Preparing For Your Child’s IEP

There are a ton of resources out there if you do a Google search for “IEP tools” or “preparing for an IEP”. It can be overwhelming. We want to provide some information to help you sift through all the content so that you can walk into your child’s next IEP more confident than you did the last one.

One thing is for sure: when you have a child with autism, ADHD, Down syndrome, dyslexia, or any other condition that impacts their learning, becoming an expert in the IEP (Individualized Education Plan) process is necessary for parents. Read on for some tips and resources to help you in preparing for your child’s IEP.

Remember the law is on your side

First, there is the Individuals with Disabilities Education Act establishing the framework for what students with disabilities are entitled to in school – a Free and Appropriate Public Education (FAPE), in the Least Restrictive Environment (LRE).

And more recently there is the Endrew F. Decision in which the Supreme Court ruled in March 2017 that Individual Education Programs must give kids with disabilities more than a de minimis, or minimal, educational benefit. The Supreme Court ruled on the meaning of a free appropriate public education (FAPE). The case involved a boy with autism and ADHD, who made almost no progress on his IEP goals because his behavioral and academic needs weren’t addressed. Understood.org created this helpful resource as a result of this decision.

You are your child’s best advocate

Even with the law being on your side, the reality is, not all school districts are created equal. Whether it’s in the arts programming they provide or the special education services they offer, philosophies and services can vary widely from district to district and state to state. Know your rights as an equal member of the IEP team and be ready to step out of your comfort zone to advocate for what your child needs.

Walk in with the mindset that this is your child’s meeting, not a district meeting or a special education department meeting. Remember, you are the expert on your child. Come to the meeting with your own data – video of your child doing things, copies of their “’work”. They may not demonstrate their full potential during a standardized assessment, so compiling your own data can reinforce what you are advocating for!

Don’t forget the Parent Concerns Letter

Most IEP forms have a very small box for “Parent Concerns”. Know that you are not limited to how many words can fit in that box. You can draft an entire letter outlining your child’s needs and the concerns you have for their progress and learning. Here’s a great resource from A Day In Our Shoes specifically about the Parent Concerns Letter. Communicate your vision for your child and don’t allow anyone to change YOUR vision.

Framing the conversation

It’s important to tailor the conversation when it comes to preparing your child’s IEP. It is difficult to hear how your child stacks up to their typical peers. That’s the reality of the standardized assessments and evaluations presented by the IEP team. You know your child struggles with communication, fine motor, reading, math, or whatever it is. But to have that data in black and white can be quite sobering. Help set the tone by flipping weakness statements into strengths and needs statements. As this Brooke’s Publishing blog post states, by changing “can’t do” statements into “the student needs…” you will end up with an effective IEP that not only establishes high expectations, but meets your child’s needs.

What if you don’t agree with the IEP and/or others on IEP team

It’s okay to not finish within the first meeting. You can reconvene for a second (or third, or fourth) IEP meeting if necessary. And consulting with a special education advocate can be very helpful if your emotions are running high and you’re not feeling heard by the district. An advocate can help you with talking points, legality issues, and even attend the IEP with you to assist with communication between you and the school district representatives. Additionally, a free local resource for parents is Michigan Alliance for Families.

Additional Resources

There really is a TON of information out there to help you with your child’s IEP. Instead of making this post any longer, here are a few additional resources for you to check out:

We hope these tips and resources for preparing for your child’s IEP prove to be helpful for you. Godspeed!

Autism Evaluation Process: What to Expect

developmental testing and autism evaluation
developmental testing and autism evaluation

Are you a parent seeking a developmental assessment or autism evaluation for your child? Or did you try to have your child start ABA therapy but ran into insurance issues due to an incomplete assessment? Whatever your situation, starting the journey to support your child’s development can be stressful, overwhelming, and confusing. But you are taking the right steps in seeking help for your child – and you! That is why we want to provide you with information on our autism evaluation process. Here is a detailed breakdown of how it works.

Where to Start

Maybe you are concerned about your child’s development, or your pediatrician is recommending an evaluation due to signs of communication and developmental delays. Whatever the reason, it can be confusing to know where to start. In order to access the most common therapies for autism (such as Applied Behavior Analysis (ABA), speech or occupational therapies), most insurance companies require an evaluation that includes a series of standardized assessments. Additionally, they need a report with the data of those assessments to support a concluding diagnosis of Autism Spectrum Disorder. These evaluations are typically performed by a qualified psychologist or neuropsychologist. It’s important to note that most insurance plans require something more than a simple neurologist diagnosis; neurologists do not use the standardized assessments insurance companies look for.

What to Expect

The overall evaluation process at Healing Haven is not very long. It consists of three appointments which total roughly six hours altogether (depending on the child’s age and level of skill.) The turnaround time from the first appointment to receiving the final report averages about one to two months. But it’s important to note that time can vary depending on the facility performing the testing.

However, the wait to receive the assessment is generally the biggest issue. Most facilities that offer quality evaluations have waitlists of several months or up to a year. But time is precious when it comes to a child’s development. Those several months can make a huge difference when it comes to receiving therapy supports and interventions.

One of the most impactful things you can do as a parent is obtain a clearer understanding of your child’s struggles. At Healing Haven, we try to keep all evaluations–from the time parents contact us to when they receive results–within three months. This way, if intervention is necessary, your child can access it as soon as possible.

The Autism Evaluation Process

Our autism evaluation and developmental testing process is typically divided into three appointments. These appointments are after you complete the initial intake paperwork and questionnaire.

First Appointment

During the first appointment, a parent or guardian meets with the clinician. They will discuss background information, family history, and any concerns regarding their child’s development.

Second Appointment

The second appointment involves the direct assessment of the child. The clinician utilizes several standardized assessment tools to gather objective data on the child’s skills and their behaviors. The clinician will use this data to reflect the child’s developmental progression in comparison to other children of the same age.

Third Appointment

After these two first meetings, the clinician compiles all the information gathered into a report. In the third and final meeting, the clinician goes over the report with the parent(s)/guardian(s). Based on data and historical information, this meeting will specify whether a child may fall within the criteria of Autism Spectrum Disorder. If the child does not meet the criteria, parents and guardians may learn if something else is going on that better addresses their concerns (e.g. speech delay, learning impairment, anxiety, etc.)

Whether your child is on the spectrum or not, a developmental assessment provides a detailed evaluation of your child’s current level of skill and developmental status. A developmental assessment identifies factors contributing to your child’s difficulties, rules out diagnoses that may mislead treatment, and provides you with direction to address your child’s specific needs.

A developmental assessment identifies factors contributing to your child’s difficulties, rules out diagnoses that may mislead treatment, and provides you with direction to address your child’s specific needs.

What to Look for in an Autism Evaluation Provider

The most important question to ask a facility offering evaluations is, “If my child is diagnosed, will this report unlock insurance covered ABA services?” You are embarking on a lengthy process. So you are entitled to all the necessary information to access insurance covered services (if needed). Make sure you know which questions to ask of your insurance provider to understand exactly what your plan requires for ABA services.

However, many facilities that offer autism evaluations are unaware of the specific insurance requirements for ABA services. As a result, many testing facilities may be honest saying that they can provide an autism evaluation but are unsure if insurance to cover ABA services will accept the type of evaluation provided.

At Healing Haven, we’ve had countless families who had their child previously evaluated, but then found their diagnostic report was missing components insurance requires. Thankfully, some insurance companies are lenient and allow us to fill in the missing components. Other times, too many components were missing, requiring an evaluation re-do. Obviously this is time consuming and costly. It is also a significant barrier to receiving services. So again, do your best to make sure that what the testing facility offers will be sufficient for your insurance.

Insurance Plans

Healing Haven is now in network with most major insurance providers in Michigan for developmental testing and autism evaluations. We accept: Blue Cross Blue Shield (Michigan and out of state), Blue Care Network, Priority Health, HAP, Aetna, Cigna, United Healthcare and Beacon Health.

An Important Note about BCBS/BCN of Michigan

Many families in our area have insurance through Blue Cross Blue Shield of Michigan or Blue Care Network of Michigan. For Michigan BCBS/BCN members it is important to know that they have a list of centers for which they will accept an autism diagnosis. These specialized locations are called Approved Autism Evaluation Centers (AAEC). The AAECs are spread throughout the state, but unfortunately can have long waitlists – sometimes up to 12 months or more. As a result of these long waitlists, and because early intervention is so critical, BCBS of MI and BCN updated their requirements in January 2024. They now accept an autism evaluation from a qualified psychologist or neuropsychologist – if it meets their standards. If the evaluation is accepted, it no longer is a temporary “bridge authorization”. And parents don’t have to also seek a second AAEC evaluation. This opens up more options for families seeking support for their child. It also gets them access to therapy services sooner.

We understand how time-consuming and worrisome the autism evaluation process can be as you strive to get support for your child. But we are here for you and you are not alone in this journey. If you have questions or want to start the developmental testing or autism evaluation process, please reach out to us today!

Autism and Co-occurring Health Conditions 

autism co-occurring health conditions
autism co-occurring health conditions

When a child receives a diagnosis of autism it can be overwhelming for parents. They must learn how autism spectrum disorder is manifesting in their child and then how to best support them. Do they have communication challenges, or are they completely non-verbal? Do they experience sensory overload? Are they struggling with learning? Is it impacting their motor skills? On top of these questions, parents may also have to navigate some common health conditions that can co-occur with autism.

Just like there are many known health conditions that co-occur with Down syndrome (congenital heart defects, thyroid issues, hearing loss, celiac disease, etc.), many additional health issues can also arise in individuals with autism. And a study once indicated that children with autism are four times as likely to have their additional health needs go untreated, especially if they have a co-occurring intellectual disability, compared to the general population.

Conditions that Co-occur with Autism

We are going to break down some of autism’s common co-occurring health conditions. Please note, this information is to only provide helpful insight for parents and caregivers and is by no means an attempt to diagnose any of these conditions in someone who has autism.

Epilepsy

The overlap between autism and epilepsy has a wide range – estimated somewhere between 5-46%. But a 2019 study indicated 44% of patients with ASD also have epilepsy, while only 1-2% of the general population have epilepsy. One reason for the variability in identifying epilepsy in individuals with autism is if they have mild seizures. Mild seizure symptoms include blank stares, inattention and tics, which individuals with autism not having a seizure may also demonstrate. Additionally, those who have both autism and epilepsy are more likely to also have intellectual disability. The seizures could be interrupting brain development and as a result causing cognitive impairment. There is research indicating that a genetic component – the deletion of chromosome 15q13.3 is the most common risk factor for epilepsy. Additionally, the deletion of this same chromosome is also linked to autism.

GI Issues

A variety of gastrointestinal conditions can co-occur in individuals with autism – from abdominal pain, reflux, constipation or diarrhea. Diet is often thought to be the underlying cause of these issues. However, one study indicated that stress is more likely the cause of gastrointestinal trouble in people with autism, rather than their diet. But in contrast, another study revealed “increasing evidence suggested that gut microbiota plays a critical role in gastrointestinal symptoms and behavioral impairment in ASD patients.” Whatever the underlying cause, it’s helpful to be aware of the commonality of GI issues in individuals with autism so that possible treatments can be found.

Depression

Depression is more common in children and adults with autism than in the general population. The rates of depression increase with age and intellectual ability. A study from 2021 indicated that those with autism are “4-times more likely to experience depression in their lifetime” compared to the general population. Those individuals without an intellectual disability are more prone to depression, most likely because they are more aware of their struggles that come with their autism diagnosis. Signs to look for include: loss of interest in favorite activities, chronic feelings of sadness, hopelessness, irritability, and noticeable change in hygiene habits.

Anxiety

Up to 42% of individuals with autism also experience anxiety, while only 3% of children and 15% of adults in the general population have anxiety issues. Social anxiety is especially common in people with autism. Social anxiety includes extreme fear of new people, crowds and social situations. Anxiety can also have physical symptoms like a increased heart rate, stomach aches, muscle tightness and the inability to move. Some individuals with autism struggle to communicate and may not be able to express how they feel. As a result, observing their behavior may be the best way to determine if they are experiencing anxiety. Treatment for anxiety can include behavioral interventions, cognitive behavior therapy, and in some cases anti-anxiety medication may also help.

OCD

Obsessive compulsive disorder (OCD) is related to anxiety and has a strong connection with autism. People with autism are twice as likely to have OCD compared to the general population. And those diagnosed with OCD are 4-times more likely to also have autism. Repetitive behaviors and restricted interest are a common factors with both OCD and autism. However, those with OCD are often bothered by their repetitive behaviors, while those with autism are usually not. Treatments for OCD in individuals with autism typically are medication and behavior therapy.

ADHD

An estimated 6-7% of the general population have an ADHD (attention deficit hyperactivity disorder) diagnosis, while a staggering 50-70% of individuals with autism also have ADHD. Symptoms of ADHD include struggling to remember things, a noticeable pattern of inattention, difficulty managing time, hyperactivity and/or impulsivity. Autism and ADHD often have symptoms that overlap. A 2023 study revealed children with both conditions who were diagnosed with ADHD first weren’t diagnosed with autism until later in life. This delay in diagnosis is missing critical treatment time for these children. Because of this, it’s important to find a specialist experienced in working with both conditions to ensure nothing is missed.

Sleep Issues

Ask any parent of a child with autism and you’ll likely hear about sleep issues. Statistics have proven the large percentage of children with autism who also struggle with sleep. Some research indicates 4 out of 5 children with autism have at least one sleep disorder. Whether it’s trouble falling asleep, not being able to stay asleep, or waking up way too early, not getting enough sleep can exacerbate behavior and functioning during the day. As a result, it’s important to come up with solutions to help improve the quality of sleep. This post about addressing sleep issues in children with autism provides a breakdown of how sleep impacts those with autism and some possible ways to help alleviate sleep issues.

Thyroid Issues

Research several years ago identified the connection between a hypothyroid in pregnant women and their child being 4-times more likely to be diagnosed with autism. So what about a child with autism and their thyroid function? The thyroid gland secretes hormones that are critical for the body. Problems with the thyroid can impact cognitive development, behavior and the functioning of the nervous system.  Dr. Raphael Kellman, MD identified 75% of children with autism have undiagnosed thyroid issues. However, because the thyroid impacts so many areas of development, getting it working properly can have a positive impact on language, cognition, motor development, GI issues and more.

Knowledge is power

We hope this information-packed post has helped you understand some of the more common co-occurring conditions associated with autism. So whether you want to ask questions of your child’s health care provider, or you can be a resource for other parents also navigating this journey, knowledge is power.

And, if your child faces some of these health conditions, they may have to make more frequent visits to the doctor. If those visits prove challenging for your child, check out our new post: Navigating Routine Health Appointments for Children with Autism: A Parent’s Guide.

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6 Ways to Calm a Child With Autism

child with autism calming strategies
calming strategies for child with autism

Raising a child with autism brings surprises and challenges. One possible difficulty parents might face is managing overstimulation and meltdowns.

While every child has rough moments, for a child on the spectrum meltdowns are different. They often happen when the child is overstimulated and cannot communicate why they are upset. A valuable way to cope when meltdowns occur is to learn ways to calm a child with autism.

In this post we provide ways to look out for possible overstimulation, strategies to help calm your child in the moment and ways to head them off before they happen. Through detailed preparation, you and your child will feel more equipped to handle big emotions the next time they experience distress.

Warning Signs

Meltdowns may occur out of the blue or perhaps they come after a specific trigger. This can be very stressful for not only the child but parents and other family members as well. However, certain displays of behavior can cue parents to when their child might be on the verge of a meltdown. Some of these behaviors may include:

  • Increased stimming- agitated hand flapping, body rocking, pacing, hands over ears
  • Loud vocalizing
  • Crying
  • Eloping – running away from a situation
  • Self-injurious behavior (SIB)- banging head, picking at skin, hitting or biting self

Perhaps it is a certain location, a noise, or denied access to something that set off your child. Keeping a log of triggers can help prepare you for future incidents and allows you to be proactive in recognizing and coping with meltdowns. And in the meantime, try some of the following six ways to calm a child with autism when they are in distress.

Addressing Sensory Needs

Children with autism often have many more sensory needs than an average neurotypical person. Deep pressure stimulation such as gentle head or shoulder squeezes can help kids feel secure and move their nervous system into the parasympathetic nervous system, also called “rest and digest.” When we are in the parasympathetic nervous system, our bodies feel safe and secure which in turn calms our minds.

Additionally, learn what objects or toys are soothing to your child and have them on hand. Keep a bag of sensory objects with your child that they can utilize when they are feeling overwhelmed. Fidget spinners, blankets, squishy toys, or chew toys can bring comfort to an overstimulated nervous system.

A sensory friendly “calm down corner” can also help quell meltdowns. At home, designate a safe area for your child that includes soft lighting, calming music or white noise, and comfortable items such as bean bags or pillows. If your child attends school, coordinate with teachers to create a calm down corner in the classroom. If you’re in public during an episode, remove your child from the triggering environment as soon as you can and take them to a neutral location.

The Power of Music

Music can be very therapeutic to individuals with autism. Music increases brain activity which in turn helps regulate emotions. Additionally, singing a favorite song of your child’s may help them relax, as familiarity can be grounding. Try softly singing or playing soothing quiet tunes on headphones to help your child self-regulate.

Deep Breathing

Breathing is very powerful in calming the mind and body and can assist in regulating emotions for a child with autism. Sit face-to-face with your child and have them breathe deeply with you. Counting inhales and exhales as they breathe is a helpful technique. The exhale places the body back into the parasympathetic nervous system so make sure your child is releasing all the air. Breathing together will also help you feel more calm during a meltdown.

Exercise

Moving and fresh air help all of us feel better and is another great strategy to calm a child with autism. Walk with your child around the block, visit a nearby park, or put on a kids yoga video to help them center.

Stick to Schedules

Sometimes unpredictability triggers a meltdown. Pre-planned agendas can provide comfort to children with autism so they know what’s coming next, reducing anxiety. You can even create visual schedules for your child to reference throughout the day, which can help them stay on task. There will obviously be times when the schedule needs to change last minute, but try to give your child as much notice as possible.

Avoid Reinforcing Behavior

It’s natural to become worked up and overwhelmed watching your child experience such high levels of distress. But it’s important to avoid displaying strong emotions in front of your child in the heat of the moment in order to avoid reinforcing their behaviors. Remain as calm as you can and focus on deescalating your child through whichever method they respond best to. But be sure to make space to process your own emotions after the episode so you can regulate as well.

We hope these six ways to calm a child with autism will help you and your child the next time a meltdown arises. Know that you are not alone and that it is ok to feel overwhelmed. Our parent training resources include strategies in addressing specific meltdown situations. For more info, visit our ABA Parent Training page.

Back to School Tips for Parents of Different Learners

The back-to-school season is almost here, and while it can be exciting, it can also be particularly challenging for children on the autism spectrum. The change in schedule plus the preparation and coordination needed can be stressful for both the child and their parent(s) alike. Fortunately, we have seen what it can look like and have put some tips and resources all in one place via this post. We hope you can take some of this information and use it to help make the transition to the new school year as smooth as possible. And bonus – many of these ideas can benefit typical kids in addition to those with special needs or a learning disability, as well!

Let us first address the importance of preparation for the transition back to school, especially for different learners. Many children with autism live by routine. Therefore, preparation can help ease anxieties and help set up new routines that your child can rely on. Additionally, extra preparation time can help ensure your child has the proper amount of support they need in their new classroom or school. Read on for helpful back-to-school tips that you can start on now.

Use a Back-to-School Countdown

Let’s face it, there is so much going on in the rush before school starts. You want to squeeze in the last free days of summer, while shopping for school supplies, new clothes and scheduling any needed doctor appointments. How can you cram anything else in? This Back to School Countdown from Understood.org offers some great ideas to get your child ready to go back to school. Not all of the tips may apply, but there are sure to be some that will help you, as well as your child, prepare for that first day back in the classroom.

In addition to the practical back to school tips for you, an actual countdown calendar can be helpful for your child. Create a calendar of the few weeks before school. With your child, cross off each day leading up to the first day of school. Doing so provides a visual for them to see when school starts and may help reduce some anxiety they may have.  

Use Social Stories

Social stories are a great way to communicate to your child what they can expect in a new situation, teach appropriate behavior, and much more. And thankfully there are a ton of free resources out there to help you so you don’t have to start from scratch. By creating a print social story, or using a topical video social story, you can help reduce anxiety your child may have about the new school year, new teacher, new classmates, new routine, etc.

Dyan from “And Next Comes L” has an extensive list of free back to school social stories you can download and print. She also includes some topical stories for times that may cause more stress and anxiety, like changing classes for gym, art or music. Additionally, she has a few video social stories about High School, riding the bus, listening to the teacher, how to greet people at school, and more!

Communicate With Their Teacher

Create a “get to know me” document or write a letter to your child’s teacher. By sharing your child’s diagnoses, strengths and weaknesses, dietary restrictions, sensory needs, things that interest them, and strategies that work for them, you are empowering your child’s teacher with important information for their success at school. Additionally, you are taking the first step in building a positive relationship with your child’s teacher. Here are a few templates available for introduction letters and “get to know me” documents.

  • This Card to Help Teachers Get to Know Your Child is from Understood.org. Older kids who are able to write and communicate could complete it on their own, which will help them develop self-advocacy skills.
  • Understood.org also has two different Back-to-School Introduction Letters for elementary and middle school students. They are fairly basic, but may be just what you need to communicate important information with your child’s teacher.
  • For younger students, or those starting at a new school, a more robust document may be warranted. The Fairy Printsess has a printable “About Me” page you can fill out to help the teacher learn about a variety of important information like your contact info, family member details, photos, your dreams for your child, their learning style and so much more!
  • You can always type up a letter detailing the above things for the teacher and email it to them before school starts. Reframing Autism also has a printable packet of “About Me” documents you could edit to create a “get to know me” compilation that fits your child’s unique information and needs.

And don’t forget to make or send copies of whichever version you choose to your child’s aides, the school therapists, principal, “specials” teachers – basically anyone who will be working with your child.

Using Technology

If your child uses an AAC to communicate – an Alternative and Augmentative Communication device – ask if your child’s teacher(s) and aides are familiar with using them. There are several different programs available, so some training may be needed. Work with your child’s speech therapist to help ensure those working with your child know how to utilize this tool to facilitate communication with your child.

In addition to communication, there are apps that can help students with a variety of learning and back-to-school challenges. Here’s a list of different apps to look through from supporting academics, executive functioning skills, managing anxiety and more.

A few more reminders….

If your child has gotten used to sleeping in, be sure to start easing them back into the earlier wake up schedule a few weeks before school starts. Getting them to bed a little earlier each day and waking up a bit earlier each day will help them get the rest they need, and hopefully help reduce the stress that comes with rushing out the door because they slept too late.

If your child seeks sensory input or is upset by loud sounds, prepare a sensory kit for school with their favorite fidgets, chewy necklaces, noise-reducing headphones, etc.

Also, Michigan Alliance for Families offers some great resources and webinars for transitioning back to school, IEPs and more! Check out their latest online events here.

Do you have some other back-to-school tips or routines that have helped you prepare? If so, let us know! We wish you a smooth and successful new school year!

And if you found this post helpful, please share it with your friends.

5 Ways to Manage Screen Time for Children With Autism

Many kids with autism prefer activities in solitude rather than with other peers. Screen use is a big preference among these activities, as you and so many other parents can probably attest. In fact, kids and teens with autism tend to spend more time engaging in screen activity than their neurotypical peers.

Managing screen time is a common battle for all parents, and particularly parents of children with autism. You may wonder how much screen time is too much, or perhaps you are desperate for ideas to avoid the screen time battle with your child. Maybe eliminating screens altogether feels like your only option to ensure your child will engage in anything else interactive. While it’s unrealistic to try and rid screens from kids’ lives completely, there are plenty of ways to monitor time spent on them. Screens don’t need to be demonized, but rather managed and used with good boundaries to preserve physical, psychological, social and neurological health.

Screens don’t need to be demonized, but rather managed and used with good boundaries to preserve physical, psychological, social and neurological health.

Let’s look at the pros and cons of screen time and some methods of management so your child can live their best quality of life.

Pros and Cons

Pros of screen time? It might seem unlikely, but they exist. Technology is an incredible tool that we’re blessed to have in our lifetime. Screen activities offer:

  • Motivation (utilize screens as motivators for performing less preferred activities)
  • Connection with friends and family
  • Educational content
  • Learning opportunities (discussing current events, emotions, communication, how-to videos)

On the other hand, and of which many of us are aware, cons of screen time include:

How to manage screen time

With screens so readily available to us all these days, we often have to set our own boundaries for healthy use. We all mindlessly use them more than we probably want unless we have a clear intention for use. Thus, teach and model intentionality in screen use for your child. Try these specific intentional methods of managing screens for more mindful use and better health.

1. Designate screen use areas

Designate areas of your home for screen use to set physical boundaries on appropriate use. You could establish rules such as keeping tablets and laptops at desks and living areas only. Setting boundaries on the location of use can help kids be aware of social setting expectations and to focus on one activity at a time. (Not to mention, location boundaries keep electronics safe from areas prone to messes, such as the kitchen.)

2. Create schedules

Come up with a schedule that includes slots for screen time or choose a time limit. For example, one hour on weekdays and 3 hours on weekends. Setting timers and giving warnings for how much time is left are helpful tools for easing transitions as well.

 3. Monitor

This is an obvious one to many parents. Manage electronic devices with passwords, know exactly what your child is doing on the screen, and check age-appropriateness of the material.

4. Model healthy boundaries

Kids watch us as adults, and especially as parents, whether we realize it or not. Your screen use behaviors directly influence your child’s behaviors. Model healthy screen use boundaries for them, such as having no phones at the dinner table or during family time. A big one is avoiding multitasking while a screen is in front of you. Kids with autism may already have trouble with focus so demonstrate keeping your attention on one activity at a time.

5. Self-empower with self-monitoring

Ease the burden of managing screen time with your child with autism by involving them in self-monitoring. This way, it’s not just you holding all the power and “keys” to fun. If possible, engage in discussion with your child about what appropriate screen time looks like, including content, time length, relation to other activities, etc. Additionally, there are many apps these days that can help teach kids to monitor their own screen time. In our technology saturated world, empowering your child to self-monitor is a valuable lesson they could take with them into the rest of their lives.

On a final note, be sure to inform your child’s BCBA or counselor of any screen time rules at home to implement during therapy to maintain behavioral consistency. Screens are a huge reinforcer for many in-clinic kids at Healing Haven, so make sure screen time rules at the clinic don’t interfere with home expectations.

Additional Resources

If you’re looking for more help in the area of managing screen time for your child (with or without autism), we have an article over on Metro Parent with tips from our Director of Clinical Standards – Reducing Screen Time (and Replacing with Play!) for Your Child With Autism.

And this post over on MyTutor – The Screen Time Diet: helping your teen find balance with their tech – lists out some “good” screen time options and finding balance as a family.

Water Safety Tips for Children with Autism

It’s summertime, which usually equates to a lot of time outside. And with pools open and all the lakes here in Michigan, that often means time in and around water. While swimming and playing in water are fun and great exercise, it can also be very dangerous. In 2023, the Michigan Department of Natural Resources issued a new flag warning level for the Great Lakes. Because of the increased danger lakes and pools have, water safety for children with autism, or any child, is extremely critical. 

Why water safety is so important for children with autism

Children with autism, as well as Down syndrome, often wander, which can obviously be very unsafe if they get close to water unsupervised. Additionally, drowning can occur without making any sound. Children may also be unaware of things such as water depth, water temperature, water currents, or slippery surfaces. Not every child likes to be in the water, especially children that struggle with sensory issues. However, all children should still be aware of water safety in case of accidental slips or falls into a pool or lake. 

This statistic is scary and sobering, but every parent of an autistic child needs to know – drowning is a leading cause of death for children with autism. We’ve compiled some tips and ideas to teach water safety to your child with autism to help you prepare for this season. 

Get your child in swimming lessons 

Every child should learn to swim, and for children with special needs, it’s important the skill is taught in a way that resonates with them. Make sure the teaching environment is not too distracting or overwhelming for your child. 

There are many programs that provide adaptive swimming lessons for children with special needs. You can start by contacting your local YMCA. And the National Autism Association’s Big Red Safety Toolkit for caregivers provides an excellent guide and resources for managing wandering, as well as how to find swim lessons in your area. 

Provide reinforcers

Have reinforcers and preferred items available when your child performs important or difficult tasks related to water safety. This could include tolerating getting into the water, using appropriate safety gear, getting out when a whistle is blown for “adult swim time,” or leaving the pool when instructed. 

Visual learning of water safety

Use video narratives, social stories, or visual routines to teach water safety. The Swim Angelfish channel on YouTube, for example, is a great resource which provides a variety of videos that can be utilized to teach water safety to kids with disabilities. 

Many children with autism spectrum disorder are rules-driven, so use that to your advantage. Set specific rules for how they are to behave around water. Then practice those rules in real world situations. And if you have a pool at home, or live on/near a lake, consider placing “STOP” or “DO NOT ENTER” signs on doors that open to the outside, or gates to the pool. 

Use appropriate swim gear

Even if your child knows how to swim, it’s still a great precaution to use a life jacket or flotation device around water, whether they are planning on swimming or not. It can also offer reassurance when attempting a new skill and teaching independence. The especialneeds website is a great place to purchase special needs and sensory-friendly water gear, if needed.  

Teach key information

Because of the high percentage of wandering in kids with autism – nearly 50% – make sure your child knows his or her name, address, and phone number in the event he or she is separated from you. If your child does not speak, make sure they wear a bracelet, tag, tattoo, etc. with their name and your name and phone number. 

Set up your environment vigilantly 

Even if you feel confident that your child thoroughly understands the rules of water safety, accidents can still happen. It’s important to prepare for the worst so that nothing slips through the cracks. When preparing your environment near water, consider installing fences or gates with alarms around the body of water, if applicable. Additionally, you should also think about placing alarms or chimes on doors that open to bodies of water and keep toys of interest away from the water when not in use. Taking these measures will ensure that life-threatening wandering doesn’t take place.  

Communicate with others

Talk with your neighbors, whether at home or on vacation. Ask them to contact you immediately if they see your child wandering alone outside your home or property. Even if you don’t own a pool, but your neighbors do, ask them to be particularly aware of your child wandering near their property. 

We hope these ideas help you implement water safety for your child with autism. And for more general recommendations for pools, beaches, lakes, etc., check out this swimming safety guide. We want everyone to have a less stressful and more enjoyable summer! 

If you found this information helpful, we’d love it if you’d share it with others!

Traveling with a Child with Autism: Tips for a Smoother Ride

family on a roadtrip
traveling with child with autism

Whether it’s summer or the end-of-the-year holidays, most people equate these seasons with time off for vacation and road trips. But the idea of traveling with a child with autism can be overwhelming for both parents and for the child! Children with autism often thrive in structured, familiar routines, so hitting the road or the sky to a new destination has the potential to be stressful and create an environment for meltdowns or other disruptive behaviors. But even with the possible challenges, there are many benefits to experiencing new things. So here are tips for a smoother ride when traveling with a child with autism.

1. Plan Day Trips Before Week-Long Adventures

If you have not traveled away from home with your child with autism before, start with a few day trips to help prepare them for a bigger event. Brainstorm some activities your child enjoys – maybe a new zoo, an aquarium, a water park or the beach (we have plenty of lakes here in Michigan) that are a short drive away. But plan the trip so you can stay overnight in a hotel. This will give them the hotel experience while still close enough to home if things go sideways. Having a few day trips as “practice,” you and your child will be more prepared for possible issues that may arise on a longer trip.

2. Pick A Destination That Will Interest Your Child

For many kids, they will just go with the flow of most any vacation. But for a child with autism it is important to choose a place that fits with your child’s personality, interests and strengths. Do they love the sensory stimulation of the sand on the beach and the water? Maybe they enjoy museums, monuments and a busy city? Or possibly they are at home in the woods, exploring trails and the calmness of nature? By selecting your vacation spot that matches their interests and sensory processing abilities, you will help your child be more successful in this new experience. If you’re looking for a destination that is also recognized as autism-friendly, check out our blog post Top 5 Autism-Friendly Vacation Spots.

3. Remember Important Items To Pack

Different beds, foods, smells and sounds can create sensory overload for those sensitive to them. Remember to bring items your child uses to cope during times they become overloaded. Here are a few helpful items to consider bringing : fidgets, a weighted blanket, sunglasses, noise-cancelling headphones, or any other soothers that help them. In addition, be sure to pack a few of their favorite toys/snuggles, DVD’s, books. It’s also good to include them by asking what they want to take along.

There are also a few added safety precautions for those who are nonverbal or have difficulty communicating. If you don’t have any of these, consider purchasing an autism necklace, a Medical bracelet, or a zipper pull, which provide an easy way to share your child’s diagnosis in case of an emergency. Another great tool is to create temporary tattoos with emergency contact info for their arm just in case they wander away from you. There are also a variety of GPS tracking devices if your child is more prone to wandering.

4. Build A Vacation Music Play List

Create a list of songs your child (and entire family) will enjoy – from movie soundtracks, popular music and sing-along songs. A road trip playlist can both entertain and comfort your child when they are in a new setting. If your child really loves music, involve them in the selection of songs. Also use the time to talk about your upcoming trip to help prepare them for what is to come.

5. Utilize the Power of Visuals & Role Playing

Showing your child what will happen and when through a personalized picture schedule can relieve stress and reduce anxiety. Creating a visual support allows your child to process what’s ahead without being bombarded all at once. Consider making a picture schedule that’s designed sequentially to cover various portions of your trip. A chronological version that shows daily plans to review each morning can help, as well. This way, it can also double as a pre-alert device. Include pictures of the car/highway/airport, hotel, and even pull pictures off your destination’s website.. You could also use short captions to turn it into a story. Creating a calendar to count down the days leading up to your trip can also help prepare your child for your actual departure.

Additionally, transitions – changing from one situation to another – are common while on vacation. Children with autism can find these unfamiliar transitions difficult. Along with visuals, role playing a few weeks before a trip will allow your child time to process what he or she might expect on vacation.

We hope these tips are helpful as you prepare to travel with your child with autism. Wishing you a wonderful adventure!

Summer Break: 5 Ways to Help Your Child with Autism Thrive

summer break fun for kids with autism

Many kids love the break summer brings – a relaxed schedule, sleeping in, a variety of activities like the pool, summer camps, and vacation. But for a child with autism (and their parents) the lack of the regulated school or therapy schedule can cause major struggles over summer break.

Having a predictable schedule helps kids on the autism spectrum make sense of their world. Knowing what to expect from day to day and even hour to hour helps reduce anxiety. So as a parent, how do you facilitate a summer break that provides the structure your child with autism needs, while also incorporating fun summer activities we love? We have compiled 5 tips to help your child with autism adjust to summer break. These tips are not only helpful for children on the autism spectrum, but also for kids with Down syndrome and neurotypical kids.

5 Tips for Summer Break

Create a Summer Schedule

Use a visual calendar to show what your child’s “typical” weekdays, weekends, vacations and holidays will be. Another great tool is to make a “typical day” schedule to show when they should get up, get dressed and eat meals. Also include activities and outings for the day. So if they are going to therapy, day camp or the pool on certain days – put them in the schedule to show them what to expect.

Review the schedule each day, or the night before, so they know what is coming. Doing so will help to reduce the anxiety involved with the unknown. Here is one example from This Reading Mama that’s available for download and offers a variety of schedule activity options, including options for at-home days. A quick Google or Pinterest search will offer a variety of schedule varieties, as well.

Create a Back Up Plan

Work on teaching your child about a back up plan or “Option A” and “Option B”. If your schedule is to go to the pool tomorrow but thunderstorms are in the forecast, talk with them about a back up plan. Reviewing with them what you will do if they can’t do what’s on the schedule will help reduce behaviors associated with a “change in plans”.

Be Disciplined

If you stay home with your child in the summer it’s easy to get too relaxed and let go of any set schedule. But the more you can stick to a routine for meals, bed time and wake up time, and limiting screen time (see the next tip for more on this), the more well-regulated your child will hopefully be.

Create a Summer Vacation Rules Chart

The never-ending requests for the iPad, video games and TV are exhausting. Manage these requests – to a degree – with a Summer Vacation Rules list. The chart spells out a list of things they need to do BEFORE they get to use any technology. Some “rule” options include tasks like getting dressed and brushing teeth. Or include chores like making their bed, cleaning their room, and more advanced chores for older kids. You can also have a rule for playing – inside and outside for specific amounts of time. Additionally, include some academic work that is age appropriate – reading for 30 minutes, math work, or coloring for 20 minutes. Here’s one example from Thirty Handmade Days.

Also check out our post 5 Ways to Manage Screen Time for Children with Autism for more helpful ideas on ways to help manage screen time.

Start An Annual Tradition

Celebrate the end of the school year and the start of summer. Plan an activity or treat that you can repeat every year. Make their favorite dinner (or go to their favorite restaurant if that is an option for your family), or go out for ice cream. Or plan a fun activity like a trip to the zoo, visiting their favorite playground or making a picnic lunch to have at a special park or beach. Do something that you can repeat each year on the last day of school/first day of summer break. This creates a positive rhythm to the start of summer.

We hope these ideas help you create some structure AND fun for you and your family this summer. For additional ideas as you prepare for summer break, check out The Transition to Summer for Kids with Autism.

Addressing Common ABA Therapy Myths 

Child in aba therapy
Child in aba therapy

Applied Behavioral Analysis therapy (ABA) is considered the “gold standard” for autism treatment. So why are there myths of ABA therapy and online opinions that contradict this?

Though ABA is backed by scientific research, misinformation or misunderstandings still surround the practice. You may be considering ABA therapy for your child but have concerns. You might also simply want to know more about it before choosing it as a treatment option. Here we debunk common ABA myths to ease any lingering worries and to give accurate information so parents like you can make informed decisions.

1. ABA is only for children with profound impairments

ABA therapy treats individuals with autism across the spectrum, not just those who have an intellectual disability, or those without functional language. Likewise, therapy will be different depending on the person. 

For example, a verbal person may work on conversing with peers while a non-verbal person may focus on basic communication through a Picture Exchange Communication System (PECS) book or an Augmentative and Alternative Communication (AAC) device. ABA providers assess the child and discuss working toward goals that are most socially significant to the child, like communication, socialization, play and daily living skills. 

2. ABA doesn’t work for older kids

Though many parents begin ABA early when their children with autism are young, ABA helps individuals of all ages. We know learning doesn’t stop in young childhood. Many older kids and teens on the spectrum struggle with socialization and communication. Therefore, ABA has much to offer kids in its wide variety of approaches. Whatever the age of the individual, progress and success are achievable and are worthy of celebration.

3. ABA can create robotic responses

This is a common ABA myth. ABA is the most efficacious intervention for children on the autism spectrum when implemented properly. When careful consideration is given to ensure the skills that are taught are useful and meaningful, “robotic” responses are avoided.   Children engaged in highly repetitive teaching programs with little opportunities to carry over skills to the real world, are at a higher risk of exhibiting this behavior.

Parents should look for ABA programming that targets skills and behaviors that are relevant to the child’s life. They should also provide opportunities for their child to practice the skills in a natural setting. When done properly, children receiving ABA therapy acquire skills that are functional for their everyday activities.

4. ABA uses punishment

The misunderstanding regarding punishment in ABA therapy is caused by the terminology used in everyday language versus how it is used in the field of ABA.

In ABA terms, a “punishment” is defined as anything that decreases the chances of a behavior occurring again because of an event that directly followed the behavior.  In contrast, in everyday use, many people equate the term “punishment” with something angry or mean, which is never the case in our ABA therapy in our clinics.

For example, if a child throws their toy against a glass window, a caregiver may decrease the likelihood that this would happen again in the future by taking the toy away after they throw it. Taking the toy away is considered a “punishment” if it decreased the behavior in the future. ABA therapy recognizes the world is made up of natural punishment and reinforcement.

5. ABA is all the same

ABA is tailored to the child’s needs and goals. What may work for one individual might hinder another. Board Certified Behavior Analysts (BCBAs) utilize a vast array of approaches including positive reinforcement, prompting and shaping to help a child learn and thrive. Research demonstrates that ABA helps more than just one type of child. If ABA used the same approach for all, it would not hold the effectiveness it has garnered over the past 50 years.

6. ABA therapy is only used to address problematic behaviors

It is true that ABA therapy is effective for eliminating problematic or dangerous behaviors. However, it is also just great teaching. As such, it is extremely helpful to build up skills such as communication, socialization and play.   ABA works to improve these various areas to collectively better the individual’s life experience. 

7. ABA is a cure for autism

Autism spectrum disorder is not a curable condition. Of the many existing approaches there are to help children navigate life with autism, ABA therapy is the only scientifically backed method of treatment. ABA is not meant to take away the autistic experience, but to make the hard parts manageable with the main goal of improving quality of life for the individual.

We hope this helped clarify some common ABA therapy myths or misconceptions you may have had. Head over to What is ABA Therapy: Your Questions Answered for more information on what ABA therapy looks like here at Healing Haven. And our ABA Therapy Programs page has details on all the various ABA therapy services we provide.