Building Skills For Your Autistic Teen’s Future

building skills autistic teens

ABA therapy programs often focus on younger children through establishing communication and social skills, as well as managing behavior. While early intervention is incredibly important for young kids with autism, not many ABA providers serve tweens and teens with autism. However, it’s critical to provide environments where teens with autism can build skills for their future. Moreover, so many individuals with autism are often underestimated in professional and social settings when in fact, they have amazing gifts that positively impact companies and our world.

As a result, we at Healing Haven believe in teaching our middle and high school age clients valuable life skills. We want to empower them to contribute to society and share all they have to offer. To do this, we’ve re-launched some foundational skill-building programs in our Life Skills clinic and are expanding on new opportunities.  

Life Skills Clinic Programs

Café and Grocery Store

Before the pandemic, we operated an internal Café where our clients learned how to bake cookies and brownies and make coffee. The program involved  learning how to take orders from parents and staff, operate a cash register, practicing taking money and making change. This program was paused over the past two years, and we are excited to bring it back.

In addition to the Café return, we are creating a mock grocery store, coming later in the summer. Some clients will have the chance to operate the cash register to practice job skills. Other clients might use the grocery store to learn how to independently shop for groceries. After practicing paying  for their groceries, clients can make a tasty treat by following a recipe in the Life Skills kitchen. To further acquire social and vocational skills, clients can also serve the treats to peers, staff and parents at the Café.

Motor Room

Our Motor Room will feature crafting projects, such as building different toys from scratch or by following instructions from a kit. Clients will have the opportunity to create bird houses, garden boxes and more. We plan to eventually establish a room where the items made in the Motor Room can be jazzed up through painting and decorating.

Computer Lab

We are creating a computer lab where teens with autism can learn technology skills. They’ll practice checking and writing emails, creating documents and slideshows, entering data into Excel, etc.

We also want our clients to have an active role in stock management of building and grocery store materials. Computer use comes in handy for this as well!

Gardening Room             

In the Gardening Room, clients can practice planting, arranging, and caring for their own flowers and vegetables. We will expand our current outdoor garden as well.              

Classroom

Another feature of our Life Skills clinic is our Classroom. It’s set up like a school classroom with desks, a whiteboard, and a smart board. Clients socialize and interact with their peers and learn to take instructions from the group leader. The group leader plans and implements activities for the clients that incorporate social and living skills. It’s a blast in the Classroom! Teens and tweens participate in chat time, games to practice turn taking, crafts to work on following instructions, and even karaoke as a self-expression and performance opportunity. The Classroom serves as a place for teens with autism to practice the skills they need in school, jobs, and life altogether.

We are beyond excited to re-open these Life Skills building programs and continue to develop new ones. It’s incredible to watch our older kids thrive in an environment that helps set them up for success. And if you are interested in your teen or tween receiving therapy services, please reach out to us here.

Communication and Autism: 4 Resources to Help

Communication and speech are common struggles for some individuals with autism. Those who do not speak or who have great difficulty speaking may be considered “nonverbal,” while those who do speak are considered “verbal.” However, “non-verbal” is not an entirely accurate term. Those who do have challenges speaking may still understand words spoken to them, or use other forms of communication. On the other hand, those who can speak verbally may still benefit from additional communication methods.

ABA teaches functional communication in a variety of ways. It’s crucial that those with autism learn to communicate their wants and needs. Through learning effective communication, individuals receive the help they need to live their best life.

Communication and Autism

In ABA therapy, BCBAs (Board Certified Behavior Analysts), RBTs (Registered Behavior Technicians) and ABA Therapists teach communication skills based on the behavioral and learning needs of the client. Additionally, Speech Language Pathologists target more specific communication goals and skills. BCBAs closely collaborate with speech and language pathologists to choose what will best help the client. BCBAs provide input on the client’s behaviors which determines the final decision on which communication method will be best. Additionally, BCBAs help parents learn what they can do at home to assist their child in communicating.

Building a Foundation for Communication

A common concern of parents who have a child who struggles with speech is how to teach them to communicate their wants and needs. This is typically one of the first skills that BCBAs work on for a client who is new to ABA Therapy.

We asked one of our fantastic BCBAs for input on this subject. Batoul Dekmak, M.Ed, BCBA, LBA, stresses the importance of working on communication with kids. “All kids that walk through our doors are fairly communicative. However, a lot of time they communicate more with their behavior.” For example, children often get frustrated and engage in problem behavior due to difficulties in appropriately communicating with others. BCBAs take data on this behavior and apply it to the language and communication process. “As soon as a child begins therapy with us,” Batoul explains, “BCBAs, RBTs, and Speech Pathologists immediately start working on multi-modal communication including vocal language, gestures, AAC devices, and PECS® books. We want the child to express themselves as much as they can to navigate their world more independently.”

BCBAs and Speech Pathologists simultaneously model language to promote development of robust communication skills. An example of this is when a child uses an AAC device when playing with toys. The BCBA may comment on the child’s play using their device, such as “play dinosaur,” stating what the child is doing. This shows the child that the BCBA can also communicate using the device and how to comment on something. The goal for communication is to meet a child’s needs and wants, as well as the child gaining the ability to socialize with others.

Tools for Communication

Here are several common methods used to help children with autism communicate.

PECS®

PECS® stands for Picture Exchange Communication System®. In this system, the child gives a picture or word icon to someone in exchange for what they are requesting. Consider this example within the ABA setting. If a child wants a snack, they hand an icon of a preferred food to their RBT or BCBA who would then give them the item. PECS® icons are often stored in a three-ring binder with pages of laminated icons attached with Velcro. If you stepped inside our clinics, you would see several clients walking around with these binders, often attached to a strap for easy transport.

The goal of PECS® is for non-verbal children and those who are learning to speak to communicate their needs to caregivers in a simple way. To address changing stages of communication development, PECS® consists of six phases starting with exchanging icons through constructing sentences.

Augmentative and Alternative Communication (AAC) device

An AAC device is a tablet or laptop that contains words and images. When a child selects a word or image, the device “speaks” the input requested. Kids with autism who use AACs gradually build skills for how to use the device. They might begin with simple one-word requests then moving to more complex sentences. Kids work on these skills in ABA therapy under supervision of BCBAs and speech pathologists. There are multiple AAC software such as LAMP™ or TouchChat, offering different layouts and ways of selecting words to meet the user’s needs.

Sign Language

Sign language uses hands and facial expressions to communicate, a common form being American Sign Language or ASL. Along with PECS®, ASL stands as one of the most frequently used methods of communication for non-verbal children on the autism spectrum.

Speech therapy

Licensed Speech Pathologists lead speech therapy. Speech Pathologists work with parents, teachers, and BCBAs to determine the best methods of communication for the child. In speech therapy sessions, the pathologist will work with the client on skills such as conversation, articulation, social cues and how to respond. If a client has an AAC device or PECS® book, the pathologist will help them use their device or icons effectively. At our clinics, our speech therapists often utilize games, toys, and fun activities to engage clients in the speech therapy process.

After reading through all this information on communication and autism, you may feel unsure of which  method is best for your child. If you are interested in any of the mentioned tools, talk with your child’s BCBA. If you want more information on our ABA Therapy and speech therapy services, please contact us here.

Summer Reading Guide: The Latest Books About Autism

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books about autism

It’s not a surprise that reading books is on the rise as a result of the COVID-19 pandemic and lockdown. Weeks upon weeks at home has to be filled up with more than just binging on Netflix, right? Even with restrictions easing and people getting out more, there are many who love having a summer reading list. Therefore, we’ve researched the latest books about autism published so far in 2020. There are several books for parents as well as books to help autistic kids, tweens, and teens. (Note: This is not an endorsement of all of these books, but an informative list for you to do your own research.)

The Latest Books About Autism

For Parents

There are several new books about autism released the first half of 2020 that are written to help parents. There’s a brand new release filled with tips to help children with autism in our new COVID-19 world. We found a book written by a BCBA that we are excited to add to our collection. There is also a new resource written by a Mom specifically for the many families navigating a dual diagnosis of Down syndrome and autism.

Autism in Lockdown: Expert Tips and Insights on Coping with the COVID-19 Pandemic

This timely collection includes tips from expert voices in the field of autism like Dr. Temple Grandin, Ellen Notbohm, Dr. Tony Atwood, and many more. You’ll find activities to help kids cope with the new “normal”. There is also homeschooling tips, stress management tactics, social stories, ideas on building structure for better behavior, and much more!

Thriving with Autism: 90 Activities to Encourage Your Child’s Communication, Engagement and Play by Katie Cook, MEd, BCBA

Written by a Board Certified Behavior Analyst and Educator, this book is filled with practical activities for parents and caregivers to help their children build better conversation skills and strengthen social skills. This read is also a great resource for families new to autism, as well as Applied Behavior Analysis. Kelly provides a great foundation for understanding your child’s diagnosis and the reasons for and scientific background of ABA therapy.

A New Course: A Mother’s Journey Navigating Down Syndrome and Autism by Teresa Unnerstall

For families navigating a dual diagnosis, this brand new book takes a deep dive into the complexities that families face raising a child with Down syndrome and autism. The author’s son is now in his twenties, so she has years of experience navigating this extra unique world.

For Kids, Tweens and Teens

It’s wonderful to find so many new books about autism specifically written for kids, tweens and teens! Here are a few released the first half of this year.

Your Interests, My Interests: A Visual Guide to Playing and Hanging Out for Children on the Autism Spectrum by Joel Shaul

Geared toward elementary and middle school aged kids, this visual resource can help children learn important social skills. So if your child could use some help learning how to play and interact with their peers, check out Your Interests, My Interests (no preview available).

books about autism for kids
The Spectrum Girl’s Survival Guide: How to Grow Up Awesome and Autistic by Siena Castellon

This empowering quote from the book says it all: “Never be ashamed of being different: it is this difference that makes you extraordinary and unique.” If your daughter with autism could use this type of positive self image and support in understanding social communication, friendships, dealing with bullying and more, this book may be a great option. The author, a young woman on the spectrum, understands this important time in a young autistic girl’s life.

The Awesome Autistic Go-To Guide: A Practical Handbook for Autistic Teens and Tweens by Yenn Purkis and Tanya Masterman

This newly released interactive book is a guide for autistic tweens and teens that promotes self-acceptance. It helps shape a young person’s understanding of the strengths they have because of their autism and develops confidence in who they are. How great is that?!

Have you picked up a new favorite book about autism that we don’t have here? If so, let us know in the comments! And if you want to check out more helpful resources, check out Six Great Books for Parents of Autistic Children.

We hope you learned about some new books about autism. Please share it with your community!

Surviving Summer Break in a COVID-19 World

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summer break during covid-19

Most kids love summer break from school – a relaxed schedule, sleeping in, fun places to go and lots of time outside. But we are in a new reality with the COVID-19 pandemic. Kids – and parents – are coming off nearly three months of adapting to distance learning. Additionally, many of the typical summer activities are closed or modified. So for a child with autism (and their parents) the end of distance learning, limited or cancelled therapies, no places to go, facing summer break probably seems daunting!

As autism parents know, having a predictable schedule helps kids on the autism spectrum make sense of their world, knowing what to expect from day to day and sometimes hour to hour. So even in your exhaustion from the past few months, it’s time to prepare for summer break.

Are you wondering how do you facilitate a summer break that provides the structure your child with autism needs? Not to mention doing this during the new world of social distancing, closed playgrounds and pools, cancelled summer camps and vacations? It may seem overwhelming. But we’ve got some simple tips to help you and your child survive summer break in our new COVID-19 world! (And these can help typical kids too.) Whether you will be home with your kids, you have someone coming it to care of them while you work, or they will be doing summer therapies, these ideas may help.

Celebrate the End of Distance Learning!

Let’s face it, this school year has been like no other! So it’s definitely something to celebrate the end of distance learning and all the extra responsibilities you’ve taken on. You can start off summer break with an activity or treat. From something simple like getting take-out from their favorite restaurant or going out for ice cream – yes many are open here in Michigan! Or you could throw an “end of school year” party with balloons, games, fun snacks and a dance party. What you and your children have been through is worthy of a celebrating!

Create a Summer Schedule

As you may have done during this time of distance learning, use visuals to show what your child’s “typical” weekdays and weekends will be on a calendar. And then create a “typical day” schedule to show when they will get up, get dressed, eat meals, activities, and outings. So if they are able to resume some in person therapies, or you take a daily walk or ride in the car,  put them in the schedule to show them what to expect. And for days at home, read on for how to have a schedule on those days too. 

Help reduce anxiety of “the unknown” by reviewing the schedule each day, or even the night before, so they know what will be happening. Here is one example you can download. A quick Google or Pinterest search will offer a variety of options.

Sticking to a Schedule Has Benefits

Traditionally summer break is an easy time to get too relaxed and let go of any set schedule. But the more you can stick to a routine for bedtime and wake up time, meals and limiting screen time, the more well-regulated your child will hopefully be.

Online Therapies & Camps

Not that we want to encourage even more screen time, but there are some great opportunities to make your child’s screen time purposeful! If they are able to attend and engage with short amounts of screen learning, you can look into some online camp opportunities. There are so many programs popping up due to in person camps being closed. From educational classes to keep their learning progressing, to Lego camps, coding, dance, art, music, and more!

And if your child typically receives ESY (Extended School Year) services, but are missing out on important therapies over the summer, consider telehealth speech and occupational therapies. Many providers are now offering them, including our team!

Have A Summer Break Rules Chart

The never-ending requests for the iPad, video games and TV can be managed to a degree with a Summer Vacation Rules list that details out the things they need to do BEFORE they get to use any technology. The rules can include chores like getting dressed, brushing teeth, making their bed, cleaning their room, and more advanced chores for older kids. You can also have a rule for playing – inside and outside for specific amounts of time, as wells as a bit of academic work that is age appropriate – reading for 30 minutes, writing a story, art or coloring for 20 minutes. Here’s one example from Thirty Handmade Days.

Back Up Plans Teach Flexibility

For some kids, they may have learned to be more flexible with change during the Stay Home order and learning a completely new routine. But if not, work on teaching your child about a backup plan or “Option A” and “Option B”. If your schedule is to go visit their cousin’s house, but someone in the house isn’t feeling well, talk with them about a backup plan in case you can’t go that day. Reviewing with them what you will do if they can’t do what’s on the schedule will help reduce behaviors associated with a “change in plans”.

We hope these ideas help you create some structure AND fun for you and your family during this summer like no other! Remember to take it one day at a time.

What are some ways you survive the summer months with your child with autism? Let us know in the comments! And if you’re looking for help for your child with autism this summer, learn how we’ve adjusted our programs for our new COVID-19 world.

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Moving from Autism Awareness to Autism Acceptance

A few thoughts on Autism Awareness Month

In the United States April is Autism Awareness Month. And now in its twelfth year, April 2 is World Autism Awareness Day as established by the United Nations. You may see people wearing blue on April 2. There will be buildings lit up blue and lots of social media posts about the day. However, we at Healing Haven have a different perspective on wearing blue and autism awareness. As an organization we don’t participate in the “light it up blue” campaign for a few reasons. The primary one being the controversial work and money management practices of the organization that launched the campaign, Autism Speaks. With all of their efforts, they do little to practically support families and their needs. Here is one mother’s perspective. We put our efforts in helping shift the focus to Autism Acceptance Month.

In comparison, we just celebrated World Down Syndrome Day on March 21st (3/21 – three copies of the 21st chromosome and also established by the United Nations). But this day is not only about awareness. It is a day to celebrate people with Down syndrome, while educating our global communities on their potential. It’s about supporting them with programs and therapies so they can achieve more, recognizing their achievements and changing outdated perceptions of the most commonly occurring chromosomal disorder. World Down Syndrome Day sends a message of celebration and acceptance and we believe the same should happen for individuals with autism throughout the month of April.

It’s Time for Autism Acceptance Month

With a recently updated estimate of 1 in 54 individuals diagnosed with autism, it’s time to move from awareness to acceptance. Let’s face it, most of us are “aware” of autism. The majority of us have met or know someone on the spectrum. As a result, our perspective is we need to move the focus to autism acceptance month. And not just saying “I accept individuals with autism for who they are.” Let’s demonstrate autism acceptance with action. Acceptance without action isn’t meaningful. We need to share messages of acceptance of autistic individuals, celebrate the challenges autistic people overcome every day, and push for understanding of neurodiversity.

Action can look like:

  • becoming a friend to an autistic person
  • hiring a person with autism
  • reaching out to a family impacted by autism – offer to make them dinner or take a tired mom or dad out for coffee
  • share educational resources on autism this month with the hashtag #autismacceptance

Advocating Every Day

We work with and advocate for autistic people every day of the year. So one day seems like a shallow attempt to make some people feel good that they did something for autism. Throughout the year we serve autistic children and teens, and their families with the goal of helping them learn to communicate and interact with the world around them. Our holistic approach to ABA therapy looks at the entire person and how we can support their learning, communication, play and pre-vocational skills. We do that while also helping to lessen any harmful behaviors that get in the way of the individual living a full life within their family and community.

If you could hear the celebrations throughout our clinics when a client asks for something they want for the first time. We cheer them on when they gain a new skill that they’ve worked on for months. And we celebrate with families when they experience accomplishments with their child that they never thought possible.

So for Autism Awareness Acceptance Month, we will continue to do what we do every day. But we may shout a little louder the worth of individuals our world views as “different”!

If you found this information helpful, we’d love it if you’d share it with your network!

Shelter in Place Resources for Parents

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We are in a rapidly-changing, unprecedented time in our world as this global health crisis spreads throughout our country. As more drastic measures are taken each day to slow the spread of COVID-19 (Coronaviurs), to “flatten the curve”, we all are scrambling to figure out this new normal. Kids are out of school, many are people working remotely, or have been temporarily laid off. And in our case, our clients are not receiving therapy until we can roll out some support to our families through telehealth services.

So what are we to do as parents, caregivers and professionals? We’ve compiled a list of resources for parents to help you navigate this extraordinary reality we are now in.

Talking with Your Kids About Coronavirus

First, some of your kids may be asking specifically about coronavirus, or the results of it – why they are not in school or going to therapies? Here are several resources to help.

  • PBS Kids has tools to help you talk with your children about this novel virus.
  • This Psychology Today article provides some great resources and tips for explaining this global health crisis to children with autism.
  • This Washington Post article is written by a Mom of with an autistic 8 year old son.
  • And for those who may be experiencing anxiety, here is some help for addressing that too!

Creating New Routines

We all know how important routines are for kids with autism, Down syndrome, and even typical kids! And now those routines are turned upside down. So here is a free downloadable routine schedule that you can customize for your child and situation. And here are some timely activities from the same resource – A Next Comes L – with activities to do at home in the month of April.

Homeschooling

One of the biggest changes the Coronavirus has brought on us is the closing down of schools. Parents are now tasked with continuing the education of their kids! For some that may come easy, but for most, it’s a whole new world, especially if your child has an IEP! So, in addition to whatever your child’s school is providing, we’ve compiled a list of resources that address this new educational reality facing parents. (*Note: Full disclosure, I have a daughter in 3rd grade. She also has Down syndrome. We already tried a few of these resources. I highly recommend you check them out!) If you’re wondering how to structure their day, or need worksheets to keep them busy, or want some interactive online lessons, and more, take a look at these tools.

Educational Tools:

And here are some fun entertaining, while educational resources – watching webcams of animals at the National Zoo, or of sea life at the Georgia Aquarium.

Therapy Resources

If your child is not receiving their typical therapies like OT and PT, definitely check out The OT Toolbox. From fine motor activities to sensory processing resources, they have some amazing supports in their Parent Toolbox! And OT/picky eater expert and blogger at Your Kids Table provides some survival tips for parents during this social distancing time.

Get Moving

Being cooped up inside all day every day will make anyone go stir crazy. So you definitely will need to work in some time to get moving. Whether you go for a walk or play in the backyard, or use one of these online resources, these are great tools to keep kids moving during this self quarantine period. Stretch, move and bring a sense of calm through yoga from Cosmic Kids. A favorite “brain break” in many schools, GoNoodle, can help get the wiggles out to focus on their next task. And Fluency and Fitness combines academics with movement, reinforcing learning, while getting up and moving!

Specific to Autism

In addition to the social story linked above, here’s a list of activities to keep a teenager with autism busy while they are out of school. And above we included resources from A Next Comes L. Sign up for her newsletter to get lots of great resources during this Coronavirus shelter-in-place!

We have some additional resources we will be providing our client families in the coming weeks, too. We are developing a stress management webinar to equip parents during this understandably stressful time. Additionally, we’re planning on a companion stress management blog post. So stay tuned for that!

We are in this together and are developing unique ways to support our community and network during this unique and trying time.

If you found this information helpful, we’d love it if you’d share it with your friends and family!

2019 Gift Guide for Kids with Autism

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As we enter the holiday season, we want to take some of the stress out of gift-giving, especially when it comes to kids and teens with autism. Last year we wrote a post with a variety of gift ideas from our team of BCBA’s and Occupational Therapists. So, this year we are expanding on that list and going back to our expert staff for more of their top picks. We also had a parent submit her own child-tested gift ideas! Read on for some great ideas if your holiday shopping list includes a child/teen with autism or other developmental disability.

Sensory Input

Textured sensory balls provide a variety of benefits for sensory seeking kiddos. Recommended by one of our BCBAs, textured sensory balls are great for fidgeting, tactile input, stress and anxiety relief and more!

A big favorite with the kids in our clinics – water beads! These are great fun for sensory input, fine motor, sorting, colors and more! 

This Pin Art Game is awesome for sensory seekers. It encourages creativity, while providing tactile input. And the bonus is there is no mess to clean up!

Giant Exercise Balls are great for kids who have trouble sitting still. Using these balls not only can help kids focus, but also works their core at the same time. They are available many places, but this one from National Autism Resources is guaranteed not to burst and is a popular one with OTs and therapists.

Get Moving

Called “River Stones”, these varying sizes of plastic stepping stones help children work on balance and coordination. They are a great get moving gift for indoor fun during our cold winter months here in Michigan!

Fine Motor

Our team highly recommends Magna Tiles. They are popular among many of our clients and work on fine motor, spatial and problem solving skills.

Social Skill Development

For older kids and teens who could use help in developing social skills, another one of our BCBAs recommends some social games available from National Autism Resources.  And for preschool and elementary age, Hoot Owl Hoot is an award-winning cooperative game. It’s fun while teaching colors, turn-taking, strategy, shared decision making and more!

Encouraging Academics

If you’re looking to help your child with academic skills, our team recommends the “I Can Read” books to support readers at their individual level. With a variety of subjects/character themes at various reading levels, there are plenty of options to find something your child will enjoy, while encouraging them to practice their reading skills.

Stocking Stuffers

Another one of our therapists recommends any kind of slime for great sensory input. And if your child loves playing with bubble wrap and fidgets, this Dimpl is a fun cause-and-effect, sensory toy for all ages.

The holidays are also a great time to restock the sensory bin with fidgets. If your child likes a variety of different items for sensory play, this Fidget Set gives you lots of options – and will definitely fill out their stocking!

Don’t Forget the Parents!

If you’re a grandparent, aunt, uncle or friend of family impacted by autism, let’s not forget the parents! They juggle so much with their child’s diagnosis and are often under additional stress. Consider a gift that encourages self-care, like a mani/pedi or a massage. Many parents of autistic children and teens could use the gift of your time for a night out without the kids.

We hope these ideas help you find not only a gift that is helpful for your child, grandchild, niece or nephew, but also something they will have fun with! For our local Metro Detroit families who want to “buy local”, a great option for many of these toys and games listed above, is Toyolgy Toys. They have several locations as well as website ordering available!

If you have a gift idea for someone with autism, please share it in the comments below!

If you found this information helpful, we’d love it if you’d share it with your network!

The Benefits of a MiABLE Account for Your Child with a Disability

Raising and caring for a child with a disability oftentimes comes with added expenses. Things like extra medical costs, therapies, academic tutoring, assistive technology and much more come into play. Getting help to cover these additional expenses can be difficult. This is especially so when you have an average income and don’t qualify to receive government support for your child with a disability. When thinking about your child’s future and whether they will be able to support themselves, it can become overwhelming for parents to plan for, let alone manage the here and now.

The state an individual lives in and the disability they have largely determines the financial rules and restrictions they must follow. A bill was passed in certain states that requires employees to pay disabled workers at least minimum wage. Still, many disabled people must follow intricate rules to receive the benefits they need to successfully care for themselves.

So how can a person with a disability pay for all their daily living expenses like housing, food, education, transportation, ect., if they can’t earn a living wage, or are unable to? And on top of that, they risk losing any government benefits if they have “too much” money in their name.

Enter the ABLE Act

Thankfully, Congress passed the ABLE (Achieving a Better Life Experience) Act in 2014. The ABLE Act amends Section 529 of the Internal Revenue Service Code of 1986 to create tax-free savings accounts for individuals with disabilities. Here is the official description of the intent of the ABLE Act from the ABLE National Resource Center:

“By making tax-free savings accounts available to cover qualified disability-related expenses (including education, housing and transportation), this law aims to ease financial strains faced by individuals with disabilities. Additionally, the funds contributed into these accounts will not negatively impact the person’s eligibility for public benefits, such as Medicaid. The funds in these accounts don’t replace benefits provided through private insurances, the Medicaid program, the Supplemental Security Income program, the beneficiary’s employment and other sources. Instead, the funds supplement these benefits.”

A Powerful Tool for Michigan Families

Michigan established our MiABLE program back in 2016. We had the representative from the Michigan Department of Treasury here in our clinics to familiarize families on the benefits of having a MiABLE account for their child with a disability. Scott de Varona shared all the specifics of how the program works, how to set up an account and answered a plethora of questions from parents.

Here are a few of the highlights:

  • To be eligible, individuals must become disabled before the age of 26. They can prove their eligibility one of three ways: eligible for SSI or SSDI because of a disability (but do not have to be drawing on those benefits), have a condition listed on SSA Compassionate Allowances List, or self-certification with a physician diagnosis and documentation.
  • Qualified Disability Expenses (QDE) include much more than the original 529 College Savings Plans. MiABLE accounts can be used to pay for the expenses of everyday living for the person with the disability. QDE’s include: education, housing, transportation, employment training programs, assistive technology, personal support services, healthcare and medical costs, financial management services, legal fees, and end-of-life expenses.
  • The maximum contribution per year is $17,000. And account holders can have up to $100,000 in an ABLE account before their SSI benefits may be suspended. Once the account falls back below the $100,000, SSI benefits can resume.
  • ABLE assets are excluded for Medicaid eligibility. There is no asset threshold as there is for SSI benefits.
  • Investment options include a range of conservative to aggressive stock. Additionally, for those who want easy access to use their account now, there is a money market savings account with a debit card option.
  • If you have a Financial Advisor, you can allow them to manage your investment options. They need to complete the Agent Assisted Enrollment Form.
  • A MiABLE account doesn’t replace a Special Needs Trust. It’s another “tool in the toolbelt” to provide for an adult or child with a disability.

Tax Benefits

  • ABLE accounts are funded with after-tax contributions and can grow tax-free when used for qualifying disability expenses.
  • In addition, the State of Michigan features one of the largest tax deductions for contributions to an ABLE account. Single filers can receive a $5,000 tax deduction and a married couple filing jointly can receive a $10,000 tax deduction.
  • Many parents may have already set up a 529 College Savings Plan for their child before they were diagnosed with a disability. Those funds can be transferred to an ABLE account without penalty, and then can be used for a broad range of expenses!
  • Others can contribute to an individual’s MiABLE account to help it grow. Family members and friends can make contributions through the online portal or by mailing in a check. And if they are Michigan residents, they can take advantage of the tax deduction, too. Additionally, some states offer a deduction to ABLE account contributions in other states.

The Greatest Benefit

There are so many benefits to creating a MiABLE account for a child or young adult with a disability. But the greatest benefit has to be empowering disabled individuals to save for their future and creating a way for them to truly achieve a better life experience!

For more information, visit the MiABLE website or call them to have your questions answered: 844-656-7225. And the ABLE National Resource Center has a lot of helpful information too.

And for more information about Healing Haven and the services we provide families of children with autism and other special needs, visit Our Services page.

Autism Resources in Michigan

aaom

Autism Resources in Michigan: Autism Alliance of Michigan

The annual Autism Alliance of Michigan Navigating Autism Today Conference is always important for us to be a part of. It’s a wonderful event that provides valuable autism resources. It also offers encouragement for families and caregivers. Consequently, we are regularly reminded of what a wonderful organization we have here in Michigan advocating for individuals and families impacted by autism.

The Navigating Autism Today Conference is free for caregivers – a unique benefit not often offered by conferences. Presentation topics range from financial / life planning and explanations of the MiABLE act, to mental health issues. There are also sessions on communication, behavior, learning and more. If you have not attended, definitely plan to check it out next year. The breadth of autism resources is invaluable.

Celebrating their 10th anniversary this year, the AAOM continues to provide “help, hope, and answers”. They do this through raising community expectations, standards of care, and access to essential services. They tirelessly advocate for important legislation, safe and inclusive environments and system reform throughout the state of Michigan.

Here are just a few of the programs and services offered by the Autism Alliance of Michigan:

MiNavigator

“MiNavigator was created to provide a professional case management service to Michigan families affected by autism. It is staffed by a team of autism specialists with expertise in many fields, including clinical, educational, insurance, vocational, public safety, policy, and legal. Our autism specialists work one-on-one with each family to help them navigate and overcome the many barriers they face when trying to access care and support for their loved one affected by autism.”

A Call to Action

The MiNavigator program has served over 5,000 families across the state of Michigan and is at risk of losing critical state funding. You can help by letting your state representative and senator know you want funding approved for this important program. Here is more information provided by the Autism Alliance of Michigan.

Ask an Expert

Website visitors are able to ask one of the AAOM experts a question you or a loved one is facing in any one of four categories: legal, advocacy, clinical and education. Additionally, you can also review answers to previously submitted questions.

Employment

Advocating for better employment opportunities for individuals with autism, the AAOM provides resources for employers to better understand autism. With the unemployment rate for individuals with disabilities so high, the AAOM educates employers on the value and benefits of hiring autistic workers. The AAOM’s philosophy regarding employment of individuals with autism is: “All citizens have the right to work. No perceived obstacle, prejudice or lack of awareness should deny any person that opportunity.” So whether you are an employer or a job seeker with autism, there are resources for you.

Events

From the annual Navigating Autism Today conference to the Michigan Shines for Autism Gala, to the Hero Walk at the Detroit Zoo, there are plenty of opportunities to get involved and connect with others through AAOM’s events.

Neighborhood Directory

The Neighborhood Directory is an online portal to search by category and location for a variety of autism resources, therapy providers, autism friendly businesses, adult services and more. As a result, you can quickly find a lot of helpful information and providers easily and quickly.

In addition to the above, there are many more resources available on the AAOM website for both caregivers and professionals. It’s easy to see why it’s our go-to resource for all things autism in Michigan!

If you found this information helpful, we’d love it if you’d share it with your network!