The team at Healing Haven has an exciting announcement! We will be hosting an onsite ABA Hiring Event on Friday, April 28th, 2023 from 10 a.m. – 6 p.m. This event will take place in our administrative offices, located at 30701 Barrington St., Suite 125, Madison Heights, MI, 48071.
This hiring event coincides with Autism Acceptance Month in April, where we work to spread a message of acceptance and inclusion of individuals with autism in our society all month long. As a result of the continual increase in children receiving an autism diagnosis, the demand for Applied Behavior Analysis (ABA) therapy services continues to grow as well.
We want you!
Our team at Healing Haven is recruiting dedicated and energetic individuals for full and part-time ABA Therapist and Registered Behavior Technician positions. These roles provide one-on-one therapy for children to increase communication, social, play, and life skills. Our ABA Therapists have the opportunity to make a direct impact on a child’s life–and that impact has ripple effects on their family and friends.
Interested candidates can schedule an interview time slot in advance here. Additionally, walk-ins for interviews are welcome between 10 a.m. – 6 p.m. Individuals should bring their resumes, and prepare to interview with the Human Resources team. Job offers may be offered on the spot at this ABA hiring event! Candidates will have the opportunity to tour our therapy clinics. They can also meet our President & Founder, Jamie McGillvary, MS, LLC, BCBA, LBA.
A few important details to know:
First, we don’t require ABA field experience. We provide thorough hands-on, didactic, and online training to develop competency in applied behavior analysis. Additionally, Healing Haven provides Registered Behavior Technician® (RBT®) Certification through the Behavior Analyst Certification Board. Further. We offer continual support and training throughout employment. And finally, there are many opportunities for growth and advancement in our company.
At Healing Haven, we serve children and teens ages 2-16 with autism spectrum disorder and other development needs and their families. We have three clinics on our campus. As a result of the steady increase in children being diagnosed at younger ages, our newest clinic is designed for this group.
Our Early Intervention clinic opened in August 2021 and serves our youngest clients. Our Young Learners clinic serves children in Pre-K through early elementary. And our School & Community Readiness clinic serves our oldest clients who are in upper elementary, middle, and early high school.
ABA and Autism
In March 2023, the Center for Disease Control updated the autism diagnosis prevalence in the United States. The rate increased to 1 in 36 children. It’s important to note that ABA therapy is the most frequently recommended therapy for treating children diagnosed with autism spectrum disorder. ABA Therapy teaches children how to communicate, play and socialize with their peers, as well as learn important life skills.
In recent years we’ve experienced a noticeable increase in parents of younger children – 2-3 years old – contacting us for services. This means they are getting evaluations and receiving an autism diagnosis at younger ages than the national average. Data from the CDC indicates that the average age to receive an autism diagnosis is over 4 years old. Receiving an autism diagnosis before the age of 3 provides great opportunity for early intervention for autism to begin.
Early Intervention for Autism
But once parents receive that diagnosis, choosing the right treatment for their child can be as complex as the diagnosis. There are no miracle cures for the varied challenges that can come with an autism diagnosis. However, behavioral therapy, or Applied Behavioral Analysis therapy, is evidenced-based and the most frequently recommended treatment for helping a child diagnosed with autism.
“Research very clearly states that early intervention for children with autism and other developmental disabilities is vital,” explains Jamie McGillivary, MS, LLP, BCBA, Director of Healing Haven. “When children start therapies like ABA early on, they receive strategic learning opportunities that support them in the areas they need.”
Whether it’s communication, social and play skills, or activities for daily living (brushing teeth, eating with utensils, potty training), children who struggle with these skills can make great strides when provided early intervention support. Additionally, the likelihood of negative behaviors decreases because they learn appropriate behaviors from the beginning.
ABA Therapy
A child’s individual early intervention plan will address their unique areas of need. For instance, if it’s developing language and communication skills, the ABA therapist will work on helping the child learn to label items and appropriately request things they want or need. And the mode of communication will vary. It may be pointing to a picture, or handing a picture of what they want (Picture Exchange Communication System). And some may use a communication device (tablet), or verbal expressions.
In addition, if the child has negative behaviors their ABA therapy plan will address them. Some common negative behaviors include: damaging toys or property, non-functional crying and screaming, resisting transitions by falling to the ground or running away, aggression or self-injurious behaviors.
The behavior plan developed by the child’s BCBA will include strategies to address the types of behaviors listed above. They will work to pinpoint the reason for these behaviors and teach them skills or replacement behaviors to reduce them.
“For example, some children flop to the ground when transitioning to a new activity. Their ABA Therapist may address functional ways to communicate that the child may need a break,” Jamie explains. “Or they may introduce proactive strategies to warn the child that a transition is about to occur. Giving warnings and visual information about what is to come helps decrease the anxiety surrounding transitions.”
Generalizing New Skills
As a child makes progress on and eventually achieves their goals, we can work on scaling back one-on-one support. The ultimate goal is for the child to generalize the skills they’ve learned into their natural environments. We provide additional programs to support the child and family in this goal.
“We place a significant emphasis on parent training and involvement,” says Jamie. “When parents participate, we increase the likelihood that what children learn in the clinic will carry over to their natural environments.”
As a result of early intervention services, young children with autism receive a strong foundation to learn, develop and grow. It’s good to remember that autism is a spectrum and each child is unique. Some children need more support, while some need less. Some will need ongoing ABA therapy, while others will move on to their school environment with varying levels of support.
Our blog post – Top 5 Autism Friendly Vacation Spots – was one of our highest trafficked posts for that year. So with more hotels, resorts and theme parks making efforts to provide an enjoyable and safe experience for families impacted by autism, we decided to do a follow-up post with even more autism friendly vacation ideas.
That previous post included Sesame Place®, LEGOLAND Florida, Surfside Beach, South Carolina, Dollywood and Tradewinds Resort. We also did an addendum to share about VillaKey, provider of autism friendly vacation rentals in Florida.
Thankfully we are seeing lots of places becoming “autism friendly” – and when they make these efforts they are creating inclusive places for everyone to enjoy. Hotels, resorts and theme parks are providing training for their staff about autism. They are creating quiet rooms and sensory rooms for individuals who get overwhelmed and need a place to relax. They are adding safety measures for kids who are prone to wander. All of these thoughtful efforts benefit families with an autistic child, but also kids with Down syndrome and even typical kids. By doing so, they are opening up vacation opportunities for families who never dreamed of going to some of these places.
So here are a few more autism friendly vacation ideas to add to your list.
Heading to Florida
Disney World – Orlando
Disney World is a destination for many families with young children. For those with an autistic child, Disney has some accommodations to help make your time there more enjoyable. If you are considering a vacation there, look into their Disability Access Service Pass that allows pass holders to avoid lines at rides. They also have Disney’s Strollers as Wheelchairs program, which is a special safety measure for kids who wander, or who need a familiar seat to feel safe and secure. For qualifying children, this program allows kids to remain in their strollers while on a ride or visiting an attraction. Disney also offers a visual guide of the park for individuals with disabilities that you can download before you go. There are a number of additional accommodations for individuals with autism, like Rider Switch, Break Areas and Companion Restrooms.
Discovery Cove – Orlando
Earlier this year Discovery Cove, Orlando became a Certified Autism Center. Discovery Cove is SeaWorld’s all-inclusive family resort. They have created accommodations and supports for individuals with autism and other sensory needs. As explained on their website – staff receive specialized training to ensure all guests have an enjoyable experience. Training focuses on: sensory awareness, motor skills, autism overview, program development, social skills, communication, environment, and emotional awareness. They offer a Sensory Guide that provides details on their attractions and how a person with sensory issues may respond to each experience so that families can plan accordingly. Another benefit Discovery Cove offers is they limit the number of daily attendance of 1,000 guests. So crowd control is built into how they operate.
Kennedy Space Center Visitor Complex – Merritt Island
In 2023, Kennedy Space Center Visitor Complex became an IBCCES Certified Autism Center. Located just East of Orlando, this unique NASA experience provides a comprehensive Sensory Guide to help plan your visit with sensory-sensitive individuals or children. It also offers complimentary noise-reduction headphones on a first-come, first-served basis to those with hearing sensitivities. Explore the various adventures this attraction presents, guaranteed to pique the interest of every family member.
Closer to Home
Cedar Point
At just over 2 hours away from Metro Detroit, Cedar Point’s autism accommodations can provide for a great get-away for families. Known as the Roller Coaster Capital of the World, they also provide some great services for families with an autistic child or other disabilities. They offer a Parent Swap ride program and KidTrack is a wristband program if your child is known to wander. There is a Family Care Center and other places for a quiet place to take a break and cool down. Additionally, there are several Family Restroom facilities for those who need support. You can download the Cedar Point mobile app to check on ride wait times, attraction accessibility, events and more. And for overnight stays there is Cedar Point’s Hotel Breakers that provides many features to make it a fun get-away.
Hersheypark
For a little bit longer trip but still a doable drive for a long weekend, Hersheypark is about 7 hours from Metro Detroit. They partnered with Parent to Parent of Pennsylvania to make sure their park and attractions are accessible to individuals with disabilities. One feature is their Ride Accessibility Questionnaire – families can answer some questions to receive a detailed list of the rides and attractions suited for your personal family situation. They have several Quiet Areas throughout the park to provide a private place for those who may become over stimulated. Additionally, guests can download a Rider Safety & Accessibility Guide ahead of their visit. And if you have dietary restrictions, you can learn about their allergen information and dining options.
Going Above and Beyond
Morgan’s Wonderland
A park designed to cater almost exclusively to children with special needs? That’s Morgan’s Wonderland, in San Antonio, Texas! It is the world’s first “Ultra Accessible Theme Park”. The park offers an impressive number of traditional and adaptive rides, swings, and activities to suit all ages. Additionally, they have a Sensory Village, and entertainment that teaches messages of inclusion and kindness. And most importantly, children with special needs, including autism, receive free admission! It may be time to start planning a Texas vacation.
International Adventure
Beaches® Resorts
Beaches® is the first IBCCES (International Board of Credentialing and Continuing Studies) and Autism Certified resort company. Their resort locations in Jamaica and the Turks and Caicos islands offer specialized service to families with children with autism and other special needs. These services include mealtime accommodations such as custom dietary needs, kids camps for children of all abilities, and staff trained in autism needs, sensory awareness, motor skills, and more. Additionally, Beaches® partners with Sesame Street® and Autism and offers activities with Julia, the first Sesame Street® character with autism.
Shannon Airport, Ireland
If you’re thinking of traveling through Ireland, be sure to consider Shannon Airport as a thoroughfare! Ireland’s Shannon Airport provides an awareness program for kids with special needs, ensuring a smooth airport experience. Through this program, kids and those with special needs can access a 24-hour sensory room.
In conclusion, many resorts, theme parks and hotels are understanding the needs of autistic individuals. So we hope these autism friendly vacation ideas help spark your imagination to plan a get-away for your family that everyone will enjoy! And let us know if you’ve found another vacation spot that was perfect for your family.
If you found this information helpful, we’d love it if you’d share it with your network!
In 1995 the rate of autism was about 1 in 500 individuals. However, in 2021 that number changed to 1 in 44* individuals diagnosed with autism spectrum disorder. ABA therapy was not a readily available treatment for autism back in 1995 in Michigan. But it is considered the “gold standard” today for improving language, play and social skills, while reducing negative behaviors in individuals with autism.
Our founder Jamie McGillivary was studying psychology at Eastern Michigan University in 1995. One of her professors saw something in Jamie and encouraged her to work with children with special needs. Shortly after that Jamie met Katie, a bubbly 3-year-old girl in Saline, Michigan. Katie’s mother hired Jamie to work with her daughter to support her communication, play and social skill development.
ABA therapy was not a common course of study back in 1995. However, as soon as Jamie met Katie, she knew the direction she wanted to take her career. They developed a very special bond in those early years that has continued to today. For example, Katie was in Jamie’s wedding 18 years ago, went on vacations with them and is like a member of the family.
Having High Expectations
After living in four other states over the past decade, Katie moved back to Michigan. She worked as an Office Assistant here at Healing Haven from 2019 to 2020. When she was 3 years old, Katie worked so hard to learn to put words together, but now she loves to talk! Katie received a certificate in Office Administration from Nashville State Community College. As a result, she is proficient in Microsoft Excel. She was a whiz at organizing the mountains of files we have here at Healing Haven. Katie was eager to help in any way around the clinics and is also a natural with children.
After years of hard work and support from her mom, Jamie and others, Katie is motivated to share her story to encourage parents of individuals with autism, or any disability. Because she speaks from experience, her words are so meaningful.
“Do not underestimate your child with autism. It’s important to know your child can do anything they can put their mind to,” Katie said. “People should give kids with disabilities a chance. They have a future ahead of them,” she added.
Katie’s Inspiring Message
Katie joined the staff of Healing Haven as an Administrative Assistant in January 2019. One of her dreams is to become a public speaker. She had her debut at the Open House we held in 2019, inspiring guests with her confidence!
To learn more about ABA therapy and how it supports the development of children and teens with autism, visit our What is ABA Therapy page.
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*The original postfrom 2019 has been updated with 2022 figures
As we approach the start of the 2020-2021 school year here in southeast Michigan, many parents are facing the reality of back to school during COVID-19 being like nothing we’ve experienced before.
An Uncertain School Year
Many public school districts in this area are opening with only a full remote school option due to COVID-19. This post is not to get into a debate on whether remote school is the best option right now. We know there are parents who want their child to go to school in person. And we know other parents who don’t want to send their child back to school in person.
The reality is, for many students with IEPs, distance learning is not a viable or meaningful option. This can be because they are not receiving the numerous supports and services they receive in person. They may have trouble attending to a screen or processing all that is happening in an online meeting. Or parents may have to work and not be able to support them through their remote school day.
Unfortunately, in-person or a hybrid plan may not be a viable option for children with compromised immune systems and underlying health conditions.
In the past we’ve written “back to school” blog posts like Back to School Tips for Parents of Different Learners. We created those resources to help parents with the transition from summer break to school. But going back to school during COVID-19 is like nothing anyone has experienced before. Read on for some ideas and resources to help you with a remote start to school, as well as returning to school in-person, and homeschooling your child with autism.
Remote School
For those who are navigating a remote start to the school year with your child who receives special education services, you may be feeling overwhelmed. It’s totally understandable! We’ve compiled a variety of ideas, that may help. From visual schedules to establishing routines, to positive behavior interventions and supports (PBIS), to IEP resources to help you navigate your rights.
Educational Advocacy Resources
Michigan Alliance for Families is a wonderful support organization for families who have children with disabilities to help them navigate their educational resources. They have a specific COVID-19 page on their website with many resources specific to how this pandemic is impacting education. And their COVID Documentation page has a variety of additional resources for a remote start back to school.
The Autism Alliance of Michigan has some back to school resources for families. This is a great blog postabout advocacy and what your rights are in regard to your child’s IEP and special education services.
We know that for many kids, visual schedules can help reduce problem behaviors. Visual schedules help them know what to expect. They are a neutral way to communicate what they need to do and what is coming, rather than you verbally having to ask (or nag) them over and over. Check out these visual schedules from And Next Comes L, like the School Morning Routine Chart, the After School Routine Chart and others. And Understood.org, a great resource for students with learning challenges, offers several free visual schedule downloads.
Distance Learning Resources
Understood also has some Distance Learning resources for both families and educators. There is info on how focusing for remote school can be even more challenging for many kids. And they offer some tips to help. And Next Comes L also provides specific Distance Learning resources for teachers, therapists and parents. If your child is struggling to understand why they aren’t going to school in person, she has a free social story download School is Closed. And she has tips on how to best support your autistic child on Zoom meetings. Definitely check that one out!
Accessing Their Education
If your child needs individual, in-person support to access their remote school, you may need to hire someone to help. Whether you work outside the home, have other children to take care of, or simply don’t feel equipped to become your child’s para professional, definitely reach out for help. Start with your child’s school to find out how their IEP will be fulfilled. Network with other parents to find out how they are managing it. If your child receives ABA Therapy, ask your provider if distance learning behavioral support may be an option. Check out local universities with education programs. You may be able to find a special education student who is looking for some income and experience in their field.
Returning to School In Person
Back to School Anxiety
If your child is heading back to school in person, they may be experiencing some anxiety after such an extended break from school. Here are some resources to help with this transition fromAnd Next Comes L.
Wearing a Mask
If your child’s school is asking (or requiring) students wear a mask, here are a few social stories about wearing masks to help them get used to it. Here is a video version and a printable version from Autism Little Learners specific to wearing a mask at school.
Homeschooling
Some families are considering homeschooling their child for various reasons. Maybe remote school doesn’t work well for their child, or they have health issues making in-person school a risk. Homeschooling may also provide the flexibility to continue with their therapies from the summer (ABA therapy, speech and occupational therapies).
Resources to help
If you’re considering homeschooling your child with autism, but aren’t sure where to start, here are a few resources. First, check out this blog post from the Friendship Circle – Tips for Homeschooling Your Child with Autism Spectrum Disorder. The Applied Behavior Analysis Program Guide has an extensive list of possible homeschool curricula for students with autism. If you’re on Facebook, there are numerous homeschool groups specific for children with autism. There are sure to be some full of tips and recommendations.
Ready or not, it’s here!
As you prepare for this unique year heading back to school during COVID-19, we hope these ideas and resources help. Whether preparing for remote school, an in-person or hybrid plan, or you are diving into homeschooling your child, we wish you a successful start to school. Remember you have what it takes for whatever lies ahead!
It’s not a surprise that reading books is on the rise as a result of the COVID-19 pandemic and lockdown. Weeks upon weeks at home has to be filled up with more than just binging on Netflix, right? Even with restrictions easing and people getting out more, there are many who love having a summer reading list. Therefore, we’ve researched the latest books about autism published so far in 2020. There are several books for parents as well as books to help autistic kids, tweens, and teens. (Note: This is not an endorsement of all of these books, but an informative list for you to do your own research.)
The Latest Books About Autism
For Parents
There are several new books about autism released the first half of 2020 that are written to help parents. There’s a brand new release filled with tips to help children with autism in our new COVID-19 world. We found a book written by a BCBA that we are excited to add to our collection. There is also a new resource written by a Mom specifically for the many families navigating a dual diagnosis of Down syndrome and autism.
Autism in Lockdown: Expert Tips and Insights on Coping with the COVID-19 Pandemic
This timely collection includes tips from expert voices in the field of autism like Dr. Temple Grandin, Ellen Notbohm, Dr. Tony Atwood, and many more. You’ll find activities to help kids cope with the new “normal”. There is also homeschooling tips, stress management tactics, social stories, ideas on building structure for better behavior, and much more!
Thriving with Autism: 90 Activities to Encourage Your Child’s Communication, Engagement and Play by Katie Cook, MEd, BCBA
Written by a Board Certified Behavior Analyst and Educator, this book is filled with practical activities for parents and caregivers to help their children build better conversation skills and strengthen social skills. This read is also a great resource for families new to autism, as well as Applied Behavior Analysis. Kelly provides a great foundation for understanding your child’s diagnosis and the reasons for and scientific background of ABA therapy.
A New Course: A Mother’s Journey Navigating Down Syndrome and Autism by Teresa Unnerstall
For families navigating a dual diagnosis, this brand new book takes a deep dive into the complexities that families face raising a child with Down syndrome and autism. The author’s son is now in his twenties, so she has years of experience navigating this extra unique world.
For Kids, Tweens and Teens
It’s wonderful to find so many new books about autism specifically written for kids, tweens and teens! Here are a few released the first half of this year.
Your Interests, My Interests: A Visual Guide to Playing and Hanging Out for Children on the Autism Spectrum by Joel Shaul
Geared toward elementary and middle school aged kids, this visual resource can help children learn important social skills. So if your child could use some help learning how to play and interact with their peers, check out Your Interests, My Interests (no preview available).
The Spectrum Girl’s Survival Guide: How to Grow Up Awesome and Autistic by Siena Castellon
This empowering quote from the book says it all: “Never be ashamed of being different: it is this difference that makes you extraordinary and unique.” If your daughter with autism could use this type of positive self image and support in understanding social communication, friendships, dealing with bullying and more, this book may be a great option. The author, a young woman on the spectrum, understands this important time in a young autistic girl’s life.
The Awesome Autistic Go-To Guide: A Practical Handbook for Autistic Teens and Tweens by Yenn Purkis and Tanya Masterman
This newly released interactive book is a guide for autistic tweens and teens that promotes self-acceptance. It helps shape a young person’s understanding of the strengths they have because of their autism and develops confidence in who they are. How great is that?!
Have you picked up a new favorite book about autism that we don’t have here? If so, let us know in the comments! And if you want to check out more helpful resources, check out Six Great Books for Parents of Autistic Children.
We hope you learned about some new books about autism. Please share it with your community!
Most kids love summer break from school – a relaxed schedule, sleeping in, fun places to go and lots of time outside. But we are in a new reality with the COVID-19 pandemic. Kids – and parents – are coming off nearly three months of adapting to distance learning. Additionally, many of the typical summer activities are closed or modified. So for a child with autism (and their parents) the end of distance learning, limited or cancelled therapies, no places to go, facing summer break probably seems daunting!
As autism parents know, having a predictable schedule helps kids on the autism spectrum make sense of their world, knowing what to expect from day to day and sometimes hour to hour. So even in your exhaustion from the past few months, it’s time to prepare for summer break.
Are you wondering how do you facilitate a summer break that provides the structure your child with autism needs? Not to mention doing this during the new world of social distancing, closed playgrounds and pools, cancelled summer camps and vacations? It may seem overwhelming. But we’ve got some simple tips to help you and your child survive summer break in our new COVID-19 world! (And these can help typical kids too.) Whether you will be home with your kids, you have someone coming it to care of them while you work, or they will be doing summer therapies, these ideas may help.
Celebrate the End of Distance Learning!
Let’s face it, this school year has been like no other! So it’s definitely something to celebrate the end of distance learning and all the extra responsibilities you’ve taken on. You can start off summer break with an activity or treat. From something simple like getting take-out from their favorite restaurant or going out for ice cream – yes many are open here in Michigan! Or you could throw an “end of school year” party with balloons, games, fun snacks and a dance party. What you and your children have been through is worthy of a celebrating!
Create a Summer Schedule
As you may have done during this time of distance learning, use visuals to show what your child’s “typical” weekdays and weekends will be on a calendar. And then create a “typical day” schedule to show when they will get up, get dressed, eat meals, activities, and outings. So if they are able to resume some in person therapies, or you take a daily walk or ride in the car, put them in the schedule to show them what to expect. And for days at home, read on for how to have a schedule on those days too.
Help reduce anxiety of “the unknown” by reviewing the schedule each day, or even the night before, so they know what will be happening. Here is one example you can download. A quick Google or Pinterest search will offer a variety of options.
Sticking to a Schedule Has Benefits
Traditionally summer break is an easy time to get too relaxed and let go of any set schedule. But the more you can stick to a routine for bedtime and wake up time, meals and limiting screen time, the more well-regulated your child will hopefully be.
Online Therapies & Camps
Not that we want to encourage even more screen time, but there are some great opportunities to make your child’s screen time purposeful! If they are able to attend and engage with short amounts of screen learning, you can look into some online camp opportunities. There are so many programs popping up due to in person camps being closed. From educational classes to keep their learning progressing, to Lego camps, coding, dance, art, music, and more!
And if your child typically receives ESY (Extended School Year) services, but are missing out on important therapies over the summer, consider telehealth speech and occupational therapies. Many providers are now offering them, including our team!
Have A Summer Break Rules Chart
The never-ending requests for the iPad, video games and TV can be managed to a degree with a Summer Vacation Rules list that details out the things they need to do BEFORE they get to use any technology. The rules can include chores like getting dressed, brushing teeth, making their bed, cleaning their room, and more advanced chores for older kids. You can also have a rule for playing – inside and outside for specific amounts of time, as wells as a bit of academic work that is age appropriate – reading for 30 minutes, writing a story, art or coloring for 20 minutes. Here’s one example from Thirty Handmade Days.
Back Up Plans Teach Flexibility
For some kids, they may have learned to be more flexible with change during the Stay Home order and learning a completely new routine. But if not, work on teaching your child about a backup plan or “Option A” and “Option B”. If your schedule is to go visit their cousin’s house, but someone in the house isn’t feeling well, talk with them about a backup plan in case you can’t go that day. Reviewing with them what you will do if they can’t do what’s on the schedule will help reduce behaviors associated with a “change in plans”.
We hope these ideas help you create some structure AND fun for you and your family during this summer like no other! Remember to take it one day at a time.
What are some ways you survive the summer months with your child with autism? Let us know in the comments! And if you’re looking for help for your child with autism this summer, learn how we’ve adjusted our programs for our new COVID-19 world.
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In the United States April is Autism Awareness Month. And now in its twelfth year, April 2 is World Autism Awareness Day as established by the United Nations. You may see people wearing blue on April 2. There will be buildings lit up blue and lots of social media posts about the day. However, we at Healing Haven have a different perspective on wearing blue and autism awareness. As an organization we don’t participate in the “light it up blue” campaign for a few reasons. The primary one being the controversial work and money management practices of the organization that launched the campaign, Autism Speaks. With all of their efforts, they do little to practically support families and their needs. Here is one mother’s perspective. We put our efforts in helping shift the focus to Autism Acceptance Month.
In comparison, we just celebrated World Down Syndrome Day on March 21st (3/21 – three copies of the 21st chromosome and also established by the United Nations). But this day is not only about awareness. It is a day to celebrate people with Down syndrome, while educating our global communities on their potential. It’s about supporting them with programs and therapies so they can achieve more, recognizing their achievements and changing outdated perceptions of the most commonly occurring chromosomal disorder. World Down Syndrome Day sends a message of celebration and acceptance and we believe the same should happen for individuals with autism throughout the month of April.
It’s Time for Autism Acceptance Month
With a recently updated estimate of 1 in 54 individuals diagnosed with autism, it’s time to move from awareness to acceptance. Let’s face it, most of us are “aware” of autism. The majority of us have met or know someone on the spectrum. As a result, our perspective is we need to move the focus to autism acceptance month. And not just saying “I accept individuals with autism for who they are.” Let’s demonstrate autism acceptance with action. Acceptance without action isn’t meaningful. We need to share messages of acceptance of autistic individuals, celebrate the challenges autistic people overcome every day, and push for understanding of neurodiversity.
Action can look like:
becoming a friend to an autistic person
hiring a person with autism
reaching out to a family impacted by autism – offer to make them dinner or take a tired mom or dad out for coffee
share educational resources on autism this month with the hashtag #autismacceptance
Advocating Every Day
We work with and advocate for autistic people every day of the year. So one day seems like a shallow attempt to make some people feel good that they did something for autism. Throughout the year we serve autistic children and teens, and their families with the goal of helping them learn to communicate and interact with the world around them. Our holistic approach to ABA therapy looks at the entire person and how we can support their learning, communication, play and pre-vocational skills. We do that while also helping to lessen any harmful behaviors that get in the way of the individual living a full life within their family and community.
If you could hear the celebrations throughout our clinics when a client asks for something they want for the first time. We cheer them on when they gain a new skill that they’ve worked on for months. And we celebrate with families when they experience accomplishments with their child that they never thought possible.
So for Autism Awareness Acceptance Month, we will continue to do what we do every day. But we may shout a little louder the worth of individuals our world views as “different”!
If you found this information helpful, we’d love it if you’d share it with your network!
We are in a rapidly-changing, unprecedented time in our world as this global health crisis spreads throughout our country. As more drastic measures are taken each day to slow the spread of COVID-19 (Coronaviurs), to “flatten the curve”, we all are scrambling to figure out this new normal. Kids are out of school, many are people working remotely, or have been temporarily laid off. And in our case, our clients are not receiving therapy until we can roll out some support to our families through telehealth services.
So what are we to do as parents, caregivers and professionals? We’ve compiled a list of resources for parents to help you navigate this extraordinary reality we are now in.
Talking with Your Kids About Coronavirus
First, some of your kids may be asking specifically about coronavirus, or the results of it – why they are not in school or going to therapies? Here are several resources to help.
PBS Kids has tools to help you talk with your children about this novel virus.
This Psychology Today article provides some great resources and tips for explaining this global health crisis to children with autism.
And for those who may be experiencing anxiety, here is some help for addressing that too!
Creating New Routines
We all know how important routines are for kids with autism, Down syndrome, and even typical kids! And now those routines are turned upside down. So here is a free downloadable routine schedule that you can customize for your child and situation. And here are some timely activities from the same resource – A Next Comes L – with activities to do at home in the month of April.
Homeschooling
One of the biggest changes the Coronavirus has brought on us is the closing down of schools. Parents are now tasked with continuing the education of their kids! For some that may come easy, but for most, it’s a whole new world, especially if your child has an IEP! So, in addition to whatever your child’s school is providing, we’ve compiled a list of resources that address this new educational reality facing parents. (*Note: Full disclosure, I have a daughter in 3rd grade. She also has Down syndrome. We already tried a few of these resources. I highly recommend you check them out!) If you’re wondering how to structure their day, or need worksheets to keep them busy, or want some interactive online lessons, and more, take a look at these tools.
And here are some fun entertaining, while educational resources – watching webcams of animals at the National Zoo, or of sea life at the Georgia Aquarium.
Therapy Resources
If your child is not receiving their typical therapies like OT and PT, definitely check out The OT Toolbox. From fine motor activities to sensory processing resources, they have some amazing supports in their Parent Toolbox! And OT/picky eater expert and blogger at Your Kids Table provides some survival tips for parents during this social distancing time.
Get Moving
Being cooped up inside all day every day will make anyone go stir crazy. So you definitely will need to work in some time to get moving. Whether you go for a walk or play in the backyard, or use one of these online resources, these are great tools to keep kids moving during this self quarantine period. Stretch, move and bring a sense of calm through yoga from Cosmic Kids. A favorite “brain break” in many schools, GoNoodle, can help get the wiggles out to focus on their next task. And Fluency and Fitness combines academics with movement, reinforcing learning, while getting up and moving!
Specific to Autism
In addition to the social story linked above, here’s a list of activities to keep a teenager with autism busy while they are out of school. And above we included resources from A Next Comes L. Sign up for her newsletter to get lots of great resources during this Coronavirus shelter-in-place!
We have some additional resources we will be providing our client families in the coming weeks, too. We are developing a stress management webinar to equip parents during this understandably stressful time. Additionally, we’re planning on a companion stress management blog post. So stay tuned for that!
We are in this together and are developing unique ways to support our community and network during this unique and trying time.
If you found this information helpful, we’d love it if you’d share it with your friends and family!
