Success Stories of Individuals with Autism

Autism Success Stories
Autism Success Stories

We live in a world where it is so easy to think about the negative values of something or someone. That’s why it’s crucial we prioritize the positive aspects. This is especially true for people with autism. There is a reason it is called autism spectrum – each individual is born with their own unique traits and abilities. Some on the autism spectrum may also have an intellectual disability. However, it’s important to note that around 44% of those diagnosed with autism have average or above average IQ. So why wouldn’t there be several remarkable success stories of individuals with autism?   Here we hope to share some inspiring examples of people who have used their autism diagnosis to excel in their passions.  

Temple Grandin 

Starting out with a more well-known story within the autism community, Temple Grandin is a renowned American author and educator. She speaks on the treatment and behavior of livestock animals, as well as a public speaker and advocate for autism.  

Grandin was not “officially” diagnosed with autism until much later in her life. At this point, she already had a successful career she had paved for herself. She accomplished this despite hurdles that were uncommon for children to have at the time of her upbringing. These included speech delays and social skills challenges.  In the face of these hurdles and the bullying they evoked, Grandin discovered what she was passionate about – science.  

She went on to receive several degrees on the topic and remains teaching to this day. In a quote from one of Grandin’s books, The Autistic Brain: Thinking Across the Spectrum, she explains that autistic kids often have uneven skills. “Parents get so worried about the deficits that they don’t build up the strengths, but those skills could turn into a job,” according to Grandin. She adds that “we need to be a lot more flexible with things,” when it comes to what we label as a “disability.” This way of thinking is at the foundation of Healing Haven’s values. We focus on our clients as kids and teenagers first, not their diagnosis. And we celebrate their unique strengths that come through neurodiversity. 

More stories of successes like Grandin’s are available here.  

Alexis Wineman 

Alexis Wineman is the first woman with autism spectrum disorder (ASD) to participate in the Miss America competition, according to Centers for Disease Control and Prevention. Wineman’s story presents the perspective of being the only member of a large family to have an autism diagnosis. Her story focuses on what it is like to grow up with the support of neurotypical siblings. She also highlights the key role that siblings can play in the life of an autistic child.  

Wineman’s sister, Danielle, said her advice for someone who has a sibling with autism is “to become a solid shadow for your sibling.” She points out that “when you’re diagnosed with autism, it’s a diagnosis for the entire family and not just that person.”  

Another sister of Wineman’s, Kimberley, said that it is valuable to “engage them (your sibling with autism) and help them find their niche.” Wineman’s brother, Nicholas, said that he has learned and developed the skill of empathy due to growing up with his sister.  

There can be endless advantages of having a family member with autism. And there is no doubt that a diagnosis can also strengthen a family. Comparable stories to Winemans are available on the Centers for Disease Control and Prevention website.  

We love hearing these sibling perspectives and agree that an autism diagnosis impacts the entire family. In fact, it’s another one of our company values – to serve the entire family through parent training and counseling for parents and siblings. 

Clay Marzo 

Clay Marzo is an American professional surfer. He was diagnosed with Asperger syndrome as a teenager (before that designation was removed from the diagnostic definition in the DSM-5). Clay is known for his “unique ‘double-jointed’ style of turns and spins”. Marzo has “been hailed for his creativity with the board and his innovative maneuvers,” according to Autism Treatment Evaluation Checklist (ATEC) Sierra Leone.  

 In addition to features in several surfer films, Marzo is also in a documentary, ‘Clay Marzo: Just Add Water‘. The documentary delves into his life as a competitive surfer and a person living with autism spectrum disorder. He also volunteers with the non-profit organization Surfers Healing. The organization creates opportunities for children with autism to experience surfing through surfing camps in the United States and Canada.  

Other stories like Clay’s are in this Lifehack article.  

Dani Bowman 

Dani Bowman is a writer, artist and motivational speaker who is on the autism spectrum. Creating an animation empire, she founded DaniMation Entertainment at age 14 in 2009. She has several professional degrees and is a powerful voice for those on the autism spectrum.  

Bowman is also on Netflix’s ‘Love on the Spectrum,’ where she shares much about her personal interests. In this, she brings attention to the struggles she faces to find a potential life partner. She expresses the complications of not only finding someone who relates to her but who understands and accepts her romantically.  

Further information about Bowman and her work is available on her company website.  

Katie 

Katie is currently a young adult on the autism spectrum. She grew up working closely with Healing Haven’s founder, Jamie McGillivary. Jamie credits her journey working with Katie as what helped shape her into the person she is today. Jamie’s experiences with Kaite as child inspired her career path and the creation of Healing Haven. Katie worked as an administrative assistant for the company and also worked at her local library.  

Katie spoke at a Healing Haven Open House and shared her story with guests that included parents, doctors, and professionals. “I’m here tonight to tell people you shouldn’t underestimate people with disabilities. Through hard work you can live your dreams. Your child could have a bright future. Tonight, I can live my dreams such as being independent, working as an administrative assistant, and now being a public speaker.” You can read more of her story in this blog article, Never Underestimate Individuals with Autism.  

Katie is an inspiration to all at Healing Haven and everyone who knows her personally. 

Raising Expectations

We hope these stories inspire and offer hope for you and your child or loved one with autism.  An autism diagnosis comes with a broad range of potential struggles as well as unique strengths. An average of 28% of our clients at Healing Haven graduate from our services or titrate down to needing lesser services. We work to make sure clients are as well-equipped as possible to thrive in their educational journey and prepare them for life beyond school.  

There are many success stories of individuals with autism we should celebrate. But even if your child may need extra support, we all can work together to highlight the possibilities and help raise expectations for those impacted by autism. Incredible things can be born from the “bounds” of difference. 

We would love to hear any stories you might have to share. Please feel free to comment below! 

What is ABA Therapy: Your Questions Answered

child doing therapy explaining ABA Therapy
child doing therapy explaining ABA Therapy

Following an autism diagnosis, many professionals recommend ABA Therapy as the first form of support. But many parents often leave those meetings wondering what is ABA Therapy? It’s common to have lots of questions. It’s important to feel informed and clear on treatment options as you seek support for your child. Not to mention, choosing a therapy provider can be overwhelming and can take a lot of time. We’ll break down some commonly asked questions about what ABA Therapy is so you can feel prepared to help your child.  

What is ABA Therapy? 

Considered the “gold standard” in autism treatment, ABA (Applied Behavior Analysis) Therapy is a scientific approach to understanding behavior. It’s a method of therapy used to improve specific behaviors, decrease interfering behaviors and help a child gain new skills such as communication, play, social, and daily living skills. ABA Therapy is evidenced-based and the most frequently recommended option for the treatment of autism.  

Is ABA Therapy effective? 

ABA Therapy proves to be highly effective, based on over 50 years of research. Medical professionals and institutions such as the American Psychiatric Association, the American Psychological Association, and the U.S. General Surgeon approve ABA as a valid treatment for autism.  

ABA Therapists and BCBAs (Board Certified Behavior Analysts) create and implement plans for the client to meet specific goals tailored to the client’s needs. They set the client up for success by breaking down the steps to each goal. If an approach isn’t working, the ABA Therapist and BCBA will find another one. For example, a child may be working on regulating their emotions during tantrums. The ABA Therapist and BCBA might implement tactics such as deep breathing, sensory input, and physical relaxation. But if sensory input seems to further aggravate the child, that tactic will be removed and replaced with a helpful one. 

Is ABA Therapy a fit for my family? 

Parents love their children and want what is best for them, no matter their diagnosis. You may be asking, ”How can ABA Therapy help my child?” All children have the right to learn important skills in order to be independent and to maximize their happiness later in life. For children with autism, learning some skills can be harder. ABA Therapy can build on your child’s strengths while also supporting their learning in the areas they need it most.  

In deciding if ABA Therapy is a fit for your family, it’s important to understand the provider’s approach to ABA. ABA Therapy should be customizable to your child’s needs, with an emphasis on generalization to make sure skills transfer to the natural environment.  

Additionally, it’s important to know the credentials of the BCBA and understand the center’s training program for their ABA Therapists. This is to ensure they are qualified for the work they are providing. Another factor is to make sure they have a positive and comfortable relationship that allows room for learning. There should also be frequent and open communication between you as the parents and the child’s BCBA in order to build goals that are appropriate and sensible to you. Remember, you know your child best and it’s important to find professionals that align with your specific values.  

What do ABA Therapists do? 

ABA Therapists are trained behavioral professionals that work closely with and under the supervision of BCBAs. They help implement behavioral goals set for the client. As a team with the child and BCBA, the Therapist will help teach functional skills, address problem behaviors that interfere with learning. They also help the child gain skills that will allow them to better participate in school and the community. 

What is a BCBA? 

According to the Behavior Analyst Certification Board, “A Board Certified Behavior Analyst, or BCBA, has a graduate-level certification in behavior analysis. Professionals certified at the BCBA level are independent practitioners who provide behavior-analytic services. BCBAs may supervise the work of Board Certified Assistant Behavior Analysts – (BCaBAs), Registered Behavior Technicians (RBTs), and other professionals who implement behavior analytic interventions.” 

At Healing Haven, BCBAs also provide parent training and can work with school professionals to help therapy translate efficiently across all situations and settings the client is in. To become a BCBA, an individual must undergo a 5-step process that includes: earning a relevant Master’s Degree, completing required behavior-analytic graduate coursework, completing required supervised fieldwork, apply for, take, and pass the BCBA exam, and then apply for state licensure.  

What happens during an ABA session? 

An ABA session typically begins with specific goals established for the child, which are discussed prior to starting therapy sessions. Throughout the session, the Therapist works one-on-one with the child. Their job is to ensure the child is learning and understanding the skills that are being taught. ABA Therapists utilize encouragement, praise and other motivational tactics tailored to the specific child and programs being worked on. Therapy is delivered both with and without supervision by the BCBA. 

Kate Fritz, MA, BCBA, LBA, is the Clinical Manager of our Early Intervention Clinic. She describes a typical ABA session at Healing Haven this way: 

In ABA sessions, we work hard and play hard! How an ABA session looks can greatly vary depending on the client’s age and skillset – programming is individualized to the client. In general, you can expect to see the use of play to work on communication and social skills, building up independence with daily living skills (e.g., working on putting on a winter coat), and both individual and group times to work on behavioral goals related to school-readiness. In action, this may look like a kid sitting in circle time imitating song motions, then reading a story with their therapist and pointing to animals and colors throughout the story, sitting and eating snack with peers, going to the restroom to work on washing hands independently, then heading to the playroom and pointing to toys up on a high shelf to communicate what they want to play with.  

When should my child start ABA? 

A child should start ABA Therapy if deemed appropriate, after receiving a medical diagnosis of autism spectrum disorder. Autism, for example, can be detected and tested for as early as 18 months old and by age 2 can be considered a reliable diagnosis as a means for therapy intervention.  

Early intervention is key. “Research very clearly states that early intervention for children with autism and other developmental disabilities is vital,” explains Jamie McGillivary, MS, LLP, BCBA, Founder and President of Healing Haven. “When children start therapies like ABA early on, they receive strategic learning opportunities that support them in the areas they need.”  

However, ABA Therapy is also beneficial for older children and teenagers. Even if a child is diagnosed later, ABA therapy could be worth looking into to learn and improve in areas that may be challenging for them. It is also important to remember that ABA Therapy isn’t automatically a lifelong commitment. Many children transition to lesser levels of therapy as they master skills.  

Is ABA Therapy covered by insurance? 

Because it is considered a behavioral health service, ABA Therapy is covered by most insurance policies. However, this can vary by plan and from state to state. In Michigan, it can vary by employer insurance plans, so it is important to call your insurance provider. It is important to discuss the specifics of what is and what is not covered by your plan as it pertains to ABA Therapy services in your location. More information about this can be found when you search “Autism Spectrum Disorder Health Coverage” on your state government website. For example, Michigan’s explanation of autism health coverage is found here. The Autism Alliance of Michigan is also a great resource for parents navigating insurance coverage. 

We hope this information is helpful as you navigate therapy options for your child. To learn more about Healing Haven’s ABA Therapy programs for children and teens up, contact us today. 

Communication and Autism: 4 Resources to Help

Communication and speech are common struggles for some individuals with autism. Those who do not speak or who have great difficulty speaking may be considered “nonverbal,” while those who do speak are considered “verbal.” However, “non-verbal” is not an entirely accurate term. Those who do have challenges speaking may still understand words spoken to them, or use other forms of communication. On the other hand, those who can speak verbally may still benefit from additional communication methods.

ABA teaches functional communication in a variety of ways. It’s crucial that those with autism learn to communicate their wants and needs. Through learning effective communication, individuals receive the help they need to live their best life.

Communication and Autism

In ABA therapy, BCBAs (Board Certified Behavior Analysts), RBTs (Registered Behavior Technicians) and ABA Therapists teach communication skills based on the behavioral and learning needs of the client. Additionally, Speech Language Pathologists target more specific communication goals and skills. BCBAs closely collaborate with speech and language pathologists to choose what will best help the client. BCBAs provide input on the client’s behaviors which determines the final decision on which communication method will be best. Additionally, BCBAs help parents learn what they can do at home to assist their child in communicating.

Building a Foundation for Communication

A common concern of parents who have a child who struggles with speech is how to teach them to communicate their wants and needs. This is typically one of the first skills that BCBAs work on for a client who is new to ABA Therapy.

We asked one of our fantastic BCBAs for input on this subject. Batoul Dekmak, M.Ed, BCBA, LBA, stresses the importance of working on communication with kids. “All kids that walk through our doors are fairly communicative. However, a lot of time they communicate more with their behavior.” For example, children often get frustrated and engage in problem behavior due to difficulties in appropriately communicating with others. BCBAs take data on this behavior and apply it to the language and communication process. “As soon as a child begins therapy with us,” Batoul explains, “BCBAs, RBTs, and Speech Pathologists immediately start working on multi-modal communication including vocal language, gestures, AAC devices, and PECS® books. We want the child to express themselves as much as they can to navigate their world more independently.”

BCBAs and Speech Pathologists simultaneously model language to promote development of robust communication skills. An example of this is when a child uses an AAC device when playing with toys. The BCBA may comment on the child’s play using their device, such as “play dinosaur,” stating what the child is doing. This shows the child that the BCBA can also communicate using the device and how to comment on something. The goal for communication is to meet a child’s needs and wants, as well as the child gaining the ability to socialize with others.

Tools for Communication

Here are several common methods used to help children with autism communicate.

PECS®

PECS® stands for Picture Exchange Communication System®. In this system, the child gives a picture or word icon to someone in exchange for what they are requesting. Consider this example within the ABA setting. If a child wants a snack, they hand an icon of a preferred food to their RBT or BCBA who would then give them the item. PECS® icons are often stored in a three-ring binder with pages of laminated icons attached with Velcro. If you stepped inside our clinics, you would see several clients walking around with these binders, often attached to a strap for easy transport.

The goal of PECS® is for non-verbal children and those who are learning to speak to communicate their needs to caregivers in a simple way. To address changing stages of communication development, PECS® consists of six phases starting with exchanging icons through constructing sentences.

Augmentative and Alternative Communication (AAC) device

An AAC device is a tablet or laptop that contains words and images. When a child selects a word or image, the device “speaks” the input requested. Kids with autism who use AACs gradually build skills for how to use the device. They might begin with simple one-word requests then moving to more complex sentences. Kids work on these skills in ABA therapy under supervision of BCBAs and speech pathologists. There are multiple AAC software such as LAMP™ or TouchChat, offering different layouts and ways of selecting words to meet the user’s needs.

Sign Language

Sign language uses hands and facial expressions to communicate, a common form being American Sign Language or ASL. Along with PECS®, ASL stands as one of the most frequently used methods of communication for non-verbal children on the autism spectrum.

Speech therapy

Licensed Speech Pathologists lead speech therapy. Speech Pathologists work with parents, teachers, and BCBAs to determine the best methods of communication for the child. In speech therapy sessions, the pathologist will work with the client on skills such as conversation, articulation, social cues and how to respond. If a client has an AAC device or PECS® book, the pathologist will help them use their device or icons effectively. At our clinics, our speech therapists often utilize games, toys, and fun activities to engage clients in the speech therapy process.

After reading through all this information on communication and autism, you may feel unsure of which  method is best for your child. If you are interested in any of the mentioned tools, talk with your child’s BCBA. If you want more information on our ABA Therapy and speech therapy services, please contact us here.

Addressing Sleep Issues in Children With Autism

Trouble sleeping often plagues many of us due to factors such as stress, physical health, or irregular schedules. But for those on the autism spectrum, falling asleep and staying asleep is a very common and serious challenge. Additionally, sleep issues in children with autism can affect the whole family. It is crucial to address problems sleeping in children with autism not only for the child’s health but yours as well. Sleep is one of our basic needs and if it is not met properly, health issues and poor functioning may occur.

Interestingly, sleep is one of the least studied aspects of autism. However, based on the evidence we do have, we know that poor sleep is twice as common among children with autism than neurotypical children.  According to a 2019 study, toddlers with autism are highly likely to have sleep issues by age 7. Consequently, sleep issues in children with autism are linked to negative behavior and lack of social skills. Needless to say, good sleep is critical for those with ASD, as poor sleep risks a lower quality of life and health.

Why sleep issues in individuals with autism?

Have you ever tried to fall asleep with a lawn mower outside your window, or with the lights on? Unless you’re a super heavy sleeper, it is fairly difficult. For individuals with autism, even a crack of light or creak on a floor can feel like that lawn mower or a fully lit room, therefore disrupting restful sleep. Moreover, sensory processing issues often contribute to sleep issues in children with ASD. Sensitivity to light, sound or touch prohibit full sleep cycles from occurring.

Children with autism often battle other health conditions  which is another large factor for sleep difficulties, such as:

  • ADHD
  • Anxiety
  • Gastrointestinal issues
  • Medications (stimulants can cause insomnia)
  • Genetics that affect melatonin production

How to improve sleep for a child with autism

So how do you improve sleep issues in children with autism? Consider trying out these five tips:

1. Sensory Input

Minimize sensory input as much as possible. Keep your child’s room dark, cool, and quiet. Take note of any potential distractors that may keep them awake, such as night lights, toys, and clutter. A white noise machine may also be helpful to block out any noises.

2. Limit Screens

Turn off screens an hour before bedtime, as the blue light in screens tricks the brain into thinking it is daytime and thus time to stay awake rather than sleep.

3. Schedules

Stick to a regular schedule for falling asleep and waking up to keep the body in sync. Create a routine that starts an hour before the child needs to be in bed. Set timers as reminders for transitioning to bedtime. Practice relaxing activities such as reading together, a bath, or having a light snack.

4. Try Supplements

According to research, taking low-dose supplements such as melatonin an hour to a half hour before bed can lower insomnia in children with ASD. Controlled-release melatonin can improve falling asleep and stay asleep throughout the night. Please be sure to consult with your child’s Doctor to get their expert input before trying out any supplements.

5. Take Care of Yourself

As a parent, you are the one who is most likely running bedtime routines and dealing with nightly wake-ups, which is exhausting. Make sure to care for your well-being so you have energy to give during the day. However, we realize the great difficulty in helping your child to stay in bed while you and your family are trying to rest. Try incentivizing techniques for your child staying in bed all night, such as a reward chart or using visuals of them sleeping. If they need someone in the room in order to fall asleep, try gradually moving out of the room a little more each night. Additionally, ensure they are getting enough activity and exercise to burn off energy during the day, resulting in better sleep at night for both them and you.

These tips are in no way a miracle cure, but with practice and patience, they have potential to decrease sleep problems and make life a little easier for your child and family alike. Remember to consult your child’s pediatrician with any sleep issues your child is experiencing. They may recommend seeing a pediatric sleep specialist or participating in a sleep study to rule out other potential causes.

6 Ways to Calm a Child With Autism

calm child with autism
calm child with autism

Raising a child with autism brings surprises and challenges. One possible difficulty is managing meltdowns. While every child has rough moments, for a child on the spectrum meltdowns are different. They often happen when the child is overstimulated and cannot communicate why they are upset. A valuable way to cope when meltdowns occur is to learn ways to calm a child with autism. Through detailed preparation, you and your child will feel more equipped to handle big emotions the next time they experience distress.

Warning Signs

Meltdowns may occur out of the blue or perhaps they come after a specific trigger. This can be very stressful for not only the child but parents and other family members as well. However, certain displays of behavior can cue parents to when their child might be on the verge of a meltdown. Some of these behaviors may include:

  • Increased stimming- agitated hand flapping, body rocking, pacing, hands over ears
  • Loud vocalizing
  • Crying
  • Eloping – running away from a situation
  • Self-injurious behavior (SIB)- banging head, picking at skin, hitting or biting self

Perhaps it is a certain location, a noise, or denied access to something that set off your child. Keeping a log of triggers can help prepare you for future incidents and allows you to be proactive in recognizing and coping with meltdowns. And in the meantime, try some of the following six ways to calm a child with autism when they are in distress.

Addressing Sensory Needs

Children with autism often have many more sensory needs than an average neurotypical person. Deep pressure stimulation such as gentle head or shoulder squeezes can help kids feel secure and move their nervous system into the parasympathetic nervous system, also called “rest and digest.” When we are in the parasympathetic nervous system, our bodies feel safe and secure which in turn calms our minds.

Additionally, learn what objects or toys are soothing to your child and have them on hand. Keep a bag of sensory objects with your child that they can utilize when they are feeling overwhelmed. Fidget spinners, blankets, squishy toys, or chew toys can bring comfort to an overstimulated nervous system.

A sensory friendly “calm down corner” can also help quell meltdowns. At home, designate a safe area for your child that includes soft lighting, calming music or white noise, and comfortable items such as bean bags or pillows. If your child attends school, coordinate with teachers to create a calm down corner in the classroom. If you’re in public during an episode, remove your child from the triggering environment as soon as you can and take them to a neutral location.

The Power of Music

Music can be very therapeutic to individuals with autism. Music increases brain connectivity which in turn helps regulate emotions. Additionally, singing a favorite song of your child’s may help them relax, as familiarity can be grounding. Try softly singing or playing soothing quiet tunes on headphones to help your child self-regulate.

Deep Breathing

Breathing is very powerful in calming the mind and body and can assist in regulating emotions for a child with autism. Sit face-to-face with your child and have them breathe deeply with you. Counting inhales and exhales as they breathe is a helpful technique. The exhale places the body back into the parasympathetic nervous system so make sure your child is releasing all the air. Breathing together will also help you feel more calm during a meltdown.

Exercise

Moving and fresh air help all of us feel better and is another great strategy to calm a child with autism. Walk with your child around the block, visit a nearby park, or put on a kids yoga video to help them center.

Stick to Schedules

Sometimes unpredictability triggers a meltdown. Pre-planned agendas can provide comfort to children with autism so they know what’s coming next, reducing anxiety. You can even create visual schedules for your child to reference throughout the day, which can help them stay on task. There will obviously be times when the schedule needs to change last minute, but try to give your child as much notice as possible.

Avoid Reinforcing Behavior

It’s natural to become worked up and overwhelmed watching your child experience such high levels of distress. But it’s important to avoid displaying strong emotions in front of your child in the heat of the moment in order to avoid reinforcing their behaviors. Remain as calm as you can and focus on deescalating your child through whichever method they respond best to. But be sure to make space to process your own emotions after the episode so you can regulate as well.

We hope these six ways to calm a child with autism will help you and your child the next time a meltdown arises. Know that you are not alone and that it is ok to feel overwhelmed. Our parent training resources include strategies in addressing specific meltdown situations. For more info, visit our ABA Parent Training page.

Back to School during COVID-19

back-to-school-covid-19
back to school during COVID-19

As we approach the start of the 2020-2021 school year here in southeast Michigan, many parents are facing the reality of back to school during COVID-19 being like nothing we’ve experienced before.

An Uncertain School Year

Many public school districts in this area are opening with only a full remote school option due to COVID-19. This post is not to get into a debate on whether remote school is the best option right now. We know there are parents who want their child to go to school in person. And we know other parents who don’t want to send their child back to school in person.

The reality is, for many students with IEPs, distance learning is not a viable or meaningful option. This can be because they are not receiving the numerous supports and services they receive in person. They may have trouble attending to a screen or processing all that is happening in an online meeting. Or parents may have to work and not be able to support them through their remote school day.

Unfortunately, in-person or a hybrid plan may not be a viable option for children with compromised immune systems and underlying health conditions.

In the past we’ve written “back to school” blog posts like Back to School Tips for Parents of Different Learners. We created those resources to help parents with the transition from summer break to school. But going back to school during COVID-19 is like nothing anyone has experienced before. Read on for some ideas and resources to help you with a remote start to school, as well as returning to school in-person, and homeschooling your child with autism.

Remote School

back to school covid

For those who are navigating a remote start to the school year with your child who receives special education services, you may be feeling overwhelmed. It’s totally understandable! We’ve compiled a variety of ideas, that may help. From visual schedules to establishing routines, to positive behavior interventions and supports (PBIS), to IEP resources to help you navigate your rights.

Educational Advocacy Resources

Michigan Alliance for Families is a wonderful support organization for families who have children with disabilities to help them navigate their educational resources. They have a specific COVID-19 page on their website with many resources specific to how this pandemic is impacting education. And their COVID Documentation page has a variety of additional resources for a remote start back to school.

The Autism Alliance of Michigan has some back to school resources for families. This is a great blog post about advocacy and what your rights are in regard to your child’s IEP and special education services.

Another great resource is the Michigan Alliance for Families YouTube channel. They’ve posted recordings of past webinars specific to COVID-19, special education and distance learning.

Visual Schedules

We know that for many kids, visual schedules can help reduce problem behaviors. Visual schedules help them know what to expect. They are a neutral way to communicate what they need to do and what is coming, rather than you verbally having to ask (or nag) them over and over. Check out these visual schedules from And Next Comes L, like the School Morning Routine Chart, the After School Routine Chart and others. And Understood.org, a great resource for students with learning challenges, offers several free visual schedule downloads.

Distance Learning Resources

Understood also has some Distance Learning resources for both families and educators. There is info on how focusing for remote school can be even more challenging for many kids. And they offer some tips to help. And Next Comes L also provides specific Distance Learning resources for teachers, therapists and parents. If your child is struggling to understand why they aren’t going to school in person, she has a free social story download School is Closed. And she has tips on how to best support your autistic child on Zoom meetings. Definitely check that one out!

Accessing Their Education

If your child needs individual, in-person support to access their remote school, you may need to hire someone to help. Whether you work outside the home, have other children to take care of, or simply don’t feel equipped to become your child’s para professional, definitely reach out for help. Start with your child’s school to find out how their IEP will be fulfilled. Network with other parents to find out how they are managing it. If your child receives ABA Therapy, ask your provider if distance learning behavioral support may be an option. Check out local universities with education programs. You may be able to find a special education student who is looking for some income and experience in their field.

Returning to School In Person

back to school covid
Back to School Anxiety

If your child is heading back to school in person, they may be experiencing some anxiety after such an extended break from school. Here are some resources to help with this transition from And Next Comes L.

Wearing a Mask

If your child’s school is asking (or requiring) students wear a mask, here are a few social stories about wearing masks to help them get used to it. Here is a video version and a printable version from Autism Little Learners specific to wearing a mask at school.

Homeschooling

mother homeschooling child

Some families are considering homeschooling their child for various reasons. Maybe remote school doesn’t work well for their child, or they have health issues making in-person school a risk. Homeschooling may also provide the flexibility to continue with their therapies from the summer (ABA therapy, speech and occupational therapies).

Resources to help

If you’re considering homeschooling your child with autism, but aren’t sure where to start, here are a few resources. First, check out this blog post from the Friendship Circle – Tips for Homeschooling Your Child with Autism Spectrum Disorder. The Applied Behavior Analysis Program Guide has an extensive list of possible homeschool curricula for students with autism. If you’re on Facebook, there are numerous homeschool groups specific for children with autism. There are sure to be some full of tips and recommendations.

Ready or not, it’s here!

As you prepare for this unique year heading back to school during COVID-19, we hope these ideas and resources help. Whether preparing for remote school, an in-person or hybrid plan, or you are diving into homeschooling your child, we wish you a successful start to school. Remember you have what it takes for whatever lies ahead!

Summer Reading Guide: The Latest Books About Autism

summer-reading-guide
books about autism

It’s not a surprise that reading books is on the rise as a result of the COVID-19 pandemic and lockdown. Weeks upon weeks at home has to be filled up with more than just binging on Netflix, right? Even with restrictions easing and people getting out more, there are many who love having a summer reading list. Therefore, we’ve researched the latest books about autism published so far in 2020. There are several books for parents as well as books to help autistic kids, tweens, and teens. (Note: This is not an endorsement of all of these books, but an informative list for you to do your own research.)

The Latest Books About Autism

For Parents

There are several new books about autism released the first half of 2020 that are written to help parents. There’s a brand new release filled with tips to help children with autism in our new COVID-19 world. We found a book written by a BCBA that we are excited to add to our collection. There is also a new resource written by a Mom specifically for the many families navigating a dual diagnosis of Down syndrome and autism.

Autism in Lockdown: Expert Tips and Insights on Coping with the COVID-19 Pandemic

This timely collection includes tips from expert voices in the field of autism like Dr. Temple Grandin, Ellen Notbohm, Dr. Tony Atwood, and many more. You’ll find activities to help kids cope with the new “normal”. There is also homeschooling tips, stress management tactics, social stories, ideas on building structure for better behavior, and much more!

Thriving with Autism: 90 Activities to Encourage Your Child’s Communication, Engagement and Play by Katie Cook, MEd, BCBA

Written by a Board Certified Behavior Analyst and Educator, this book is filled with practical activities for parents and caregivers to help their children build better conversation skills and strengthen social skills. This read is also a great resource for families new to autism, as well as Applied Behavior Analysis. Kelly provides a great foundation for understanding your child’s diagnosis and the reasons for and scientific background of ABA therapy.

A New Course: A Mother’s Journey Navigating Down Syndrome and Autism by Teresa Unnerstall

For families navigating a dual diagnosis, this brand new book takes a deep dive into the complexities that families face raising a child with Down syndrome and autism. The author’s son is now in his twenties, so she has years of experience navigating this extra unique world.

For Kids, Tweens and Teens

It’s wonderful to find so many new books about autism specifically written for kids, tweens and teens! Here are a few released the first half of this year.

Your Interests, My Interests: A Visual Guide to Playing and Hanging Out for Children on the Autism Spectrum by Joel Shaul

Geared toward elementary and middle school aged kids, this visual resource can help children learn important social skills. So if your child could use some help learning how to play and interact with their peers, check out Your Interests, My Interests (no preview available).

books about autism for kids
The Spectrum Girl’s Survival Guide: How to Grow Up Awesome and Autistic by Siena Castellon

This empowering quote from the book says it all: “Never be ashamed of being different: it is this difference that makes you extraordinary and unique.” If your daughter with autism could use this type of positive self image and support in understanding social communication, friendships, dealing with bullying and more, this book may be a great option. The author, a young woman on the spectrum, understands this important time in a young autistic girl’s life.

The Awesome Autistic Go-To Guide: A Practical Handbook for Autistic Teens and Tweens by Yenn Purkis and Tanya Masterman

This newly released interactive book is a guide for autistic tweens and teens that promotes self-acceptance. It helps shape a young person’s understanding of the strengths they have because of their autism and develops confidence in who they are. How great is that?!

Have you picked up a new favorite book about autism that we don’t have here? If so, let us know in the comments! And if you want to check out more helpful resources, check out Six Great Books for Parents of Autistic Children.

We hope you learned about some new books about autism. Please share it with your community!

Surviving Summer Break in a COVID-19 World

surviving-summer-break-in-a-covid19-world
summer break during covid-19

Most kids love summer break from school – a relaxed schedule, sleeping in, fun places to go and lots of time outside. But we are in a new reality with the COVID-19 pandemic. Kids – and parents – are coming off nearly three months of adapting to distance learning. Additionally, many of the typical summer activities are closed or modified. So for a child with autism (and their parents) the end of distance learning, limited or cancelled therapies, no places to go, facing summer break probably seems daunting!

As autism parents know, having a predictable schedule helps kids on the autism spectrum make sense of their world, knowing what to expect from day to day and sometimes hour to hour. So even in your exhaustion from the past few months, it’s time to prepare for summer break.

Are you wondering how do you facilitate a summer break that provides the structure your child with autism needs? Not to mention doing this during the new world of social distancing, closed playgrounds and pools, cancelled summer camps and vacations? It may seem overwhelming. But we’ve got some simple tips to help you and your child survive summer break in our new COVID-19 world! (And these can help typical kids too.) Whether you will be home with your kids, you have someone coming it to care of them while you work, or they will be doing summer therapies, these ideas may help.

Celebrate the End of Distance Learning!

Let’s face it, this school year has been like no other! So it’s definitely something to celebrate the end of distance learning and all the extra responsibilities you’ve taken on. You can start off summer break with an activity or treat. From something simple like getting take-out from their favorite restaurant or going out for ice cream – yes many are open here in Michigan! Or you could throw an “end of school year” party with balloons, games, fun snacks and a dance party. What you and your children have been through is worthy of a celebrating!

Create a Summer Schedule

As you may have done during this time of distance learning, use visuals to show what your child’s “typical” weekdays and weekends will be on a calendar. And then create a “typical day” schedule to show when they will get up, get dressed, eat meals, activities, and outings. So if they are able to resume some in person therapies, or you take a daily walk or ride in the car,  put them in the schedule to show them what to expect. And for days at home, read on for how to have a schedule on those days too. 

Help reduce anxiety of “the unknown” by reviewing the schedule each day, or even the night before, so they know what will be happening. Here is one example you can download. A quick Google or Pinterest search will offer a variety of options.

Sticking to a Schedule Has Benefits

Traditionally summer break is an easy time to get too relaxed and let go of any set schedule. But the more you can stick to a routine for bedtime and wake up time, meals and limiting screen time, the more well-regulated your child will hopefully be.

Online Therapies & Camps

Not that we want to encourage even more screen time, but there are some great opportunities to make your child’s screen time purposeful! If they are able to attend and engage with short amounts of screen learning, you can look into some online camp opportunities. There are so many programs popping up due to in person camps being closed. From educational classes to keep their learning progressing, to Lego camps, coding, dance, art, music, and more!

And if your child typically receives ESY (Extended School Year) services, but are missing out on important therapies over the summer, consider telehealth speech and occupational therapies. Many providers are now offering them, including our team!

Have A Summer Break Rules Chart

The never-ending requests for the iPad, video games and TV can be managed to a degree with a Summer Vacation Rules list that details out the things they need to do BEFORE they get to use any technology. The rules can include chores like getting dressed, brushing teeth, making their bed, cleaning their room, and more advanced chores for older kids. You can also have a rule for playing – inside and outside for specific amounts of time, as wells as a bit of academic work that is age appropriate – reading for 30 minutes, writing a story, art or coloring for 20 minutes. Here’s one example from Thirty Handmade Days.

Back Up Plans Teach Flexibility

For some kids, they may have learned to be more flexible with change during the Stay Home order and learning a completely new routine. But if not, work on teaching your child about a backup plan or “Option A” and “Option B”. If your schedule is to go visit their cousin’s house, but someone in the house isn’t feeling well, talk with them about a backup plan in case you can’t go that day. Reviewing with them what you will do if they can’t do what’s on the schedule will help reduce behaviors associated with a “change in plans”.

We hope these ideas help you create some structure AND fun for you and your family during this summer like no other! Remember to take it one day at a time.

What are some ways you survive the summer months with your child with autism? Let us know in the comments! And if you’re looking for help for your child with autism this summer, learn how we’ve adjusted our programs for our new COVID-19 world.

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How to Manage Your Stress in Uncertain Times

As the Coronavirus global pandemic continues to be a major crisis, we all are in uncharted territory in our lives and our country. The stay at home orders continue and schools are closed through the end of the school year here in Michigan. The unknowns can be very stressful, where do we even begin to manage this stress? In addition, taking on new responsibilities of becoming teachers to our kids, managing the complete shake up routines, some have lost jobs and income – these are all incredible stressors. We are navigating being in close quarters with the same people day after day, as well as the fear of getting this novel virus. Social distancing also causes us to miss out on important socialization and support of our community. And on top of all of this, families of kids with autism and other special needs have additional unique stressors to manage!

So where do you even begin to manage your own stress so that you can be a more effective and present parent and partner to your family? Let’s first start with understanding how stress impacts our bodies and what it can look like so you can identify it. Then we’ll look at our perspective in stressful situations and how we can direct it. And then finally we’ll provide a variety of tools and techniques to help you manage your stress.

Stress and Our Bodies

Our bodies were designed to engage in the stress response for life-threatening situations – fight, flight or freeze response. Think lions in the brush. So, even when the stressor is not life-threatening, our bodies react inside like it is. Hormones in our bodies lead us to the fight, flight or freeze response. When our stress response kicks in, our behaviors and thinking patterns becomes less flexible. Also, chronic stress breaks down the body leading to a weakened immune system and an increased likelihood of disease.

What Stress Might Look Like

Mental

  • Trouble thinking clearly
  • Memory problems
  • Can’t concentrate
  • Short attention span
  • Poor judgement
  • Anxious or racing throughs
  • Constant worrying

Physical

  • Tightness in muscles
  • Aches and pains
  • Headaches, trembling, sweating
  • Nausea, dizziness
  • Chest pain, rapid heartbeat
  • Loss of appetite
  • Lack of sleep, nightmares

Emotional

  • Moodiness
  • Easily upset or hurt
  • Irritability or short temper
  • Agitation, unable to relax or keep still
  • Feeling overwhelmed
  • Sense of loneliness and isolation
  • Depression or general unhappiness

Behavioral

  • Eating more or less
  • Sleeping too much or too little
  • Isolating yourself from others
  • Procrastinating or neglecting responsibilities
  • Using alcohol, cigarettes or drugs to relax
  • Nervous habits like nail biting, pacing, etc.

5 Myths About Stress

The following are some common misconceptions regarding stress:

  1. Myth: In an ideal world, there would be no stress.
    Truth: A little stress is natural and healthy and can help motivate us.
  2. Myth: What is stressful to me is stressful to you.
    Truth: Perspective, culture & personal history play a role.
  3. Myth: Only unpleasant situations are stressful.
    Truth: New job, new home & a new love can all be positive AND stressful.
  4. Myth: No symptoms, no stress.
    Truth: Symptoms are a warning sign but might not be present or you might not be tuned into symptoms.
  5. Myth: Stress is inevitable, so you can’t do anything about it.
    Truth: Techniques can be learned to prevent some stress & be less impacted by stress that you can’t control.

Perspective Is Key

Our perspective of the situation we are in is KEY. Worrying about things we cannot control is not only fruitless but can be self-destructive. There are certain behavioral patterns associated with interpreting events less stressfully:

  1. Viewing potentially stressful events as interesting and meaningful
  2. Considering change as normal and an opportunity for growth
  3. Believing oneself as capable of having influence on some events

You Have a Choice in How Your Respond to Stressful Situations

In most situations, stress begins with a thought. We may not be able to control the event, but we can control our response to the event. Our choice is to respond with curiosity, interest, and an open-mind  (solution-orientated) or to respond with a closed mind, negative, dismissive & hopeless.

More effective ways to respond to a stressful situation include:

  • Gratitude: “I appreciate….”, “I am thankful for…”
  • Acceptance: “It’s ok….”, “I can go with the flow…”
  • Discovery: “I wonder…”, “What can I learn from this?”
  • Observation: “I am noticing….”

Identifying and Understanding Your Values

80th Birthday Party Exercise

A great way to identify and understand what your values are is to think about what you would want people to say about you at your 80th birthday part. Write down the qualities and characteristics you want people to know you for. Assess what is most important in your life. When your choices are guided by the values and goals that are most important to you, your life can be full and active, yet not stressful.

The Choice Point

Your choices either take you toward who you want to be, or away from who you want to be. The Choice Point is being in a difficult moment and experiencing difficult sensations and making a choice to move towards your values or away from your values. Taking action at a point in time that leads you towards your values, leads you to a more fulfilling life. Take a look at this video – The Choice Point: A Map for a Meaningful Life.

Psychological Flexibility

As mentioned earlier, our stress response kicks in, our behaviors and thinking patterns becomes less flexible. So here are some ways we can train ourselves to have psychological flexibility.

  • Being here now means being in the present moment (as opposed to thinking of the past or the future).
  • Accepting the way I feel means not avoiding unpleasant thoughts or feelings. Instead, sitting with them, experiencing them with compassion, curiosity and acceptance until they pass.
  • Noticing my thoughts means seeing thoughts as just thoughts. They come, they go. They are just what the brain does, makes thoughts. I don’t have to buy into my thoughts. They do not define me.
  • Doing what I care about means taking action to live life in accordance with my values.

Are Your Thoughts Helpful?

Check in with your actions or ‘away moves’ that take you away from your path, sometimes they are “good”, but not for long periods of times. If you are buying in to the story your mind is telling you, first take a moment to check out its WORKABILITY. Workability is when we see if our story helps us follow the path toward our meaningful life or does it move us away?

Thank your mind for your thoughts. This means you don’t have to buy into your thoughts. You can see them for what they are, thoughts. It also means you are not trying to replace your thoughts with more desirable thoughts, nor are you trying to stop or reduce your thoughts.

Avoidance

Avoiding our negative feelings and thoughts will not lead us to our values but to more suffering.

Avoidance of thoughts actually increases those thoughts in both frequency and strength and therefore their burden upon us.

Mindfulness

Instead of avoiding our thoughts and feelings, embracing the present moment and sitting with those thoughts and feelings, in a non-judgmental way, with curiosity and acceptance, helps us move toward our values. Mindfulness is the intentional, accepting and non-judgmental focus of one’s attention on the emotions, thoughts and sensations occurring in the present moment.

A few mindfulness resources to check out:

5 Myths of Mindfulness – Dr. Russ Harris (3:25 min)

Body Scan – Dr. Joseph Ciarrochi (27 min) http://josephciarrochi.com/wp-content/uploads/2019/03/body_scan.mp3

Awareness of the breath – M. Rassmusen (10 min)  https://contextualscience.org/files/Mindfulness%20of%20Breath%20Rasmussen%20mp3.mp3

Managing Your Stress

It’s important to find some relaxation methods that you can incorporate into your life for better management of your stress, which leads to better health!

Taking care of yourself

Some of these seem like a no-brainer, but it’s a good reminder that during stressful times, these basic elements can help tremendously in managing your stress.

  • Exercise – Even minimal exercise leaves you feeling better!
  • Good Food – Fuel your body with healthy foods. Whole grains, fresh fruits and veggies.
  • Sleep – Find ways to get that 8 hours of sleep. Get creative if needed.
  • Be realistic with your expectations for yourself and others.
  • Have patience and grace with yourself and others.
  • Use perspective taking to help understand other people – How you express your emotions, might not be the same as others.
  • Take a moment away for yourself when you need it.

Guided Imagery & Meditation

Guided Imagery & Meditation are essentially methods of focus. Focus on the breath, on a light, on a mantra. Benefits include decreased stress, increased focus, better sleep, improved heart health and immunity. Many exercises can be found on-line. Find one that resonates with you and find a quiet place to focus on yourself.

Yoga

Yoga has many variations. Find the one that fits your needs and a quiet place to practice. Yoga increases strength, flexibility and mindfulness and improves balance, focus and posture. It has been demonstrated to decrease stress, anxiety, improve health factors such as heart and immune health, improve sleep and focus. Many apps and YouTube resources are available for your quarantine time.

The Joys of Quarantine?

It may seem like an oxymoron but try to find the joys of quarantine. It could be any number of things.

  • More time with your children
  • More time to connect as a family
  • Getting back to basics
  • More time to be mindful
  • More time to ponder our values

How to Manage Your Stress Recap

Check in with your stress levels during this unprecedented time. Look to see how your perspective is influencing your thoughts. Look at your choices to respond. Remember your values and what actions lead you toward them and which ones lead you away from them. Be psychologically flexible: “I am here now, accepting the way I feel, and noticing my thoughts, while doing what I care about.” Avoidance of negative thoughts just gives them more power, acceptance is more adaptive. Utilize stress management techniques like intentional focus on taking care of yourself, mindfulness, yoga, guided imagery and more! We hope these recommendations and resources are helpful as you seek to manage your stress during these challenging days.

Need Additional Help?

Acceptance and Commitment Therapy Resources

ACT books

  • Get Out of Your Mind and into Your Life by Steven C. Hayes
  • The Happiness Trap by Russ Harris
  • Act Made Simple by Russ Harris
Counseling Services

Seek out professional support. We and many others have telehealth counseling services available during this time. And our counselors understand the complexities of being a parent to a child with autism. Contact us today for more details.

This content is from a webinar Dr. Jennifer Thomas, PhD, BCBA-D, LBA, Director of Clinical Standards at Healing Haven, and Danielle Harrison, MA, LPC, Counselor at Healing Haven presented to parents. You can download a copy of the slides here.