How to Explain Death to a Child with Autism

image of grave headstone, explaining death to a child with autism

Losing a loved one, whether it is expected or not, is hard for anyone to navigate. It’s a process that involves accepting reality, seeking support if necessary, and allowing yourself time to feel natural emotions. So it’s not surprising that explaining the death of a loved one to a child with autism may bring some additional challenges.   

Death is a difficult concept for any child to understand, let alone those who may have a hard time grasping abstract concepts. But death and loss are also unavoidable. That’s why we put together some tips to help your child with autism or special needs understand and deal with the process of losing a loved one.  

Be literal and thorough when explaining the loss 

When explaining the death of a loved to your child with autism, use literal terms. This may help the death make more sense to them.  Avoid using terms such as “passed away”, “gone to sleep”, or “gone to another place”. Using these terms risks your child taking them literally and becoming frustrated when their loved one doesn’t wake up or come back.  

Be direct when you are explaining the passing of a loved one to your child. The more direct you are, the easier it will be for them to understand. Allowing room for questions is key here and answering them honestly to the best of your ability should take priority.  

Keep routines as unchanged as possible 

Change in routines can be particularly challenging for individuals on the spectrum. The death of a loved one is a major life changing event. That’s why it is best to keep everything else within their routine as consistent as possible. People with autism find comfort with routine, and comfort is something we all strive for while grieving. Bedtime routines, playdates with friends, school and therapy may be part of daily routines. You should try your best to maintain these activities if they bring your child peace. 

Involve them  

When helping a child (with or without autism) through loss and grief, it may seem best to exclude them from certain parts of the process, like attending a funeral with an open casket. While it largely depends on your child’s level of cognitive understanding, as well as your expertise in making the best-informed decision for your child, many professional sources suggest that shielding a child with autism from the complexities that come with loss will likely confuse them more. These sources suggest being transparent and asking your child if they would like to be part of a certain aspect (like the funeral, wake, or burial). With this, allow them to ask any questions they might have.   

Another good option, as Alicia says in The Mom Kind, is “to have a celebration of life that they can attend instead of the funeral”. Doing this, Alicia says, “allows involvement without having to see all the grief”.  

Prepare them, if possible  

If you know that a family member or loved one is terminally ill, try and familiarize your child with all the places they will be during this time. This could be places like the hospital, funeral home, or cemetery. Remember to talk about the emotions they will see from others throughout the process. A great way to do this could be through pre-made “social stories”. Social stories use photographs to help explain and show the child what will happen before it happens in real-time. These photographs and descriptions of the photographs can include emotions that they will observe of others. More information on constructing a social story can be found here.  

As we know, children who are on the spectrum can have an especially difficult time dealing with the unexpected, so it is a good idea to make the loss as “expected” as possible. Of course, this may not always be possible and sometimes a loss can be sudden. In this case, you can still do your best to show and tell your child what to expect. Use any photos you have available or pictures online to do this. More ways to prepare your child for loss and help them understand it can be found in this article from Child Bereavement UK. 

Utilize books that help explain loss 

When it comes to bereavement and children with autism, a lot can be gained from books that are specifically made for this life event.  

The 2017 book, I Have a Question about Death: Clear Answers for All Kids, including Children with Autism Spectrum Disorder, is a straight-forward, color-filled read that addresses the questions that concrete thinkers might have surrounding death. It answers them in a simplistic manner. This book has an abundance of good reviews from parents who have had to explain this topic to their children. We recommend it as well!  

Another book that is a good choice for the topic of grief is the interactive workbook, Finding Your Own Way to Grieve by Karla Helbert. This book is unique in that it encourages expressive techniques and exercises to help your child identify and process the feelings that accompany loss. This book is perfect for children and teens to work through on their own. They can also use it with the help of a parent or professional. Find this book here. 

Lastly, How People With Autism Grieve, and How to Help: An Insider Handbook, is best suited for teens and young adults who need security and affirmation after losing a loved one. Though the book only bases suggestions off one person’s unique experience, it can prove helpful in relating to what your child might be feeling emotionally. Find out more about it here. 

Takeaway

We all have different ways of dealing with loss. It’s important to make it known to your child with autism that there is no “right” or “wrong” way to respond to the death of a loved one. The most vital thing, though, is to ensure that your child knows there is support around them and that they have people to talk about it with when they feel sad or confused.  

Your 2023 Autism Reading Guide

Find out about the latest books on autism to add to your reading list!

With the chilly months upon us again, many have started looking for new books to read this year. To help you build out your reading list, we’ve researched the latest books about autism published since our book list in 2020 to create a new autism reading guide for the year. There are several books for parents as well as books to help autistic kids, tweens and teens. Take a look at some of the latest books about autism to add to this year’s reading list.  

For Parents 

We know that navigating the world of autism as a parent can present many unique challenges. Parents of all kids don’t always know how to handle the needs of their children. But having a child with autism adds unique needs that can be difficult to navigate. However, there are several new books about autism released in 2021 and 2022. These are written specifically to be beneficial to you as a parent of a child with autism. 

Navigating Autism: 9 Mindsets For Helping Kids on the Spectrum by Temple Grandin and Deborah Moore 

Joined by psychologist Debra Moore, Dr. Temple Grandin explores various mindsets that are effective when working with kids and young adults on the autism spectrum. You’ll find personal stories from Grandin with anecdotes from parents who have sought her insight. You’ll also discover advice from Moore who has 30+ years of experience in psychological work with kids on the spectrum. Not only is this a good read for parents, but helpful for anyone who impacts the lives of children on the spectrum. Check it out on Amazon. 

We’re Not Broken: Changing the Autism Conversation by Eric Garcia 

Writing from personal experience, Washington D.C. reporter and journalist Eric Garcia helps give readers a better understanding of life from the perspective of an autistic person. Through this, he informs them on effective ways to help those on the spectrum. In this book, Garcia breaks down popular myths surrounding autism and uses historical facts to support his claims. For anyone who is interested in learning more about autism to better help a loved one, this book is available here.  

It Takes a Village by Amy Nielsen 

Educator, writer, advocate and mother of four children, including one with ADHD and Autism Spectrum Disorder, Nielsen uses her experience as a chance to help parents and family members of children with exceptional needs learn to build a strong support system. Nielsen covers how to make these important connections. In addition, she takes time to explain the importance of them in the special needs community. Having an emphasis on family involvement, the book includes worksheets to help readers track their progress in creating a support system for their loved one(s). To find out more about this book, go to It Takes a Village. 

For Kids, Tweens and Teens 

We are thrilled to find so many new books about autism specifically written for kids, tweens and teens! Here are a few released within the past couple of years to build out a reading guide for your tween or teen with autism. 

I am Autism “In the classroom” by Blake Carter Desiree 

Written by a child who has an ADHD and an autism diagnosis, Desiree delves into what school life is like. He goes on to explain how his diagnoses makes life difficult for him as a different learner. This book provides perspective that could be impactful for helping neurotypical children better understand neurodiverse peers. Desiree’s story can also help a neurodiverse child feel more understood and supported in a classroom setting. I Am Autism is available here.

When things get too loud: A story about sensory overload by Anne Alcott 

This book is an excellent option if you are seeking an educational, vividly illustrated story that can be read to both neurodiverse and neurotypical children. This read is created specifically to help children understand and learn emotional regulation skills. It beautifully explains coping strategies for any child who may struggle with overstimulation and sensory-processing issues. This book is highly rated for its inclusiveness and thoughtfulness. Find When Things Get Too Loud here.

This Is Me! I am who I’m meant to be by Amy Pflueger 

With her knowledge and experience, Pflueger, an advocate and mother of two autistic sons, wrote this book primarily for autistic children to relate to and help them better understand why they might be “different” than their peers, as they learn to engage in a world that’s already full of challenges and surprises. It promotes self-acceptance and is also a great source for siblings and classmates of autistic children. It can help them to better acknowledge, accept and understand autism on a deeper level, all while using simplistic and digestible words and pictures. If you’re looking for an awesome, educational story to share with your child, you can find this book here. 

Have you picked up a new favorite book about autism that we don’t have here? Let us know in the comments! 

And we hope you learned about some new books and resources through this year’s autism reading guide. If so, please share it with your community! 

Success Stories of Individuals with Autism

Autism Success Stories
Autism Success Stories

We live in a world where it is so easy to think about the negative values of something or someone. That’s why it’s crucial we prioritize the positive aspects. This is especially true for people with autism. There is a reason it is called autism spectrum – each individual is born with their own unique traits and abilities. Some on the autism spectrum may also have an intellectual disability. However, it’s important to note that around 44% of those diagnosed with autism have average or above average IQ. So why wouldn’t there be several remarkable success stories of individuals with autism?   Here we hope to share some inspiring examples of people who have used their autism diagnosis to excel in their passions.  

Temple Grandin 

Starting out with a more well-known story within the autism community, Temple Grandin is a renowned American author and educator. She speaks on the treatment and behavior of livestock animals, as well as a public speaker and advocate for autism.  

Grandin was not “officially” diagnosed with autism until much later in her life. At this point, she already had a successful career she had paved for herself. She accomplished this despite hurdles that were uncommon for children to have at the time of her upbringing. These included speech delays and social skills challenges.  In the face of these hurdles and the bullying they evoked, Grandin discovered what she was passionate about – science.  

She went on to receive several degrees on the topic and remains teaching to this day. In a quote from one of Grandin’s books, The Autistic Brain: Thinking Across the Spectrum, she explains that autistic kids often have uneven skills. “Parents get so worried about the deficits that they don’t build up the strengths, but those skills could turn into a job,” according to Grandin. She adds that “we need to be a lot more flexible with things,” when it comes to what we label as a “disability.” This way of thinking is at the foundation of Healing Haven’s values. We focus on our clients as kids and teenagers first, not their diagnosis. And we celebrate their unique strengths that come through neurodiversity. 

More stories of successes like Grandin’s are available here.  

Alexis Wineman 

Alexis Wineman is the first woman with autism spectrum disorder (ASD) to participate in the Miss America competition, according to Centers for Disease Control and Prevention. Wineman’s story presents the perspective of being the only member of a large family to have an autism diagnosis. Her story focuses on what it is like to grow up with the support of neurotypical siblings. She also highlights the key role that siblings can play in the life of an autistic child.  

Wineman’s sister, Danielle, said her advice for someone who has a sibling with autism is “to become a solid shadow for your sibling.” She points out that “when you’re diagnosed with autism, it’s a diagnosis for the entire family and not just that person.”  

Another sister of Wineman’s, Kimberley, said that it is valuable to “engage them (your sibling with autism) and help them find their niche.” Wineman’s brother, Nicholas, said that he has learned and developed the skill of empathy due to growing up with his sister.  

There can be endless advantages of having a family member with autism. And there is no doubt that a diagnosis can also strengthen a family. Comparable stories to Winemans are available on the Centers for Disease Control and Prevention website.  

We love hearing these sibling perspectives and agree that an autism diagnosis impacts the entire family. In fact, it’s another one of our company values – to serve the entire family through parent training and counseling for parents and siblings. 

Clay Marzo 

Clay Marzo is an American professional surfer. He was diagnosed with Asperger syndrome as a teenager (before that designation was removed from the diagnostic definition in the DSM-5). Clay is known for his “unique ‘double-jointed’ style of turns and spins”. Marzo has “been hailed for his creativity with the board and his innovative maneuvers,” according to Autism Treatment Evaluation Checklist (ATEC) Sierra Leone.  

 In addition to features in several surfer films, Marzo is also in a documentary, ‘Clay Marzo: Just Add Water‘. The documentary delves into his life as a competitive surfer and a person living with autism spectrum disorder. He also volunteers with the non-profit organization Surfers Healing. The organization creates opportunities for children with autism to experience surfing through surfing camps in the United States and Canada.  

Other stories like Clay’s are in this Lifehack article.  

Dani Bowman 

Dani Bowman is a writer, artist and motivational speaker who is on the autism spectrum. Creating an animation empire, she founded DaniMation Entertainment at age 14 in 2009. She has several professional degrees and is a powerful voice for those on the autism spectrum.  

Bowman is also on Netflix’s ‘Love on the Spectrum,’ where she shares much about her personal interests. In this, she brings attention to the struggles she faces to find a potential life partner. She expresses the complications of not only finding someone who relates to her but who understands and accepts her romantically.  

Further information about Bowman and her work is available on her company website.  

Katie 

Katie is currently a young adult on the autism spectrum. She grew up working closely with Healing Haven’s founder, Jamie McGillivary. Jamie credits her journey working with Katie as what helped shape her into the person she is today. Jamie’s experiences with Kaite as child inspired her career path and the creation of Healing Haven. Katie worked as an administrative assistant for the company and also worked at her local library.  

Katie spoke at a Healing Haven Open House and shared her story with guests that included parents, doctors, and professionals. “I’m here tonight to tell people you shouldn’t underestimate people with disabilities. Through hard work you can live your dreams. Your child could have a bright future. Tonight, I can live my dreams such as being independent, working as an administrative assistant, and now being a public speaker.” You can read more of her story in this blog article, Never Underestimate Individuals with Autism.  

Katie is an inspiration to all at Healing Haven and everyone who knows her personally. 

Raising Expectations

We hope these stories inspire and offer hope for you and your child or loved one with autism.  An autism diagnosis comes with a broad range of potential struggles as well as unique strengths. An average of 28% of our clients at Healing Haven graduate from our services or titrate down to needing lesser services. We work to make sure clients are as well-equipped as possible to thrive in their educational journey and prepare them for life beyond school.  

There are many success stories of individuals with autism we should celebrate. But even if your child may need extra support, we all can work together to highlight the possibilities and help raise expectations for those impacted by autism. Incredible things can be born from the “bounds” of difference. 

We would love to hear any stories you might have to share. Please feel free to comment below! 

Great Gift Ideas for Autistic Children

With holiday season fast approaching, it’s time to scheme gift ideas! But finding useful and entertaining gifts for kids with autism can be tricky. For the past few years, we’ve compiled lists of gift ideas for autistic children. These categorized suggestions come from experts at our clinics as well as popular preferences from our clients.

A few things to note: Remember to consider the child’s interests and developmental stage. If they love a certain character or sport for example, find something that includes that. Or if they are intrigued by a certain sensory experience, such as fluffy or smooth items, gift from those categories. Their developmental stage also might not match age-appropriate toys and activities, so keep in mind what they might enjoy based on their abilities and interests.

Here is your guide with great gift ideas for an autistic child (or teen)!

Gifts that encourage movement

Many kids with autism often need to incorporate lots of movement into their day to counteract sensory issues. Try an anti-burst peanut exercise ball for core strength development and calming deep pressure, or a balance board for balance and coordination.

Additionally, according to one of our Occupational Therapists, jumping is an excellent way for kids to get sensory input. She suggests a monkey jump, where small children can engage in a game of Five Little Monkeys. A mini trampoline is another fantastic go-to option for kids who need to get energy out.

Sensory gift ideas

Water beads are a huge favorite of our clients. After expanding in water, put them in a bin and let kids run their hands through them for some mesmerizing sensory fun.

Sometimes a child with autism finds solace with alone time. Make a peaceful haven in a tent that you can fill with pillows, stuffed animals, or any other objects that help your child experience calm.

Poke-A-Dot books offer interactive sensory input while enjoying a story. Children can pop the dots on each page, which is a great opportunity for fine motor skills.

If your child often gets overstimulated and likes body pressure, try a weighted vest, blanket, or neck wrap. The added weight can aid in focus and help kids feel safe and secure.

Toys that support fine motor skills

Kinetic sand is a perfect gift for kids that like to squish, mold, and create—another favorite of our clients. As opposed to real sand, kinetic sand prevents big messes as it sticks together. Scoop into molds or build little creatures and sandcastles for fine motor practice.

Do you have a child who loves taking things apart and putting back together? Check out this take-apart car, complete with a drill. Our OTs utilize these cars during sessions to encourage fine motor skills. The car can also go for a drive when construction is completed, offering an enticing reward at the end of a task.

Do.A.Dot markers help kids work on fine motor skills through learning to hold and control something in their hand. With a sponge tip applicator, they are also mess-free! These markers are a great option for quick art projects.

Gifts for tweens and teens

Many of these gifts work for younger children, but may not satisfy needs of older kids and teens with autism. Finding gifts for teens can be difficult, but we suggest fidget-friendly items than can ease stress. As kids get older, they need to concentrate longer on tasks. Gifting a fidget spinner, a Kinekt gear ring, or finger fidget pencils can therapeutically relieve extra energy and stress when trying to focus.

Stocking stuffers

Try these smaller items to stick in a stocking. “Pop-its” are all the rage right now, for both neurotypical and autistic children—we see many around our clinics! Therapy putty often comes in a small container for easy transport to pull out and squish when needed. Our clients also enjoy stretchy tubes that pop and bend. For kiddos who like to mouth items, try packs of fun-shaped chewies such as these shark teeth. An anti-stress toy like this cool fidget or a liquid timer can simultaneously entertain and ease sensory induced anxiety.

Gift ideas to treat parents

If you’re planning to give to a child with autism, it’s a nice gesture to gift their parents as well. Parents of kids with special needs often endure a lot of stress. Self-care and fun experiences are excellent options, such as a manicure/pedicure, a massage, restaurant gift cards, or movie gift certificates. A relaxing night out is often a wonderful gift for parents, given all they balance!

We hope we’ve helped take some of the stress out of your holiday shopping this year with these great gift ideas for autistic children. For even more gift suggestions, be sure to check out all our holiday gift guides.

More Autism Friendly Vacation Ideas

Our blog post – Top 5 Autism Friendly Vacation Spots – was one of our highest trafficked posts for that year. So with more hotels, resorts and theme parks making efforts to provide an enjoyable and safe experience for families impacted by autism, we decided to do a follow-up post with even more autism friendly vacation ideas.

That previous post included Sesame Place®, LEGOLAND Florida, Surfside Beach, South Carolina, Dollywood and Tradewinds Resort. We also did an addendum to share about VillaKey, provider of autism friendly vacation rentals in Florida.

Thankfully we are seeing lots of places becoming “autism friendly” – and when they make these efforts they are creating inclusive places for everyone to enjoy. Hotels, resorts and theme parks are providing training for their staff about autism. They are creating quiet rooms and sensory rooms for individuals who get overwhelmed and need a place to relax. They are adding safety measures for kids who are prone to wander. All of these thoughtful efforts benefit families with an autistic child, but also kids with Down syndrome and even typical kids. By doing so, they are opening up vacation opportunities for families who never dreamed of going to some of these places.

So here are a few more autism friendly vacation ideas to add to your list.

Heading to Florida

Disney World – Orlando 

Disney World is a destination for many families with young children. For those with an autistic child, Disney has some accommodations to help make your time there more enjoyable. If you are considering a vacation there, look into their Disability Access Service Pass that allows pass holders to avoid lines at rides. They also have Disney’s Strollers as Wheelchairs program, which is a special safety measure for kids who wander, or who need a familiar seat to feel safe and secure. For qualifying children, this program allows kids to remain in their strollers while on a ride or visiting an attraction. Disney also offers a visual guide of the park for individuals with disabilities that you can download before you go. There are a number of additional accommodations for individuals with autism, like Rider Switch, Break Areas and Companion Restrooms.

Discovery Cove – Orlando 

Earlier this year Discovery Cove, Orlando became a Certified Autism Center. Discovery Cove is SeaWorld’s all-inclusive family resort. They have created accommodations and supports for individuals with autism and other sensory needs. As explained on their website – staff receive specialized training to ensure all guests have an enjoyable experience. Training focuses on: sensory awareness, motor skills, autism overview, program development, social skills, communication, environment, and emotional awareness. They offer a Sensory Guide that provides details on their attractions and how a person with sensory issues may respond to each experience so that families can plan accordingly. Another benefit Discovery Cove offers is they limit the number of daily attendance of 1,000 guests. So crowd control is built into how they operate.

Kennedy Space Center Visitor Complex – Merritt Island

In 2023, Kennedy Space Center Visitor Complex became an IBCCES Certified Autism Center. Located just East of Orlando, this unique NASA experience provides a comprehensive Sensory Guide to help plan your visit with sensory-sensitive individuals or children. It also offers complimentary noise-reduction headphones on a first-come, first-served basis to those with hearing sensitivities. Explore the various adventures this attraction presents, guaranteed to pique the interest of every family member.

Closer to Home

Cedar Point

At just over 2 hours away from Metro Detroit, Cedar Point’s autism accommodations can provide for a great get-away for families. Known as the Roller Coaster Capital of the World, they also provide some great services for families with an autistic child or other disabilities. They offer a Parent Swap ride program and KidTrack is a wristband program if your child is known to wander. There is a Family Care Center and other places for a quiet place to take a break and cool down. Additionally, there are several Family Restroom facilities for those who need support. You can download the Cedar Point mobile app to check on ride wait times, attraction accessibility, events and more. And for overnight stays there is Cedar Point’s Hotel Breakers that provides many features to make it a fun get-away.

Hersheypark

For a little bit longer trip but still a doable drive for a long weekend, Hersheypark is about 7 hours from Metro Detroit. They partnered with Parent to Parent of Pennsylvania to make sure their park and attractions are accessible to individuals with disabilities. One feature is their Ride Accessibility Questionnaire – families can answer some questions to receive a detailed list of the rides and attractions suited for your personal family situation. They have several Quiet Areas throughout the park to provide a private place for those who may become over stimulated. Additionally, guests can download a Rider Safety & Accessibility Guide ahead of their visit. And if you have dietary restrictions, you can learn about their allergen information and dining options.

Going Above and Beyond

Morgan’s Wonderland

A park designed to cater almost exclusively to children with special needs? That’s Morgan’s Wonderland, in San Antonio, Texas! It is the world’s first “Ultra Accessible Theme Park”. The park offers an impressive number of traditional and adaptive rides, swings, and activities to suit all ages. Additionally, they have a Sensory Village, and entertainment that teaches messages of inclusion and kindness. And most importantly, children with special needs, including autism, receive free admission! It may be time to start planning a Texas vacation.

International Adventure

Beaches® Resorts

Beaches® is the first IBCCES (International Board of Credentialing and Continuing Studies) and Autism Certified resort company. Their resort locations in Jamaica and the Turks and Caicos islands offer specialized service to families with children with autism and other special needs. These services include mealtime accommodations such as custom dietary needs, kids camps for children of all abilities, and staff trained in autism needs, sensory awareness, motor skills, and more. Additionally, Beaches® partners with Sesame Street® and Autism and offers activities with Julia, the first Sesame Street® character with autism.

Shannon Airport, Ireland

If you’re thinking of traveling through Ireland, be sure to consider Shannon Airport as a thoroughfare! Ireland’s Shannon Airport provides an awareness program for kids with special needs, ensuring a smooth airport experience. Through this program, kids and those with special needs can access a 24-hour sensory room.

In conclusion, many resorts, theme parks and hotels are understanding the needs of autistic individuals. So we hope these autism friendly vacation ideas help spark your imagination to plan a get-away for your family that everyone will enjoy! And let us know if you’ve found another vacation spot that was perfect for your family.

If you found this information helpful, we’d love it if you’d share it with your network!

Building Skills For Your Autistic Teen’s Future

building skills autistic teens

ABA therapy programs often focus on younger children through establishing communication and social skills, as well as managing behavior. While early intervention is incredibly important for young kids with autism, not many ABA providers serve tweens and teens with autism. However, it’s critical to provide environments where teens with autism can build skills for their future. Moreover, so many individuals with autism are often underestimated in professional and social settings when in fact, they have amazing gifts that positively impact companies and our world.

As a result, we at Healing Haven believe in teaching our middle and high school age clients valuable life skills. We want to empower them to contribute to society and share all they have to offer. To do this, we’ve re-launched some foundational skill-building programs in our Life Skills clinic and are expanding on new opportunities.  

Life Skills Clinic Programs

Café and Grocery Store

Before the pandemic, we operated an internal Café where our clients learned how to bake cookies and brownies and make coffee. The program involved  learning how to take orders from parents and staff, operate a cash register, practicing taking money and making change. This program was paused over the past two years, and we are excited to bring it back.

In addition to the Café return, we are creating a mock grocery store, coming later in the summer. Some clients will have the chance to operate the cash register to practice job skills. Other clients might use the grocery store to learn how to independently shop for groceries. After practicing paying  for their groceries, clients can make a tasty treat by following a recipe in the Life Skills kitchen. To further acquire social and vocational skills, clients can also serve the treats to peers, staff and parents at the Café.

Motor Room

Our Motor Room will feature crafting projects, such as building different toys from scratch or by following instructions from a kit. Clients will have the opportunity to create bird houses, garden boxes and more. We plan to eventually establish a room where the items made in the Motor Room can be jazzed up through painting and decorating.

Computer Lab

We are creating a computer lab where teens with autism can learn technology skills. They’ll practice checking and writing emails, creating documents and slideshows, entering data into Excel, etc.

We also want our clients to have an active role in stock management of building and grocery store materials. Computer use comes in handy for this as well!

Gardening Room             

In the Gardening Room, clients can practice planting, arranging, and caring for their own flowers and vegetables. We will expand our current outdoor garden as well.              

Classroom

Another feature of our Life Skills clinic is our Classroom. It’s set up like a school classroom with desks, a whiteboard, and a smart board. Clients socialize and interact with their peers and learn to take instructions from the group leader. The group leader plans and implements activities for the clients that incorporate social and living skills. It’s a blast in the Classroom! Teens and tweens participate in chat time, games to practice turn taking, crafts to work on following instructions, and even karaoke as a self-expression and performance opportunity. The Classroom serves as a place for teens with autism to practice the skills they need in school, jobs, and life altogether.

We are beyond excited to re-open these Life Skills building programs and continue to develop new ones. It’s incredible to watch our older kids thrive in an environment that helps set them up for success. And if you are interested in your teen or tween receiving therapy services, please reach out to us here.

What Is Chaining in ABA Therapy?

Chaining in ABA Therapy
chaining ABA therapy

Have you ever felt overwhelmed learning something that requires multiple steps? Maybe it’s taken you multiple tries to learn how to change a flat tire. Or maybe you still need to follow all the steps to make your grandma’s Thanksgiving gravy recipe, while she knows it by heart. In short, it’s hard to master multi-step processes all at once.

For a child with autism, even daily tasks we deem as second-nature may take a lot of work to learn. Not to mention, it can be hard for you as the parent to teach your child these everyday functions. Perhaps you want to teach your child more independence. This is why breaking down complex tasks into steps can be incredibly helpful. In ABA therapy, we call this “chaining.”

The process of chaining provides a smooth path for learning multi-step tasks. But chaining isn’t just meant for ABA therapy. Parents like you, as well as teachers or any other caregivers, find chaining effective in helping kids acquire daily skills.

What is chaining?

Chaining is the active process of stringing together a series of skills in time. When we consider how to teach a skill, the first step is to look at how it can be broken down into smaller components. This is called a task analysis. The components are then linked or “chained” together in a particular order. Research proves chaining is highly efficient for children learning multi-step tasks.

Breaking down tasks, can make learning more rewarding and easy for children with autism. For example, when brushing your teeth, you need to put toothpaste on the toothbrush. But a child with autism might need specific details on how to do that step, such as “Take cap off of toothpaste and squeeze on toothbrush.”

For example, here is a step-by-step task analysis for brushing teeth to be linked through chaining:

  1. Take cap off toothpaste.
  2. Squeeze toothpaste onto toothbrush.
  3. Turn on water and get toothbrush wet.
  4. Brush top teeth.
  5. Brush bottom teeth.
  6. Spit into sink.
  7. Sip water and rinse mouth.
  8. Spit water into sink.
  9. Put away toothbrush and toothpaste.

Types of chaining in ABA therapy

Forward

Forward chaining in ABA therapy teaches behavior in chronological order. Each step is reinforced one at a time until that step is mastered.

For example, when teaching a child to dress themselves, start with the step, “Put on underwear,” or whichever piece of clothing goes on first. Praise the child for their effort, even if it takes them a while or it’s a struggle. Then assist them with all the following steps and identify each of them (“Now we’re going to put on pants/shirt/shoes”).  Once they have mastered putting on underwear independently, focus on high praise for the next step until mastered and so on until the child can perform each step without assistance.

Backward

Backward chaining is the opposite of forward chaining. Instead of reinforcing the child for the first step completed independently, a caregiver reinforces the very last step.  

In the same example of a child getting dressed, the caregiver helps the child put on underwear, pants, shirt, and socks. The final step is putting on shoes. When the child can get their shoes on independently, give them lots of praise just as in forward chaining. Once shoes are mastered, work on socks, and so on backwards through the task analysis. Teaching in a backwards order ensures you always end the task on a positive.

Visuals for Task Analysis and Chaining

Visual aids are helpful for chaining and following task analysis. They’re a reference for kids to use as they work on mastering skills. If you went into the bathroom in our clinics, you’d see laminated task analysis visuals for brushing teeth and washing hands posted on the mirrors in the bathroom that look like this:

brushing teeth task analysis

You can create your own colorful, fun visuals such as this one to motivate your child!

In conclusion, chaining in ABA therapy helps both children and caregivers by establishing the child’s independence in daily tasks. Chaining can be used in a child’s ABA program, but also at home, school, or any other place they might spend time. Be sure to reach out to your child’s BCBA if you need help creating a visual or need modeling on how to incorporate chaining into your child’s daily routines.

Click here for more information on our ABA therapy programs.

Eating Issues and Autism: 5 Tips to Help

eating issues and autism

Parents of children with autism know eating issues all too well. From mealtime tantrums to picky food preferences, dealing with the eating issues that come with ASD can be a major stressor. However, rest assured that these issues can be addressed by seeking support, establishing routine, and lots of patience.

Food selectivity

Children with autism often have selective food preferences. According to our Director of Clinical Standards, Jennifer Thomas, Ph.D., BCBA-D, LBA, these preferences can occur due to learning, tactile, and/or olfactory sensitivities. Children might prefer soft foods like yogurt or soup, or crunchy textures like snack crackers. Another common preference of children on the spectrum are foods with high starch and sugar content such as snack foods. “Sometimes, the way a food tastes or feels in the mouth, or the way it smells is aversive to kids and therefore physically challenging to try new things,” Dr. Thomas explains.  

Not eating enough

Sitting through a meal and finishing food can be a challenge for kids with autism. As a result, kids may not receive the calories and nutrients they need to maintain health. Chronic malnutrition can lead to physical, emotional and cognitive decline.

Inflexibility in trying new foods

Autistic children may avoid entire food groups such as fruits and vegetables. When parents attempt to introduce non-preferred foods, challenging behaviors often occur. This can make mealtimes difficult for the whole family and eating out undesirable.

From these eating issues come behavioral and health issues such as:

Challenging behaviors

Parents often experience behaviors at mealtimes, such as their child consistently getting up from the table, crying, or throwing food or utensils.

Nutrient deficiencies

Lack of nutrients can cause several health issues, such as difficulties in cognition, iron deficiency, constricted physical growth, and an increased probability of obesity and heart disease. Dr. Thomas also points out that kids are more likely to get sick and take longer to recover because the immune system isn’t as strong without nutrients.

GI issues such as constipation

The struggle to help your child eat well is hard enough. In addition, parents may try to accommodate to their child’s eating issues, such as packing preferred food during restaurant outings or gatherings. Accommodating to eating issues may cause increased stress and relationship strain in parents.

Parents often find it easier to simply give their child preferred foods rather than battling behaviors to change eating habits. But it’s important to know that the longer these issues become ingrained the harder they are to address in the long term.

5 Tips to Address Eating Issues

1. Make mealtimes routine

Kids with autism often thrive with routine. Help them know what to expect by serving meals at the same daily time. You could give your child reminders 30 minutes to 5 minutes before meals to prepare for the transition. It’s great to involve your child in meal preparation, such as having them set the table or help cook if they enjoy it. Give your child choices during mealtimes by letting them select a food to serve or choose where they sit at the table.

2. Keep introducing non-preferred foods

Continue to offer non-preferred foods in small amounts. It’s tempting to simply remove them altogether in order to avoid behaviors. But it’s important to continually give your child opportunities to try the new foods. Shape behaviors by starting small. For example, have your child try one grape or half a carrot. Give lots of praise for their effort of trying and remember it’s ok if they don’t like it right away. “It’s also okay if they don’t eat the new food right away,” Dr. Thomas adds. “Even if they touch the food, or smell it, it’s a step closer to the goal. It’s important to be gentle about the process so food avoidance doesn’t increase.” For example, the novel food can be placed on a separate plate near your child throughout the meal, though they do not need to eat it. Having a special reward for trying something new, or even just tolerating something new nearby, can help move things along faster.

3. Keep reasonable expectations for mealtime

Changing behaviors and your child’s food preferences will take time and patience. Try not to expect big changes all at once. In the meantime, model your expectations for your child. Perhaps you’d like them to sit at the table for a minimum length of time and gradually increase that time. Keep phones and toys away from the table to demonstrate focus at mealtimes. Ignore non-desired behaviors as long as they are safe.

4. Give LOTS of specific praise!

Praise your child consistently for anything they are doing (or not doing) to increase desired behavior. Give specific praise such as “I love how you are sitting so calmly at the table,” “Way to go trying that bite of food!”, or “I’m proud of you for eating those two more bites.” There is most likely always something for which to praise your child!

5. Consult your child’s pediatrician

Eating issues and autism aren’t always preference based. Medical issues are often a culprit, such as acid reflux or allergies. Be sure to consult your child’s pediatrician if you suspect health issues.

Though navigating eating issues in children with autism can be tricky, you are not alone in the journey. And it doesn’t have to be so difficult—the trajectory can change! Seek out resources and support for not only your child but for yourself as well.

Receiving an Autism Diagnosis: What To Do Next

autism diagnosis what to do next

You’ve just received an autism diagnosis for your child. You may be feeling a mix of emotions, from shock, fear, guilt, overwhelm, confusion, or perhaps relief and clarity. Whatever may be going through your mind, know that you are not alone in this journey. You are one of thousands of parents navigating the reality of having a child with autism. This journey brings both joy and struggle, and we are here to help you through it.

In the meantime, here are some helpful steps to take.

Learn about ASD

According to recent 2021 findings by the CDC, 1 in 44 children are diagnosed with Autism Spectrum Disorder (ASD). ASD can cause social, communication, and behavioral challenges. Yet symptoms of autism greatly differ from person to person.

Social

Social challenges within ASD may include making eye contact, lack of recognition of nonverbal cues, lack of emotional facial expressions and obsessive interests.

Communication

Communication challenges may include difficulty developing language skills, understanding others, slower tempo of speech, and making appropriate facial expressions.

Behavioral

Behavioral challenges may include repetitive behaviors such as hand flapping or rocking, sensory processing issues, aversion to touch, rigidities in routines, emotional meltdowns, refusal to follow demands, and self-injurious behavior.

In addition to the above, children diagnosed with autism may also struggle with fine and gross motor skills, such as balance and grasping objects. This can also lead to difficulty acquiring daily living skills like dressing, brushing teeth, writing and more.

If you are just learning about autism or want to continue educating yourself, check out these autism education and awareness organizations:

Autism Alliance of Michigan https://autismallianceofmichigan.org/

National Autism Association https://nationalautismassociation.org/

Find support for yourself

Receiving an autism diagnosis can cause stress and worry in parents. It’s crucial to get support for yourself and your partner if you are going through this journey together.

Some ways to ensure you have support include:

  • Reach out to other parents of children with ASD to hear how they have navigated their journey
  • Taking time to process for yourself or with your partner. Maybe have someone watch your child(ren) so you can have space to take in the news of the diagnosis, sift through any information you’ve received, and formulate questions for medical professionals and autism specialists.
  • Seek counseling to help you process. At Healing Haven, we help parents process their child’s diagnosis through our counseling program. In counseling, parents identify triggers for stress, develop goals to manage stress, and learn to navigate relationships. Additionally, we have an ABA Parent Training program, created by our director, Jamie McGillivary. In this program, parents acquire stress management techniques while learning principles of ABA to help support their child’s development.

Seek therapeutic help for your child

Once a child is diagnosed, the evaluation team will often recommend various therapies to support the child’s development. It is important to check with your insurance plan to see what coverage your plan has for an autism diagnosis. The most common therapies recommended include the following:

Applied Behavior Analysis (ABA) Therapy

ABA focuses on developing social, communication, play and learning skills through positive reinforcement. ABA is one of the most common therapies used in autism treatment and is backed by 50 years of research. At Healing Haven, we provide high quality ABA therapy in our clinics. We believe in a more natural and holistic approach to help the child carry over what they are learning into other settings. We also leverage incidental teaching, utilizing the child’s natural interests and motivations.

Occupational Therapy (OT)

The goal of Occupational Therapy is to increase skills in daily living and the use of everyday objects (such as eating and drinking, dressing, writing, etc.) Benefits of OT for individuals with autism include sensory processing, focus, emotional expression, and independence in everyday tasks.

Speech Therapy

Speech Therapy treats speech and communication disorders. It is incredibly beneficial for those with autism, as ASD contains a wide range of communication abilities, from nonverbal to extremely verbal and talkative. Speech Therapy helps individuals communicate through picture icons, electronic talking devices, reading body language, asking and answering questions, and grammatically correct sentences.

Counseling

Some children and teens diagnosed with autism do not require more intensive ABA Therapy. However, they could benefit from individual counseling. This provides a space for those with ASD to process life challenges. In counseling, individuals with autism meet with a certified therapist specially trained in ASD issues. ASD clients learn coping strategies for frustration or anxiety, manage sensory processing issues, and developing social skills.

Create structure for your child

Individuals with autism function well within structured environments. If you haven’t already done so, start creating predictability for your child’s day.

Make a visual schedule for your child to refer to if they are anxious about what will come next in their day. You could fill it out together the night before or in the morning, for instance. There are hundreds of ideas and templates for creating fun, kid-appealing visual schedules. (Try these free printables!)

Another way to help your child with structure is giving time warnings before an activity ends. For example, if your child is engaging in play with a preferred toy or activity, give 15, 10, and/or 5 minute warnings. Setting timers might be helpful as well. This helps your child be aware that change is coming. They will also learn to emotionally regulate better with a heads-up, especially if sudden change can trigger meltdowns.

As mentioned before, you are not alone in this journey of raising a child with autism. Above all, the most important thing you can do is make sure both you and your child get the support needed. And it’s our team’s mission at Healing Haven to provide you that support. We are in your corner.

For more information, be sure to check out these blogs!

6 Ideas for Practicing Social Skills with Autistic Children

Communication and Autism: 4 Resources to Help

The Benefits of Organized Space for Individuals With Autism

Supporting Siblings of Children With Autism

Communication and Autism: 4 Resources to Help

Communication and speech are common struggles for some individuals with autism. Those who do not speak or who have great difficulty speaking may be considered “nonverbal,” while those who do speak are considered “verbal.” However, “non-verbal” is not an entirely accurate term. Those who do have challenges speaking may still understand words spoken to them, or use other forms of communication. On the other hand, those who can speak verbally may still benefit from additional communication methods.

ABA teaches functional communication in a variety of ways. It’s crucial that those with autism learn to communicate their wants and needs. Through learning effective communication, individuals receive the help they need to live their best life.

Communication and Autism

In ABA therapy, BCBAs (Board Certified Behavior Analysts), RBTs (Registered Behavior Technicians) and ABA Therapists teach communication skills based on the behavioral and learning needs of the client. Additionally, Speech Language Pathologists target more specific communication goals and skills. BCBAs closely collaborate with speech and language pathologists to choose what will best help the client. BCBAs provide input on the client’s behaviors which determines the final decision on which communication method will be best. Additionally, BCBAs help parents learn what they can do at home to assist their child in communicating.

Building a Foundation for Communication

A common concern of parents who have a child who struggles with speech is how to teach them to communicate their wants and needs. This is typically one of the first skills that BCBAs work on for a client who is new to ABA Therapy.

We asked one of our fantastic BCBAs for input on this subject. Batoul Dekmak, M.Ed, BCBA, LBA, stresses the importance of working on communication with kids. “All kids that walk through our doors are fairly communicative. However, a lot of time they communicate more with their behavior.” For example, children often get frustrated and engage in problem behavior due to difficulties in appropriately communicating with others. BCBAs take data on this behavior and apply it to the language and communication process. “As soon as a child begins therapy with us,” Batoul explains, “BCBAs, RBTs, and Speech Pathologists immediately start working on multi-modal communication including vocal language, gestures, AAC devices, and PECS® books. We want the child to express themselves as much as they can to navigate their world more independently.”

BCBAs and Speech Pathologists simultaneously model language to promote development of robust communication skills. An example of this is when a child uses an AAC device when playing with toys. The BCBA may comment on the child’s play using their device, such as “play dinosaur,” stating what the child is doing. This shows the child that the BCBA can also communicate using the device and how to comment on something. The goal for communication is to meet a child’s needs and wants, as well as the child gaining the ability to socialize with others.

Tools for Communication

Here are several common methods used to help children with autism communicate.

PECS®

PECS® stands for Picture Exchange Communication System®. In this system, the child gives a picture or word icon to someone in exchange for what they are requesting. Consider this example within the ABA setting. If a child wants a snack, they hand an icon of a preferred food to their RBT or BCBA who would then give them the item. PECS® icons are often stored in a three-ring binder with pages of laminated icons attached with Velcro. If you stepped inside our clinics, you would see several clients walking around with these binders, often attached to a strap for easy transport.

The goal of PECS® is for non-verbal children and those who are learning to speak to communicate their needs to caregivers in a simple way. To address changing stages of communication development, PECS® consists of six phases starting with exchanging icons through constructing sentences.

Augmentative and Alternative Communication (AAC) device

An AAC device is a tablet or laptop that contains words and images. When a child selects a word or image, the device “speaks” the input requested. Kids with autism who use AACs gradually build skills for how to use the device. They might begin with simple one-word requests then moving to more complex sentences. Kids work on these skills in ABA therapy under supervision of BCBAs and speech pathologists. There are multiple AAC software such as LAMP™ or TouchChat, offering different layouts and ways of selecting words to meet the user’s needs.

Sign Language

Sign language uses hands and facial expressions to communicate, a common form being American Sign Language or ASL. Along with PECS®, ASL stands as one of the most frequently used methods of communication for non-verbal children on the autism spectrum.

Speech therapy

Licensed Speech Pathologists lead speech therapy. Speech Pathologists work with parents, teachers, and BCBAs to determine the best methods of communication for the child. In speech therapy sessions, the pathologist will work with the client on skills such as conversation, articulation, social cues and how to respond. If a client has an AAC device or PECS® book, the pathologist will help them use their device or icons effectively. At our clinics, our speech therapists often utilize games, toys, and fun activities to engage clients in the speech therapy process.

After reading through all this information on communication and autism, you may feel unsure of which  method is best for your child. If you are interested in any of the mentioned tools, talk with your child’s BCBA. If you want more information on our ABA Therapy and speech therapy services, please contact us here.