Your 2023 Autism Reading Guide

Find out about the latest books on autism to add to your reading list!

With the chilly months upon us again, many have started looking for new books to read this year. To help you build out your reading list, we’ve researched the latest books about autism published since our book list in 2020 to create a new autism reading guide for the year. There are several books for parents as well as books to help autistic kids, tweens and teens. Take a look at some of the latest books about autism to add to this year’s reading list.  

For Parents 

We know that navigating the world of autism as a parent can present many unique challenges. Parents of all kids don’t always know how to handle the needs of their children. But having a child with autism adds unique needs that can be difficult to navigate. However, there are several new books about autism released in 2021 and 2022. These are written specifically to be beneficial to you as a parent of a child with autism. 

Navigating Autism: 9 Mindsets For Helping Kids on the Spectrum by Temple Grandin and Deborah Moore 

Joined by psychologist Debra Moore, Dr. Temple Grandin explores various mindsets that are effective when working with kids and young adults on the autism spectrum. You’ll find personal stories from Grandin with anecdotes from parents who have sought her insight. You’ll also discover advice from Moore who has 30+ years of experience in psychological work with kids on the spectrum. Not only is this a good read for parents, but helpful for anyone who impacts the lives of children on the spectrum. Check it out on Amazon. 

We’re Not Broken: Changing the Autism Conversation by Eric Garcia 

Writing from personal experience, Washington D.C. reporter and journalist Eric Garcia helps give readers a better understanding of life from the perspective of an autistic person. Through this, he informs them on effective ways to help those on the spectrum. In this book, Garcia breaks down popular myths surrounding autism and uses historical facts to support his claims. For anyone who is interested in learning more about autism to better help a loved one, this book is available here.  

It Takes a Village by Amy Nielsen 

Educator, writer, advocate and mother of four children, including one with ADHD and Autism Spectrum Disorder, Nielsen uses her experience as a chance to help parents and family members of children with exceptional needs learn to build a strong support system. Nielsen covers how to make these important connections. In addition, she takes time to explain the importance of them in the special needs community. Having an emphasis on family involvement, the book includes worksheets to help readers track their progress in creating a support system for their loved one(s). To find out more about this book, go to It Takes a Village. 

For Kids, Tweens and Teens 

We are thrilled to find so many new books about autism specifically written for kids, tweens and teens! Here are a few released within the past couple of years to build out a reading guide for your tween or teen with autism. 

I am Autism “In the classroom” by Blake Carter Desiree 

Written by a child who has an ADHD and an autism diagnosis, Desiree delves into what school life is like. He goes on to explain how his diagnoses makes life difficult for him as a different learner. This book provides perspective that could be impactful for helping neurotypical children better understand neurodiverse peers. Desiree’s story can also help a neurodiverse child feel more understood and supported in a classroom setting. I Am Autism is available here.

When things get too loud: A story about sensory overload by Anne Alcott 

This book is an excellent option if you are seeking an educational, vividly illustrated story that can be read to both neurodiverse and neurotypical children. This read is created specifically to help children understand and learn emotional regulation skills. It beautifully explains coping strategies for any child who may struggle with overstimulation and sensory-processing issues. This book is highly rated for its inclusiveness and thoughtfulness. Find When Things Get Too Loud here.

This Is Me! I am who I’m meant to be by Amy Pflueger 

With her knowledge and experience, Pflueger, an advocate and mother of two autistic sons, wrote this book primarily for autistic children to relate to and help them better understand why they might be “different” than their peers, as they learn to engage in a world that’s already full of challenges and surprises. It promotes self-acceptance and is also a great source for siblings and classmates of autistic children. It can help them to better acknowledge, accept and understand autism on a deeper level, all while using simplistic and digestible words and pictures. If you’re looking for an awesome, educational story to share with your child, you can find this book here. 

Have you picked up a new favorite book about autism that we don’t have here? Let us know in the comments! 

And we hope you learned about some new books and resources through this year’s autism reading guide. If so, please share it with your community! 

5 Ways to Express Love to Your Child with Autism

expressing love to child with autism

This post originally appeared in the February 2020 issue of the Autism Alliance of Michigan MiNavigator Newsletter . Written by former Healing Haven BCBA Carita Niemann, M.Ed., BCBA, LBA. 

expressing love to child with autism

Valentine’s Day is a special time of the year. We often pause and express love to those who are close to us. However, communicating this love to each person in our lives takes a unique form. According to Dr. Gary Chapman, author of The 5 Love Languages®, everyone expresses and receives love in a unique way. Children with autism are no different! 

In my 10 years of working with children with an autism diagnosis, I have loved the challenge of finding ways to “reinforcer pair” with them. This is applied behavior analytic talk for “loving them in their own unique way.” For some children it can be as simple as providing them with their favorite toy. While for others, this can entail months of chasing them with hand puppets, blasting them up like a rocket, and working up a sweat to evoke one heartful giggle.

As parents and caregivers of children with autism, when we do the work of finding ways to show love to our kids — they return the love tenfold. Just like any relationship, it is always helpful to reflect on new ways to express our affection.   

5 Ways to Express Love to Your Child with Autism

Using the wisdom of The 5 Love Languages®, here are a few ideas of how you can express love to your child with autism this Valentine’s Day:

Words of affirmation

Many children with autism are visual learners. As a result, they respond well to pictures, videos, and written words over spoken words of affirmation. Consider creating a photo book with pictures of significant memories with your child and a few words to describe each memory.

Physical touch

Children with autism seek sensory input in a myriad of ways. Some enjoy the physical touch of loved ones through hugs, tickles, cuddles, and kisses. While on the other hand, others find more enjoyment in the sensory input from the physical environment in which we live. This Valentine’s Day, if Michigan winter allows, try spending time outdoors with your child exploring the cold snow. For extra sensory input, take food coloring with you and watch a winter wonderland turn into modern art!

Quality time

Our children receive demands all day long— “get dressed,” “clean up,” “do this,” “do that,” etc. As adults, it is challenging for us to spend time with a child without placing any demands. However, with some effort, perhaps this is a true gift we can offer your child this Valentine’s Day. Intentionally plan for one hour of praise, imitation, attention, and freedom to be exactly who they are in that moment.

Receiving gifts

Although chocolate and a teddy bear may be the perfect gift for some kids, there are other options too. A beautiful gift for any child could be the gift of a new experience. Depending on your child’s interests and preferences, here are some ideas to consider. You could take them to a sensory friendly movie, bake cookies from scratch, complete a science experiment, visit an indoor trampoline park, or explore the various children’s museums in Michigan. Additionally, find a winter activity in this blog post that would feed their need for sensory or motor input. Then purchase the items and package them together for a gift this Valentine’s Day.

Acts of service

As a twist, the recommendation for this category does not directly involve expressing love to your child with autism. As parents and caregivers of children with special needs, we spend much of our time caring for others. In order to give from a fuller cup, try scheduling time for self-care this Valentine’s Day. As little as 10 minutes of meditation can lead to decreased anxiety, physical pain, and even cardiovascular disease.

Remember, “The number of ways to express love within a love language is limited only by your imagination” (Chapman). Let your creativity soar this Valentine’s Day as you express love to your child with autism – and anyone else in your life!

For additional reading on this subject, our Founder & President Jamie McGillivary, MS, LLP, BCBA, LBA, spoke about it with Metro Parent in 2022 – What Love on the Spectrum Looks Like.

Success Stories of Individuals with Autism

Autism Success Stories
Autism Success Stories

We live in a world where it is so easy to think about the negative values of something or someone. That’s why it’s crucial we prioritize the positive aspects. This is especially true for people with autism. There is a reason it is called autism spectrum – each individual is born with their own unique traits and abilities. Some on the autism spectrum may also have an intellectual disability. However, it’s important to note that around 44% of those diagnosed with autism have average or above average IQ. So why wouldn’t there be several remarkable success stories of individuals with autism?   Here we hope to share some inspiring examples of people who have used their autism diagnosis to excel in their passions.  

Temple Grandin 

Starting out with a more well-known story within the autism community, Temple Grandin is a renowned American author and educator. She speaks on the treatment and behavior of livestock animals, as well as a public speaker and advocate for autism.  

Grandin was not “officially” diagnosed with autism until much later in her life. At this point, she already had a successful career she had paved for herself. She accomplished this despite hurdles that were uncommon for children to have at the time of her upbringing. These included speech delays and social skills challenges.  In the face of these hurdles and the bullying they evoked, Grandin discovered what she was passionate about – science.  

She went on to receive several degrees on the topic and remains teaching to this day. In a quote from one of Grandin’s books, The Autistic Brain: Thinking Across the Spectrum, she explains that autistic kids often have uneven skills. “Parents get so worried about the deficits that they don’t build up the strengths, but those skills could turn into a job,” according to Grandin. She adds that “we need to be a lot more flexible with things,” when it comes to what we label as a “disability.” This way of thinking is at the foundation of Healing Haven’s values. We focus on our clients as kids and teenagers first, not their diagnosis. And we celebrate their unique strengths that come through neurodiversity. 

More stories of successes like Grandin’s are available here.  

Alexis Wineman 

Alexis Wineman is the first woman with autism spectrum disorder (ASD) to participate in the Miss America competition, according to Centers for Disease Control and Prevention. Wineman’s story presents the perspective of being the only member of a large family to have an autism diagnosis. Her story focuses on what it is like to grow up with the support of neurotypical siblings. She also highlights the key role that siblings can play in the life of an autistic child.  

Wineman’s sister, Danielle, said her advice for someone who has a sibling with autism is “to become a solid shadow for your sibling.” She points out that “when you’re diagnosed with autism, it’s a diagnosis for the entire family and not just that person.”  

Another sister of Wineman’s, Kimberley, said that it is valuable to “engage them (your sibling with autism) and help them find their niche.” Wineman’s brother, Nicholas, said that he has learned and developed the skill of empathy due to growing up with his sister.  

There can be endless advantages of having a family member with autism. And there is no doubt that a diagnosis can also strengthen a family. Comparable stories to Winemans are available on the Centers for Disease Control and Prevention website.  

We love hearing these sibling perspectives and agree that an autism diagnosis impacts the entire family. In fact, it’s another one of our company values – to serve the entire family through parent training and counseling for parents and siblings. 

Clay Marzo 

Clay Marzo is an American professional surfer. He was diagnosed with Asperger syndrome as a teenager (before that designation was removed from the diagnostic definition in the DSM-5). Clay is known for his “unique ‘double-jointed’ style of turns and spins”. Marzo has “been hailed for his creativity with the board and his innovative maneuvers,” according to Autism Treatment Evaluation Checklist (ATEC) Sierra Leone.  

 In addition to features in several surfer films, Marzo is also in a documentary, ‘Clay Marzo: Just Add Water‘. The documentary delves into his life as a competitive surfer and a person living with autism spectrum disorder. He also volunteers with the non-profit organization Surfers Healing. The organization creates opportunities for children with autism to experience surfing through surfing camps in the United States and Canada.  

Other stories like Clay’s are in this Lifehack article.  

Dani Bowman 

Dani Bowman is a writer, artist and motivational speaker who is on the autism spectrum. Creating an animation empire, she founded DaniMation Entertainment at age 14 in 2009. She has several professional degrees and is a powerful voice for those on the autism spectrum.  

Bowman is also on Netflix’s ‘Love on the Spectrum,’ where she shares much about her personal interests. In this, she brings attention to the struggles she faces to find a potential life partner. She expresses the complications of not only finding someone who relates to her but who understands and accepts her romantically.  

Further information about Bowman and her work is available on her company website.  

Katie 

Katie is currently a young adult on the autism spectrum. She grew up working closely with Healing Haven’s founder, Jamie McGillivary. Jamie credits her journey working with Katie as what helped shape her into the person she is today. Jamie’s experiences with Kaite as child inspired her career path and the creation of Healing Haven. Katie worked as an administrative assistant for the company and also worked at her local library.  

Katie spoke at a Healing Haven Open House and shared her story with guests that included parents, doctors, and professionals. “I’m here tonight to tell people you shouldn’t underestimate people with disabilities. Through hard work you can live your dreams. Your child could have a bright future. Tonight, I can live my dreams such as being independent, working as an administrative assistant, and now being a public speaker.” You can read more of her story in this blog article, Never Underestimate Individuals with Autism.  

Katie is an inspiration to all at Healing Haven and everyone who knows her personally. 

Raising Expectations

We hope these stories inspire and offer hope for you and your child or loved one with autism.  An autism diagnosis comes with a broad range of potential struggles as well as unique strengths. An average of 28% of our clients at Healing Haven graduate from our services or titrate down to needing lesser services. We work to make sure clients are as well-equipped as possible to thrive in their educational journey and prepare them for life beyond school.  

There are many success stories of individuals with autism we should celebrate. But even if your child may need extra support, we all can work together to highlight the possibilities and help raise expectations for those impacted by autism. Incredible things can be born from the “bounds” of difference. 

We would love to hear any stories you might have to share. Please feel free to comment below! 

What is ABA Therapy: Your Questions Answered

child doing therapy explaining ABA Therapy
child doing therapy explaining ABA Therapy

Following an autism diagnosis, many professionals recommend ABA Therapy as the first form of support. But many parents often leave those meetings wondering what is ABA Therapy? It’s common to have lots of questions. It’s important to feel informed and clear on treatment options as you seek support for your child. Not to mention, choosing a therapy provider can be overwhelming and can take a lot of time. We’ll break down some commonly asked questions about what ABA Therapy is so you can feel prepared to help your child.  

What is ABA Therapy? 

Considered the “gold standard” in autism treatment, ABA (Applied Behavior Analysis) Therapy is a scientific approach to understanding behavior. It’s a method of therapy used to improve specific behaviors, decrease interfering behaviors and help a child gain new skills such as communication, play, social, and daily living skills. ABA Therapy is evidenced-based and the most frequently recommended option for the treatment of autism.  

Is ABA Therapy effective? 

ABA Therapy proves to be highly effective, based on over 50 years of research. Medical professionals and institutions such as the American Psychiatric Association, the American Psychological Association, and the U.S. General Surgeon approve ABA as a valid treatment for autism.  

ABA Therapists and BCBAs (Board Certified Behavior Analysts) create and implement plans for the client to meet specific goals tailored to the client’s needs. They set the client up for success by breaking down the steps to each goal. If an approach isn’t working, the ABA Therapist and BCBA will find another one. For example, a child may be working on regulating their emotions during tantrums. The ABA Therapist and BCBA might implement tactics such as deep breathing, sensory input, and physical relaxation. But if sensory input seems to further aggravate the child, that tactic will be removed and replaced with a helpful one. 

Is ABA Therapy a fit for my family? 

Parents love their children and want what is best for them, no matter their diagnosis. You may be asking, ”How can ABA Therapy help my child?” All children have the right to learn important skills in order to be independent and to maximize their happiness later in life. For children with autism, learning some skills can be harder. ABA Therapy can build on your child’s strengths while also supporting their learning in the areas they need it most.  

In deciding if ABA Therapy is a fit for your family, it’s important to understand the provider’s approach to ABA. ABA Therapy should be customizable to your child’s needs, with an emphasis on generalization to make sure skills transfer to the natural environment.  

Additionally, it’s important to know the credentials of the BCBA and understand the center’s training program for their ABA Therapists. This is to ensure they are qualified for the work they are providing. Another factor is to make sure they have a positive and comfortable relationship that allows room for learning. There should also be frequent and open communication between you as the parents and the child’s BCBA in order to build goals that are appropriate and sensible to you. Remember, you know your child best and it’s important to find professionals that align with your specific values.  

What do ABA Therapists do? 

ABA Therapists are trained behavioral professionals that work closely with and under the supervision of BCBAs. They help implement behavioral goals set for the client. As a team with the child and BCBA, the Therapist will help teach functional skills, address problem behaviors that interfere with learning. They also help the child gain skills that will allow them to better participate in school and the community. 

What is a BCBA? 

According to the Behavior Analyst Certification Board, “A Board Certified Behavior Analyst, or BCBA, has a graduate-level certification in behavior analysis. Professionals certified at the BCBA level are independent practitioners who provide behavior-analytic services. BCBAs may supervise the work of Board Certified Assistant Behavior Analysts – (BCaBAs), Registered Behavior Technicians (RBTs), and other professionals who implement behavior analytic interventions.” 

At Healing Haven, BCBAs also provide parent training and can work with school professionals to help therapy translate efficiently across all situations and settings the client is in. To become a BCBA, an individual must undergo a 5-step process that includes: earning a relevant Master’s Degree, completing required behavior-analytic graduate coursework, completing required supervised fieldwork, apply for, take, and pass the BCBA exam, and then apply for state licensure.  

What happens during an ABA session? 

An ABA session typically begins with specific goals established for the child, which are discussed prior to starting therapy sessions. Throughout the session, the Therapist works one-on-one with the child. Their job is to ensure the child is learning and understanding the skills that are being taught. ABA Therapists utilize encouragement, praise and other motivational tactics tailored to the specific child and programs being worked on. Therapy is delivered both with and without supervision by the BCBA. 

Kate Fritz, MA, BCBA, LBA, is the Clinical Manager of our Early Intervention Clinic. She describes a typical ABA session at Healing Haven this way: 

In ABA sessions, we work hard and play hard! How an ABA session looks can greatly vary depending on the client’s age and skillset – programming is individualized to the client. In general, you can expect to see the use of play to work on communication and social skills, building up independence with daily living skills (e.g., working on putting on a winter coat), and both individual and group times to work on behavioral goals related to school-readiness. In action, this may look like a kid sitting in circle time imitating song motions, then reading a story with their therapist and pointing to animals and colors throughout the story, sitting and eating snack with peers, going to the restroom to work on washing hands independently, then heading to the playroom and pointing to toys up on a high shelf to communicate what they want to play with.  

When should my child start ABA? 

A child should start ABA Therapy if deemed appropriate, after receiving a medical diagnosis of autism spectrum disorder. Autism, for example, can be detected and tested for as early as 18 months old and by age 2 can be considered a reliable diagnosis as a means for therapy intervention.  

Early intervention is key. “Research very clearly states that early intervention for children with autism and other developmental disabilities is vital,” explains Jamie McGillivary, MS, LLP, BCBA, Founder and President of Healing Haven. “When children start therapies like ABA early on, they receive strategic learning opportunities that support them in the areas they need.”  

However, ABA Therapy is also beneficial for older children and teenagers. Even if a child is diagnosed later, ABA therapy could be worth looking into to learn and improve in areas that may be challenging for them. It is also important to remember that ABA Therapy isn’t automatically a lifelong commitment. Many children transition to lesser levels of therapy as they master skills.  

Is ABA Therapy covered by insurance? 

Because it is considered a behavioral health service, ABA Therapy is covered by most insurance policies. However, this can vary by plan and from state to state. In Michigan, it can vary by employer insurance plans, so it is important to call your insurance provider. It is important to discuss the specifics of what is and what is not covered by your plan as it pertains to ABA Therapy services in your location. More information about this can be found when you search “Autism Spectrum Disorder Health Coverage” on your state government website. For example, Michigan’s explanation of autism health coverage is found here. The Autism Alliance of Michigan is also a great resource for parents navigating insurance coverage. 

We hope this information is helpful as you navigate therapy options for your child. To learn more about Healing Haven’s ABA Therapy programs for children and teens up, contact us today. 

Communication and Autism: 4 Resources to Help

Communication and speech are common struggles for some individuals with autism. Those who do not speak or who have great difficulty speaking may be considered “nonverbal,” while those who do speak are considered “verbal.” However, “non-verbal” is not an entirely accurate term. Those who do have challenges speaking may still understand words spoken to them, or use other forms of communication. On the other hand, those who can speak verbally may still benefit from additional communication methods.

ABA teaches functional communication in a variety of ways. It’s crucial that those with autism learn to communicate their wants and needs. Through learning effective communication, individuals receive the help they need to live their best life.

Communication and Autism

In ABA therapy, BCBAs (Board Certified Behavior Analysts), RBTs (Registered Behavior Technicians) and ABA Therapists teach communication skills based on the behavioral and learning needs of the client. Additionally, Speech Language Pathologists target more specific communication goals and skills. BCBAs closely collaborate with speech and language pathologists to choose what will best help the client. BCBAs provide input on the client’s behaviors which determines the final decision on which communication method will be best. Additionally, BCBAs help parents learn what they can do at home to assist their child in communicating.

Building a Foundation for Communication

A common concern of parents who have a child who struggles with speech is how to teach them to communicate their wants and needs. This is typically one of the first skills that BCBAs work on for a client who is new to ABA Therapy.

We asked one of our fantastic BCBAs for input on this subject. Batoul Dekmak, M.Ed, BCBA, LBA, stresses the importance of working on communication with kids. “All kids that walk through our doors are fairly communicative. However, a lot of time they communicate more with their behavior.” For example, children often get frustrated and engage in problem behavior due to difficulties in appropriately communicating with others. BCBAs take data on this behavior and apply it to the language and communication process. “As soon as a child begins therapy with us,” Batoul explains, “BCBAs, RBTs, and Speech Pathologists immediately start working on multi-modal communication including vocal language, gestures, AAC devices, and PECS® books. We want the child to express themselves as much as they can to navigate their world more independently.”

BCBAs and Speech Pathologists simultaneously model language to promote development of robust communication skills. An example of this is when a child uses an AAC device when playing with toys. The BCBA may comment on the child’s play using their device, such as “play dinosaur,” stating what the child is doing. This shows the child that the BCBA can also communicate using the device and how to comment on something. The goal for communication is to meet a child’s needs and wants, as well as the child gaining the ability to socialize with others.

Tools for Communication

Here are several common methods used to help children with autism communicate.

PECS®

PECS® stands for Picture Exchange Communication System®. In this system, the child gives a picture or word icon to someone in exchange for what they are requesting. Consider this example within the ABA setting. If a child wants a snack, they hand an icon of a preferred food to their RBT or BCBA who would then give them the item. PECS® icons are often stored in a three-ring binder with pages of laminated icons attached with Velcro. If you stepped inside our clinics, you would see several clients walking around with these binders, often attached to a strap for easy transport.

The goal of PECS® is for non-verbal children and those who are learning to speak to communicate their needs to caregivers in a simple way. To address changing stages of communication development, PECS® consists of six phases starting with exchanging icons through constructing sentences.

Augmentative and Alternative Communication (AAC) device

An AAC device is a tablet or laptop that contains words and images. When a child selects a word or image, the device “speaks” the input requested. Kids with autism who use AACs gradually build skills for how to use the device. They might begin with simple one-word requests then moving to more complex sentences. Kids work on these skills in ABA therapy under supervision of BCBAs and speech pathologists. There are multiple AAC software such as LAMP™ or TouchChat, offering different layouts and ways of selecting words to meet the user’s needs.

Sign Language

Sign language uses hands and facial expressions to communicate, a common form being American Sign Language or ASL. Along with PECS®, ASL stands as one of the most frequently used methods of communication for non-verbal children on the autism spectrum.

Speech therapy

Licensed Speech Pathologists lead speech therapy. Speech Pathologists work with parents, teachers, and BCBAs to determine the best methods of communication for the child. In speech therapy sessions, the pathologist will work with the client on skills such as conversation, articulation, social cues and how to respond. If a client has an AAC device or PECS® book, the pathologist will help them use their device or icons effectively. At our clinics, our speech therapists often utilize games, toys, and fun activities to engage clients in the speech therapy process.

After reading through all this information on communication and autism, you may feel unsure of which  method is best for your child. If you are interested in any of the mentioned tools, talk with your child’s BCBA. If you want more information on our ABA Therapy and speech therapy services, please contact us here.

Addressing Sleep Issues in Children With Autism

Trouble sleeping often plagues many of us due to factors such as stress, physical health, or irregular schedules. But for those on the autism spectrum, falling asleep and staying asleep is a very common and serious challenge. Additionally, sleep issues in children with autism can affect the whole family. It is crucial to address problems sleeping in children with autism not only for the child’s health but yours as well. Sleep is one of our basic needs and if it is not met properly, health issues and poor functioning may occur.

Interestingly, sleep is one of the least studied aspects of autism. However, based on the evidence we do have, we know that poor sleep is twice as common among children with autism than neurotypical children.  According to a 2019 study, toddlers with autism are highly likely to have sleep issues by age 7. Consequently, sleep issues in children with autism are linked to negative behavior and lack of social skills. Needless to say, good sleep is critical for those with ASD, as poor sleep risks a lower quality of life and health.

Why sleep issues in individuals with autism?

Have you ever tried to fall asleep with a lawn mower outside your window, or with the lights on? Unless you’re a super heavy sleeper, it is fairly difficult. For individuals with autism, even a crack of light or creak on a floor can feel like that lawn mower or a fully lit room, therefore disrupting restful sleep. Moreover, sensory processing issues often contribute to sleep issues in children with ASD. Sensitivity to light, sound or touch prohibit full sleep cycles from occurring.

Children with autism often battle other health conditions  which is another large factor for sleep difficulties, such as:

  • ADHD
  • Anxiety
  • Gastrointestinal issues
  • Medications (stimulants can cause insomnia)
  • Genetics that affect melatonin production

How to improve sleep for a child with autism

So how do you improve sleep issues in children with autism? Consider trying out these five tips:

1. Sensory Input

Minimize sensory input as much as possible. Keep your child’s room dark, cool, and quiet. Take note of any potential distractors that may keep them awake, such as night lights, toys, and clutter. A white noise machine may also be helpful to block out any noises.

2. Limit Screens

Turn off screens an hour before bedtime, as the blue light in screens tricks the brain into thinking it is daytime and thus time to stay awake rather than sleep.

3. Schedules

Stick to a regular schedule for falling asleep and waking up to keep the body in sync. Create a routine that starts an hour before the child needs to be in bed. Set timers as reminders for transitioning to bedtime. Practice relaxing activities such as reading together, a bath, or having a light snack.

4. Try Supplements

According to research, taking low-dose supplements such as melatonin an hour to a half hour before bed can lower insomnia in children with ASD. Controlled-release melatonin can improve falling asleep and stay asleep throughout the night. Please be sure to consult with your child’s Doctor to get their expert input before trying out any supplements.

5. Take Care of Yourself

As a parent, you are the one who is most likely running bedtime routines and dealing with nightly wake-ups, which is exhausting. Make sure to care for your well-being so you have energy to give during the day. However, we realize the great difficulty in helping your child to stay in bed while you and your family are trying to rest. Try incentivizing techniques for your child staying in bed all night, such as a reward chart or using visuals of them sleeping. If they need someone in the room in order to fall asleep, try gradually moving out of the room a little more each night. Additionally, ensure they are getting enough activity and exercise to burn off energy during the day, resulting in better sleep at night for both them and you.

These tips are by no means a miracle cure, but with practice and patience, they have potential to decrease sleep problems and make life a little easier for your child and family alike. Remember to consult your child’s pediatrician with any sleep issues your child is experiencing. They may recommend seeing a pediatric sleep specialist or participating in a sleep study to rule out other potential causes.

Back to School during COVID-19

back-to-school-covid-19
back to school during COVID-19

As we approach the start of the 2020-2021 school year here in southeast Michigan, many parents are facing the reality of back to school during COVID-19 being like nothing we’ve experienced before.

An Uncertain School Year

Many public school districts in this area are opening with only a full remote school option due to COVID-19. This post is not to get into a debate on whether remote school is the best option right now. We know there are parents who want their child to go to school in person. And we know other parents who don’t want to send their child back to school in person.

The reality is, for many students with IEPs, distance learning is not a viable or meaningful option. This can be because they are not receiving the numerous supports and services they receive in person. They may have trouble attending to a screen or processing all that is happening in an online meeting. Or parents may have to work and not be able to support them through their remote school day.

Unfortunately, in-person or a hybrid plan may not be a viable option for children with compromised immune systems and underlying health conditions.

In the past we’ve written “back to school” blog posts like Back to School Tips for Parents of Different Learners. We created those resources to help parents with the transition from summer break to school. But going back to school during COVID-19 is like nothing anyone has experienced before. Read on for some ideas and resources to help you with a remote start to school, as well as returning to school in-person, and homeschooling your child with autism.

Remote School

back to school covid

For those who are navigating a remote start to the school year with your child who receives special education services, you may be feeling overwhelmed. It’s totally understandable! We’ve compiled a variety of ideas, that may help. From visual schedules to establishing routines, to positive behavior interventions and supports (PBIS), to IEP resources to help you navigate your rights.

Educational Advocacy Resources

Michigan Alliance for Families is a wonderful support organization for families who have children with disabilities to help them navigate their educational resources. They have a specific COVID-19 page on their website with many resources specific to how this pandemic is impacting education. And their COVID Documentation page has a variety of additional resources for a remote start back to school.

The Autism Alliance of Michigan has some back to school resources for families. This is a great blog post about advocacy and what your rights are in regard to your child’s IEP and special education services.

Another great resource is the Michigan Alliance for Families YouTube channel. They’ve posted recordings of past webinars specific to COVID-19, special education and distance learning.

Visual Schedules

We know that for many kids, visual schedules can help reduce problem behaviors. Visual schedules help them know what to expect. They are a neutral way to communicate what they need to do and what is coming, rather than you verbally having to ask (or nag) them over and over. Check out these visual schedules from And Next Comes L, like the School Morning Routine Chart, the After School Routine Chart and others. And Understood.org, a great resource for students with learning challenges, offers several free visual schedule downloads.

Distance Learning Resources

Understood also has some Distance Learning resources for both families and educators. There is info on how focusing for remote school can be even more challenging for many kids. And they offer some tips to help. And Next Comes L also provides specific Distance Learning resources for teachers, therapists and parents. If your child is struggling to understand why they aren’t going to school in person, she has a free social story download School is Closed. And she has tips on how to best support your autistic child on Zoom meetings. Definitely check that one out!

Accessing Their Education

If your child needs individual, in-person support to access their remote school, you may need to hire someone to help. Whether you work outside the home, have other children to take care of, or simply don’t feel equipped to become your child’s para professional, definitely reach out for help. Start with your child’s school to find out how their IEP will be fulfilled. Network with other parents to find out how they are managing it. If your child receives ABA Therapy, ask your provider if distance learning behavioral support may be an option. Check out local universities with education programs. You may be able to find a special education student who is looking for some income and experience in their field.

Returning to School In Person

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Back to School Anxiety

If your child is heading back to school in person, they may be experiencing some anxiety after such an extended break from school. Here are some resources to help with this transition from And Next Comes L.

Wearing a Mask

If your child’s school is asking (or requiring) students wear a mask, here are a few social stories about wearing masks to help them get used to it. Here is a video version and a printable version from Autism Little Learners specific to wearing a mask at school.

Homeschooling

mother homeschooling child

Some families are considering homeschooling their child for various reasons. Maybe remote school doesn’t work well for their child, or they have health issues making in-person school a risk. Homeschooling may also provide the flexibility to continue with their therapies from the summer (ABA therapy, speech and occupational therapies).

Resources to help

If you’re considering homeschooling your child with autism, but aren’t sure where to start, here are a few resources. First, check out this blog post from the Friendship Circle – Tips for Homeschooling Your Child with Autism Spectrum Disorder. The Applied Behavior Analysis Program Guide has an extensive list of possible homeschool curricula for students with autism. If you’re on Facebook, there are numerous homeschool groups specific for children with autism. There are sure to be some full of tips and recommendations.

Ready or not, it’s here!

As you prepare for this unique year heading back to school during COVID-19, we hope these ideas and resources help. Whether preparing for remote school, an in-person or hybrid plan, or you are diving into homeschooling your child, we wish you a successful start to school. Remember you have what it takes for whatever lies ahead!

Summer Reading Guide: The Latest Books About Autism

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books about autism

It’s not a surprise that reading books is on the rise as a result of the COVID-19 pandemic and lockdown. Weeks upon weeks at home has to be filled up with more than just binging on Netflix, right? Even with restrictions easing and people getting out more, there are many who love having a summer reading list. Therefore, we’ve researched the latest books about autism published so far in 2020. There are several books for parents as well as books to help autistic kids, tweens, and teens. (Note: This is not an endorsement of all of these books, but an informative list for you to do your own research.)

The Latest Books About Autism

For Parents

There are several new books about autism released the first half of 2020 that are written to help parents. There’s a brand new release filled with tips to help children with autism in our new COVID-19 world. We found a book written by a BCBA that we are excited to add to our collection. There is also a new resource written by a Mom specifically for the many families navigating a dual diagnosis of Down syndrome and autism.

Autism in Lockdown: Expert Tips and Insights on Coping with the COVID-19 Pandemic

This timely collection includes tips from expert voices in the field of autism like Dr. Temple Grandin, Ellen Notbohm, Dr. Tony Atwood, and many more. You’ll find activities to help kids cope with the new “normal”. There is also homeschooling tips, stress management tactics, social stories, ideas on building structure for better behavior, and much more!

Thriving with Autism: 90 Activities to Encourage Your Child’s Communication, Engagement and Play by Katie Cook, MEd, BCBA

Written by a Board Certified Behavior Analyst and Educator, this book is filled with practical activities for parents and caregivers to help their children build better conversation skills and strengthen social skills. This read is also a great resource for families new to autism, as well as Applied Behavior Analysis. Kelly provides a great foundation for understanding your child’s diagnosis and the reasons for and scientific background of ABA therapy.

A New Course: A Mother’s Journey Navigating Down Syndrome and Autism by Teresa Unnerstall

For families navigating a dual diagnosis, this brand new book takes a deep dive into the complexities that families face raising a child with Down syndrome and autism. The author’s son is now in his twenties, so she has years of experience navigating this extra unique world.

For Kids, Tweens and Teens

It’s wonderful to find so many new books about autism specifically written for kids, tweens and teens! Here are a few released the first half of this year.

Your Interests, My Interests: A Visual Guide to Playing and Hanging Out for Children on the Autism Spectrum by Joel Shaul

Geared toward elementary and middle school aged kids, this visual resource can help children learn important social skills. So if your child could use some help learning how to play and interact with their peers, check out Your Interests, My Interests (no preview available).

books about autism for kids
The Spectrum Girl’s Survival Guide: How to Grow Up Awesome and Autistic by Siena Castellon

This empowering quote from the book says it all: “Never be ashamed of being different: it is this difference that makes you extraordinary and unique.” If your daughter with autism could use this type of positive self image and support in understanding social communication, friendships, dealing with bullying and more, this book may be a great option. The author, a young woman on the spectrum, understands this important time in a young autistic girl’s life.

The Awesome Autistic Go-To Guide: A Practical Handbook for Autistic Teens and Tweens by Yenn Purkis and Tanya Masterman

This newly released interactive book is a guide for autistic tweens and teens that promotes self-acceptance. It helps shape a young person’s understanding of the strengths they have because of their autism and develops confidence in who they are. How great is that?!

Have you picked up a new favorite book about autism that we don’t have here? If so, let us know in the comments! And if you want to check out more helpful resources, check out Six Great Books for Parents of Autistic Children.

We hope you learned about some new books about autism. Please share it with your community!

Surviving Summer Break in a COVID-19 World

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summer break during covid-19

Most kids love summer break from school – a relaxed schedule, sleeping in, fun places to go and lots of time outside. But we are in a new reality with the COVID-19 pandemic. Kids – and parents – are coming off nearly three months of adapting to distance learning. Additionally, many of the typical summer activities are closed or modified. So for a child with autism (and their parents) the end of distance learning, limited or cancelled therapies, no places to go, facing summer break probably seems daunting!

As autism parents know, having a predictable schedule helps kids on the autism spectrum make sense of their world, knowing what to expect from day to day and sometimes hour to hour. So even in your exhaustion from the past few months, it’s time to prepare for summer break.

Are you wondering how do you facilitate a summer break that provides the structure your child with autism needs? Not to mention doing this during the new world of social distancing, closed playgrounds and pools, cancelled summer camps and vacations? It may seem overwhelming. But we’ve got some simple tips to help you and your child survive summer break in our new COVID-19 world! (And these can help typical kids too.) Whether you will be home with your kids, you have someone coming it to care of them while you work, or they will be doing summer therapies, these ideas may help.

Celebrate the End of Distance Learning!

Let’s face it, this school year has been like no other! So it’s definitely something to celebrate the end of distance learning and all the extra responsibilities you’ve taken on. You can start off summer break with an activity or treat. From something simple like getting take-out from their favorite restaurant or going out for ice cream – yes many are open here in Michigan! Or you could throw an “end of school year” party with balloons, games, fun snacks and a dance party. What you and your children have been through is worthy of a celebrating!

Create a Summer Schedule

As you may have done during this time of distance learning, use visuals to show what your child’s “typical” weekdays and weekends will be on a calendar. And then create a “typical day” schedule to show when they will get up, get dressed, eat meals, activities, and outings. So if they are able to resume some in person therapies, or you take a daily walk or ride in the car,  put them in the schedule to show them what to expect. And for days at home, read on for how to have a schedule on those days too. 

Help reduce anxiety of “the unknown” by reviewing the schedule each day, or even the night before, so they know what will be happening. Here is one example you can download. A quick Google or Pinterest search will offer a variety of options.

Sticking to a Schedule Has Benefits

Traditionally summer break is an easy time to get too relaxed and let go of any set schedule. But the more you can stick to a routine for bedtime and wake up time, meals and limiting screen time, the more well-regulated your child will hopefully be.

Online Therapies & Camps

Not that we want to encourage even more screen time, but there are some great opportunities to make your child’s screen time purposeful! If they are able to attend and engage with short amounts of screen learning, you can look into some online camp opportunities. There are so many programs popping up due to in person camps being closed. From educational classes to keep their learning progressing, to Lego camps, coding, dance, art, music, and more!

And if your child typically receives ESY (Extended School Year) services, but are missing out on important therapies over the summer, consider telehealth speech and occupational therapies. Many providers are now offering them, including our team!

Have A Summer Break Rules Chart

The never-ending requests for the iPad, video games and TV can be managed to a degree with a Summer Vacation Rules list that details out the things they need to do BEFORE they get to use any technology. The rules can include chores like getting dressed, brushing teeth, making their bed, cleaning their room, and more advanced chores for older kids. You can also have a rule for playing – inside and outside for specific amounts of time, as wells as a bit of academic work that is age appropriate – reading for 30 minutes, writing a story, art or coloring for 20 minutes. Here’s one example from Thirty Handmade Days.

Back Up Plans Teach Flexibility

For some kids, they may have learned to be more flexible with change during the Stay Home order and learning a completely new routine. But if not, work on teaching your child about a backup plan or “Option A” and “Option B”. If your schedule is to go visit their cousin’s house, but someone in the house isn’t feeling well, talk with them about a backup plan in case you can’t go that day. Reviewing with them what you will do if they can’t do what’s on the schedule will help reduce behaviors associated with a “change in plans”.

We hope these ideas help you create some structure AND fun for you and your family during this summer like no other! Remember to take it one day at a time.

What are some ways you survive the summer months with your child with autism? Let us know in the comments! And if you’re looking for help for your child with autism this summer, learn how we’ve adjusted our programs for our new COVID-19 world.

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