make undesired activities or outings a bit more fun. 
  • Make trips short, if possible. 
  • Avoid areas that you know may trigger your child, if possible. 
  • Use timers and countdowns. 
  • More ideas are available through the Autism Research Institute. 

How to Respond When Challenging Behaviors Occur 

How you respond to your child’s challenging behaviors depends on the behavior that is occurring and what the trigger is. The cause of behaviors, Dr. Thomas emphasizes, oftentimes lies at the root of a communication struggle, impulsive behaviors, or issues with emotional regulation. Dr. Thomas says it is helpful to think about what the child is trying to communicate and to be observational. This is the first step in figuring out how to respond when a behavior occurs. As every child’s situation is unique, professional expertise is necessary when formulating a specific way to respond. It is also helpful to teach your child calming strategies, in addition to focusing on some of the other areas of struggle.

Some coping strategies may include:  
  • Squeezing hands 
  • Stomping feet 
  • Counting 
  • Taking deep breaths 

Some children are easily redirected if you can draw their attention elsewhere during a behavioral episode. This may be effective in the moment but is not a long-term solution. The most important thing to remember when trying to manage a challenging behavioral scenario with your child is to “get safely through that moment and know there is another learning opportunity to come,” says Dr. Thomas. Also, remember to have compassion for your child and yourself as you’re going through this tough and often stressful situation.   

Where to Get Help with Managing Challenging Behaviors 

ABA Therapy is a very effective resource for addressing challenging behaviors. In ABA Therapy, we focus on teaching ways to communicate and behave. “Children should always have a functional way to get their needs met,” Dr. Thomas says. This is where Functional Communication Training, or FCT, comes in. Functional communication can be as small as the child pointing to something they want, as a means of asking for it, or handing over a picture icon of an item. 

“We begin by teaching a communication task that children find easy, this varies based on skill level. The idea is to give children another, more appropriate skill to use to communicate in lieu of using a challenging behavior.” If your child is already in ABA Therapy, their Board Certified Behavior Analyst, or BCBA, is a great resource.  For children enrolled in a school program, an Individualized Educational Program, or IEP, can be a great resource to reference. If your child has not had a developmental evaluation, and is exhibiting challenging behaviors, it may be time to seek out a pediatric or developmental psychologist. From there, a psychologist would be able to perform assessments that could determine if there is anything underlying the child’s behaviors. Healing Haven’s Testing & Assessments services can help with this process, as well as contacting your child’s pediatrician.  

In addition to these resources, there are several organizations that can help, such as: Autism Alliance of Michigan, Autism Support of Michigan, Michigan Alliance for Families, National Autism Association. 

Challenging Behaviors: Finding Community 

The behaviors you encounter from your children can sometimes be difficult to manage, but keep in mind that you are not alone. In addition to the professional resources we have shared, there are other parents who understand. Finding community is important in helping share ideas and reducing your own stress.   

If you’re thinking you need more help in how to manage your child’s challenging behaviors, please contact us for information about our ABA Therapy for kids with autism. And our testing and assessments services can empower you with information on how to best support your child.  

We hope that throughout this article you were able to find useful information that can be utilized going forward. Don’t hesitate to share this piece with others, as well as comment, if you found it helpful! 

The Importance of Early Intervention for Autism

child working on fine motor activity in early intervention
child working on fine motor activity in early intervention

In recent years we’ve experienced a noticeable increase in parents of younger children – 2-3 years old – contacting us for services. This means they are getting evaluations and receiving an autism diagnosis at younger ages than the national average. Data from the CDC indicates that the average age to receive an autism diagnosis is over 4 years old. Receiving an autism diagnosis before the age of 3 provides great opportunity for early intervention for autism to begin.

Early Intervention for Autism

But once parents receive that diagnosis, choosing the right treatment for their child can be as complex as the diagnosis. There are no miracle cures for the varied challenges that can come with an autism diagnosis. However, behavioral therapy, or Applied Behavioral Analysis therapy, is evidenced-based and the most frequently recommended treatment for helping a child diagnosed with autism.    

“Research very clearly states that early intervention for children with autism and other developmental disabilities is vital,” explains Jamie McGillivary, MS, LLP, BCBA, Director of Healing Haven. “When children start therapies like ABA early on, they receive strategic learning opportunities that support them in the areas they need.” 

Whether it’s communication, social and play skills, or activities for daily living (brushing teeth, eating with utensils, potty training), children who struggle with these skills can make great strides when provided early intervention support. Additionally, the likelihood of negative behaviors decreases because they learn appropriate behaviors from the beginning. 

ABA Therapy

early intervention for autism

A child’s individual early intervention plan will address their unique areas of need. For instance, if it’s developing language and communication skills, the ABA therapist will work on helping the child learn to label items and appropriately request things they want or need. And the mode of communication will vary. It may be pointing to a picture, or handing a picture of what they want (Picture Exchange Communication System). And some may use a communication device (tablet), or verbal expressions.  

In addition, if the child has negative behaviors their ABA therapy plan will address them. Some common negative behaviors include: damaging toys or property, non-functional crying and screaming, resisting transitions by falling to the ground or running away, aggression or self-injurious behaviors.

The behavior plan developed by the child’s BCBA will include strategies to address the types of behaviors listed above. They will work to pinpoint the reason for these behaviors and teach them skills or replacement behaviors to reduce them. 

“For example, some children flop to the ground when transitioning to a new activity. Their ABA Therapist may address functional ways to communicate that the child may need a break,” Jamie explains. “Or they may introduce proactive strategies to warn the child that a transition is about to occur. Giving warnings and visual information about what is to come helps decrease the anxiety surrounding transitions.”  

Generalizing New Skills

As a child makes progress on and eventually achieves their goals, we can work on scaling back one-on-one support. The ultimate goal is for the child to generalize the skills they’ve learned into their natural environments. We provide additional programs to support the child and family in this goal. 

“We place a significant emphasis on parent training and involvement,” says Jamie. “When parents participate, we increase the likelihood that what children learn in the clinic will carry over to their natural environments.”  

As a result of early intervention services, young children with autism receive a strong foundation to learn, develop and grow. It’s good to remember that autism is a spectrum and each child is unique. Some children need more support, while some need less. Some will need ongoing ABA therapy, while others will move on to their school environment with varying levels of support.  

You can learn more about all our early intervention services for autism here. And contact us to get your child started with therapy services.

If you found this information helpful, we’d love it if you’d share it with your network!

How to Explain Death to a Child with Autism

image of grave headstone, explaining death to a child with autism

Losing a loved one, whether it is expected or not, is hard for anyone to navigate. It’s a process that involves accepting reality, seeking support if necessary, and allowing yourself time to feel natural emotions. So it’s not surprising that explaining the death of a loved one to a child with autism may bring some additional challenges.   

Death is a difficult concept for any child to understand, let alone those who may have a hard time grasping abstract concepts. But death and loss are also unavoidable. That’s why we put together some tips to help your child with autism or special needs understand and deal with the process of losing a loved one.  

Be literal and thorough when explaining the loss 

When explaining the death of a loved to your child with autism, use literal terms. This may help the death make more sense to them.  Avoid using terms such as “passed away”, “gone to sleep”, or “gone to another place”. Using these terms risks your child taking them literally and becoming frustrated when their loved one doesn’t wake up or come back.  

Be direct when you are explaining the passing of a loved one to your child. The more direct you are, the easier it will be for them to understand. Allowing room for questions is key here and answering them honestly to the best of your ability should take priority.  

Keep routines as unchanged as possible 

Change in routines can be particularly challenging for individuals on the spectrum. The death of a loved one is a major life changing event. That’s why it is best to keep everything else within their routine as consistent as possible. People with autism find comfort with routine, and comfort is something we all strive for while grieving. Bedtime routines, playdates with friends, school and therapy may be part of daily routines. You should try your best to maintain these activities if they bring your child peace. 

Involve them  

When helping a child (with or without autism) through loss and grief, it may seem best to exclude them from certain parts of the process, like attending a funeral with an open casket. While it largely depends on your child’s level of cognitive understanding, as well as your expertise in making the best-informed decision for your child, many professional sources suggest that shielding a child with autism from the complexities that come with loss will likely confuse them more. These sources suggest being transparent and asking your child if they would like to be part of a certain aspect (like the funeral, wake, or burial). With this, allow them to ask any questions they might have.   

Another good option, as Alicia says in The Mom Kind, is “to have a celebration of life that they can attend instead of the funeral”. Doing this, Alicia says, “allows involvement without having to see all the grief”.  

Prepare them, if possible  

If you know that a family member or loved one is terminally ill, try and familiarize your child with all the places they will be during this time. This could be places like the hospital, funeral home, or cemetery. Remember to talk about the emotions they will see from others throughout the process. A great way to do this could be through pre-made “social stories”. Social stories use photographs to help explain and show the child what will happen before it happens in real-time. These photographs and descriptions of the photographs can include emotions that they will observe of others. More information on constructing a social story can be found here.  

As we know, children who are on the spectrum can have an especially difficult time dealing with the unexpected, so it is a good idea to make the loss as “expected” as possible. Of course, this may not always be possible and sometimes a loss can be sudden. In this case, you can still do your best to show and tell your child what to expect. Use any photos you have available or pictures online to do this. More ways to prepare your child for loss and help them understand it can be found in this article from Child Bereavement UK. 

Utilize books that help explain loss 

When it comes to bereavement and children with autism, a lot can be gained from books that are specifically made for this life event.  

The 2017 book, I Have a Question about Death: Clear Answers for All Kids, including Children with Autism Spectrum Disorder, is a straight-forward, color-filled read that addresses the questions that concrete thinkers might have surrounding death. It answers them in a simplistic manner. This book has an abundance of good reviews from parents who have had to explain this topic to their children. We recommend it as well!  

Another book that is a good choice for the topic of grief is the interactive workbook, Finding Your Own Way to Grieve by Karla Helbert. This book is unique in that it encourages expressive techniques and exercises to help your child identify and process the feelings that accompany loss. This book is perfect for children and teens to work through on their own. They can also use it with the help of a parent or professional. Find this book here. 

Lastly, How People With Autism Grieve, and How to Help: An Insider Handbook, is best suited for teens and young adults who need security and affirmation after losing a loved one. Though the book only bases suggestions off one person’s unique experience, it can prove helpful in relating to what your child might be feeling emotionally. Find out more about it here. 

Takeaway

We all have different ways of dealing with loss. It’s important to make it known to your child with autism that there is no “right” or “wrong” way to respond to the death of a loved one. The most vital thing, though, is to ensure that your child knows there is support around them and that they have people to talk about it with when they feel sad or confused.  

Your 2023 Autism Reading Guide

Find out about the latest books on autism to add to your reading list!

With the chilly months upon us again, many have started looking for new books to read this year. To help you build out your reading list, we’ve researched the latest books about autism published since our book list in 2020 to create a new autism reading guide for the year. There are several books for parents as well as books to help autistic kids, tweens and teens. Take a look at some of the latest books about autism to add to this year’s reading list.  

For Parents 

We know that navigating the world of autism as a parent can present many unique challenges. Parents of all kids don’t always know how to handle the needs of their children. But having a child with autism adds unique needs that can be difficult to navigate. However, there are several new books about autism released in 2021 and 2022. These are written specifically to be beneficial to you as a parent of a child with autism. 

Navigating Autism: 9 Mindsets For Helping Kids on the Spectrum by Temple Grandin and Deborah Moore 

Joined by psychologist Debra Moore, Dr. Temple Grandin explores various mindsets that are effective when working with kids and young adults on the autism spectrum. You’ll find personal stories from Grandin with anecdotes from parents who have sought her insight. You’ll also discover advice from Moore who has 30+ years of experience in psychological work with kids on the spectrum. Not only is this a good read for parents, but helpful for anyone who impacts the lives of children on the spectrum. Check it out on Amazon. 

We’re Not Broken: Changing the Autism Conversation by Eric Garcia 

Writing from personal experience, Washington D.C. reporter and journalist Eric Garcia helps give readers a better understanding of life from the perspective of an autistic person. Through this, he informs them on effective ways to help those on the spectrum. In this book, Garcia breaks down popular myths surrounding autism and uses historical facts to support his claims. For anyone who is interested in learning more about autism to better help a loved one, this book is available here.  

It Takes a Village by Amy Nielsen 

Educator, writer, advocate and mother of four children, including one with ADHD and Autism Spectrum Disorder, Nielsen uses her experience as a chance to help parents and family members of children with exceptional needs learn to build a strong support system. Nielsen covers how to make these important connections. In addition, she takes time to explain the importance of them in the special needs community. Having an emphasis on family involvement, the book includes worksheets to help readers track their progress in creating a support system for their loved one(s). To find out more about this book, go to It Takes a Village. 

For Kids, Tweens and Teens 

We are thrilled to find so many new books about autism specifically written for kids, tweens and teens! Here are a few released within the past couple of years to build out a reading guide for your tween or teen with autism. 

I am Autism “In the classroom” by Blake Carter Desiree 

Written by a child who has an ADHD and an autism diagnosis, Desiree delves into what school life is like. He goes on to explain how his diagnoses makes life difficult for him as a different learner. This book provides perspective that could be impactful for helping neurotypical children better understand neurodiverse peers. Desiree’s story can also help a neurodiverse child feel more understood and supported in a classroom setting. I Am Autism is available here.

When things get too loud: A story about sensory overload by Anne Alcott 

This book is an excellent option if you are seeking an educational, vividly illustrated story that can be read to both neurodiverse and neurotypical children. This read is created specifically to help children understand and learn emotional regulation skills. It beautifully explains coping strategies for any child who may struggle with overstimulation and sensory-processing issues. This book is highly rated for its inclusiveness and thoughtfulness. Find When Things Get Too Loud here.

This Is Me! I am who I’m meant to be by Amy Pflueger 

With her knowledge and experience, Pflueger, an advocate and mother of two autistic sons, wrote this book primarily for autistic children to relate to and help them better understand why they might be “different” than their peers, as they learn to engage in a world that’s already full of challenges and surprises. It promotes self-acceptance and is also a great source for siblings and classmates of autistic children. It can help them to better acknowledge, accept and understand autism on a deeper level, all while using simplistic and digestible words and pictures. If you’re looking for an awesome, educational story to share with your child, you can find this book here. 

Have you picked up a new favorite book about autism that we don’t have here? Let us know in the comments! 

And we hope you learned about some new books and resources through this year’s autism reading guide. If so, please share it with your community! 

Success Stories of Individuals with Autism

Autism Success Stories
Autism Success Stories

We live in a world where it is so easy to think about the negative values of something or someone. That’s why it’s crucial we prioritize the positive aspects. This is especially true for people with autism. There is a reason it is called autism spectrum – each individual is born with their own unique traits and abilities. Some on the autism spectrum may also have an intellectual disability. However, it’s important to note that around 44% of those diagnosed with autism have average or above average IQ. So why wouldn’t there be several remarkable success stories of individuals with autism?   Here we hope to share some inspiring examples of people who have used their autism diagnosis to excel in their passions.  

Temple Grandin 

Starting out with a more well-known story within the autism community, Temple Grandin is a renowned American author and educator. She speaks on the treatment and behavior of livestock animals, as well as a public speaker and advocate for autism.  

Grandin was not “officially” diagnosed with autism until much later in her life. At this point, she already had a successful career she had paved for herself. She accomplished this despite hurdles that were uncommon for children to have at the time of her upbringing. These included speech delays and social skills challenges.  In the face of these hurdles and the bullying they evoked, Grandin discovered what she was passionate about – science.  

She went on to receive several degrees on the topic and remains teaching to this day. In a quote from one of Grandin’s books, The Autistic Brain: Thinking Across the Spectrum, she explains that autistic kids often have uneven skills. “Parents get so worried about the deficits that they don’t build up the strengths, but those skills could turn into a job,” according to Grandin. She adds that “we need to be a lot more flexible with things,” when it comes to what we label as a “disability.” This way of thinking is at the foundation of Healing Haven’s values. We focus on our clients as kids and teenagers first, not their diagnosis. And we celebrate their unique strengths that come through neurodiversity. 

More stories of successes like Grandin’s are available here.  

Alexis Wineman 

Alexis Wineman is the first woman with autism spectrum disorder (ASD) to participate in the Miss America competition, according to Centers for Disease Control and Prevention. Wineman’s story presents the perspective of being the only member of a large family to have an autism diagnosis. Her story focuses on what it is like to grow up with the support of neurotypical siblings. She also highlights the key role that siblings can play in the life of an autistic child.  

Wineman’s sister, Danielle, said her advice for someone who has a sibling with autism is “to become a solid shadow for your sibling.” She points out that “when you’re diagnosed with autism, it’s a diagnosis for the entire family and not just that person.”  

Another sister of Wineman’s, Kimberley, said that it is valuable to “engage them (your sibling with autism) and help them find their niche.” Wineman’s brother, Nicholas, said that he has learned and developed the skill of empathy due to growing up with his sister.  

There can be endless advantages of having a family member with autism. And there is no doubt that a diagnosis can also strengthen a family. Comparable stories to Winemans are available on the Centers for Disease Control and Prevention website.  

We love hearing these sibling perspectives and agree that an autism diagnosis impacts the entire family. In fact, it’s another one of our company values – to serve the entire family through parent training and counseling for parents and siblings. 

Clay Marzo 

Clay Marzo is an American professional surfer. He was diagnosed with Asperger syndrome as a teenager (before that designation was removed from the diagnostic definition in the DSM-5). Clay is known for his “unique ‘double-jointed’ style of turns and spins”. Marzo has “been hailed for his creativity with the board and his innovative maneuvers,” according to Autism Treatment Evaluation Checklist (ATEC) Sierra Leone.  

 In addition to features in several surfer films, Marzo is also in a documentary, ‘Clay Marzo: Just Add Water‘. The documentary delves into his life as a competitive surfer and a person living with autism spectrum disorder. He also volunteers with the non-profit organization Surfers Healing. The organization creates opportunities for children with autism to experience surfing through surfing camps in the United States and Canada.  

Other stories like Clay’s are in this Lifehack article.  

Dani Bowman 

Dani Bowman is a writer, artist and motivational speaker who is on the autism spectrum. Creating an animation empire, she founded DaniMation Entertainment at age 14 in 2009. She has several professional degrees and is a powerful voice for those on the autism spectrum.  

Bowman is also on Netflix’s ‘Love on the Spectrum,’ where she shares much about her personal interests. In this, she brings attention to the struggles she faces to find a potential life partner. She expresses the complications of not only finding someone who relates to her but who understands and accepts her romantically.  

Further information about Bowman and her work is available on her company website.  

Katie 

Katie is currently a young adult on the autism spectrum. She grew up working closely with Healing Haven’s founder, Jamie McGillivary. Jamie credits her journey working with Katie as what helped shape her into the person she is today. Jamie’s experiences with Kaite as child inspired her career path and the creation of Healing Haven. Katie worked as an administrative assistant for the company and also worked at her local library.  

Katie spoke at a Healing Haven Open House and shared her story with guests that included parents, doctors, and professionals. “I’m here tonight to tell people you shouldn’t underestimate people with disabilities. Through hard work you can live your dreams. Your child could have a bright future. Tonight, I can live my dreams such as being independent, working as an administrative assistant, and now being a public speaker.” You can read more of her story in this blog article, Never Underestimate Individuals with Autism.  

Katie is an inspiration to all at Healing Haven and everyone who knows her personally. 

Raising Expectations

We hope these stories inspire and offer hope for you and your child or loved one with autism.  An autism diagnosis comes with a broad range of potential struggles as well as unique strengths. An average of 28% of our clients at Healing Haven graduate from our services or titrate down to needing lesser services. We work to make sure clients are as well-equipped as possible to thrive in their educational journey and prepare them for life beyond school.  

There are many success stories of individuals with autism we should celebrate. But even if your child may need extra support, we all can work together to highlight the possibilities and help raise expectations for those impacted by autism. Incredible things can be born from the “bounds” of difference. 

We would love to hear any stories you might have to share. Please feel free to comment below! 

What is ABA Therapy: Your Questions Answered

child doing therapy explaining ABA Therapy
child doing therapy explaining ABA Therapy

Following an autism diagnosis, many professionals recommend ABA Therapy as the first form of support. But many parents often leave those meetings wondering what is ABA Therapy? It’s common to have lots of questions. It’s important to feel informed and clear on treatment options as you seek support for your child. Not to mention, choosing a therapy provider can be overwhelming and can take a lot of time. We’ll break down some commonly asked questions about what ABA Therapy is so you can feel prepared to help your child.  

What is ABA Therapy? 

Considered the “gold standard” in autism treatment, ABA (Applied Behavior Analysis) Therapy is a scientific approach to understanding behavior. It’s a method of therapy used to improve specific behaviors, decrease interfering behaviors and help a child gain new skills such as communication, play, social, and daily living skills. ABA Therapy is evidenced-based and the most frequently recommended option for the treatment of autism.  

Is ABA Therapy effective? 

ABA Therapy proves to be highly effective, based on over 50 years of research. Medical professionals and institutions such as the American Psychiatric Association, the American Psychological Association, and the U.S. General Surgeon approve ABA as a valid treatment for autism.  

ABA Therapists and BCBAs (Board Certified Behavior Analysts) create and implement plans for the client to meet specific goals tailored to the client’s needs. They set the client up for success by breaking down the steps to each goal. If an approach isn’t working, the ABA Therapist and BCBA will find another one. For example, a child may be working on regulating their emotions during tantrums. The ABA Therapist and BCBA might implement tactics such as deep breathing, sensory input, and physical relaxation. But if sensory input seems to further aggravate the child, that tactic will be removed and replaced with a helpful one. 

Is ABA Therapy a fit for my family? 

Parents love their children and want what is best for them, no matter their diagnosis. You may be asking, ”How can ABA Therapy help my child?” All children have the right to learn important skills in order to be independent and to maximize their happiness later in life. For children with autism, learning some skills can be harder. ABA Therapy can build on your child’s strengths while also supporting their learning in the areas they need it most.  

In deciding if ABA Therapy is a fit for your family, it’s important to understand the provider’s approach to ABA. ABA Therapy should be customizable to your child’s needs, with an emphasis on generalization to make sure skills transfer to the natural environment.  

Additionally, it’s important to know the credentials of the BCBA and understand the center’s training program for their ABA Therapists. This is to ensure they are qualified for the work they are providing. Another factor is to make sure they have a positive and comfortable relationship that allows room for learning. There should also be frequent and open communication between you as the parents and the child’s BCBA in order to build goals that are appropriate and sensible to you. Remember, you know your child best and it’s important to find professionals that align with your specific values.  

What do ABA Therapists do? 

ABA Therapists are trained behavioral professionals that work closely with and under the supervision of BCBAs. They help implement behavioral goals set for the client. As a team with the child and BCBA, the Therapist will help teach functional skills, address problem behaviors that interfere with learning. They also help the child gain skills that will allow them to better participate in school and the community. 

What is a BCBA? 

According to the Behavior Analyst Certification Board, “A Board Certified Behavior Analyst, or BCBA, has a graduate-level certification in behavior analysis. Professionals certified at the BCBA level are independent practitioners who provide behavior-analytic services. BCBAs may supervise the work of Board Certified Assistant Behavior Analysts – (BCaBAs), Registered Behavior Technicians (RBTs), and other professionals who implement behavior analytic interventions.” 

At Healing Haven, BCBAs also provide parent training and can work with school professionals to help therapy translate efficiently across all situations and settings the client is in. To become a BCBA, an individual must undergo a 5-step process that includes: earning a relevant Master’s Degree, completing required behavior-analytic graduate coursework, completing required supervised fieldwork, apply for, take, and pass the BCBA exam, and then apply for state licensure.  

What happens during an ABA session? 

An ABA session typically begins with specific goals established for the child, which are discussed prior to starting therapy sessions. Throughout the session, the Therapist works one-on-one with the child. Their job is to ensure the child is learning and understanding the skills that are being taught. ABA Therapists utilize encouragement, praise and other motivational tactics tailored to the specific child and programs being worked on. Therapy is delivered both with and without supervision by the BCBA. 

Kate Fritz, MA, BCBA, LBA, is the Clinical Manager of our Early Intervention Clinic. She describes a typical ABA session at Healing Haven this way: 

In ABA sessions, we work hard and play hard! How an ABA session looks can greatly vary depending on the client’s age and skillset – programming is individualized to the client. In general, you can expect to see the use of play to work on communication and social skills, building up independence with daily living skills (e.g., working on putting on a winter coat), and both individual and group times to work on behavioral goals related to school-readiness. In action, this may look like a kid sitting in circle time imitating song motions, then reading a story with their therapist and pointing to animals and colors throughout the story, sitting and eating snack with peers, going to the restroom to work on washing hands independently, then heading to the playroom and pointing to toys up on a high shelf to communicate what they want to play with.  

When should my child start ABA? 

A child should start ABA Therapy if deemed appropriate, after receiving a medical diagnosis of autism spectrum disorder. Autism, for example, can be detected and tested for as early as 18 months old and by age 2 can be considered a reliable diagnosis as a means for therapy intervention.  

Early intervention is key. “Research very clearly states that early intervention for children with autism and other developmental disabilities is vital,” explains Jamie McGillivary, MS, LLP, BCBA, Founder and President of Healing Haven. “When children start therapies like ABA early on, they receive strategic learning opportunities that support them in the areas they need.”  

However, ABA Therapy is also beneficial for older children and teenagers. Even if a child is diagnosed later, ABA therapy could be worth looking into to learn and improve in areas that may be challenging for them. It is also important to remember that ABA Therapy isn’t automatically a lifelong commitment. Many children transition to lesser levels of therapy as they master skills.  

Is ABA Therapy covered by insurance? 

Because it is considered a behavioral health service, ABA Therapy is covered by most insurance policies. However, this can vary by plan and from state to state. In Michigan, it can vary by employer insurance plans, so it is important to call your insurance provider. It is important to discuss the specifics of what is and what is not covered by your plan as it pertains to ABA Therapy services in your location. More information about this can be found when you search “Autism Spectrum Disorder Health Coverage” on your state government website. For example, Michigan’s explanation of autism health coverage is found here. The Autism Alliance of Michigan is also a great resource for parents navigating insurance coverage. 

We hope this information is helpful as you navigate therapy options for your child. To learn more about Healing Haven’s ABA Therapy programs for children and teens up, contact us today. 

Communication and Autism: 4 Resources to Help

Communication and speech are common struggles for some individuals with autism. Those who do not speak or who have great difficulty speaking may be considered “nonverbal,” while those who do speak are considered “verbal.” However, “non-verbal” is not an entirely accurate term. Those who do have challenges speaking may still understand words spoken to them, or use other forms of communication. On the other hand, those who can speak verbally may still benefit from additional communication methods.

ABA teaches functional communication in a variety of ways. It’s crucial that those with autism learn to communicate their wants and needs. Through learning effective communication, individuals receive the help they need to live their best life.

Communication and Autism

In ABA therapy, BCBAs (Board Certified Behavior Analysts), RBTs (Registered Behavior Technicians) and ABA Therapists teach communication skills based on the behavioral and learning needs of the client. Additionally, Speech Language Pathologists target more specific communication goals and skills. BCBAs closely collaborate with speech and language pathologists to choose what will best help the client. BCBAs provide input on the client’s behaviors which determines the final decision on which communication method will be best. Additionally, BCBAs help parents learn what they can do at home to assist their child in communicating.

Building a Foundation for Communication

A common concern of parents who have a child who struggles with speech is how to teach them to communicate their wants and needs. This is typically one of the first skills that BCBAs work on for a client who is new to ABA Therapy.

We asked one of our fantastic BCBAs for input on this subject. Batoul Dekmak, M.Ed, BCBA, LBA, stresses the importance of working on communication with kids. “All kids that walk through our doors are fairly communicative. However, a lot of time they communicate more with their behavior.” For example, children often get frustrated and engage in problem behavior due to difficulties in appropriately communicating with others. BCBAs take data on this behavior and apply it to the language and communication process. “As soon as a child begins therapy with us,” Batoul explains, “BCBAs, RBTs, and Speech Pathologists immediately start working on multi-modal communication including vocal language, gestures, AAC devices, and PECS® books. We want the child to express themselves as much as they can to navigate their world more independently.”

BCBAs and Speech Pathologists simultaneously model language to promote development of robust communication skills. An example of this is when a child uses an AAC device when playing with toys. The BCBA may comment on the child’s play using their device, such as “play dinosaur,” stating what the child is doing. This shows the child that the BCBA can also communicate using the device and how to comment on something. The goal for communication is to meet a child’s needs and wants, as well as the child gaining the ability to socialize with others.

Tools for Communication

Here are several common methods used to help children with autism communicate.

PECS®

PECS® stands for Picture Exchange Communication System®. In this system, the child gives a picture or word icon to someone in exchange for what they are requesting. Consider this example within the ABA setting. If a child wants a snack, they hand an icon of a preferred food to their RBT or BCBA who would then give them the item. PECS® icons are often stored in a three-ring binder with pages of laminated icons attached with Velcro. If you stepped inside our clinics, you would see several clients walking around with these binders, often attached to a strap for easy transport.

The goal of PECS® is for non-verbal children and those who are learning to speak to communicate their needs to caregivers in a simple way. To address changing stages of communication development, PECS® consists of six phases starting with exchanging icons through constructing sentences.

Augmentative and Alternative Communication (AAC) device

An AAC device is a tablet or laptop that contains words and images. When a child selects a word or image, the device “speaks” the input requested. Kids with autism who use AACs gradually build skills for how to use the device. They might begin with simple one-word requests then moving to more complex sentences. Kids work on these skills in ABA therapy under supervision of BCBAs and speech pathologists. There are multiple AAC software such as LAMP™ or TouchChat, offering different layouts and ways of selecting words to meet the user’s needs.

Sign Language

Sign language uses hands and facial expressions to communicate, a common form being American Sign Language or ASL. Along with PECS®, ASL stands as one of the most frequently used methods of communication for non-verbal children on the autism spectrum.

Speech therapy

Licensed Speech Pathologists lead speech therapy. Speech Pathologists work with parents, teachers, and BCBAs to determine the best methods of communication for the child. In speech therapy sessions, the pathologist will work with the client on skills such as conversation, articulation, social cues and how to respond. If a client has an AAC device or PECS® book, the pathologist will help them use their device or icons effectively. At our clinics, our speech therapists often utilize games, toys, and fun activities to engage clients in the speech therapy process.

After reading through all this information on communication and autism, you may feel unsure of which  method is best for your child. If you are interested in any of the mentioned tools, talk with your child’s BCBA. If you want more information on our ABA Therapy and speech therapy services, please contact us here.

Back to School during COVID-19

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back to school during COVID-19

As we approach the start of the 2020-2021 school year here in southeast Michigan, many parents are facing the reality of back to school during COVID-19 being like nothing we’ve experienced before.

An Uncertain School Year

Many public school districts in this area are opening with only a full remote school option due to COVID-19. This post is not to get into a debate on whether remote school is the best option right now. We know there are parents who want their child to go to school in person. And we know other parents who don’t want to send their child back to school in person.

The reality is, for many students with IEPs, distance learning is not a viable or meaningful option. This can be because they are not receiving the numerous supports and services they receive in person. They may have trouble attending to a screen or processing all that is happening in an online meeting. Or parents may have to work and not be able to support them through their remote school day.

Unfortunately, in-person or a hybrid plan may not be a viable option for children with compromised immune systems and underlying health conditions.

In the past we’ve written “back to school” blog posts like Back to School Tips for Parents of Different Learners. We created those resources to help parents with the transition from summer break to school. But going back to school during COVID-19 is like nothing anyone has experienced before. Read on for some ideas and resources to help you with a remote start to school, as well as returning to school in-person, and homeschooling your child with autism.

Remote School

back to school covid

For those who are navigating a remote start to the school year with your child who receives special education services, you may be feeling overwhelmed. It’s totally understandable! We’ve compiled a variety of ideas, that may help. From visual schedules to establishing routines, to positive behavior interventions and supports (PBIS), to IEP resources to help you navigate your rights.

Educational Advocacy Resources

Michigan Alliance for Families is a wonderful support organization for families who have children with disabilities to help them navigate their educational resources. They have a specific COVID-19 page on their website with many resources specific to how this pandemic is impacting education. And their COVID Documentation page has a variety of additional resources for a remote start back to school.

The Autism Alliance of Michigan has some back to school resources for families. This is a great blog post about advocacy and what your rights are in regard to your child’s IEP and special education services.

Another great resource is the Michigan Alliance for Families YouTube channel. They’ve posted recordings of past webinars specific to COVID-19, special education and distance learning.

Visual Schedules

We know that for many kids, visual schedules can help reduce problem behaviors. Visual schedules help them know what to expect. They are a neutral way to communicate what they need to do and what is coming, rather than you verbally having to ask (or nag) them over and over. Check out these visual schedules from And Next Comes L, like the School Morning Routine Chart, the After School Routine Chart and others. And Understood.org, a great resource for students with learning challenges, offers several free visual schedule downloads.

Distance Learning Resources

Understood also has some Distance Learning resources for both families and educators. There is info on how focusing for remote school can be even more challenging for many kids. And they offer some tips to help. And Next Comes L also provides specific Distance Learning resources for teachers, therapists and parents. If your child is struggling to understand why they aren’t going to school in person, she has a free social story download School is Closed. And she has tips on how to best support your autistic child on Zoom meetings. Definitely check that one out!

Accessing Their Education

If your child needs individual, in-person support to access their remote school, you may need to hire someone to help. Whether you work outside the home, have other children to take care of, or simply don’t feel equipped to become your child’s para professional, definitely reach out for help. Start with your child’s school to find out how their IEP will be fulfilled. Network with other parents to find out how they are managing it. If your child receives ABA Therapy, ask your provider if distance learning behavioral support may be an option. Check out local universities with education programs. You may be able to find a special education student who is looking for some income and experience in their field.

Returning to School In Person

back to school covid
Back to School Anxiety

If your child is heading back to school in person, they may be experiencing some anxiety after such an extended break from school. Here are some resources to help with this transition from And Next Comes L.

Wearing a Mask

If your child’s school is asking (or requiring) students wear a mask, here are a few social stories about wearing masks to help them get used to it. Here is a video version and a printable version from Autism Little Learners specific to wearing a mask at school.

Homeschooling

mother homeschooling child

Some families are considering homeschooling their child for various reasons. Maybe remote school doesn’t work well for their child, or they have health issues making in-person school a risk. Homeschooling may also provide the flexibility to continue with their therapies from the summer (ABA therapy, speech and occupational therapies).

Resources to help

If you’re considering homeschooling your child with autism, but aren’t sure where to start, here are a few resources. First, check out this blog post from the Friendship Circle – Tips for Homeschooling Your Child with Autism Spectrum Disorder. The Applied Behavior Analysis Program Guide has an extensive list of possible homeschool curricula for students with autism. If you’re on Facebook, there are numerous homeschool groups specific for children with autism. There are sure to be some full of tips and recommendations.

Ready or not, it’s here!

As you prepare for this unique year heading back to school during COVID-19, we hope these ideas and resources help. Whether preparing for remote school, an in-person or hybrid plan, or you are diving into homeschooling your child, we wish you a successful start to school. Remember you have what it takes for whatever lies ahead!

Summer Reading Guide: The Latest Books About Autism

summer-reading-guide
books about autism

It’s not a surprise that reading books is on the rise as a result of the COVID-19 pandemic and lockdown. Weeks upon weeks at home has to be filled up with more than just binging on Netflix, right? Even with restrictions easing and people getting out more, there are many who love having a summer reading list. Therefore, we’ve researched the latest books about autism published so far in 2020. There are several books for parents as well as books to help autistic kids, tweens, and teens. (Note: This is not an endorsement of all of these books, but an informative list for you to do your own research.)

The Latest Books About Autism

For Parents

There are several new books about autism released the first half of 2020 that are written to help parents. There’s a brand new release filled with tips to help children with autism in our new COVID-19 world. We found a book written by a BCBA that we are excited to add to our collection. There is also a new resource written by a Mom specifically for the many families navigating a dual diagnosis of Down syndrome and autism.

Autism in Lockdown: Expert Tips and Insights on Coping with the COVID-19 Pandemic

This timely collection includes tips from expert voices in the field of autism like Dr. Temple Grandin, Ellen Notbohm, Dr. Tony Atwood, and many more. You’ll find activities to help kids cope with the new “normal”. There is also homeschooling tips, stress management tactics, social stories, ideas on building structure for better behavior, and much more!

Thriving with Autism: 90 Activities to Encourage Your Child’s Communication, Engagement and Play by Katie Cook, MEd, BCBA

Written by a Board Certified Behavior Analyst and Educator, this book is filled with practical activities for parents and caregivers to help their children build better conversation skills and strengthen social skills. This read is also a great resource for families new to autism, as well as Applied Behavior Analysis. Kelly provides a great foundation for understanding your child’s diagnosis and the reasons for and scientific background of ABA therapy.

A New Course: A Mother’s Journey Navigating Down Syndrome and Autism by Teresa Unnerstall

For families navigating a dual diagnosis, this brand new book takes a deep dive into the complexities that families face raising a child with Down syndrome and autism. The author’s son is now in his twenties, so she has years of experience navigating this extra unique world.

For Kids, Tweens and Teens

It’s wonderful to find so many new books about autism specifically written for kids, tweens and teens! Here are a few released the first half of this year.

Your Interests, My Interests: A Visual Guide to Playing and Hanging Out for Children on the Autism Spectrum by Joel Shaul

Geared toward elementary and middle school aged kids, this visual resource can help children learn important social skills. So if your child could use some help learning how to play and interact with their peers, check out Your Interests, My Interests (no preview available).

books about autism for kids
The Spectrum Girl’s Survival Guide: How to Grow Up Awesome and Autistic by Siena Castellon

This empowering quote from the book says it all: “Never be ashamed of being different: it is this difference that makes you extraordinary and unique.” If your daughter with autism could use this type of positive self image and support in understanding social communication, friendships, dealing with bullying and more, this book may be a great option. The author, a young woman on the spectrum, understands this important time in a young autistic girl’s life.

The Awesome Autistic Go-To Guide: A Practical Handbook for Autistic Teens and Tweens by Yenn Purkis and Tanya Masterman

This newly released interactive book is a guide for autistic tweens and teens that promotes self-acceptance. It helps shape a young person’s understanding of the strengths they have because of their autism and develops confidence in who they are. How great is that?!

Have you picked up a new favorite book about autism that we don’t have here? If so, let us know in the comments! And if you want to check out more helpful resources, check out Six Great Books for Parents of Autistic Children.

We hope you learned about some new books about autism. Please share it with your community!